Call Us Today! 1.800.928.7496

Our Blog

Read the latest news about interstitial cystitis, bladder pain syndrome and related conditions in the ICN blog.

Feeling the Pain: The Impact of Chronic Pain on Emotions

While the chronic pain of IC can be difficult to deal with physically, its impact doesn't stop with physical pain. During flares, especially, we can find ourselves crying more easily, angry, depressed, anxious or any mix of emotions. I remember once getting choked up at the grocery store when I realized the store was out [...]

By |2020-06-19T09:03:26-07:00June 19th, 2020|Front Page Feed, Our Blog|Comments Off on Feeling the Pain: The Impact of Chronic Pain on Emotions

ELMIRON® Label in USA Now Includes New Warning About Eye Disease

Breaking News! After multiple research studies and peer reviewed publications, an FDA citizens petition and patients sharing their stories, the label for ELMIRON® has now been changed in the USA to include a new warning about eye disease. Here is what the revised label says: WARNINGS Retinal Pigmentary Changes Pigmentary changes in the retina, reported [...]

By |2020-06-17T20:57:51-07:00June 17th, 2020|Our Blog, Research|Comments Off on ELMIRON® Label in USA Now Includes New Warning About Eye Disease

Q&A With Stacy Hauer JD on Elmiron Eye Disease Lawsuits

This Spring, four federal lawsuits were filed on behalf of IC patients who are struggling with pigmentary maculopathy, a new retinal disease associated with the long-term use of Elmiron. Each case alleges that Janssen Pharmaceuticals, part of the Johnson & Johnson umbrella of companies, failed to provide adequate warnings to patients and the medical community [...]

By |2020-06-13T15:18:23-07:00June 13th, 2020|Front Page Feed, Our Blog|Comments Off on Q&A With Stacy Hauer JD on Elmiron Eye Disease Lawsuits

New Research Reveals Viral Infections in Some Interstitial Cystitis Patients

MAPP Research Network Study Clearly Finds Two Polyomaviruses In Urine of IC Patients There is a small, vocal group of patients and clinicians who suggest that IC is the result of a chronic bacterial infection.  This "all or none" theory ignores the thousands of patients who have developed urinary frequency, urgency, pressure and/or pain after [...]

By |2020-06-12T21:11:18-07:00June 12th, 2020|Our Blog, Research|Comments Off on New Research Reveals Viral Infections in Some Interstitial Cystitis Patients

15 Tips for Long Car Rides with IC

Going on long car rides can be troublesome for IC patients. Many patients report that being in the car for a long time causes their symptoms to flare. However, keeping a few tips and tricks up your sleeve can help make long car rides a bit easier. The last thing any ICer wants is to [...]

By |2020-06-09T08:55:59-07:00June 9th, 2020|Front Page Feed, Our Blog|Comments Off on 15 Tips for Long Car Rides with IC

Black Lives Matter – Black Dreams Matter – Black Health Matters

As I write this, the funeral for George Floyd is happening in Minneapolis.  His murder is the touchstone and rallying cry for thousands (if not millions) to defeat systemic racism around the world. I didn't choose to be white just like George Floyd didn't choose to be black. Every single day, black men and women face [...]

By |2020-06-04T14:18:38-07:00June 4th, 2020|Front Page Feed, Our Blog|Comments Off on Black Lives Matter – Black Dreams Matter – Black Health Matters

New IC Optimist Released – Our Spring 2020 Patient Magazine

We are delighted to announce that the Spring 2020 issue of the IC Optimist has now been released. ICN Members can download their electronic copies from their member page in the ICN Shop now! (You must log in to view your member page. If you've forgotten your password, simply click on the password reset link [...]

By |2020-06-05T16:15:52-07:00May 30th, 2020|Front Page Feed, Our Blog|Comments Off on New IC Optimist Released – Our Spring 2020 Patient Magazine

How to be Your Own Best Health Advocate

Four years ago, I had increased bladder pressure caused by vaginal vault prolapse. Because of my extensive pelvic history, my local gynecologist didn't want to treat it and sent me to a specialist in a big city an hour away. That specialist insisted I couldn't possibly be feeling pain or increased symptoms and referred me [...]

By |2020-06-08T11:33:05-07:00May 29th, 2020|Front Page Feed, Our Blog|Comments Off on How to be Your Own Best Health Advocate

Free Guided Imagery Audio For IC, Prostatitis and Pelvic Pain Patients

We are delighted to announce that Beaumont Urology, the top IC research center in the USA, has made available their Guided Imagery series for FREE to all patients in need. Studies have shown that their programs improve your ability to relax muscles, reduce pain and urinary symptoms. Every patient struggling with interstitial cystitis, prostatitis and/or [...]

By |2020-04-28T13:24:53-07:00April 28th, 2020|Front Page Feed, Our Blog|Comments Off on Free Guided Imagery Audio For IC, Prostatitis and Pelvic Pain Patients

Ideas for Staying Active When You’re at Home

When you are staying home because you don't feel well or need to be home otherwise, hanging out on the couch with Netflix can be tempting. While sometimes that's exactly what we need, if we are home for longer periods of time, we also need to make sure we are finding ways to stay active [...]

By |2020-06-08T11:32:28-07:00April 16th, 2020|Front Page Feed, Our Blog|Comments Off on Ideas for Staying Active When You’re at Home