Home/Jill Osborne

About Jill Osborne

My Google Profile+ Jill Heidi Osborne is the president and founder of the Interstitial Cystitis Network, a health education company dedicated to interstitial cystitis, bladder pain syndrome and other pelvic pain disorders. As the editor and lead author of the ICN and the IC Optimist magazine, Jill is proud of the academic recognition that her website has achieved. The University of London rated the ICN as the top IC website for accuracy, credibility, readability and quality. (Int Urogynecol J - April 2013). Harvard Medical School rated both Medscape and the ICN as the top two websites dedicated to IC. (Urology - Sept 11). Jill currently serves on the Congressionally Directed Medical Research Panel (US Army) where she collaborates with researchers to evaluate new IC research studies for possible funding. Jill has conducted and/or collaborates on a variety of IC research studies on new therapeutics, pain care, sexuality, the use of medical marijuana, menopause and the cost of treatments, shining a light on issues that influence patient quality of life. An IC support group leader and national spokesperson for the past 20 years, she has represented the IC community on radio, TV shows, at medical conferences. She has written hundreds of articles on IC and its related conditions. With a Bachelors Degree in Pharmacology and a Masters in Psychology, Jill was named Presidential Management Intern (aka Fellowship) while in graduate school. (She was unable to earn her PhD due to the onset of her IC.) She spends the majority of her time providing WELLNESS COACHING for patients in need and developing new, internet based educational and support tools for IC patients, including the “Living with IC” video series currently on YouTube and the ICN Food List smartphone app! Jill was diagnosed with IC at the age of 32 but first showed symptoms at the age of 12.

The Summer 2017 IC Optimist Is Now Available

The Summer 2017 IC Optimist has now been sent by e-mail and/or US Mail to our current ICN paid members! Your copy should be arrived shortly if it has not already arrived! In this issue: ICN Editorial: “My Uterine Cancer Scare: Hormone Replacement Therapy Carries Risks” Feature Story: Master Class - “The Broad Picture [...]

By | 2017-09-18T15:22:44+00:00 September 7th, 2017|Interstitial Cystitis Network Blog|Comments Off on The Summer 2017 IC Optimist Is Now Available

2017 IC/BPS Awareness Month Kicks Off

Every September, IC/BPS patients and organizations around the world gather together to promote interstitial cystitis, bladder pain syndrome and chronic pelvic pain. This year, our campaign is bold and blunt, telling the story of patients who are refused pain treatment with, in some cases, tragic results. Despite decades of research showing that this medical [...]

By | 2017-09-03T13:57:41+00:00 September 1st, 2017|Awareness, Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on 2017 IC/BPS Awareness Month Kicks Off

Dr. Chris Payne Presentation on IC/BPS From AUA 2017

Dr. Christopher Payne (Vista Urology, San Jose CA) offers his course on IC/BPS from the 2017 American Urological Association. This fabulous lecture was used to educate hundreds of urologists interested in IC/BPS. Dr. Payne covers the history of IC and  explains why current diagnostic and treatment strategies may be incorrect and out of touch. [...]

By | 2017-08-27T22:18:08+00:00 August 27th, 2017|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Dr. Chris Payne Presentation on IC/BPS From AUA 2017

IC Diet Project – Fresh Blueberries Are In Season! Our Favorite Blueberry Love Recipes!

One of the best parts of summer are the fresh blueberries available. When it comes to low acid and bladder friendly foods, you can't go wrong with recipes that are focused on this luscious yet light and flavorful fruit! Here are some of our favorite blueberry recipes! Blueberry Breakfast Casserole (Julie Beyer RD) Ingredients: [...]

By | 2017-08-16T01:03:41+00:00 August 16th, 2017|Diet & Food, IC Diet Project|Comments Off on IC Diet Project – Fresh Blueberries Are In Season! Our Favorite Blueberry Love Recipes!

New IC/BPS Phenotyping System Proposed – From UPOINT to INPUT

The UPOINT System for the Clinical Phenotyping of Chronic Pelvic Pain by Nickel, Shoskes and Racily was the first proposed subtyping system for chronic pelvic and bladder pain. It asked physicians to look at and beyond the bladder in six different areas, including: what urinary symptoms are present? what’s the condition of the bladder (i.e. Hunner’s lesions)? does [...]

By | 2017-08-16T21:54:00+00:00 August 10th, 2017|Interstitial Cystitis Network Blog, Research|Comments Off on New IC/BPS Phenotyping System Proposed – From UPOINT to INPUT

Pelvic Pain Conferences Brings National Experts To Colorado In September

Bridge For Pelvic Pain Conference In September 2017 The Bridge For Pelvic Pain is welcoming chronic pelvic pain patients and providers to their annual conference. Learn about chronic pelvic, sexual and genital pain, and integrative treatments from presentations by doctors, physical therapists, counselors, wellness experts and patient advocates. When: Saturday Sept 30, 2017 – [...]

By | 2017-08-10T17:20:46+00:00 August 10th, 2017|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Pelvic Pain Conferences Brings National Experts To Colorado In September

Patients Report Opiate Pain Medication Their Most Effective Treatment of IC/BPS

Do Patients Perceptions Of Treatment Success or Failure Match Clinical Trial Results? They don’t. When the American Urological Association created their Guidelines for the Diagnosis and Treatment for IC/BPS in 2011 they ranked their treatment options based primarily on clinical trial results.  Researchers in Canada and the USA sought to determine if these treatment [...]

By | 2017-08-10T23:12:03+00:00 August 10th, 2017|Pain Care, Research|Comments Off on Patients Report Opiate Pain Medication Their Most Effective Treatment of IC/BPS

MAPP Research Network Study Finds That Fungus In Urine Might Be Linked To Urgency and Pain

One of the most promising lines of research in urology today is the study of the biome, the diverse population of bacteria and fungi that live harmoniously in the human body. In previous MAPP Research Network studies, IC patients were found to have high levels of candida/fungi in their urine during flares.(1) Another found [...]

By | 2017-08-10T17:10:12+00:00 August 10th, 2017|Interstitial Cystitis Network Blog, Research|Comments Off on MAPP Research Network Study Finds That Fungus In Urine Might Be Linked To Urgency and Pain

My Uterine Cancer Scare – Hormone Replacement Therapy Carries Risks

Last Spring, I announced that I was having an emergency surgery for possible uterine cancer. It was May 23, 2017 and I was terrified. Absolutely, completely and totally terrified that they would find active tumors and, worse (yes, worse) that the surgery would exacerbate my IC and pelvic pain. Let me start by saying [...]

By | 2017-09-18T15:26:49+00:00 August 10th, 2017|Front Page Feed, Jill's Journal|Comments Off on My Uterine Cancer Scare – Hormone Replacement Therapy Carries Risks

The Bella Rosa Coffee Company produces remarkably low acid coffees – A new coffee option

If you miss your coffee and are frustrated with its ability to irritate your bladder or gut, we have three new, exciting ones for you to try from  The Bella Rosa Coffee Company. For many years, we all assumed that it was the overall pH or acid level of coffee that was the trigger for [...]

By | 2017-07-24T19:46:28+00:00 July 19th, 2017|Diet & Food, Interstitial Cystitis Network Blog|Comments Off on The Bella Rosa Coffee Company produces remarkably low acid coffees – A new coffee option