//Consumer Alerts

Consumer Alerts & FDA Recalls covering medications and other alerts affect interstitial cystitis, bladder and pelvic pain patients

Popular Urology Drug, Hyoscyamine, Recalled

Hyoscyamine sulfate, a popular drug use for urology patients struggling with incontinence, has been recalled by Virtus Pharmaceuticals. This recall is the result of irregular medication levels in the medication which can give patients either too much (super potent) or too little (sub potent) medication. Taking a product that is superpotent could result in hot/dry [...]

By | 2017-01-18T12:01:19+00:00 September 20th, 2016|Consumer Alerts, Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Popular Urology Drug, Hyoscyamine, Recalled

Nail Polish Toxins Found In Urine Could Influence Bladder Health

If you love getting a manicure or pedicure, a recent announcement by the Environmental Working Group will make you rethink the brands you might be using. Polishes by Sally Hansen, Essie, OPI, Revlon, Wet N Wild, Spa Ritual, Orly, theBalm, Nuance, Maybelline and Beauty without Cruelty contain a chemical called triphenyl phosphate (TPHP), known for its endocrine-disrupting [...]

By | 2017-01-18T12:02:36+00:00 October 21st, 2015|Consumer Alerts, Interstitial Cystitis Network Blog, Jill's Journal, Toxic Exposures, Women's Health|Comments Off on Nail Polish Toxins Found In Urine Could Influence Bladder Health

Why You Shouldn’t Load Up on NSAID’s for IC, Bladder or Pelvic Pain

When you struggle with IC and/or chronic pain and don't have access to traditional pain relievers, using an OTC pain relief pill may feel like your only option. Right? I, like most patients, turned to Advil and Tylenol to help reduce my bladder pain when I was first diagnosed. Seriously, IC can hurt terribly and if it's the [...]

By | 2017-01-31T10:12:34+00:00 July 14th, 2015|Consumer Alerts, Interstitial Cystitis Network Blog, Jill's Journal, Pain Care, Pelvic Pain|Comments Off on Why You Shouldn’t Load Up on NSAID’s for IC, Bladder or Pelvic Pain

Pain Relief Flurbiprofen Topical Creams Can Be Fatal To Pets – FDA alert

Editors Note - It's not unusual for IC and/or pelvic pain patients to use a variety of creams to help reduce pain. Today, the FDA issued an alert about flurbiprofen topical creams that could be fatal to companion animals (cats) in the household, apparently through exposure from the human who used the medication. Pet lovers [...]

By | 2017-01-18T12:03:33+00:00 April 17th, 2015|Consumer Alerts, Interstitial Cystitis Network Blog|Comments Off on Pain Relief Flurbiprofen Topical Creams Can Be Fatal To Pets – FDA alert

Common IC Medications, Anticholinergics, May Pose Risk For Seniors

(Editors Note: Earlier this week, I received a phone call from an older IC patient who was suffering from severe side effects while using Amitriptyline. While it was helping reduce her pain, she was struggling with side effects. In talking with her, one thing that I noticed was that she was having trouble following the conversation. She [...]

By | 2017-01-31T10:40:32+00:00 January 17th, 2015|Consumer Alerts, Interstitial Cystitis Network Blog|Comments Off on Common IC Medications, Anticholinergics, May Pose Risk For Seniors

Acidiphilus and IC – Should we take it?

Taking a natural approach to the treatment of any condition, including interstitial cystitis, makes certain sense. And if you look at the American Urological Association guidelines for the treatment of IC, they embrace the use of nutraceuticals in Step One of their treatment guidelines along with other self-help strategies. But, we should not assume [...]

By | 2017-01-31T10:48:13+00:00 December 9th, 2014|Consumer Alerts, Interstitial Cystitis Network Blog, Self-Help Tips for IC, Bladder & Pelvic Pain|Comments Off on Acidiphilus and IC – Should we take it?

Been Punished By Your Employer For Using The Restroom?

One Woman Forced To Pee in A Box, Then Gets Fired, After Repeatedly Asking For Restroom Access It's hard to believe that, in 2014, companies are still trying to punish people who need to use the restroom more frequently.  Case in point, Chicago's WaterSaver Faucet Company. Their union, Teamsters local 743, has filed a complaint with the [...]

By | 2017-01-31T12:40:56+00:00 July 16th, 2014|Awareness, Consumer Alerts, Editorial, Jill's Journal|1 Comment

Bladder Rape by Silver Nitrate

How One Patient Was Forced To Have A Treatment Without Her Consent (Author: Jill H. Osborne MA, President, IC Network) There is no excuse for what happened to a female IC patient THIS YEAR. Her primary care provider suspected that she had interstitial cystitis and referred her to a urologist in her community. She made [...]

By | 2017-01-31T13:11:43+00:00 April 7th, 2014|Awareness, Consumer Alerts, Editorial, Interstitial Cystitis Network Blog, Jill's Journal, Must Reads, News, Patient Stories|Comments Off on Bladder Rape by Silver Nitrate

Pesticides now linked to Parkinson’s Disease, Alzheimer’s, Endometriosis

You may wonder why the ICN is covering research for Parkinson's disease. This study demonstrates, yet again, that exposure to man made chemicals has the potential of causing serious chronic disease, in this case Parkinson's disease, in patients with a specific genetic makeup. Frankly, this comes as no surprise. A few days ago, another study [...]

By | 2017-01-31T13:17:25+00:00 February 6th, 2014|Consumer Alerts, Interstitial Cystitis Network Blog, News, Self-Help Tips for IC, Bladder & Pelvic Pain, Toxic Exposures|Comments Off on Pesticides now linked to Parkinson’s Disease, Alzheimer’s, Endometriosis

Interstim FDA Report – Battery Acid Leakage May Have Contributed to Patient Death

In a recent review of the FDA Maude Database, we found a very unusual report sharing the death of a patient that may have been related to battery acid leaking from their Interstim device. The report says: "It was reported the patient died on (b)(6) 2013 due to ¿acid leakage and parkinson's. It was stated [...]

By | 2017-01-31T13:22:54+00:00 January 27th, 2014|Consumer Alerts, News|Comments Off on Interstim FDA Report – Battery Acid Leakage May Have Contributed to Patient Death