The ICN offers live IC/BPS/PFD support group meetings held twice a month and simulcast through our Facebook and YouTube pages. Led by Jill Osborne, the longest serving IC support group leader in the USA, she will take your questions about IC, share new information, review IC subtypes, explore treatment options, self-help tips and much more! Each meeting lasts about two hours!
First & Third Sundays Of the Month starting between 12:30PM and 1PM. Please note that it may take a few extra minutes to get the video feeds working so please be patient!
Jill also does meetings during the middle of the week on random days and times to accommodate patient schedules, as well as our international viewers. To be notified of those, just Like our FB or follow our YouTube channel and you will be notified when they start.
It is simulcast through our Facebook Page and our YouTube Channel
ICN Face Page – https://www.facebook.com/interstitialcystitisnetwork?fref=ts
ICN YouTube Channel – https://www.youtube.com/icnjill/
How To Submit Questions
The best way to get your question answered is to send it to us in advance! Just send it to: firstname.lastname@example.org. Or you can ask your question in the meeting but please know that they often cycle through very very quickly. We try to answer them all! Don’t hesitate to ask your question twice if we miss it the the first time!
Our meetings are recorded and available for viewing by the public on both platforms after the fact. If confidentiality is important to you, we suggest that you use anonymous accounts on either YouTube or Facebook.