/Front Page Feed

Ten Tips For Talking IC With Friends & Family

Talking about IC with friends and family who don’t know anything about it can be hard. I struggle to find the right words to say to best describe how I feel without sounding like I’m whining or looking for pity yet also not downplaying how I feel and the impact it has on my life. [...]

By | 2018-01-16T22:59:14+00:00 January 16th, 2018|Front Page Feed, Self Care, Self-Help Tips for IC, Bladder & Pelvic Pain|Comments Off on Ten Tips For Talking IC With Friends & Family

We must end sexual health harassment – IC/BPS and the #MeToo Movement

The #METOO movement is a rallying cry for generations of women, men and children who have been abused. From despicable bosses who required sexual favors for professional advancement to those who believed that their wealth entitled them to prey on the vulnerable, it is time that that we stand up for those who have been [...]

By | 2018-01-16T22:58:11+00:00 January 8th, 2018|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on We must end sexual health harassment – IC/BPS and the #MeToo Movement

Should We Travel During IC Flares? Staying Home During The Holidays May Be Important

Here’s one of the most frustrating questions that IC patients often struggle with. “Should or shouldn’t we go to Grandma’s House for a holiday celebration if IC is flaring?” In my first year of IC, my family really didn’t understand what I was struggling with nor the intensity of my pain and discomfort. I freely [...]

By | 2017-12-21T15:39:14+00:00 December 21st, 2017|Front Page Feed|Comments Off on Should We Travel During IC Flares? Staying Home During The Holidays May Be Important

When Bladder Treatments Don’t Work For IC/BPS: It’s Time For A New Approach

Clinging To Old Treatments For IC/BPS Could Hold You Back If you had been diagnosed with IC/BPS forty years ago, odds are you would have been prescribed antibiotics, given urethral dilations and/or referred to a psychiatrist under the mistaken assumption that IC was all in your heads. Twenty years ago, that same patient might have [...]

By | 2017-11-22T23:58:26+00:00 November 22nd, 2017|Flares, Front Page Feed, Jill's Journal, Pain Care, Pelvic Floor Dysfunction, Pelvic Pain, Women's Health|Comments Off on When Bladder Treatments Don’t Work For IC/BPS: It’s Time For A New Approach

ICN Now Open For Business – Santa Rosa Fire Update

After two perilous weeks with deadly fires here in Sonoma County, we are finally back at work with power, phones and internet! Whew! I would like to thank everyone who sent notes and prayers to our staff. Thankfully, none of our employees lost their homes but it was close. The TUBBS fire came within a [...]

By | 2018-01-02T15:20:59+00:00 October 23rd, 2017|Front Page Feed, ICN Announcements|Comments Off on ICN Now Open For Business – Santa Rosa Fire Update

Seeking Nominations For Doctor, Nurse & Physical Therapist of the Year Awards

Do you have a doctor who has treated you with kindness, compassion and respect? Who has helped you try various treatments? Do you have a nurse who goes above and beyond in helping you, especially during IC flares? Do you have a physical therapist who has provided comfort and care for pelvic floor dysfunction? [...]

By | 2017-09-26T16:49:23+00:00 September 26th, 2017|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Seeking Nominations For Doctor, Nurse & Physical Therapist of the Year Awards

Dr. Chris Payne Presentation on IC/BPS From AUA 2017

Dr. Christopher Payne (Vista Urology, San Jose CA) offers his course on IC/BPS from the 2017 American Urological Association. This fabulous lecture was used to educate hundreds of urologists interested in IC/BPS. Dr. Payne covers the history of IC and  explains why current diagnostic and treatment strategies may be incorrect and out of touch. [...]

By | 2017-08-27T22:18:08+00:00 August 27th, 2017|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Dr. Chris Payne Presentation on IC/BPS From AUA 2017

Pelvic Pain Conferences Brings National Experts To Colorado In September

Bridge For Pelvic Pain Conference In September 2017 The Bridge For Pelvic Pain is welcoming chronic pelvic pain patients and providers to their annual conference. Learn about chronic pelvic, sexual and genital pain, and integrative treatments from presentations by doctors, physical therapists, counselors, wellness experts and patient advocates. When: Saturday Sept 30, 2017 – [...]

By | 2017-08-10T17:20:46+00:00 August 10th, 2017|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Pelvic Pain Conferences Brings National Experts To Colorado In September

My Uterine Cancer Scare – Hormone Replacement Therapy Carries Risks

Last Spring, I announced that I was having an emergency surgery for possible uterine cancer. It was May 23, 2017 and I was terrified. Absolutely, completely and totally terrified that they would find active tumors and, worse (yes, worse) that the surgery would exacerbate my IC and pelvic pain. Let me start by saying [...]

By | 2017-09-18T15:26:49+00:00 August 10th, 2017|Front Page Feed, Jill's Journal|Comments Off on My Uterine Cancer Scare – Hormone Replacement Therapy Carries Risks

Medical Organizations Swiftly Reject TrumpCare Passage

The sudden and swift passage of TrumpCare yesterday as created turmoil in patient groups around the USA. By leaving in an option in the bill that would allow states to apply for a waiver to raise the price of premiums for patients struggling with pre-existing conditions, disabled and elderly patients are deeply concerned that [...]

By | 2017-05-05T18:16:17+00:00 May 5th, 2017|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Medical Organizations Swiftly Reject TrumpCare Passage