Can you imagine how great it would feel to walk into a room filled with others who understand exactly what you’re going through?? Having IC is difficult at times… and doing it alone is unnecessary. Why recreate the wheel and try to figure this out on your own when there are dozens of independent IC support groups around the country who are waiting to help you! They will help you learn more about IC, about resources in your area and, most of all, to make some great new friends! Don’t suffer in silence at home, alone. If there is a group near you, call the group leader and introduce yourself!
Last Updated: April 2, 2022 – Please note that COVID has greatly impacted the activities of support groups across the USA. If you find a link below and/or a group that has either started or stopped their operations. please let us know!
– Do you have a group to list? Please email your group information to us here!
– Interested in starting a group? Learn how in the ICN Support Group Resource Center
Alaska
None at present! Please consider starting a group!
Alabama
- Mobile IC Support Group
Ann – interstitial.cys.help.GC@gmail.com
Arizona
- Phoenix IC Support Group (Offering Phone Support Only)
Barbara: (602) 441-3644 or barbara@mayimhayim.org
Heather: (602) 689-2537 or heatherbarrowbrown@gmail.com
Carolyn: 602-469-2766 or Carolyn.whitekrueger@gmail.com - Tucson IC Support Group
Marsha L. tuazmom@gmail.com
Arkansas
None at present! Please consider starting a group!
California
- Fresno – UACC IC Education & Support Group
Kathryn Villarreal, PA-C, 559-321-2881 – kvillarreal@urologyassociates.net - Irvine – Orange County IC Support Group
Salpi Salibian, PA-C – (949)557-0190 – icocsg@gmail.com - Newport – 949-764-7277
- San Diego IC Support Group
Crystal Borrego (303)332-8057
Colorado
- Denver – Urology Center of Colorado
303-825-8822, www.tucc.com - Fort Collins IC Support Group
Amelia Raite IC – ameliaraiteic@gmail.com
Connecticut
New Haven’t Yale Medical Group
- Cherrilyn Richmond, MS, WHNP-BC – 203-785-6927
Florida
- Ft. Lauderdale – South Florida IC Support Group
Beth Harris, PT DPT – 561-955-6125 - Orlando – IC Support Group of Central Florida
Amber Carter – 407-797-6717 – IC_Hope_CentralFlorida@yahoo.com - South Miami Hospital
Camelia – 786-662-4607 Phone support only. - St. Augustine – Old City IC Support
Marla Ray – mmartoglio@aol.com – 501-2959 - Tampa – OPPT Pelvic Pain Support Group
813-805-8108, www.theoppt.com
Georgia
- Metro Atlanta – Georgia Urology
Judy Eichner – icatlanta@live.com
Jeffrey Proctor, M.D. – 770-607-1893
https://www.facebook.com/groups/73169908984/
Illinois
- Dekalb IC Support Group
Tracie Klug – Phone: (815) 761-4902 - Dupage IC Support Group
Jean – jboak@sbcglobal.net - Naperville Women’s Center for Pelvic Medicine
630.527.5120 – http://www.edward.org/pelvicpainsupport - Park Ridge NW Suburban IC Support Group
Barb Zarnikow – Bzarnikow@aol.com – 847-478-9614 - Peoria (Greater Central IL) IC Support Group
Debbie Millis – icpbsinfo@comcast.net
Indiana
- Evansville IC Support Group
Gerald Roach and Angela Roach R.N. – ICSupportofIN@aol.com
812-205-6798 (days) – 812-464-0068 (after 6:00 PM)
Iowa
None at present! Please consider starting a group!
Kansas
None at present! Please consider starting a group!
Kentucky
- Bowling Green IC Support Group
April Lee – aprilslee@windstream.net - Lexington IC Support Group
Cindy Hayden – cindy.hayden@eku.edu – Cell: 615 426 1492 (Call between 10 am and 3 pm EST)
Louisiana
None at present! Please consider starting a group!
