Living with IC Video Series
Videos designed especially for patients and family members on all things ICWatch Our Videos Today!
If you prefer to watch videos rather than read text, our Living With IC Video series will help. We discuss the IC subtypes, the AUA six steps of treatment, flares, diet, working with doctors and more. Learn more!
The Best Books
Our starter info kit covers all the basic information on diagnosis, treatments, flares, diet & more!We carry the best books!
We want to help you make more informed decisions about your diagnostic tests, treatment, diet and flare management tips. We offer the best books on IC/BPS, PFD, pelvic pain, diet & more! LEARN MORE!
Join the ICN
You may have suffered for years. You are absolutely not alone!ICN Memberships Help Others Too
We offer three memberships for patients who want to stay up to date with the latest IC news! Our quarterly magazine, the IC Optimist, brings the latest news right to your doorstep! LEARN MORE
Best Bladder Supplements
When traditional medications are out of reach due to cost or side effects, several OTC supplements may help!Trusted OTC Supplements That Support Bladder Health.
BLADDER BUILDER®, Bladder Rest®, PEAORA®, Prelief®, PRVNT®, ALOE PATH®, CystoProtek®, Bladder Smart® Low Acid Vitamins, Cysto Renew® and more. LEARN MORE!
How the Interstitial Cystitis Network Can Help
Learn About IC/BPS
Newly diagnosed with IC/BPS? Using videos, text and apps, we’ll teach you how IC is diagnosed, symptoms, natural & conventional treatments, subtypes, the role of the pelvic floor muscles, how to prevent and manage flares, the IC diet, how to find an IC specialist, related conditions and more!
Get Support
The ICN has the oldest and most trusted on-line patient support community where millions of patients have asked questions, made friends and found hope. It’s entirely free. You’ll find discussions on diagnosis, treatments, flare management, pain control, success stories, pregnancy and much more!
Find A Specialist
If you’ve struggled to find medical care providers knowledgeable about IC, you are not alone. The ICN Find A Specialist Database lists urologists, urogynecologists, physical therapists and dietitians who work with IC and pelvic pain patients. Search by State, Town or Zip Code.
ICN Research
With devastating new research suggesting a connection between long-term pentosan (Elmiron) use and eye disease, we have developed a survey which asks patients about their IC, medication use and eye conditions. Please help us understand this more fully by participating.
Research & Clinical Trials
Bladder Builder One Year Follow Up Data – 60% of active users report less pain and fewer flares.
We wanted to know what patients experienced using BLADDER BUILDER® and developed a survey asking past and current customers their experience. The results were very encouraging. Like every other supplement and/or therapy, it certainly did [...]
Does COVID-19 Make IC Worse?
A few weeks ago, an IC patient struggling with COVID-19 reached out to the IC Network to ask for help. Her IC had severely flared after she became infected with COVID-19 and wanted insight into [...]
New Elmiron® Study Finds Progressive Eye Damage AFTER Stopping The Medication
In absolutely devastating news, the first study demonstrating that retinal damage associated with Elmiron® use can progress after stopping the medication was released by Rachel Shah MD in the Journal of Investigative Ophthalmology & Visual [...]
ELMIRON® Label in USA Now Includes New Warning About Eye Disease
Breaking News! After multiple research studies and peer reviewed publications, an FDA citizens petition and patients sharing their stories, the label for ELMIRON® has now been changed in the USA to include a new warning [...]
News & Feature Stories
Lawyers Representing IC Patients in Elmiron Lawsuits Invite You To A Zoom Meeting
Have you taken Elmiron and are worried about your eyesight? Are you showing changes in your vision? Have you been diagnosed with Pigmentary Maculopathy? More than a dozen lawsuits have been filed to date on [...]
IC’s Related Conditions: Fibromyalgia
"IC's Related Conditions" series takes a look at conditions that can go hand-in-hand with IC. Not all patients have all of these conditions, but IC patients are more prone to be diagnosed with these conditions [...]
Could birth control pills cause IC in some patients? Possibly!
Imagine being 18 years old. You experience sudden, sharp pain in your abdomen for two weeks. It feels like glass shards. You start seeing blood in your urine and are struggling with frequency, urgency and [...]
IC Friendly Cold Drinks for Hot Days
Figuring out what to drink with IC can be pretty difficult and frustrating. Summertime can be especially tricky when you're hot and craving something besides cold water. While you should stick to your most bladder [...]
Next Generation DNA Urine Testing Can Identify Chronic Infection
ICN Support Opportunities
Live IC Support Chats on Facebook & YouTube
Every Sunday Starting 1PM PST
You can watch records of back meetings either on our FB or YouTube channels!
Join 50,000 patients in the ICN Patient Support Forum
24/7 Support Moderated by Support Group Leaders
Testimonials
Thank you for being there for me during such a rough time in my life!!!
Your 1-800 number is priceless.
Keep helping people!
Not only do I want to thank you & your team for everything that you do but I wanted to thank you personally. You took the time to talk to me for over an hour. You brightened my day when I was feeling hopeless. It’s such a comfort to know you & the ICN are there for support.
I suffered with IC and PFD for about 8 years before I found a doctor who believed me and is treating me. Over those 8 years you and the IC Network were my life line and an amazing source of strength and hope and continue to be. Thank you so much for all you did and continue to do.
I firmly believe that the Interstitial Cystitis Network has educated me more than any doctor or nurse. At times I think I’ve intimidated my doctors by the knowledge I’ve gained from the site. Your site definitely empowers all of us who suffer with this horrible disease.
I honestly don’t know what I would have done without the ICN and you over 12 years ago when I finally found out what was wrong with me!! I think you are doing Gods work for so many!
The ICN videos are EXTREMELY helpful, if not LIFE CHANGING. Extremely smart, well researched information. EVERY urologist office should have a big flyer advertising this website. Thank you so much for what you do!!”
I really wanted to let you know how helpful the ICN website is. Having IC has been rough, but I have learned so much from your site (good tips, info, coping strategies). Way more than I ever learned from my uro! I know my symptoms have improved partly due to things I have learned from your site. Keep up the good work!
I watched a few of your videos on YouTube – on behalf of a friend who says he has suffered excruciating pain and discomfort for years. We’ve gained from your references. I just wanted to thank you for your such consummately sensible, humane help to so many others…. You are producing guidance that is clear, relevant, down-to-earth, useful and good-hearted.
I will never be able to thank you enough for getting me through so many horrible times. I go into remission for years at a time so I guess I’m one of the lucky ones. However, I’ve had a few flares in the past couple of months and I always know who to turn to in the middle of the night.Your site is better than a heating pad.
I don’t know how I would have made it thus far without all of you wonderful people. Just knowing I am not alone is the best relief I could have ever asked for. If I get scared, am hurting, or just need comfort, I know you are always there.
I’m SO excited about the information in your food app. I am encouraged now I can live a normal life and eat again.. Thank you for your website. – September 2015
I want to thank you for that day you gave me hope ….the day we spoke I had been in constant pain for so long and taking such strong pain meds I was ready to end my life. I don’t know what I would have done if you hadn’t taken the time to guide me through the next step in my journey to find a solution to the suffering…