Home/Interstitial Cystitis Support Center/IC Support Groups In The US
IC Support Groups In The US 2017-09-18T15:40:13+00:00

Can you imagine how great it would feel to walk into a room filled with others who understand exactly what you’re going through?? Having IC is difficult at times… and doing it alone is unnecessary. Why recreate the wheel and try to figure this out on your own when there are dozens of independent IC support groups around the country who are waiting to help you! They will help you learn more about IC, about resources in your area and, most of all, to make some great new friends! Don’t suffer in silence at home, alone. If there is a group near you, call the group leader and introduce yourself!

– Do you have a group to list? Please email your group information to us at: supportgrouplistings@ic-network.com
– Interested in starting a group? Learn how in the ICN Support Group Resource Center

Alaska

None at present! Please consider starting a group!

Alabama

Arizona

  • Tucson IC support Group
    Marsha Crawford – tuazmom@gmail.com – 520-331-6065
  • Phoenix IC Support Group (Offering Phone Support Only)
    Barbara: (602) 441-3644 or barbara@mayimhayim.org
    Heather: (602) 689-2537 or heatherbarrowbrown@gmail.com
    Carolyn: 602-469-2766 or Carolyn.whitekrueger@gmail.com
  • Sierra Vista IC Support Group
    Carol – 520-458-1883

Arkansas

California

  • Irvine – Orange County IC Support Group
    Salpi Salibian, PA-C – (949)557-0190 – icocsg@gmail.com
  • San Diego IC Support Group
    Cathy Salazar-Martiarena – (858) 672-2249
    Terry Ward – (619) 266-2701

Colorado

  • Denver – Urology Center of Colorado
    303-825-8822
  • Fort Collins IC Support Group
    Amelia Raite IC – ameliaraiteic@gmail.com

Connecticut

  • New London Area IC Support Group
    Alyce Hemstreet – alycehemstreet@cs.com – 860-442-0711, ext. 5071 – (M-F, 8:00 AM to 5:00 PM)
    860-739-7504 (after 7:00 PM)
  • New Hartford IC Support Group
    Lisa Cushman – lisa@lisacushman.com
  • New Haven’t Yale Medical Group
    Cherrilyn Richmond, MS, WHNP-BC – 203-785-6927

Florida

  • Ft. Lauderdale – South Florida IC Support Group
    Beth Harris, PT DPT – 561-955-6125
  • Orlando – IC Support Group of Central Florida
    Amber Carter – 407-797-6717 – IC_Hope_CentralFlorida@yahoo.com
  • St. Augustine – Old City IC Support
    Marla Ray – mmartoglio@aol.com – 501-2959
  • Tampa – OPPT Pelvic Pain Support Group
    813-805-8108
  • Tampa – IC Support Group
    Tricia Trinque, M.H.E., Pt – 727-384-4600
  • Treasure Coast IC Support Group
    Michelle Lindsey – linzeyfive@yahoo.com – 772-971-4176

Georgia

Illinois

  • Dekalb IC Support Group
    Tracie Klug – Phone: (815) 761-4902
  • Dupage IC Support Group
    Jean – jboak@sbcglobal.net – 630-668-9800
  • Mt. Vernon – South Central IC Support Group
    Angie – sci_ic_group@yahoo.com – 618-925-4017
  • Naperville Women’s Center for Pelvic Medicine IC Support Group
    630.527.5120 – http://www.edward.org/pelvicpainsupport
  • Park Ridge NW Suburban IC Support Group
    Barb Zarnikow – Bzarnikow@aol.com – 847-478-9614
  • Peoria (Greater Central IL) IC Support Group
    Debbie Millis – icpbsinfo@comcast.net

Indiana

Iowa

Kansas

Kentucky

Louisiana

Maine

Maryland

Massachusetts

Michigan

  • Grand Rapids – Female Pelvic Medicine IC Support Group
    Elizabeth, dietitian – 616-588-1800
    Iantha – 616-588-1138
  • Michiana IC Support Group
    Marcia Koehler – 269-429-8860
  • Muskegon IC Support Group
    Jennifer Mosher, WHNP-BC, mosherjl@trinity-health.org, 231-727-7944
    Leslie Wooldridge, GNP-BC, CUNP, wooldrle@trinity-health.org, 231-727-7944
  • Port Huron – Blue Water IC Support Group
    Sherry Campbell – anitakure@comcast.net – 810-320-0224
  • Saginaw – Midwest Support Group for IC/CPP
    Laura Hintz NP – 989-799-4840
    Angie Powers – 810-694-3813 (home) or 248-321-5692 (cell)
  • St. Joseph IC Support Group
    Marcia Koehler – ewkoe@peoplepc.com – 269-429-8860
    Chris Volk – chester468@hotmail.com – 269-849-2165

