Interstitial Cystitis Network Home Page Jill Osborne
How the Interstitial Cystitis Network Can Help
Learn About IC/BPS
Newly diagnosed with IC/BPS? Using videos, text and apps, we’ll teach you about how IC is diagnosed, the symptoms, the six step treatment protocol, natural treatments, new subtypes, the role of the pelvic floor muscles, how to prevent and manage flares, the IC diet, how to find an IC specialist, related conditions, pregnancy and IC and much more!
The ICN has the oldest and most trusted on-line patient support community where millions of patients have asked questions, made friends and found hope. It’s entirely free. You’ll find discussions on diagnosis, treatments, flare management, pain control, success stories, pregnancy and much more!
If you’ve struggled to find medical care providers knowledgeable about IC, you are not alone. The ICN Find A Specialist Database lists urologists, urogynecologists, physical therapists and dietitians who work with IC and pelvic pain patients. Search by State, Town or Zip Code.
A Study to Evaluate the Efficacy, Safety, and Tolerability of Mirabegron in Older Adults With Overactive Bladder (OAB) The purpose of this study is to assess the efficacy, safety and tolerability of mirabegron versus placebo in the [...]
CUA IC/BPS Guidelines Adopted Why have so many interstitial cystitis patients in Canada come to the USA for care? Despite the glowing reviews about universal health care, there is a sad IC truth behind the scenes north [...]
Neuromodulation uses a mild electrical impulse on various nerves to help maintain appropriate nerve function in the bladder. Two different forms of neuromodulation are available: post-tibial nerve stimulation (Urgent PC® by Congentix Medical) and sacral [...]
From the finding that IC patients in flares often have candida in their urine, to the discovery that our gut biome is deficient in important bacteria, here are some of our favorite stories from 2016. [...]
Written by Nicole and Jesse Cozean, the Interstitial Cystitis Solution is the best book written about interstitial cystitis in twenty years. If you are newly diagnosed with IC/BPS, it will give you a road map [...]
As we’ve discussed in earlier issues of the IC Optimist, many clinicians and researchers around the world now believe that there are distinct variations and/or subtypes in the IC patient population. While there is considerable [...]
3 to 8 Million Women in the USA
Have Symptoms of IC/BPS and Pelvic Pain
It's NOT all in their head
Some women have undergone unnecessary hysterectomy in a desperate attempt to reduce their pain. They may see 5 to 7 doctors before receiving a correct diagnosis.
1 to 4 Million Men in the USA
Struggle with bladder and/or pelvic pain
It's NOT Chronic Prostatitis
Researchers now suspect that the millions of men diagnosed with chronic prostatitis actually suffer from IC/BPS or Pelvic Floor dysfunction
Six Steps of Treatment
Not sure what treatments to try?
An Easy & Effective Protocol
A new six step treatment protocol offers an easy plan starting with self help, diet medication, natural vs. traditional treatments and so forth! Learn more!
With the holidays quickly approaching, many often express frustration that they can’t enjoy some of their traditional “chocolate” treats. The main culprit is the caffeine found in milk and dark chocolates which has a neurostimulatory [...]
Not only do I want to thank you & your team for everything that you do but I wanted to thank you personally. You took the time to talk to me for over an hour. You brightened my day when I was feeling hopeless. It’s such a comfort to know you & the ICN are there for support.
Diane P., July 2014
I suffered with IC and PFD for about 8 years before I found a doctor who believed me and is treating me. Over those 8 years you and the IC Network were my life line and an amazing source of strength and hope and continue to be. Thank you so much for all you did and continue to do.
Cathy, July 2014
I firmly believe that the Interstitial Cystitis Network has educated me more than any doctor or nurse. At times I think I’ve intimidated my doctors by the knowledge I’ve gained from the site. Your site definitely empowers all of us who suffer with this horrible disease.
Savannah, Sept. 2013
I honestly don’t know what I would have done without the ICN and you over 12 years ago when I finally found out what was wrong with me!! I think you are doing Gods work for so many!
Shelby, June 2011
The ICN videos are EXTREMELY helpful, if not LIFE CHANGING. Extremely smart, well researched information. EVERY urologist office should have a big flyer advertising this website. Thank you so much for what you do!!”
I really wanted to let you know how helpful the ICN website is. Having IC has been rough, but I have learned so much from your site (good tips, info, coping strategies). Way more than I ever learned from my uro! I know my symptoms have improved partly due to things I have learned from your site. Keep up the good work!
I watched a few of your videos on YouTube – on behalf of a friend who says he has suffered excruciating pain and discomfort for years. We’ve gained from your references. I just wanted to thank you for your such consummately sensible, humane help to so many others…. You are producing guidance that is clear, relevant, down-to-earth, useful and good-hearted.
Bruce H., August 2009
I will never be able to thank you enough for getting me through so many horrible times. I go into remission for years at a time so I guess I’m one of the lucky ones. However, I’ve had a few flares in the past couple of months and I always know who to turn to in the middle of the night.Your site is better than a heating pad.
I don’t know how I would have made it thus far without all of you wonderful people. Just knowing I am not alone is the best relief I could have ever asked for. If I get scared, am hurting, or just need comfort, I know you are always there.
Phyllis, ICN Support Forum Member
I’m SO excited about the information in your food app. I am encouraged now I can live a normal life and eat again.. Thank you for your website. – September 2015
I want to thank you for that day you gave me hope ….the day we spoke I had been in constant pain for so long and taking such strong pain meds I was ready to end my life. I don’t know what I would have done if you hadn’t taken the time to guide me through the next step in my journey to find a solution to the suffering…
RH - Nov. 2015
Fabulous, amazingly helpful website, I’m so grateful it exists. Thanks for all the hard work that went into it.