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IC Research Survey About Pain and IC Needs Men & Women To Participate

A Research Study on the Pain of IC

If you do just one thing today for IC, I hope that you will participate in this very important IC research study! Dr. Dean Tripp (Queen’s University, Kingston ON Canada) is conducting one of the most intriguing studies that I’ve seen in years. In “How Pain and IC/BPS Symptoms Are Associated With Patient Quality of Life he is trying to understand more about the pain of IC, how it affects our mood, our level of hope and so forth. He also asks quite a few interesting questions about how patients view their lives with IC.

You can take the survey once or help them study how pain impacts our lives over a two month period. In that case, you’ll end up taking it after 4 weeks and 8 weeks too!

The study is short. It takes just 15 minutes to complete and has the potential of contributing very important data!

PLEASE SHARE WITH YOUR FRIENDS! He’s looking for 1500 participants to make this survey meaningful!

You can participate at the link below!

http://queensu.fluidsurveys.com/s/ICBPSQoL/

Eligibility Requirements

To be eligible for participation in this study:

  • You are at least 18 years of age
  • You are fluent in English (the survey will only be available in English)
  • You have received a diagnosis of IC/BPS from a health care practitioner (urologist/physician)

You are not eligible for participation in this study if any of the following medical conditions apply to you:

  • You are currently suffering from an on-going symptomatic urethral stricture or an on-going neurological disease or disorder affecting the bladder or bowel fistula
    You have a history of cystitis caused by tuberculosis, radiation therapy, or cytoxan/cyclophosphamide therapy
  • You have undergone augmentation cystoplasty or cystectomy
  • You have a history of cancer (with the exception of skin cancer)
  • You are currently suffering from a major psychiatric disorder (e.g. psychosis) or medical condition that would interfere with your study participation (e.g. severe cardiac, pulmonary, renal, or hepatic disease)
By | 2017-01-31T10:53:58+00:00 November 17th, 2014|ICN Announcements, Interstitial Cystitis IC/BPS, Interstitial Cystitis Network Blog, News, Research|Comments Off on IC Research Survey About Pain and IC Needs Men & Women To Participate

About the Author:

My Google Profile+ Jill Heidi Osborne is the president and founder of the Interstitial Cystitis Network, a health education company dedicated to interstitial cystitis, bladder pain syndrome and other pelvic pain disorders. As the editor and lead author of the ICN and the IC Optimist magazine, Jill is proud of the academic recognition that her website has achieved. The University of London rated the ICN as the top IC website for accuracy, credibility, readability and quality. (Int Urogynecol J - April 2013). Harvard Medical School rated both Medscape and the ICN as the top two websites dedicated to IC. (Urology - Sept 11). Jill currently serves on the Congressionally Directed Medical Research Panel (US Army) where she collaborates with researchers to evaluate new IC research studies for possible funding. Jill has conducted and/or collaborates on a variety of IC research studies on new therapeutics, pain care, sexuality, the use of medical marijuana, menopause and the cost of treatments, shining a light on issues that influence patient quality of life. An IC support group leader and national spokesperson for the past 20 years, she has represented the IC community on radio, TV shows, at medical conferences. She has written hundreds of articles on IC and its related conditions. With a Bachelors Degree in Pharmacology and a Masters in Psychology, Jill was named Presidential Management Intern (aka Fellowship) while in graduate school. (She was unable to earn her PhD due to the onset of her IC.) She spends the majority of her time providing WELLNESS COACHING for patients in need and developing new, internet based educational and support tools for IC patients, including the “Living with IC” video series currently on YouTube and the ICN Food List smartphone app! Jill was diagnosed with IC at the age of 32 but first showed symptoms at the age of 12.