Missouri

Mississippi

  • North MS Pelvic Floor Support Group (New – January 2017)
    Rosa Harville – rosasart@msn.com – 808-462-0452

Montana

Nebraska

  • Lincoln – IC Support Group of Nebraska – jho 10/13
    Jodi Willis – jodiwills83@yahoo.com – 402-489-8888 (Urology PC)

Nevada

  • New! Fall 2015 Reno – Bladder, Prostate & Pelvic Pain Support Group
    Rhonda Fiorillo MPT, WCS, PRPC – sabine@backinmotion.net – 7757462206

New Jersey

  • Hamilton – Pelvic Pain and Associated Pain Disorder Group of Central Jersey
    Jeanne Bergren – jeannebergren@msn.com – 609-610-4303
  • New Brunswick – IC Support Group of Central New Jersey
    Michelle Brill – Brillo4@aol.com – 732-390-0422
  • Cherry Hill – South Jersey IC Support Group
    Linda Benecke – 856-667-5842

New York

  • Montrose IC Support Group
    Inez Benedict – inezink@verizon.net – (914) 739-0315
  • Lowville – Northern New York IC Group
    Beth Monnat – jmonnat1@twcny.rr.com – 315-346-6405
  • New Hyde Park IC Support Group
    DMcKay@lij.edu or MRuzimov@nshs.edu or (516)734-8565
  • NYC – Support Group for Men & Women with Pelvic Pain
    Alexandra Milspaw – 484-894-1246 or wfwomen@gmail.com
  • Rochester IC Support Group
    http://www.freewebs.com/icsgr/

North Carolina

  • Asheville – Western NC IC Support Group
    Nancy Williams – 828-252-5045
  • Central NC IC Phone Support Only Diane Evans 910-400-5556
  • Charlotte NC IC MeetupLearn more on their meet up page!

Ohio

  • Cleveland – IC We Can Help Each Other
    Heather M. Schwarz – IC_HeatherSchwarz@yahoo.com – 216-351-4579 (h) – 216-218-4606 (c)
  • Columbus – IC Support Group of Columbus
    Tina Evans – ic1cols2004@yahoo.com – 614-846-1209 or 614-441-3789 (meets 2nd Sunday at 1pm at Panera Bread on Mill Run)
  • Marion IC Support Group
    Vicki – 740-383-8093
  • West Chester – IC Support Group of Cincinnati
    Nancy Hicks – nanwood4@aol.com – 937-550-4362
    Erin Theobald – etheobald@cinci.rr.com – 513-895-1260

Oklahoma

Oregon

  • Grants Pass – Southern Oregon IC Support Group
    Cheryl Gross – cheryllynn40@hotmail.com – 541-660-3100 – 541-226-2177

Pennsylvania

Rhode Island

  • Rhode Island IC Support Group
    Lynne La Bianca – gia630@gmail.com – 401-529-1464

South Dakota

  • Sioux Falls IC Support Group
    800-618-3329 – 605-328-8750

Texas

  • Austin – Central Texas IC Support Group
    Roy Gafford – roygafford@sbcglobal.net – 512-258-5840
  • Dallas – IC Support Group
    Beth Ann McKinney Montez – bamckinn11@aol.com – 214-538-8253
  • Houston – PURE HOPE
    Jennifer Ward – jward@pure-hope.org
    Novetta Tudor – ntudor@pure-hope.org
  • Lubbock IC Support
    Wendy Cowan – iclubbock@gmail.com 806-778-1620
  • San Antonio – Urology San Antonio
    info@urologysa.com – 210-582-5604 – http://www.urologysanantonio.com/
  • Tyler – East Texas IC Support Group – Univ. of TX
    Shannon Roberson – etexasic@gmail.com – 903-576-3973 –

Vermont

  • IC Support Group of Vermont
    Susie Turnau – 802-253-1887 – js@stowevt.net

Virginia

Washington

West Virginia

Wisconsin