Can you imagine how great it would feel to walk into a room filled with others who understand exactly what you’re going through?? Having IC is difficult at times… and doing it alone is unnecessary. Why recreate the wheel and try to figure this out on your own when there are dozens of independent IC support groups around the country who are waiting to help you! They will help you learn more about IC, about resources in your area and, most of all, to make some great new friends! Don’t suffer in silence at home, alone. If there is a group near you, call the group leader and introduce yourself!

Last Updated: March 2020 – Please note that support groups can cease operations suddenly. If you encounter a group listing which is no longer active, please let us know at the link below! 

– Do you have a group to list? Please email your group information to us here! 

– Interested in starting a group? Learn how in the ICN Support Group Resource Center

 

Alaska

None at present! Please consider starting a group!

Alabama

Arizona

  • Phoenix IC Support Group (Offering Phone Support Only)
    Barbara: (602) 441-3644 or barbara@mayimhayim.org
    Heather: (602) 689-2537 or heatherbarrowbrown@gmail.com
    Carolyn: 602-469-2766 or Carolyn.whitekrueger@gmail.com

Arkansas

None at present! Please consider starting a group!

California

  • Fresno – UACC IC Education & Support Group
    Kathryn Villarreal, PA-C, 559-321-2881 – kvillarreal@urologyassociates.net
  • Irvine – Orange County IC Support Group
    Salpi Salibian, PA-C – (949)557-0190 – icocsg@gmail.com
  • Newport – 949-764-7277
  • San Diego IC Support Group
    Crystal Borrego (303)332-8057

Colorado

  • Denver – Urology Center of Colorado
    303-825-8822, www.tucc.com
  • Fort Collins IC Support Group
    Amelia Raite IC – ameliaraiteic@gmail.com

Connecticut

New Haven’t Yale Medical Group

  • Cherrilyn Richmond, MS, WHNP-BC – 203-785-6927

Florida

  • Ft. Lauderdale – South Florida IC Support Group
    Beth Harris, PT DPT – 561-955-6125
  • Orlando – IC Support Group of Central Florida
    Amber Carter – 407-797-6717 – IC_Hope_CentralFlorida@yahoo.com
  • South Miami Hospital – 786-662-8751 Phone support only.
  • St. Augustine – Old City IC Support
    Marla Ray – mmartoglio@aol.com – 501-2959
  • Tampa – OPPT Pelvic Pain Support Group
    813-805-8108, www.theoppt.com
  • Treasure Coast IC Support Group
    Michelle Lindsey – linzeyfive@yahoo.com – 772-971-4176

Georgia

Illinois

  • Dekalb IC Support Group
    Tracie Klug – Phone: (815) 761-4902
  • Dupage IC Support Group
    Jean – jboak@sbcglobal.net
  • Naperville Women’s Center for Pelvic Medicine 
    630.527.5120 – http://www.edward.org/pelvicpainsupport
  • Park Ridge NW Suburban IC Support Group
    Barb Zarnikow – Bzarnikow@aol.com – 847-478-9614
  • Peoria (Greater Central IL) IC Support Group
    Debbie Millis – icpbsinfo@comcast.net

Indiana

  • Evansville IC Support Group
    Gerald Roach and Angela Roach R.N. – ICSupportofIN@aol.com
    812-205-6798 (days) – 812-464-0068 (after 6:00 PM)

Iowa

None at present! Please consider starting a group!

Kansas

None at present! Please consider starting a group!

Kentucky

Louisiana

Maine

Maryland

Massachusetts

Michigan

  • Muskegon IC – Mercy Health
    Jennifer Mosher, WHNP-BC, mosherjl@trinity-health.org, 231-727-7944
  • Port Huron – 
    Sherry Campbell – soup.wine@gmail.com – 810-320-0224- Phone support.
  • Saginaw – Midwest Support Group for IC/CPP
    Laura Hintz NP – 989-799-4840
    Angie Powers – 810-694-3813 (home) or 248-321-5692 (cell)

Missouri

Mississippi

  • North MS Pelvic Floor Support Group (New – January 2017)
    Rosa Harville – rosasart@msn.com – 662-660-0295

Montana

Nebraska

  • Lincoln – IC Support Group of Nebraska – jho 10/13
    Jodi Willis – jodiwills83@yahoo.com – 402-489-8888 (Urology PC)

Nevada

  • Reno – Pelvic Pain Support Group
    Rhonda Fiorillo MPT, WCS, PRPC – sabine@backinmotion.net – 7757462206, Phone support and telehealth video conferencing.

New Jersey

  • Hamilton – Pelvic Pain and Associated Pain Disorder Group of Central Jersey
    Jeanne Bergren – jeannebergren@msn.com – 609-610-4303
  • Cherry Hill – South Jersey IC Support Group
    Linda Benecke – 856-667-5842

New York

  • Montrose IC Support Group
    Inez Benedict – inezink@verizon.net – (914) 739-0315
  • New Hyde Park – Smith Institute
    DMcKay@lij.edu or MRuzimov@nshs.edu or (516)734-8565, Treatment only.
  • NYC – Four Directions Counseling
    Alexandra Milspaw – 484-894-1246 or wfwomen@gmail.com, Phone support.
  • Rochester IC Support Group
    http://www.freewebs.com/icsgr/

North Carolina

None at present! Please consider starting a group!

Ohio

  • Cleveland – IC We Can Help Each Other
    Heather M. Schwarz – IC_HeatherSchwarz@yahoo.com – 216-351-4579 (h) – 216-218-4606 (c)
  • Columbus – 
    Tina Evans – ic1cols2004@yahoo.com – 614-846-1209 or 614-441-3789, Phone support.
  • West Chester – Phone Support
    Nancy Hicks – nanwood4@aol.com – 937-550-4362
    Erin Theobald – etheobald@cinci.rr.com – 513-895-1260

Oklahoma

Oregon

Pennsylvania

Rhode Island

South Dakota

  • Sioux Falls IC Support Group
    800-618-3329 – 605-328-8750-Occasional meetings only.

Texas

  • Austin – Central Texas IC Support Group
    Roy Gafford – roygafford@sbcglobal.net – 512-258-5840
  • Dallas – IC Support Group
    Beth Ann McKinney Montez – bamckinn11@aol.com – 214-538-8253
  • Lubbock IC Support
    Wendy Jones – iclubbock@gmail.com 806-778-1620-Phone support only.
  • San Antonio – Urology San Antonio
    info@urologysa.com – Appointments only. 210-582-5505 – http://www.urologysanantonio.com/
  • Tyler – East Texas IC Support Group – Univ. of TX
    Shannon Roberson – etexasic@gmail.com – 903-576-3973 –

Vermont

Virginia

Washington

West Virginia

Wisconsin