Interstitial Cystitis Network Home Page2018-10-31T19:21:14+00:00

Living with IC Video Series

Videos designed especially for patients and family members on all things IC

Watch Our Videos Today!

If you prefer to watch videos rather than read text, our Living With IC Video series will help. We discuss the IC subtypes, the AUA six steps of treatment, flares, diet, working with doctors and more. Learn more!

The Best Books

Our starter info kit covers all the basic information on diagnosis, treatments, flares, diet & more!

We carry the best books!

We offer the best books on IC/BPS, pelvic floor dysfunction, pelvic pain, diet & more! We want to help you make more informed decisions about your diagnostic tests, treatment, diet and flare management tips. LEARN MORE!

Join the ICN

You may have suffered for years. You are absolutely not alone!

ICN Memberships Help Others Too

We offer three memberships for patients who want to stay up to date with the latest IC news!  Our quarterly magazine, the IC Optimist, brings the latest news right to your doorstep!  LEARN MORE

Wellness Coaching

Helping you understand testing, treatments, flares, diet, pain care, intimacy, pain mgt & more!

Need Personal Support?

The ICN offers wellness coaching to help you understand diagnostic tests, treatment options, flare management, diet, intimacy, workplace issues, pain management and more. LEARN MORE!

How the Interstitial Cystitis Network Can Help

Learn About IC/BPS

Newly diagnosed with IC/BPS? Using videos, text and apps, we’ll teach you how IC is diagnosed, symptoms, natural & conventional treatments,  subtypes, the role of the pelvic floor muscles, how to prevent and manage flares, the IC diet, how to find an IC specialist, related conditions and more!

Visit Our IC Resource Center

Get Support

The ICN has the oldest and most trusted on-line patient support community where millions of patients have asked questions, made friends and found hope. It’s entirely free. You’ll find discussions on diagnosis, treatments, flare management, pain control, success stories, pregnancy and much more!

Visit Our IC Support Forum!

Find A Specialist

If you’ve struggled to find medical care providers knowledgeable about IC, you are not alone. The ICN Find A Specialist Database lists urologists, urogynecologists, physical therapists and dietitians who work with IC and pelvic pain patients. Search by State, Town or Zip Code.

Search Our Database Now!

ICN Research

With devastating new research suggesting a connection between long-term pentosan (Elmiron) use and eye disease, we have developed a survey which asks patients about their IC, medication use and eye conditions. Please help us understand this more fully by participating.

Take The Survey Now!

Learn more

Next Generation DNA Urine Testing Can Identify Chronic Infection

If you have struggled with recurring UTI's, a new urine test can identify all living things in your urine: beneficial bacteria, pathogenic bacteria, fungal infections as well as identify any antibiotic resistance genes present. This test is helping IC patients discover chronic infections (i.e. ureaplasma, e-coli, enterococcus, klebsiella) as well as determine if some flares are actually UTI or candida driven. It's the future of urine testing!
Learn more

Research & Clinical Trials

News & Feature Stories

Self Help Tip – Don’t Let Fear of Physical Therapy Stop You

We've long passed those days when we believed that IC was an incurable bladder disease. Today, we consider IC/BPS a pelvic pain syndrome that often involves structures outside the bladder, such as the pelvic floor [...]

IC Awareness Month Kicks Off – It’s time to tell our IC stories and speak our truth!

September is the most important month for the IC movement. This is the time that we gather together, share our stories, educate our communities, seek out patients who are suffering in silence and work, as [...]

Diet and Nutrition Tips

Sign Up Now

Sign Up For Our Free E-Newsletter

You'll receive the ICN Guide to Managing IC Flares as our gift! Our monthly e-zine features the latest IC news, clinical trials, self-help tips, patient events & much more!
Sign Up Now

ICN Support Opportunities

Live IC Support Chats on Facebook & YouTube
1st & 3rd Sundays 12:30PM Pacific Standard Time
Review the schedule & join the chats here!

Join 50,000 patients in the ICN Patient Support Forum
24/7 Support Moderated by Support Group Leaders
Click here to enter our forum! 

Testimonials

Thank you for being there for me during such a rough time in my life!!!

Your 1-800 number is priceless.

Keep helping people!

Kathy, February 2018
Not only do I want to thank you & your team for everything that you do but I wanted to thank you personally. You took the time to talk to me for over an hour. You brightened my day when I was feeling hopeless. It’s such a comfort to know you & the ICN are there for support.
Diane P., July 2014
I suffered with IC and PFD for about 8 years before I found a doctor who believed me and is treating me. Over those 8 years you and the IC Network were my life line and an amazing source of strength and hope and continue to be. Thank you so much for all you did and continue to do.
Cathy, July 2014
I firmly believe that the Interstitial Cystitis Network has educated me more than any doctor or nurse. At times I think I’ve intimidated my doctors by the knowledge I’ve gained from the site. Your site definitely empowers all of us who suffer with this horrible disease.
Savannah, Sept. 2013
I honestly don’t know what I would have done without the ICN and you over 12 years ago when I finally found out what was wrong with me!! I think you are doing Gods work for so many!
Shelby, June 2011
The ICN videos are EXTREMELY helpful, if not LIFE CHANGING. Extremely smart, well researched information. EVERY urologist office should have a big flyer advertising this website. Thank you so much for what you do!!”
YouTube Member
I really wanted to let you know how helpful the ICN website is. Having IC has been rough, but I have learned so much from your site (good tips, info, coping strategies). Way more than I ever learned from my uro! I know my symptoms have improved partly due to things I have learned from your site. Keep up the good work!
John A.
I watched a few of your videos on YouTube – on behalf of a friend who says he has suffered excruciating pain and discomfort for years. We’ve gained from your references. I just wanted to thank you for your such consummately sensible, humane help to so many others…. You are producing guidance that is clear, relevant, down-to-earth, useful and good-hearted.
Bruce H., August 2009
I will never be able to thank you enough for getting me through so many horrible times. I go into remission for years at a time so I guess I’m one of the lucky ones. However, I’ve had a few flares in the past couple of months and I always know who to turn to in the middle of the night.Your site is better than a heating pad.
Ele
I don’t know how I would have made it thus far without all of you wonderful people. Just knowing I am not alone is the best relief I could have ever asked for. If I get scared, am hurting, or just need comfort, I know you are always there.
Phyllis, ICN Support Forum Member
I’m SO excited about the information in your food app. I am encouraged now I can live a normal life and eat again.. Thank you for your website. – September 2015
Jill
I want to thank you for that day you gave me hope ….the day we spoke I had been in constant pain for so long and taking such strong pain meds I was ready to end my life. I don’t know what I would have done if you hadn’t taken the time to guide me through the next step in my journey to find a solution to the suffering…
RH - Nov. 2015
Fabulous, amazingly helpful website, I’m so grateful it exists. Thanks for all the hard work that went into it.
L. T.

Our Generous Sponsors