The ICN offers live IC/BPS/PFD support group meetings held twice a month and simulcast through our Facebook and YouTube pages. Led by Jill Osborne, the longest serving IC support group leader in the USA, she will take your questions about IC, share new information, review IC subtypes, explore treatment options, self-help tips and much more! Each meeting lasts about two hours!
Disclaimer: The purpose of our support group meetings is to educate and inform patients so that they can work more effectively with their medical care providers. The IC Network and Jill Osborne do NOT provide medical advice or medical services. Only your medical care provider can provide medical advice to you. Please take the information you have learned and/or gathered from our meetings and website to your physicians so that you can discuss your medical care and treatment proactively. The more knowledgable and informed you are, the better you will be able to work with your medical care team.
First & Third Sundays Of the Month starting between 12:30PM and 1PM. Please note that it may take a few extra minutes to get the video feeds working so please be patient!
Jill also does meetings during the middle of the week on random days and times to accommodate patient schedules, as well as our international viewers. To be notified of those, just Like our FB or follow our YouTube channel and you will be notified when they start.
It is simulcast through our Facebook Page and our YouTube Channel
ICN Face Page – https://www.facebook.com/interstitialcystitisnetwork?fref=ts
ICN YouTube Channel – https://www.youtube.com/icnjill/
How To Submit Questions
The best way to get your question answered is to send it to us in advance! Just send it to: firstname.lastname@example.org. Or you can ask your question in the meeting but please know that they often cycle through very very quickly. We try to answer them all! Don’t hesitate to ask your question twice if we miss it the the first time!
Our meetings are recorded and available for viewing by the public on both platforms after the fact. If confidentiality is important to you, we suggest that you use anonymous accounts on either YouTube or Facebook.