Interstitial Cystitis Network Home Page2018-08-16T13:32:08+00:00

Need Personal Support?

Helping you understand testing, treatments, flares, diet, pain care, intimacy, pain mgt & more!

Wellness Coaching Services

The ICN offers one on one coaching sessions.  Our goal is to help you understand diagnostic tests, treatment options, flare management, diet, intimacy, workplace issues, pain management and more. We would love to talk with you! LEARN MORE! 

The Best Books

Our starter info kit covers all the basic information on diagnosis, treatments, flares, diet & more!

We carry the best books!

We offer the best books on IC/BPS, pelvic floor dysfunction, pelvic pain, diet & more! We want to help you make more informed decisions about your diagnostic tests, treatment, diet and flare management tips. LEARN MORE!

Become an ICN Member Today!

You may have suffered for years. You are absolutely not alone!

ICN Memberships Help Others Too

We offer three memberships for patients who want to stay up to date with the latest IC news!  Our quarterly magazine, the IC Optimist, shares the latest news, feature stories, self-help tips and so much more!   LEARN MORE!

How the Interstitial Cystitis Network Can Help

Learn About IC/BPS

Newly diagnosed with IC/BPS? Using videos, text and apps, we’ll teach you how IC is diagnosed, symptoms, natural & conventional treatments,  subtypes, the role of the pelvic floor muscles, how to prevent and manage flares, the IC diet, how to find an IC specialist, related conditions and more!

Visit Our IC Resource Center

Get Support

The ICN has the oldest and most trusted on-line patient support community where millions of patients have asked questions, made friends and found hope. It’s entirely free. You’ll find discussions on diagnosis, treatments, flare management, pain control, success stories, pregnancy and much more!

Visit Our IC Support Forum!

Find A Specialist

If you’ve struggled to find medical care providers knowledgeable about IC, you are not alone. The ICN Find A Specialist Database lists urologists, urogynecologists, physical therapists and dietitians who work with IC and pelvic pain patients. Search by State, Town or Zip Code.

Search Our Database Now!

Clinical Trials

Beaumont Hospital is seeking women between the ages of 18 and 85 with urinary frequency, urgency, discomfort or pain to participate in a clinical trial comparing bladder treatments with pelvic floor physical therapy. All treatments are free

Learn more!

Become an ICN Member Today

IC Optimist Winter/Spring 2018

Research & Clinical Trials

News & Feature Stories

Next Generation Urine Testing Now Available – Reveals Hidden and/or Chronic Bacterial & Fungal Infections

IC patients, especially those struggling with recurring flares, often wonder if they could have a chronic bacterial or fungal infection that is not being detected through traditional urine testing. A new, affordable and far more [...]

Diet and Nutrition Tips

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Sign Up For Our Free E-Newsletter

You'll receive the ICN Guide to Managing IC Flares as our gift! Our monthly e-zine features the latest IC news, clinical trials, self-help tips, patient events & much more!
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September is IC Awareness Month

Pain of IC Can Be Severe
IC Awareness Month Daily Fact #17 - Millions of Men Have IC/BPS

Testimonials

Thank you for being there for me during such a rough time in my life!!!

Your 1-800 number is priceless.

Keep helping people!

Kathy, February 2018
Not only do I want to thank you & your team for everything that you do but I wanted to thank you personally. You took the time to talk to me for over an hour. You brightened my day when I was feeling hopeless. It’s such a comfort to know you & the ICN are there for support.
Diane P., July 2014
I suffered with IC and PFD for about 8 years before I found a doctor who believed me and is treating me. Over those 8 years you and the IC Network were my life line and an amazing source of strength and hope and continue to be. Thank you so much for all you did and continue to do.
Cathy, July 2014
I firmly believe that the Interstitial Cystitis Network has educated me more than any doctor or nurse. At times I think I’ve intimidated my doctors by the knowledge I’ve gained from the site. Your site definitely empowers all of us who suffer with this horrible disease.
Savannah, Sept. 2013
I honestly don’t know what I would have done without the ICN and you over 12 years ago when I finally found out what was wrong with me!! I think you are doing Gods work for so many!
Shelby, June 2011
The ICN videos are EXTREMELY helpful, if not LIFE CHANGING. Extremely smart, well researched information. EVERY urologist office should have a big flyer advertising this website. Thank you so much for what you do!!”
YouTube Member
I really wanted to let you know how helpful the ICN website is. Having IC has been rough, but I have learned so much from your site (good tips, info, coping strategies). Way more than I ever learned from my uro! I know my symptoms have improved partly due to things I have learned from your site. Keep up the good work!
John A.
I watched a few of your videos on YouTube – on behalf of a friend who says he has suffered excruciating pain and discomfort for years. We’ve gained from your references. I just wanted to thank you for your such consummately sensible, humane help to so many others…. You are producing guidance that is clear, relevant, down-to-earth, useful and good-hearted.
Bruce H., August 2009
I will never be able to thank you enough for getting me through so many horrible times. I go into remission for years at a time so I guess I’m one of the lucky ones. However, I’ve had a few flares in the past couple of months and I always know who to turn to in the middle of the night.Your site is better than a heating pad.
Ele
I don’t know how I would have made it thus far without all of you wonderful people. Just knowing I am not alone is the best relief I could have ever asked for. If I get scared, am hurting, or just need comfort, I know you are always there.
Phyllis, ICN Support Forum Member
I’m SO excited about the information in your food app. I am encouraged now I can live a normal life and eat again.. Thank you for your website. – September 2015
Jill
I want to thank you for that day you gave me hope ….the day we spoke I had been in constant pain for so long and taking such strong pain meds I was ready to end my life. I don’t know what I would have done if you hadn’t taken the time to guide me through the next step in my journey to find a solution to the suffering…
RH - Nov. 2015
Fabulous, amazingly helpful website, I’m so grateful it exists. Thanks for all the hard work that went into it.
L. T.

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