Anxiety and Interstitial Cystitis Are Remarkably Common

It might surprise you to learn that anxiety is a strongly related condition to IC and pelvic pain. It was the human genome project which made the connection. Researchers trying to determine which section of the human genome correlated with anxiety discovered that a large, distinct subgroup of anxiety patients also had interstitial cystitis. Urologists then confirmed that most of their IC patients also struggled with alarming levels of anxiety. Subsequent research studies now suggest that there is a genomic linkage between the two conditions.(1)(2)(3)

The end result is simple. Most IC patients struggle with varying levels of anxiety. Some report that they’ve always lived with anxiety disorder and/or that other members of their family also struggle with anxiety. Other patients report that their anxiety developed after the onset of their bladder symptoms, suggesting that pain, fear and insecurity about the future might be driving their symptoms. In either case, you certainly aren’t alone. Anxiety disorders affect about 40 million American adults age 18 years and older (about 18%) in a given year, causing them to be filled with fearfulness and uncertainty.(4)

Medical anxiety is common with some patients fearing visiting the doctor, having tests and trying new treatments. It’s fair to say, as well, that those patients who are treated irresponsibility (i.e. such as having a painful hydrodistention without any anesthesia) could experience some post traumatic stress disorder. It’s certainly common for pelvic pain patients to fear activities and/or events that could trigger more pain, such as riding in a car, taking a vacation where medical care might be limited, traveling or intimacy.

But, when anxiety starts to dominate daily thoughts and/or prevents someone from receiving good health care or enjoying life, it’s time to do something about it. There’s no shame in having anxious thoughts but we each have the responsibility to learn anxiety management skills so that we can live a full life and don’t become isolated from family and friends. There are many resources that can help!

My Story With Anxiety

Jill Osborne(By Jill Osborne, ICN President & Founder) We all have our own stories: unique, varied and very legitimate. My anxiety began at a very young age, triggered by a violent young man in my neighborhood who eventually became a rapist and murderer. The child of alcoholics, this young man taught me that I was very blessed to have a safe and loving family.

Like many young women in college, I also experienced sexual harassment and workplace bullying. After two stressful and anxious years in the summer job from hell, I learned that it was okay to walk away from jobs and people who didn’t treat me with caring and kindness.

I developed true panic disorder in my early twenties while working for the Social Security Administration, a surprisingly violent working environment. We struggled daily with office security due to the many violent outbursts from mentally ill clients, as well as newly released convicts from San Quentin. One day I was physically attacked at my desk. My supervisor had foolishly allowed a violent client into the office despite warnings in their file that said “Do not allow this client into the office. Call the police.” I lost all trust in my supervisors. I gave notice and decided to pursue a graduate degree.  Ironically, that office moved to a new office and installed bullet proof glass just weeks later after I left.

The downside of this physical attack was that I developed severe anxiety. I was afraid to leave the sanctuary of my home. A simple trip downtown was often overwhelming. It was compounded by the fact that I was also developing many of the related conditions to IC, particularly IBS. Yes, I was able to go to graduate school and yes I had a Master’s Degree in Psychology but my anxiety was still controlling many of days. Strangely, going to the doctor was one of my biggest triggers. One day, I was just brutally honest and told him about my struggles. He enthusiastically recommended a class called “Phobease.” that was taught locally. Wow. It was fantastic. This simple six week class changed my life and I haven’t had an anxiety attack since.

Learn About Anxiety Disorder

Here are some excellent interviews and articles!

Take An Anxiety Management Class

Almost every community has either a hospital or medical center that offers classes that could help patients struggling with anxiety disorder. I found mine at Kaiser Permanente and was surprised to learn that most of their classes are available to the general public for a very modest fee. Not every course teaches the same program but each class the potential of giving you skills that will help you manage, reduce and hopefully prevent future panic attacks. I took the Phobease class developed by Dr. Howard Liebgold, a physician who also struggled terrible with anxiety and phobias.

Though I will admit that it was hard to walk into the room the first time, I found the classes incredibly comforting. It was great to meet so many “normal” people who, like me, had faced adversity and who really knew what life was like with anxiety. The class had many different types of anxiety. I was surprised to find that two of the members were actually lottery winners who found that they were more worried and anxious about their home. One person was afraid of water because they had nearly drowned as a child. Another was afraid to drive across bridges. We met an hour a week for six weeks, with a great instructor and by the end of the course we had all made significant progress. I found it life changing.. the skills I learned I still use today and haven’t had a panic attack since the class.

Find an Anxiety Specialist

If your anxiety is severe, then seek the help of an anxiety specialist who may be able to prescribe some medication and/or give you behavioral strategies that can reduce your anxiety. You shouldn’t worry that talking with a therapist will involve intense psychoanalysis of your childhood, etc. etc. Their #1 job is to help you learn skills that you can use when you start to feel overloaded. But, if other issues come up that are troubling you, then why not talk about them. If not now, then when? Would you rather waste another ten years afraid to live your life?? Ask for help, take some action and you may be surprised at how much more satisfying your life can be.

There are non-profit organizations around the world who help patients find care. In the USA, The Anxiety and Depression Association of America has a “Find A Therapist” search feature on their website!


Motivational speaker Jack Canfield has a slogan that I live by: Ask => Action => Satisfaction. He say’s that you can’t get satisfaction, until you take action, but you can’t take action until you ask a question. Simple and it works! So, in my case, I finally had the courage to ask my doctor “What can I do about this anxiety? I’m tired of living my life this way.” He encouraged me to take a class. I took that “action” and, six weeks later, I finally got some relief and satisfaction.

I find that this works really well if I find myself worrying about something. If I have something physical going on, such as an unusual mole that I thought might be skin cancer, I immediately make an appointment with my doctor to “ask” if this was a problem. I got it treated and that worry was resolved. Another thing