Home/Jill Osborne

About Jill Osborne

My Google Profile+ Jill Heidi Osborne is the president and founder of the Interstitial Cystitis Network, a health education company dedicated to interstitial cystitis, bladder pain syndrome and other pelvic pain disorders. As the editor and lead author of the ICN and the IC Optimist magazine, Jill is proud of the academic recognition that her website has achieved. The University of London rated the ICN as the top IC website for accuracy, credibility, readability and quality. (Int Urogynecol J - April 2013). Harvard Medical School rated both Medscape and the ICN as the top two websites dedicated to IC. (Urology - Sept 11). Jill currently serves on the Congressionally Directed Medical Research Panel (US Army) where she collaborates with researchers to evaluate new IC research studies for possible funding. Jill has conducted and/or collaborates on a variety of IC research studies on new therapeutics, pain care, sexuality, the use of medical marijuana, menopause and the cost of treatments, shining a light on issues that influence patient quality of life. An IC support group leader and national spokesperson for the past 20 years, she has represented the IC community on radio, TV shows, at medical conferences. She has written hundreds of articles on IC and its related conditions. With a Bachelors Degree in Pharmacology and a Masters in Psychology, Jill was named Presidential Management Intern (aka Fellowship) while in graduate school. (She was unable to earn her PhD due to the onset of her IC.) She spends the majority of her time providing WELLNESS COACHING for patients in need and developing new, internet based educational and support tools for IC patients, including the “Living with IC” video series currently on YouTube and the ICN Food List smartphone app! Jill was diagnosed with IC at the age of 32 but first showed symptoms at the age of 12.

The Bella Rosa Coffee Company produces remarkably low acid coffees – A new coffee option

If you miss your coffee and are frustrated with its ability to irritate your bladder or gut, we have three new, exciting ones for you to try from  The Bella Rosa Coffee Company. For many years, we all assumed that it was the overall pH or acid level of coffee that was the trigger for [...]

By | 2017-07-21T11:16:10+00:00 July 19th, 2017|Diet & Food, Interstitial Cystitis Network Blog|Comments Off on The Bella Rosa Coffee Company produces remarkably low acid coffees – A new coffee option

Extreme Heat Prevents Shipping Of CystoProtek & CystoRenew For A Week – June 17-23, 2017

The National Weather Service has issued a six day extreme heat alert for Northern California with temperatures reaching up to 105 degrees (and likely higher at our warehouse). This makes it impossible to safely ship items from the ICN Shop that are heat sensitive including: CystoProtek CystoRenew Carob Candy Other Consumables Estimated Dates We [...]

By | 2017-07-19T16:27:36+00:00 June 16th, 2017|ICN Announcements, Interstitial Cystitis Network Blog|Comments Off on Extreme Heat Prevents Shipping Of CystoProtek & CystoRenew For A Week – June 17-23, 2017

I was fine until I wasn’t – Jill’s Journal – Hysterectomy & Possible Uterine Cancer

ICN Education & Support Phone Line Will Be Closed While Jill Recovers From Surgery Next week I’ll be recovering from an urgent hysterectomy and waiting anxiously for my uterine biopsy results. This saga began last fall when I started spotting. Of course, I hadn’t had a period in about two years so contacted my doctor [...]

Real Men Get Real Pelvic Pain Presentation at AUA 2017

Dr. Jeannette Potts Fights Chronic Prostatitis Misdiagnosis and Label - If you've been told that your pelvic pain is the result of chronic prostatitis, you are not alone. If you've spent hundreds if not thousands of dollars on various "prostate centric" antibiotics and other prescriptions, you're in the company of millions of men who, it turns [...]

By | 2017-05-11T15:50:08+00:00 May 10th, 2017|Interstitial Cystitis Network Blog, Research|Comments Off on Real Men Get Real Pelvic Pain Presentation at AUA 2017

Medical Organizations Swiftly Reject TrumpCare Passage

The sudden and swift passage of TrumpCare yesterday as created turmoil in patient groups around the USA. By leaving in an option in the bill that would allow states to apply for a waiver to raise the price of premiums for patients struggling with pre-existing conditions, disabled and elderly patients are deeply concerned that [...]

By | 2017-05-05T18:16:17+00:00 May 5th, 2017|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Medical Organizations Swiftly Reject TrumpCare Passage

IC Diet Project – Mexican Food Can Be Very Bladder Friendly

While everyone’s familiar with tacos and enchiladas, there’s really much more to Mexican cuisine than the blazing hot, spicy fast food we see advertised every day. Many traditional Mexican foods, though not familiar fare in the U.S., are flavorful but not heavily laden with hot spices. Quite a few tasty items are in fact, mild [...]

By | 2017-04-10T13:17:25+00:00 April 10th, 2017|Diet & Food, IC Diet Project|Comments Off on IC Diet Project – Mexican Food Can Be Very Bladder Friendly

The Economic Toll of Elmiron

67% of Patients Struggle to Pay For the Only Oral Drug Approved for IC/BPS by the US FDA When the patent expired on Elmiron® in January 2010, the IC patient community expected the rapid release of a more affordable generic medication. Swati Spentose, a company located in India, has produced a generic pentosan polysulfate (Brand [...]

By | 2017-03-31T13:13:59+00:00 March 31st, 2017|Interstitial Cystitis Network Blog, Research|Comments Off on The Economic Toll of Elmiron

2016 PT of the Year – Sarah Conley PT, DPT & WCS

We are very pleased to announce that Sarah Conley PT, DPT & WCS (Conway Regional Health System) has been awarded the 2016 Physical Therapist of the Year. Votes were collected throughout Fall 2016 as part of the international IC Awareness Month campaign. We asked  patients to nominate both physical therapists and doctors who treated them with compassion, [...]

By | 2017-04-03T14:20:33+00:00 March 30th, 2017|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on 2016 PT of the Year – Sarah Conley PT, DPT & WCS

Calling All IC & Health Care Activists

Are you concerned that you will lose your health care services? Regardless of our often diverse political affiliations, there is one topic that unites us all - the state of health care in the USA. From rising costs to reduced access, IC patients are at the front line of an increasingly unsympathetic medical system. [...]

By | 2017-03-31T11:46:27+00:00 March 22nd, 2017|Interstitial Cystitis Network Blog|Comments Off on Calling All IC & Health Care Activists

2016 IC Doctor Of The Year – Dr. Robert Evans

We are pleased to announce that Dr. Robert Evans (Wake Forest Baptist Health) has, for a second year in a row, been voted the 2016 IC Doctor of the Year during our annual IC Awareness Month campaign.  Hundreds of patients nominated and voted for doctors who they believe had treated them with kindness, respect and with excellent knowledge [...]

By | 2017-03-31T11:25:36+00:00 March 20th, 2017|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on 2016 IC Doctor Of The Year – Dr. Robert Evans