Maine
- Bangor IC Support Group
Brenda Hanson – bmozartktty@aol.com – 207-825-4457
Maryland
- Baltimore/DC IC Support Group
Tina Nachodsky – Tina@BaltoDCicSupport.com
http://www.baltodcicsupport.com
Massachusetts
- Wicked Boston IC Support Group (Chestnut Hill MA)
Yulia Batsman – ykatsman16@gmail.com - Dedham IC Support Group
Annette Eddy – annetteeddy@rcn.com – 781-407-0914
Michigan
- Muskegon IC – Mercy Health
Jennifer Mosher, WHNP-BC, mosherjl@trinity-health.org, 231-727-7944 - Port Huron –
Sherry Campbell – soup.wine@gmail.com – 810-320-0224- Phone support. - Royal Oak – Pelvic Pain Support Group of Beaumont Hospital
Call to ask for the schedule – 248-898-0898 - Saginaw – Midwest Support Group for IC/CPP
Laura Hintz NP – 989-799-4840
Angie Powers – 810-694-3813 (home) or 248-321-5692 (cell)
Missouri
- Kansas City, MO
Madalyn Henderson Phone support: 660-654-4398 madyhenderson@gmail.com
Mississippi
- North MS Pelvic Floor Support Group (New – January 2017)
Rosa Harville – rosasart@msn.com – 662-660-0295
Montana
- Phone Support
Dianne Armstrong, RN – di@montanapets.org – 406-443-6488
Nebraska
- Lincoln – IC Support Group of Nebraska – jho 10/13
Jodi Willis – jodiwills83@yahoo.com – 402-489-8888 (Urology PC)
Nevada
- Reno – Pelvic Pain Support Group
Rhonda Fiorillo MPT, WCS, PRPC – sabine@backinmotion.net – 7757462206, Phone support and telehealth video conferencing.
New Jersey
- Cherry Hill – South Jersey IC Support Group
Linda Benecke – 856-667-5842
New York
- Montrose IC Support Group
Inez Benedict – inezink@verizon.net – (914) 739-0315 - New Hyde Park – Smith Institute
DMcKay@lij.edu or MRuzimov@nshs.edu or (516)734-8565, Treatment only. - NYC – Four Directions Counseling
Alexandra Milspaw – 484-894-1246 or wfwomen@gmail.com, Phone support. - Rochester IC Support Group
http://www.freewebs.com/icsgr/
North Carolina
None at present! Please consider starting a group!
Ohio
- Columbus –
Tina Evans – ic1cols2004@yahoo.com – 614-846-1209 or 614-441-3789, Phone support. - West Chester – Phone Support
Nancy Hicks – nanwood4@aol.com – 937-550-4362
Erin Theobald – etheobald@cinci.rr.com – 513-895-1260
Oklahoma
- Newcastle IC Support Group
Kathy Gaynor – 405-326-3635 – klg65@pldLnet
Sherry Valdez – 405-990-5306 – gramvaldez@pldi.net - Tulsa IC Support Group
Grace Ballard – 918-508-9696 – graceywacy@hotmail.com
Oregon
- Grants Pass – Southern Oregon
Cheryl Hartin – cheryllynn40@hotmail.com – 541-660-3100 – Phone support.
Pennsylvania
- Butler – Beaver – Pittsburgh IC Support Group
Margy Goehring – pasupport@ic-network.com - Downington – Empowerment! Support for IC, Vestibulitis & Vulvodynia
Jennifer Meyer – Icempowermentjen@gmail.com
Rhode Island
- Rhode Island
Lynne La Bianca – poohgal9@gmail.com – 401-529-1464, Phone support.
South Dakota
- Sioux Falls IC Support Group
800-618-3329 – 605-328-8750-Occasional meetings only.
Texas
- Austin – Central Texas IC Support Group
Roy Gafford – roygafford@sbcglobal.net – 512-258-5840 - Dallas – IC Support Group
Beth Ann McKinney Montez – bamckinn11@aol.com – 214-538-8253 - Lubbock IC Support
Wendy Jones – iclubbock@gmail.com 806-778-1620-Phone support only. - San Antonio – Urology San Antonio
info@urologysa.com – Appointments only. 210-582-5505 – http://www.urologysanantonio.com/ - Tyler – East Texas IC Support Group – Univ. of TX
Shannon Roberson – etexasic@gmail.com – 903-576-3973 –
Vermont
- IC Support Group of Vermont
Susie Turnau – 802-253-1887 – js@stowevt.net - Nashua Bladder Disease Support Group
Cecilia Svendbye – 603-882-2295 – Lakambini19@yahoo.com
Virginia
- Baltimore/DC IC Support Group
Tina Nachodsky – Tina@BaltoDCicSupport.com
http://www.baltodcicsupport.com - Richmond IC Support Group
Sabrina Heffington – 804-366-8263 – catgirl011@verizon.net - Springfield – Northern Virginia IC Support Group
Jennifer – jzuzelski@hotmail.com - New! Virginia Beach (Norfolk, Portsmouth, Suffolk) IC Support Group – jo 10/13
Heidi Ross – 757-466-3406 - Winchester IC Support Group
Kimberly Strawderman – 540-539-3861 – kim@stylecoast.com
Washington
- Everett – Snohomish County IC Support Group
Lori-Ann Curtis LPN – loriann.everetturology@gmail.com
Wisconsin
- Neenah – Fox Valley IC Support Group
Karen Sutter – 920-731-4835 – ic_foxvalley@yahoo.com