/Jill Osborne

About Jill Osborne

My Google Profile+ Jill Heidi Osborne is the president and founder of the Interstitial Cystitis Network, a health education company dedicated to interstitial cystitis, bladder pain syndrome and other pelvic pain disorders. As the editor and lead author of the ICN and the IC Optimist magazine, Jill is proud of the academic recognition that her website has achieved. The University of London rated the ICN as the top IC website for accuracy, credibility, readability and quality. (Int Urogynecol J - April 2013). Harvard Medical School rated both Medscape and the ICN as the top two websites dedicated to IC. (Urology - Sept 11). Jill currently serves on the Congressionally Directed Medical Research Panel (US Army) where she collaborates with researchers to evaluate new IC research studies for possible funding. Jill has conducted and/or collaborates on a variety of IC research studies on new therapeutics, pain care, sexuality, the use of medical marijuana, menopause and the cost of treatments, shining a light on issues that influence patient quality of life. An IC support group leader and national spokesperson for the past 20 years, she has represented the IC community on radio, TV shows, at medical conferences. She has written hundreds of articles on IC and its related conditions. With a Bachelors Degree in Pharmacology and a Masters in Psychology, Jill was named Presidential Management Intern (aka Fellowship) while in graduate school. (She was unable to earn her PhD due to the onset of her IC.) She spends the majority of her time providing WELLNESS COACHING for patients in need and developing new, internet based educational and support tools for IC patients, including the “Living with IC” video series currently on YouTube and the ICN Food List smartphone app! Jill was diagnosed with IC at the age of 32 but first showed symptoms at the age of 12.

IC Vision & Eyesight Survey Launched Today

Emory Eye Center Seeks Your Help with IC Vision Study As some of you may know, we have recently learned of work done at Emory University regarding vision loss in some patients with interstitial cystitis. We have been in touch with these researchers to help facilitate their ongoing work, and they are interested in hearing [...]

By |2018-11-23T16:35:32+00:00November 23rd, 2018|Interstitial Cystitis Network Blog, Research|Comments Off on IC Vision & Eyesight Survey Launched Today

Self Help Tip – Don’t Let Fear of Physical Therapy Stop You

We’ve long passed those days when we believed that IC was an incurable bladder disease. Today, we consider IC/BPS a pelvic pain syndrome that can involve structures beyond the bladder, often the pelvic floor muscles. Dysfunctional pelvic floor muscles can trigger all of the symptoms we normally associate with the bladder, including frequency, urgency, pressure [...]

By |2018-11-28T00:23:56+00:00November 3rd, 2018|Front Page Feed, Interstitial Cystitis Network Blog, Jill's Journal, Self-Help Tips for IC, Bladder & Pelvic Pain|Comments Off on Self Help Tip – Don’t Let Fear of Physical Therapy Stop You

Butternut Squash & Pear Soup

When you think of bladder friendly veggies, pumpkin and squash come quickly to mind, especially with the onset of Fall. This all-time favorite soup combines rich butternut squash with sweet and oh so bladder friendly pears. It's easy to prepare and the perfect accompaniment to a grilled cheese and avocado sandwich. If you like a [...]

By |2018-11-03T19:54:06+00:00November 3rd, 2018|Diet & Food, IC Diet Project|Comments Off on Butternut Squash & Pear Soup

Long-Term Pentosan (Elmiron) Use May Be Linked to Eye Disease

As a health publishing company dedicated to interstitial cystitis, it is our duty to share news which can impact you, the IC patient. Unfortunately, we must share some distressing news. If you have or are currently taking pentosan polysulfate PPS (brand name: Elmiron®) and are experiencing eye issues, researchers at the Emory Eye Center (Emory [...]

By |2018-10-16T17:51:31+00:00September 1st, 2018|Interstitial Cystitis Network Blog, Research|Comments Off on Long-Term Pentosan (Elmiron) Use May Be Linked to Eye Disease

IC Awareness Month Kicks Off – It’s time to tell our IC stories and speak our truth!

September is the most important month for the IC movement. This is the time that we gather together, share our stories, educate our communities, seek out patients who are suffering in silence and work, as a group, to raise awareness about IC/BPS, one of the most and misunderstood medical conditions. Each and every day, IC [...]

By |2018-08-31T20:28:42+00:00August 31st, 2018|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on IC Awareness Month Kicks Off – It’s time to tell our IC stories and speak our truth!

The History of IC Subtypes (Phenotypes)

Earlier this summer, there were some patients on Facebook who suggested that IC subtypes were not real. Here is the history of the four subtyping systems proposed for IC/BPS to date. This is a REAL thing that is now helping patients find their unique presentation of IC/BPS so that they can focus on the correct [...]

By |2018-08-20T13:53:01+00:00August 18th, 2018|Awareness, Interstitial Cystitis Network Blog, Research|Comments Off on The History of IC Subtypes (Phenotypes)

New Urine Test Shows High Confidence in Correctly Diagnosing IC

Researchers around the world have pursued the holy grail of diagnostic testing for IC/BPS - a simple, non-invasive urine test. Researchers at Beaumont Hospital, the nations leading IC research center, have developed a urine test which corrects classified all Hunner's lesion patients. Simply astonishing! In the IP4IC study, researchers measured urinary cytokine levels in 146 [...]

By |2018-08-27T15:23:52+00:00August 17th, 2018|Research|Comments Off on New Urine Test Shows High Confidence in Correctly Diagnosing IC

Platelet-Rich Plasma Treatment Shows Great Promise For IC Treatment

Platelet-rich plasma (PRP) is a concentrate of platelet-rich plasma protein derived from whole blood. It is extremely rich in growth factors and cytokines, which regulate tissue reconstruction. PRP has been used to encourage healing of various soft tissues in the human body as well as to assist in surgical wound healing. Researchers in Taiwan conducted [...]

By |2018-08-17T16:28:11+00:00August 17th, 2018|Interstitial Cystitis Network Blog, Research|Comments Off on Platelet-Rich Plasma Treatment Shows Great Promise For IC Treatment

Back To School Strategies For Kids With IC

(By Jill Osborne) School has started here in California and for children and teens with IC it can create a lot of anxiety and uncertainty. Will they be given restroom access? Will they have teachers who support them? Will they make new friends and fit in? Will the bus ride be comfortable? Your goal as [...]

By |2018-08-16T13:35:27+00:00August 15th, 2018|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Back To School Strategies For Kids With IC

Next Generation Urine Testing Now Available – Reveals Hidden and/or Chronic Bacterial & Fungal Infections

IC patients, especially those struggling with recurring flares, often wonder if they could have a chronic bacterial or fungal infection that is not being detected through traditional urine testing. A new, affordable and far more sensitive urine test, Next Generation DNA Sequencing, is now available that can identify both bacteria and fungi in a patients [...]

By |2018-09-07T14:33:30+00:00August 15th, 2018|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Next Generation Urine Testing Now Available – Reveals Hidden and/or Chronic Bacterial & Fungal Infections