Sponsored by: Imprimis Pharma - Beaumont Urology - CystaQ - Desert Harvest Aloe - MultiRight Low Acid Multivitamin - PainShieldMD 1. Barbara Flanigan and Her 30 Year Quest To Discover The Cause of IC Editors Note – I've wanted to share Barbara Flanigan's story and theory about IC for many years. Barbara was the founder the [...]
How You Can Help Barbara Flanigan and Her Search For the Cause of IC (Editors Note – I’ve wanted to share Barbara Flanigan’s story and theory about IC for many years. Barbara was the founder the first Interstitial Cystitis Association here in California in 1983. She has always had one key goal in her volunteer work, [...]
Each year, promising new studies on interstitial cystitis, bladder pain syndrome and chronic pelvic pain syndrome are presented at the annual meeting of the American Urology Association. Here are the IC/BPS research highlights for AUA 2015. The full abstracts can be viewed at: http://www.aua2015.org/ Quitting Smoking Improves Outcome in Urologic Disease Researchers at the Henry [...]
We are proud to announce that our latest publication, the IC Chef Cookbook, features more than 260 recipes submitted by IC patients over the past ten years to our on-line cookbook. Julie Beyer RD, author of the Confident Choices®: A Cookbook for IC and OAB, contributed the foreword to the book. She wrote "For the [...]
IC patient finds relief by treating IC and pelvic pain with acupuncture (Loyola University Health System) At age 12, Rachael Fellers developed a debilitating form of pelvic pain that at times prevented her from standing, walking or going to the bathroom. Mrs. Fellers saw several doctors who determined that she had endometriosis. They unsuccessfully tried [...]
(Here's part of an email I sent to an IC patient last night who was struggling with severe night time symptoms and bladder pain that describes the many factors that can be contributing to nighttime IC symptoms and pain. - Jill Osborne, ICN President) #1 - To treat the pain effectively, we have to know [...]
(Winter 2015) For some women, it's a breeze and barely noticeable. For others, perimenopause and menopause is a time of crazy mood swings, hot flashes and, to our great frustration, new episodes of leakage. Whether you're going through the change naturally, chemically or through a total hysterectomy, the loss of estrogen can have a profound [...]
If you do just one thing today for IC, I hope that you will participate in this very important IC research study! Dr. Dean Tripp (Queen's University, Kingston ON Canada) is conducting one of the most intriguing studies that I've seen in years. In "How Pain and IC/BPS Symptoms Are Associated With Patient Quality of [...]
In this issue: (1) ICN Editorial - What are you willing to do to get better? This issue begins with an editorial about a woman who, after years of struggling with bladder pain, admitted that she had never read a book, an article or even a website about IC. She was the epitome of a [...]
The American Urological Association (AUA) released a new update to their 2011 Guideline on the Diagnosis and Treatment of Interstitial Cystitis/Bladder Pain Syndrome (IC/BPS). The original guidelines included research studies up through 2009. This new revision includes research studies through 2013. Read the amended guidelines here! “Although the science relevant to IC/BPS is continually improving [...]
