How the Interstitial Cystitis Network Can Help
Learn About IC/BPS
Newly diagnosed with IC/BPS? Using videos, text and apps, we’ll teach you how IC is diagnosed, symptoms, natural & conventional treatments, subtypes, the role of the pelvic floor muscles, how to prevent and manage flares, the IC diet, how to find an IC specialist, related conditions and more!
Get Support
The ICN has the oldest and most trusted on-line patient support community where millions of patients have asked questions, made friends and found hope. It’s entirely free. You’ll find discussions on diagnosis, treatments, flare management, pain control, success stories, pregnancy and much more!
Find A Specialist
If you’ve struggled to find medical care providers knowledgeable about IC, you are not alone. The ICN Find A Specialist Database lists urologists, urogynecologists, physical therapists and dietitians who work with IC and pelvic pain patients. Search by State, Town or Zip Code.
Clinical Trials
Beaumont Hospital is seeking women between the ages of 18 and 85 with urinary frequency, urgency, discomfort or pain to participate in a clinical trial comparing bladder treatments with pelvic floor physical therapy. All treatments are free
Concerned About Your Health Care
Patients are deeply worried about health care coverage changes. We must speak out!We must speak out now!
If you’re worried about your health care under Trump, you are not alone. Anxiety is growing as cuts to Medicaid and other services are proposed. IC & Health Care Activists are needed more than ever! LEARN MORE!
Elmiron No Longer Covered?
The only FDA approved medication for IC has been dropped off of several insurance drug plans. Many patients simply can't afford it.Prices Have Skyrocketed
Don’t be ashamed if you can no longer afford some IC treatments. Learn about:
- Drug Assistance Programs
- OTC Supplements Are Available
- Ten Money Saving Tips
Struggling with Pain?
AUA Guidelines for IC/BPS state that pain management should be an integral part of treatment.IC Pain Is Real & Treatable
Research studies have proven that IC pain is similar to cancer and should be treated promptly. Your goal should also be to treat the source of the pain, be it the bladder wall, muscles, nerves, bowel or nerves. LEARN MORE!
Research & Clinical Trials
Aquinox Halts All Rosiptor IC/BPS Research But Continues Chronic Prostatitis Study
We were heartbroken to learn that Rosiptor (AQX-1125), once believed to be a promising new therapy for interstitial cystitis and bladder pain syndrome, has failed to demonstrate success in their latest clinical trial, the Phase [...]
Hunner’s Lesion Triamcinolone Treatment Shows Effectiveness and Long Term Durability
If you struggle with Hunner's lesions (aka Hunne's ulcers), the odds are that you've tried a variety of bladder treatments with little effect. Why is Elmiron and/or DMSO ineffective for Hunner's lesions? Because they don't [...]
New IC/BPS Treatments Can’t Be Developed Without Patient Help – You Can Make A Difference in 2018!
Do you know that no new treatments can be approved unless they pass real life testing with IC patients? When studies and clinical trials seek patient participants, they are conducting critical research to determine if [...]
News & Feature Stories
Are Medications Making You Constipated? Ten Smooth Move Tips
While IC patients are frequently in the bathroom to urinate, sometimes the very medicines recommended to help the condition cause another bathroom-related problem: constipation. And constipation causes increased discomfort in the pelvis, which is the [...]
Interstitial Cystitis or Chronic Prostatitis Job Accommodations Under the American’s With Disabilities Act
Are you struggling to maintain your job? Are you being denied restroom access?? Taunted for having to use the restroom? You are certainly not alone but thankfully there is a law that can help! The [...]
Swimming Safety – You might want to avoid hotel swimming pools & hot tubs
While swimming is one of the best exercises you can do when you have IC and/or pelvic pain, think twice before using a hotel swimming pool or spa. The US Centers for Disease Control released [...]
Diet and Nutrition Tips
Bladder Friendly Summer Drinks
With the start of hot weather, it's time to focus on cool, refreshing drinks that won't trigger IC/BPS or chronic prostatitis flares. This means that we have to avoid the typical acidic drinks of summer: [...]
EWG Finds Alarming Levels of Pesticides In Pears, Apples and Potatoes
Everyone should eat more fruits and vegetables but when you have IC this can be challenging. Thankfully, the produce aisle is usually our friend. The vast majority of vegetables are IC friendly with the exception [...]
New IC Diet Survey Released – What foods do you turn to when you are struggling with an IC flare?
It's time for an update of our IC Food Lists and to do it well we're asking for your feedback. We've long collected information on foods, beverages and activities that can flare IC symptoms. This [...]
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September is IC Awareness Month
Testimonials
Thank you for being there for me during such a rough time in my life!!!
Your 1-800 number is priceless.
Keep helping people!
Not only do I want to thank you & your team for everything that you do but I wanted to thank you personally. You took the time to talk to me for over an hour. You brightened my day when I was feeling hopeless. It’s such a comfort to know you & the ICN are there for support.
I suffered with IC and PFD for about 8 years before I found a doctor who believed me and is treating me. Over those 8 years you and the IC Network were my life line and an amazing source of strength and hope and continue to be. Thank you so much for all you did and continue to do.
I firmly believe that the Interstitial Cystitis Network has educated me more than any doctor or nurse. At times I think I’ve intimidated my doctors by the knowledge I’ve gained from the site. Your site definitely empowers all of us who suffer with this horrible disease.
I honestly don’t know what I would have done without the ICN and you over 12 years ago when I finally found out what was wrong with me!! I think you are doing Gods work for so many!
The ICN videos are EXTREMELY helpful, if not LIFE CHANGING. Extremely smart, well researched information. EVERY urologist office should have a big flyer advertising this website. Thank you so much for what you do!!”
I really wanted to let you know how helpful the ICN website is. Having IC has been rough, but I have learned so much from your site (good tips, info, coping strategies). Way more than I ever learned from my uro! I know my symptoms have improved partly due to things I have learned from your site. Keep up the good work!
I watched a few of your videos on YouTube – on behalf of a friend who says he has suffered excruciating pain and discomfort for years. We’ve gained from your references. I just wanted to thank you for your such consummately sensible, humane help to so many others…. You are producing guidance that is clear, relevant, down-to-earth, useful and good-hearted.
I will never be able to thank you enough for getting me through so many horrible times. I go into remission for years at a time so I guess I’m one of the lucky ones. However, I’ve had a few flares in the past couple of months and I always know who to turn to in the middle of the night.Your site is better than a heating pad.
I don’t know how I would have made it thus far without all of you wonderful people. Just knowing I am not alone is the best relief I could have ever asked for. If I get scared, am hurting, or just need comfort, I know you are always there.
I’m SO excited about the information in your food app. I am encouraged now I can live a normal life and eat again.. Thank you for your website. – September 2015
I want to thank you for that day you gave me hope ….the day we spoke I had been in constant pain for so long and taking such strong pain meds I was ready to end my life. I don’t know what I would have done if you hadn’t taken the time to guide me through the next step in my journey to find a solution to the suffering…
Fabulous, amazingly helpful website, I’m so grateful it exists. Thanks for all the hard work that went into it.
