News Archives

Review the latest research and industry news for interstitial cystitis and bladder pain syndrome, as well as the related conditions of pelvic floor dysfunction, chronic pelvic pain syndrome, vulvodynia, chronic prostatitis, irritable bowel syndrome and functional somatic syndrome. The Interstitial Cystitis Network is the largest patient support group in the world. Founded in 1995, we provide health education materials, an e-newsletter read by more than 25,000 patients and providers and our magazine, the IC Optimist.

Social Security Releases Updated Ruling on Interstitial Cystitis Effective March 18, 2015

Great news today! The Social Security Administration has published a NEW Social Security Ruling (SSR) in the Federal Register on March 18, 2015, for evaluating interstitial cystitis (IC) in adults and children. The SSR takes effect immediately. New SSR 15-1p rescinds and replaces prior SSR 02-2p for establishing IC as a medically determinable impairment (MDI) [...]

By Jill Osborne|2017-01-31T10:36:59-08:00March 19th, 2015|News, Our Blog|Comments Off

Winter 2015 IC Optimist Now Available – Economic Toll of Elmiron

The Winter 2015 IC Optimist is now available! Our ICN subscribers should receive their copies in the coming week! The IC Optimist is the quarterly magazine of the Interstitial Cystitis Network, read by patients and medical care providers throughout the world! Individual subscriptions are $25 by email and $50 in print. In this issue: (1) [...]

By Jill Osborne|2017-01-31T10:37:55-08:00February 26th, 2015|ICN Announcements, News, Our Blog|Comments Off

January 2015 ICN E-Newsletter Now Available

The January 2015 ICN E-Newsletter is now available! If you're looking for the latest news, resources, blogs, videos on interstitial cystitis and its related conditions, you've come to the right place! In this issue: Three Surveys You Can Take TODAY to Help The IC Movement Child with IC Needs Help - Doctors and Treatments Best [...]

By Jill Osborne|2017-01-31T10:39:42-08:00January 17th, 2015|ICN Announcements, News, Our Blog|Comments Off

Common IC Medications, Anticholinergics, May Pose Risk For Seniors

(Editors Note: Earlier this week, I received a phone call from an older IC patient who was suffering from severe side effects while using Amitriptyline. While it was helping reduce her pain, she was struggling with side effects. In talking with her, one thing that I noticed was that she was having trouble following the conversation. She [...]

By Jill Osborne|2017-01-31T10:40:32-08:00January 17th, 2015|Consumer Alerts, Our Blog|Comments Off

The Best IC & Pelvic Pain Moments of 2014 – The Best Blog, Rant, Research, Book & Patient Projects

By Jill H. Osborne MA From Dr. Drew’s astonishing rant about IC and endometriosis last Spring to a patient fundraising project which raised over $4000 for IC research this Fall, we share the highlights and “best of” moments in 2014! Do you agree? Most Promising Treatment of 2014 - LiRIS I continue to believe that [...]

By Jill Osborne|2017-01-31T10:43:13-08:00December 31st, 2014|Awareness, ICN Announcements, Jill's Journal, News, Our Blog|Comments Off

New IC Treatments Use Liposomes To Deliver BotoxA Into The Bladder

By Jill Heidi Osborne MA Very interesting Botox study crossed my desk today. As you probably know, Botox A has been used for the treatment of various bladder conditions for several years now. Though it's not approved specifically for the treatment of interstitial cystitis, it is a STEP FOUR treatment option in the AUA's IC/BPS [...]

By Jill Osborne|2017-01-31T10:44:58-08:00December 15th, 2014|Industry News, News, Our Blog, Research, Treatments|Comments Off

Acidiphilus and IC – Should we take it?

Taking a natural approach to the treatment of any condition, including interstitial cystitis, makes certain sense. And if you look at the American Urological Association guidelines for the treatment of IC, they embrace the use of nutraceuticals in Step One of their treatment guidelines along with other self-help strategies. But, we should not assume [...]

By Jill Osborne|2017-01-31T10:48:13-08:00December 9th, 2014|Consumer Alerts, Our Blog, Self-Help Tips for IC, Bladder & Pelvic Pain|Comments Off

IC Research Survey About Pain and IC Needs Men & Women To Participate

If you do just one thing today for IC, I hope that you will participate in this very important IC research study! Dr. Dean Tripp (Queen's University, Kingston ON Canada) is conducting one of the most intriguing studies that I've seen in years. In "How Pain and IC/BPS Symptoms Are Associated With Patient Quality of [...]

By Jill Osborne|2017-01-31T10:53:58-08:00November 17th, 2014|ICN Announcements, Interstitial Cystitis IC/BPS, News, Our Blog, Research|Comments Off

Fall 2014 IC Optimist Released – Stories on IC Treatments, Latest Research, Pelvic Organ Prolapse, IC Diet & More

In this issue: (1) ICN Editorial - What are you willing to do to get better? This issue begins with an editorial about a woman who, after years of struggling with bladder pain, admitted that she had never read a book, an article or even a website about IC. She was the epitome of a [...]

By Jill Osborne|2017-01-31T10:54:45-08:00November 14th, 2014|Diet & Food, IC Diet Project, ICN Announcements, Interstitial Cystitis IC/BPS, News, Our Blog|Comments Off

ICN E-Newsletter – October 24, 2014 – New IC Treatment Guidelines Released, Clinical Trial, Research & Clinic News

Looking for the latest news about IC? The October issue of the ICN E-newsletter has been released. Read it now at: https://www.ic-network.com/newsletters/weekly1014.html In this issue: #1 - IC Treatment Guidelines Updated - Pelvic floor therapy expanded - BotoxA Reclassified #2 - ICN Clinical Trial & Research Update - Two New Studies #3 - Upcoming Patient [...]

By Jill Osborne|2017-01-31T10:55:14-08:00October 24th, 2014|ICN Announcements, News, Our Blog|Comments Off

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