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International IC/BPS Organizations 2017-01-18T11:58:48+00:00

ICN World Center - Sharing Information on Support Groups and Patient Organizations Around The World

This is a list of the organizations and/or international IC clinicians to date and is subject to change. If you have a new organization to list or you are aware of an organization which has changed or folded, please let us know by sending an email to: supportgrouplistings@ic-network.com.

Argentina

ARACI Asociación Rosarina Afectados Cistitis Intersticial
President: Liliana Bacchi
Dorrego 3857-DTO.1
2000 Rosario, Argentina
Tel: 0341-4644164
http://www.araci.org.ar/
menadel_dan@hotmail.com

Fundacion Geiser: Geiser Foundation
Linkage, Research and Support Group for Rare Diseases
Avellaneda 595, Ciudad de Mendoza, Argentina
Tel: (54911) 15-5503-9901, Tuesday to Friday, 14.00 to 18.00 (Argentina time)
fundgeiser@yahoo.com.ar

Australia

Interstitial Cystitis Support Group of Australia
Chairman: Dr. Katya Buc Stooke
ICSG Australia
PO Box 144, Richmond, VIC 3121
katyabuc@hotmail.com

Interstitial Cystitis Support Group (*This group may be inactive)
Mercy Hospital for Women
Clarendon Street,
East Melbourne, 3002 Victoria
Contact: Christine Murray – cjmurray@mercy.com.au

Continence Foundation of Australia
AMA House 293 Royal Parade Parkville Victoria 3052
Membership Officer: Meri Kimova
Tel 61 3 9347 2522
Fax 61 3 9347 2533

Austria

ICA Osterreich e. V.
Irisweg 4
A-4623 Gunskirchen, Austria
Chairman: Brigitte Annerl
http://www.ica-austria.at/
ica-austria@gmx.at

Belgium

Interstitiële Cystitis Patiëntenvereniging België (ICPB)
Contact person: Josee Van de Bergh-De Raa
P. Benoitstraat 49
1800 Vilvoorde
België
Tel: 00-32-(0)2-253 93
http://www.icpb.be
info@icpb.be

Bolivia

La Paz IC Support Group
Maria Eulalia Anker
+591-2-271-2761
eulalia@ceibo.entelnet.bo

Brazil

Interstitial Cystitis Patient Support North East Brazil
Contact person: Ariel Scafuri, MD
Universidade Federal do Ceará
Rua Republica do Libano, 88 apto 200
Fortalexa, Ceará
Brazil 60160-140
tel: 55-8524239-99970367
ascafuri@uol.com.br

Fernando Almeida, MD. PhD
Female Urology & Voiding Dysfunction
Federal University of Sao Paulo UNIFESP-EPM
Tel: 55-11-5576 4086
website: www.drfernandoalmeida.com.br
University hospital website: www.uroepm.com.br

Canada

Vancouver IC Support Group
info.icvancouver@gmail.com

Victoria IC Support Network
Group Contact: Colleen McGavin 250-477-7855

Interstitial Cystitis & Painful Bladder Syndrome Support Group of Ottawa – ONTARIO
Contacts: Inga Legere – 613-839-6188 or Anne – 613-733-5891
Meets quarterly for patients who are struggling with interstitial cystitis.

Kitchener-Waterloo IC Support Group – ONTARIO
Group contact: Ann 519-896-1778 kwicsmail@gmail.com or Kathy 519-570-9045 calvert89@rogers.com
Please see website for meeting dates and information
Web Page: http://www.skatecrooked.com/kwics/

Czech Republic

Libor Zamecnik, MD
Urologicka Klinika
VFN a 1. LF UK, Ke Karlovu 6
128 08 Praha 2
Czech Republic
libor.zamecnik@lf1.cuni.cz

Denmark

IC Foreningen
Chairman: Elly Jung
http://www.icforeningen.dk/
graphicsd@gmail.com

Steinunn Joergensen
Project Nurse
Department of Urology
Herlev Hospital, University of Copenhagen
DK-2730 Herlev, Denmark
stjr@herlevhosp.kbhamt.dk

France

Association Française de la Cystite Interstitielle
Chairman: Françoise Watel
82 rue Albert
75013 Paris, France
http://asso.orpha.net/AFCI/cgi-bin/
ci_france@hotmail.com

Association Francaise d’Algies Perineales & Nevralgies Pudendales (AFAP-NP)
President: Marie Boutet
60 rue Truffaut
75017 Paris, France
http://www.afap-np.com
email: contact@afap-np.com

Germany

ICA Deutschland
Untere Berg 21
D-53881 Euskirchen
Euskirchen Deutschland
49.2251.76729
FAX: 49.2251.76720
Chair: Barbara Muendner-Hensen
http://www.ica-ev.de/
(German)
info@ica-ev.de

Greece

Center for Urologic and Pelvic Pain
Contact: Konstantinos Kalyvas, MD
Chalkidis 51, Building A2
GR 555 35
Pilea, Thessaloniki
Makedonia, Greece
Tel-Fax 0030 2310-32 40 20
http://www.cppc.gr/
kalyvas@cppc.gr

