ICN World Center - Sharing Information on Support Groups and Patient Organizations Around The World

This is a list of the organizations and/or international IC clinicians to date and is subject to change. If you have a new organization to list or you are aware of an organization which has changed or folded, please let us know by sending an email to: supportgrouplistings@ic-network.com.

Argentina

ARACI Asociación Rosarina Afectados Cistitis Intersticial
President: Liliana Bacchi
Dorrego 3857-DTO.1
2000 Rosario, Argentina
Tel: 0341-4644164
http://www.araci.org.ar/
menadel_dan@hotmail.com

Fundacion Geiser: Geiser Foundation
Linkage, Research and Support Group for Rare Diseases
Avellaneda 595, Ciudad de Mendoza, Argentina
Tel: (54911) 15-5503-9901, Tuesday to Friday, 14.00 to 18.00 (Argentina time)
fundgeiser@yahoo.com.ar

Australia

Interstitial Cystitis Support Group of Australia
Chairman: Dr. Katya Buc Stooke
ICSG Australia
PO Box 144, Richmond, VIC 3121
katyabuc@hotmail.com

Interstitial Cystitis Support Group (*This group may be inactive)
Mercy Hospital for Women
Clarendon Street,
East Melbourne, 3002 Victoria
Contact: Christine Murray – cjmurray@mercy.com.au

Continence Foundation of Australia
AMA House 293 Royal Parade Parkville Victoria 3052
Membership Officer: Meri Kimova
Tel 61 3 9347 2522
Fax 61 3 9347 2533

Austria

ICA Osterreich e. V.
Irisweg 4
A-4623 Gunskirchen, Austria
Chairman: Brigitte Annerl
http://www.ica-austria.at/
ica-austria@gmx.at

Belgium

Interstitiële Cystitis Patiëntenvereniging België (ICPB)
Contact person: Josee Van de Bergh-De Raa
P. Benoitstraat 49
1800 Vilvoorde
België
Tel: 00-32-(0)2-253 93
http://www.icpb.be
info@icpb.be

Bolivia

La Paz IC Support Group
Maria Eulalia Anker
+591-2-271-2761
eulalia@ceibo.entelnet.bo

Brazil

Interstitial Cystitis Patient Support North East Brazil
Contact person: Ariel Scafuri, MD
Universidade Federal do Ceará
Rua Republica do Libano, 88 apto 200
Fortalexa, Ceará
Brazil 60160-140
tel: 55-8524239-99970367
ascafuri@uol.com.br

Fernando Almeida, MD. PhD
Female Urology & Voiding Dysfunction
Federal University of Sao Paulo UNIFESP-EPM
Tel: 55-11-5576 4086
website: www.drfernandoalmeida.com.br
University hospital website: www.uroepm.com.br

Canada

Vancouver IC Support Group
info.icvancouver@gmail.com

Victoria IC Support Network
Group Contact: Colleen McGavin 250-477-7855

Interstitial Cystitis & Painful Bladder Syndrome Support Group of Ottawa – ONTARIO
Contacts: Inga Legere – 613-839-6188 or Anne – 613-733-5891
Meets quarterly for patients who are struggling with interstitial cystitis.

Kitchener-Waterloo IC Support Group – ONTARIO
Group contact: Ann 519-896-1778 kwicsmail@gmail.com or Kathy 519-570-9045 calvert89@rogers.com
Please see website for meeting dates and information
Web Page: http://www.skatecrooked.com/kwics/

Czech Republic

Libor Zamecnik, MD
Urologicka Klinika
VFN a 1. LF UK, Ke Karlovu 6
128 08 Praha 2
Czech Republic
libor.zamecnik@lf1.cuni.cz

Denmark

IC Foreningen
Chairman: Elly Jung
http://www.icforeningen.dk/
graphicsd@gmail.com

Steinunn Joergensen
Project Nurse
Department of Urology
Herlev Hospital, University of Copenhagen
DK-2730 Herlev, Denmark
stjr@herlevhosp.kbhamt.dk

France

Association Française de la Cystite Interstitielle
Chairman: Françoise Watel
82 rue Albert
75013 Paris, France
http://asso.orpha.net/AFCI/cgi-bin/
ci_france@hotmail.com

Association Francaise d’Algies Perineales & Nevralgies Pudendales (AFAP-NP)
President: Marie Boutet
60 rue Truffaut
75017 Paris, France
http://www.afap-np.com
email: contact@afap-np.com

Germany

ICA Deutschland ceased operations in 2022. There are active IC groups throughout Germany but we have no list of where they are and who are running them. 

