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Valentines Day, Intimacy and IC

I apologize in advance if this column offends anyone but we do, on occasion, need to talk about intimacy and how IC can impact that. For those of you who know me, you know that I'm very direct about the issues that we struggle with. I believe that IC can strengthen rather than weaken our [...]

By |2019-02-13T12:56:33+00:00February 13th, 2019|Front Page Feed, Interstitial Cystitis Network Blog, Jill's Journal, Self-Help Tips for IC, Bladder & Pelvic Pain|Comments Off on Valentines Day, Intimacy and IC

The Dangers of Cipro & Levaquin – Have you been floxed?

When we are prescribed an antibiotic, we are under the assumption that the antibiotic is going to kill, and only kill, bacteria that might be causing an infection. What if that antibiotic also kills mammalian (human) cells... cells that are imperative to our life and our body functions? Researchers now believe that this is exactly [...]

By |2019-02-03T19:59:56+00:00February 3rd, 2019|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on The Dangers of Cipro & Levaquin – Have you been floxed?

2019 Cold & Flu Survey Results – IC Friendly Tips & Strats!

Not sure what you can take to ease your sore throat, cough or flu symptoms without triggering an IC flare? Every few years we survey patients to find out what works best for them. This year, more than 100 patients shared their best cold and flu tips and strategies. In general, products containing honey were, [...]

By |2019-01-18T20:28:22+00:00January 17th, 2019|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on 2019 Cold & Flu Survey Results – IC Friendly Tips & Strats!

How To Be A Good Online Support Group Member

When I was first diagnosed with IC, I was 13 years old and it was the early 1990s. The internet wasn’t really around. My symptoms slowly subsided over the next few years then came back full-force when I was 23. By then, it was 2002 and the internet was everywhere. Online support groups were now [...]

By |2019-01-30T21:20:15+00:00January 14th, 2019|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on How To Be A Good Online Support Group Member

The Fall 2018 IC Optimist Is Now Available

The IC Optimist is the quarterly magazine for IC Network members. It offers a variety of curated content from "Meet the Expert" interviews to feature stories, self-help tips to the latest research and clinical trial announcements. Learn more about our memberships here!  In this issue: #1 - Meet the Pelvic Pain Expert - Dn Interview [...]

By |2018-12-11T22:32:23+00:00December 11th, 2018|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on The Fall 2018 IC Optimist Is Now Available

Self Help Tip – Don’t Let Fear of Physical Therapy Stop You

We’ve long passed those days when we believed that IC was an incurable bladder disease. Today, we consider IC/BPS a pelvic pain syndrome that can involve structures beyond the bladder, often the pelvic floor muscles. Dysfunctional pelvic floor muscles can trigger all of the symptoms we normally associate with the bladder, including frequency, urgency, pressure [...]

By |2018-11-28T00:23:56+00:00November 3rd, 2018|Front Page Feed, Interstitial Cystitis Network Blog, Jill's Journal, Self-Help Tips for IC, Bladder & Pelvic Pain|Comments Off on Self Help Tip – Don’t Let Fear of Physical Therapy Stop You

Tips for Managing Marriage and IC

Back in August of 1999, I was a 20-year-old college student excited to marry my high school sweetheart. I had bladder issues from the time I was 3. I was diagnosed with IC when I was 13. When I was 15, my husband asked me to be his girlfriend. As time went on, my symptoms [...]

By |2018-10-16T17:53:21+00:00September 29th, 2018|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Tips for Managing Marriage and IC

IC Awareness Month Kicks Off – It’s time to tell our IC stories and speak our truth!

September is the most important month for the IC movement. This is the time that we gather together, share our stories, educate our communities, seek out patients who are suffering in silence and work, as a group, to raise awareness about IC/BPS, one of the most and misunderstood medical conditions. Each and every day, IC [...]

By |2018-08-31T20:28:42+00:00August 31st, 2018|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on IC Awareness Month Kicks Off – It’s time to tell our IC stories and speak our truth!

Back To School Strategies For Kids With IC

(By Jill Osborne) School has started here in California and for children and teens with IC it can create a lot of anxiety and uncertainty. Will they be given restroom access? Will they have teachers who support them? Will they make new friends and fit in? Will the bus ride be comfortable? Your goal as [...]

By |2019-01-21T15:00:02+00:00August 15th, 2018|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Back To School Strategies For Kids With IC

Next Generation Urine Testing Now Available – Reveals Hidden and/or Chronic Bacterial & Fungal Infections

IC patients, especially those struggling with recurring flares, often wonder if they could have a chronic bacterial or fungal infection that is not being detected through traditional urine testing. A new, affordable and far more sensitive urine test, Next Generation DNA Sequencing, is now available that can identify both bacteria and fungi in a patients [...]

By |2018-09-07T14:33:30+00:00August 15th, 2018|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Next Generation Urine Testing Now Available – Reveals Hidden and/or Chronic Bacterial & Fungal Infections