India

Nagendra Mishra, MD
Interstitial Cystitis Center
2nd floor, Shantam complex
Gurukul road, Opp Navneet House
Memnagar, Ahmedabad-380061, India
tel: 917927497083
fax: 917940054104
http://www.interstitialcystitiscenter.in/
nagendraad1@yahoo.com

New 12/16!  IC Patient Support Group Leader
Ms. Balaka Basu
Blog – http://interstitialcystitis-india.blogspot.in
Facebook – https://www.facebook.com/groups/1803197073289466/

Italy

Associazone Italiana Cistite Interstitiziale
Viale Glorioso 1
000153 Roma ITALY
http://www.aicionlus.org/
aici@mclink.it

Japan

IC Tomonoki
Chairman: Masako Katsurada
1459-56, Funaki-Cho Oumihachiman
Shiga 523-0084 Japan
tel/fax: 81-748.338222
http://www.tomonoki.org
info@tomonoki.org

Comfortable Urology Network (CUN)
http://www.hainyo-net.org/
info@hainyo-net.org

Kenya

East Africa IC Support Group Nakuru Chapter
Chairman: James G. Mwangi
P.O. Box 16521
Nakuru 20100
Kenya
+245720391104
jgmwangi2003@yahoo.com

Mexico

ASOCIACION DE CISTITIS INTERSTICIAL MEXICO
A.C.President: Florentina Ferreyra Lopez
Cerezos 87 casa 41
Col. Jardines de Atizapan
Atizapan de Zaragoza, Edo. De Mex.
Mexico CP 52978
http://www.aci-mexico.com
Tel: +52(55)54-04-89-16

Netherlands

Interstitiële Cystitis Patiëntenvereniging
Secretariaat ICP
Postbus 4
3980 CA Bunnik
tel: 030-29 62 965
fax: 030-29 48 503
Chairman: Joke Scholten
http://www.icpatienten.nl/
info@icpatienten.nl

New Zealand

Interstitial Cystitis/Urology Support Group of New Zealand
Chairman: Dot Milne
P.O. Box 33-264
Christchurch, New Zealand
tel: 64-3-3294005
weedot@xtra.co.nz

Norway

NOFUS
Telefon : 55 95 35 88 – 55 33 09 30
Telefaks : 55 33 09 31
Chairman: Bernt Kvarstein MD
http://www.nofus.no/
kvarste@online.no

Peru

Fernando Leon MD
Lord Nelson 431,
Miraflores
Lima 18 Peru
ferleon@terra.com

Poland

Piotr Radziszewski MD 
Department of Urology
Warsaw School of Medicine
pradziszewski@poczta.onet.pl

Portugal

Paulo Dinis Oliveira MD
Department of Urology,
Hospital S. Joao
4200 Porto
Portugal

Romania

Andrei Manu-Marin, MD
website: http://www.cistita.ro
andri_66@yahoo.com

South Africa

The IC Support Group of South Africa
Contact: Dawn Zimmerman
DawnZimmermann@gmail.com

Spain

ABATYCI
President: Maria del Rosario Fernandez Garcia
Calle Sineu 2 (Adosado C)
07220 Pina, Mallorca
tel: 971-66 53 22
http://usuarios.tripod.es/abatyci/
abatycipina@hotmail.com

Asociacion Catalana de Afectados de Cistitis Intersticial (ACACI)
also: http://www.acaci.tk
President: Monica Hernandez
C/Pareto, 55 Atico 3a
08902 L’Hospitalet de Llobregat
Barcelona, Spain
http://www.acaci.com.es/
asociacionacaci@hotmail.com

Sweden

Swedish Chronic Prostatitis Network (ISOP)
http://home.swipnet.se/isop/
Lennart Branthle
sm7gei@swipnet.sw

Taiwan

Taiwan Interstitial Cystitis Association (TICA)
http://www.twica.org.tw
icatw@mail.taic.doh.gov.tw

England

New in 2014! IC Support Society – A London based IC support group!
67-68 Hatton Garden, Unit 34
London, UK  EC1N8JY
http://www.ic-society.com
taylorrashmi@gmail.com

COB Foundation
76 High Street
Stony Stratford, Bucks MK11 1AH
United Kingdom
tel/fax: 44-1908-569169
http://www.cobfoundation.org
info@cobfoundation.org

Pelvic Pain Support Network
PO Box 6559
Poole
Dorset BH12 9DP, United Kingdom
Website: http://www.pelvicpain.org.uk
info@pelvicpain.org.uk

USA

Interstitial Cystitis Network ICN (National)
*health education company
PO Box 2159, Healdsburg, CA 95409 USA
tel: 1-707-538.9442
fax: 1-707-538.9444
https://www.ic-network.com
jill@ic-network.com

Pure-Hope
President: Cindy Sinclair
281-500-4656
http://www.pure-hope.org

Interstitial Cystitis Association ICA (National)
1760 Old Meadow Road, Suite 500
McLean, VA  22012703-442-2070
http://www.ichelp.org
icamail@ichelp.org

International

International Painful Bladder Foundation 
Burg. Le Fèvre de Montignylaan 73
3055 NA Rotterdam
The Netherlands
Tel/fax : +31-10-4613330
Website: http://www.painful-bladder.org