Greece

Center for Urologic and Pelvic Pain
Contact: Konstantinos Kalyvas, MD
Chalkidis 51, Building A2
GR 555 35
Pilea, Thessaloniki
Makedonia, Greece
Tel-Fax 0030 2310-32 40 20
http://www.cppc.gr/
kalyvas@cppc.gr

India

Nagendra Mishra, MD
Interstitial Cystitis Center
2nd floor, Shantam complex
Gurukul road, Opp Navneet House
Memnagar, Ahmedabad-380061, India
tel: 917927497083
fax: 917940054104
http://www.interstitialcystitiscenter.in/
nagendraad1@yahoo.com

New 12/16!  IC Patient Support Group Leader
Ms. Balaka Basu
Blog – http://interstitialcystitis-india.blogspot.in
Facebook – https://www.facebook.com/groups/1803197073289466/

Israel (New 9/2020)

IC Isreali Association
Yafit Avidan
https://www.shalpuchit.co.il

Italy

Associazone Italiana Cistite Interstitiziale
Viale Glorioso 1
000153 Roma ITALY
http://www.aicionlus.org/
aici@mclink.it

Japan

IC Tomonoki
Chairman: Masako Katsurada
1459-56, Funaki-Cho Oumihachiman
Shiga 523-0084 Japan
tel/fax: 81-748.338222
http://www.tomonoki.org
info@tomonoki.org

Comfortable Urology Network (CUN)
http://www.hainyo-net.org/
info@hainyo-net.org

Kenya

East Africa IC Support Group Nakuru Chapter
Chairman: James G. Mwangi
P.O. Box 16521
Nakuru 20100
Kenya
+245720391104
jgmwangi2003@yahoo.com

Mexico

ASOCIACION DE CISTITIS INTERSTICIAL MEXICO
A.C.President: Florentina Ferreyra Lopez
Cerezos 87 casa 41
Col. Jardines de Atizapan
Atizapan de Zaragoza, Edo. De Mex.
Mexico CP 52978
http://www.aci-mexico.com
Tel: +52(55)54-04-89-16

Netherlands

Interstitiële Cystitis Patiëntenvereniging
Secretariaat ICP
Postbus 4
3980 CA Bunnik
tel: 030-29 62 965
fax: 030-29 48 503
Chairman: Joke Scholten
http://www.icpatienten.nl/
info@icpatienten.nl

New Zealand

Interstitial Cystitis/Urology Support Group of New Zealand
Chairman: Dot Milne
P.O. Box 33-264
Christchurch, New Zealand
tel: 64-3-3294005
weedot@xtra.co.nz

Norway

NOFUS
Telefon : 55 95 35 88 – 55 33 09 30
Telefaks : 55 33 09 31
Chairman: Bernt Kvarstein MD
http://www.nofus.no/
kvarste@online.no

Peru

Fernando Leon MD
Lord Nelson 431,
Miraflores
Lima 18 Peru
ferleon@terra.com

Poland

Piotr Radziszewski MD 
Department of Urology
Warsaw School of Medicine
pradziszewski@poczta.onet.pl

Portugal

Paulo Dinis Oliveira MD
Department of Urology,
Hospital S. Joao
4200 Porto
Portugal

Romania

Andrei Manu-Marin, MD
website: http://www.cistita.ro
andri_66@yahoo.com

South Africa

The IC Support Group of South Africa
Contact: Dawn Zimmerman
DawnZimmermann@gmail.com

Spain

ABATYCI
President: Maria del Rosario Fernandez Garcia
Calle Sineu 2 (Adosado C)
07220 Pina, Mallorca
tel: 971-66 53 22
http://usuarios.tripod.es/abatyci/
abatycipina@hotmail.com

Asociacion Catalana de Afectados de Cistitis Intersticial (ACACI)
also: http://www.acaci.tk
President: Monica Hernandez
C/Pareto, 55 Atico 3a
08902 L’Hospitalet de Llobregat
Barcelona, Spain
http://www.acaci.com.es/
asociacionacaci@hotmail.com

Sweden

Swedish Chronic Prostatitis Network (ISOP)
http://home.swipnet.se/isop/
Lennart Branthle
sm7gei@swipnet.sw

Taiwan

Taiwan Interstitial Cystitis Association (TICA)
http://www.twica.org.tw
icatw@mail.taic.doh.gov.tw

England

New in 2014! IC Support Society – A London based IC support group!
67-68 Hatton Garden, Unit 34
London, UK  EC1N8JY
http://www.ic-society.com
taylorrashmi@gmail.com

COB Foundation
76 High Street
Stony Stratford, Bucks MK11 1AH
United Kingdom
tel/fax: 44-1908-569169
http://www.cobfoundation.org
info@cobfoundation.org

Pelvic Pain Support Network
PO Box 6559
Poole
Dorset BH12 9DP, United Kingdom
Website: http://www.pelvicpain.org.uk
info@pelvicpain.org.uk

USA

Interstitial Cystitis Network ICN (National)
*health education company
PO Box 2159, Healdsburg, CA 95409 USA
tel: 1-707-538.9442
fax: 1-707-538.9444
https://www.ic-network.com
jill@ic-network.com

Pure-Hope
President: Cindy Sinclair
281-500-4656
http://www.pure-hope.org

Interstitial Cystitis Association ICA (National)
1760 Old Meadow Road, Suite 500
McLean, VA  22012703-442-2070
http://www.ichelp.org
icamail@ichelp.org

International

International Painful Bladder Foundation 
Burg. Le Fèvre de Montignylaan 73
3055 NA Rotterdam
The Netherlands
Tel/fax : +31-10-4613330
Website: http://www.painful-bladder.org