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Fall 2014 IC Optimist Released – Stories on IC Treatments, Latest Research, Pelvic Organ Prolapse, IC Diet & More

Fall 2014 IC Optimist

In this issue:

(1) ICN Editorial
– What are you willing to do to get better? This issue begins with an editorial about a woman who, after years of struggling with bladder pain, admitted that she had never read a book, an article or even a website about IC. She was the epitome of a passive-aggressive patient who had refused to take action or responsibility to help herself. Hopefully, her story might inspire you to take that next step in your own IC journey.

(2) IC Treatment Guidelines Updated – The AUA treatment guidelines were revised and expanded to reflect new research from the past three years. This clearly shows that the medical community is actively asking “How can we better treat our IC and pelvic pain patients?”

(3) Identifying The Subgroups of IC – ICN Medical Advisory Board member Robert Evans shares some startling new research results about the possible subgroups of IC. We thought that the distinct group was Hunner’s lesions.. but it’s not.

(4) Big Step in Battling Bladder Disease – The most promising treatment currently under study is LiRIS which has been shown to heal the worst form of IC, Hunner’s lesions, after just two weeks of treatment. This article shares the latest LiRIS news, including its acquisition by a major pharmaceutical company!

(5) Clinical Trial News – A new clinical trial seeks men and women struggling with bladder pain

(6) Related Conditions: Pelvic Organ Prolapse – Stacey Shannon offers information on pelvic organ prolapse, a condition which occurs when the pelvic floor muscles become unusually weak. IC patients also share their story with vaginal mesh and the mesh recalls.

(7) IC Awareness Month Highlights – We share one of the most successful projects in this years IC Awareness Month campaign – 30 facts about IC!

(8) Self-Help Tip: Holiday Survival Strategies – If you’re a newly diagnosed patient or veteran IC’er, the holiday season is often stressful, particularly when travelling is difficult. We share some simple self help strategies!

(9) Perfect Together – The Spouse of an IC Patient Speaks Out – New IC Optimist contributors Sean Luggi and Heather Undorfer share the perspective of a spouse of an IC patient. “Perfect Together” is a brutally honest love story of two people who, with candor and integrity, navigate the challenges of life with IC.

(10) Simply Delicious, The IC Diet Project: The Things You Can Do With Squash – With the fall season comes some fabulous IC friendly foods. If you’re a pumpkin lover, you’ll have to try our recipes for Pumpkin Apple Streusel muffins and Pumpkin Drop Cookies with Cream Cheese frosting. Not looking for sweets? Then how about some butternut squash pasta sauce or soup? Simple recipes, great flavors and very bladder friendly!

(11) What’s New in the IC Shop: Introducing Releveum – Desert Harvest Aloe has introduced a fabulous new cream to treat sensitive, irritated and painful skin. From vulvodynia to shingles, this cream may help!

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About The Optimist

Here at the ICN, we have a very optimistic and encouraging point of view that we share through our magazine, the IC Optimist. Each quarterly issue contains practical, helpful and informative articles written by IC experts that will give you hope. From the latest research to interviews with the best clinicians in the world, we believe that you’ll find practical tips in every article that will help you better understand and/or manage your interstitial cystitis. Each issue also includes superb feature stories, self-help strategies, consumer awareness notices, IC diet articles and, whenever possible, patient stories. Best of all, your purchase of an ICN Subscription helps to make possible our free IC support services. We simply couldn’t offer the 300,000 free support sessions that we do each month without the generous support of our subscribers. We thank you for your help. You really do make this happen. – Jill Osborne, ICN Founder

By |2017-01-31T10:54:45+00:00November 14th, 2014|Diet & Food, IC Diet Project, ICN Announcements, Interstitial Cystitis IC/BPS, Interstitial Cystitis Network Blog, News|Comments Off on Fall 2014 IC Optimist Released – Stories on IC Treatments, Latest Research, Pelvic Organ Prolapse, IC Diet & More

About the Author:

My Google Profile+ Jill Heidi Osborne is the president and founder of the Interstitial Cystitis Network, a health education company dedicated to interstitial cystitis, bladder pain syndrome and other pelvic pain disorders. As the editor and lead author of the ICN and the IC Optimist magazine, Jill is proud of the academic recognition that her website has achieved. The University of London rated the ICN as the top IC website for accuracy, credibility, readability and quality. (Int Urogynecol J - April 2013). Harvard Medical School rated both Medscape and the ICN as the top two websites dedicated to IC. (Urology - Sept 11). Jill currently serves on the Congressionally Directed Medical Research Panel (US Army) where she collaborates with researchers to evaluate new IC research studies for possible funding. Jill has conducted and/or collaborates on a variety of IC research studies on new therapeutics, pain care, sexuality, the use of medical marijuana, menopause and the cost of treatments, shining a light on issues that influence patient quality of life. An IC support group leader and national spokesperson for the past 20 years, she has represented the IC community on radio, TV shows, at medical conferences. She has written hundreds of articles on IC and its related conditions. With a Bachelors Degree in Pharmacology and a Masters in Psychology, Jill was named Presidential Management Intern (aka Fellowship) while in graduate school. (She was unable to earn her PhD due to the onset of her IC.) She spends the majority of her time providing WELLNESS COACHING for patients in need and developing new, internet based educational and support tools for IC patients, including the “Living with IC” video series currently on YouTube and the ICN Food List smartphone app! Jill was diagnosed with IC at the age of 32 but first showed symptoms at the age of 12.