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About Jill Osborne

My Google Profile+ Jill Heidi Osborne is the president and founder of the Interstitial Cystitis Network, a health education company dedicated to interstitial cystitis, bladder pain syndrome and other pelvic pain disorders. As the editor and lead author of the ICN and the IC Optimist magazine, Jill is proud of the academic recognition that her website has achieved. The University of London rated the ICN as the top IC website for accuracy, credibility, readability and quality. (Int Urogynecol J - April 2013). Harvard Medical School rated both Medscape and the ICN as the top two websites dedicated to IC. (Urology - Sept 11). For many years, Jill served on the Congressionally Directed Medical Research Panel (US Army) where she collaborated with researchers to evaluate new IC research studies for possible funding. Jill has conducted and/or collaborates on a variety of IC research studies on new therapeutics, pain care, sexuality, the use of medical marijuana, menopause and the cost of treatments, shining a light on issues that influence patient quality of life. An IC support group leader and national spokesperson for the past 20 years, she has represented the IC community on radio, TV shows, at medical conferences. She has written hundreds of articles on IC and its related conditions. Jill has a Bachelors Degree in Pharmacology and a Masters in Psychology, Jill was named Presidential Management Intern (aka Fellowship) while in graduate school. (She was unable to earn her PhD due to the onset of her IC.) She spends the majority of her time providing WELLNESS COACHING for patients in need and developing new, internet based educational and support tools for IC patients, including new live IC Support Group Meetings via Youtube and the “Living with IC” video series. Jill was diagnosed with IC at the age of 32 but first showed symptoms at the age of 12.

Lidocaine Recall Could Affect Some Bladder (Rescue) Instillations

The FDA announced today that Teligent Pharma has issued world wide recall of lidocaine topical solution 4% because they found, at 18 months, that it was far stronger than originally intended. There is a chance that this solution has been, or is currently being, used in bladder instillations. This "super potent" lidocaine would result in a [...]

By |2021-10-13T13:57:43-07:00October 13th, 2021|Our Blog|Comments Off on Lidocaine Recall Could Affect Some Bladder (Rescue) Instillations

Bladder Regeneration Study Seeks Participants. A Very Rare Opportunity

Dr. Robert Evans of Wake Forest University contacted the ICN this weekend to ask if we could let people know about a groundbreaking new study that seeks to grow new bladder tissue using cutting edge bioengineering techniques. Yes, that means that they are growing new bladder tissue from a patients own cells. This is a [...]

By |2021-10-11T00:21:26-07:00October 11th, 2021|Our Blog, Research|Comments Off on Bladder Regeneration Study Seeks Participants. A Very Rare Opportunity

Introducing BladderTracker® – A New FREE app to track your IC symptoms and bladder health!

  BladderTracker™ is a new application designed for patients struggling with interstitial cystitis, overactive bladder and other urinary disorders. Far more than a voiding diary, this free application developed by the Interstitial Cystitis Network and Natural Approach Nutrition allows patients to track their symptoms, pain levels, sleep quality, diet, hydration, exercise level and even intimacy. [...]

By |2021-09-17T15:47:14-07:00September 15th, 2021|Front Page Feed, Our Blog|Comments Off on Introducing BladderTracker® – A New FREE app to track your IC symptoms and bladder health!

Please Participate in the 2021 IC Awareness Month! We Need Your Voice & Story

Every year, IC patients around the world gather to share their IC stories, educate others and speak out. With joy at meeting others and making new IC friends as well as anger for those who have been treated poorly, this is a powerful moment for the IC patient community and we invite you to participate. [...]

By |2021-09-02T18:59:31-07:00September 2nd, 2021|Our Blog|Comments Off on Please Participate in the 2021 IC Awareness Month! We Need Your Voice & Story

COVID Associated Cystitis Is Real – IC Awareness Month Official Press Release

FOR IMMEDIATE RELEASE September 1, 2021 (Santa Rosa, CA) Since the onset of the pandemic, some COVID-19 patients have developed severe “de novo” (new) genitourinary symptoms, including urinary frequency greater than 13 voids per day, as well as the need to urinate 5 or more times  per night to relieve discomfort in their bladder.(1,2)  Cytokine [...]

By |2021-08-31T23:10:03-07:00August 31st, 2021|Awareness, Our Blog, Research|Comments Off on COVID Associated Cystitis Is Real – IC Awareness Month Official Press Release

The Summer 2021 IC Optimist Is Now Available

The Summer issue of the IC Optimist is now available. Members can now download them from their membership pages in the ICN Shop. Print issues will be mailed via USPS later this week. This issue focuses on four delicate topics: pregnancy, malnutrition, migraine headaches and loneliness. As always, our goal is to help educate, inform and [...]

By |2021-09-02T20:12:25-07:00August 18th, 2021|Front Page Feed, Our Blog|Comments Off on The Summer 2021 IC Optimist Is Now Available

New Vaccine Found to Reduce and Prevent Recurring UTI’s

During the European Association of Urology (EAU) annual meeting this Summer, researchers shared the exciting results of a study that may ease the suffering of millions struggling with recurring UTI's. This robust, Phase 3, multi center, randomized, double-blind study was designed to confirm the safety and effectiveness of MV140, a new vaccine designed to prevent [...]

By |2021-07-23T14:16:30-07:00July 22nd, 2021|Our Blog, Research|Comments Off on New Vaccine Found to Reduce and Prevent Recurring UTI’s

Do you drink diet soda? Research identifies clear connection between aspartame & cancer

Do you chew gum? Drink diet sodas or hot chocolate? Enjoy cereals? Then the odds are that you have also consumed aspartame, one of the most widely used artificial sweeteners in the world. It is prominently featured in "sugar free" products that are consumed by men, women and, of particular concern, children. The US FDA [...]

By |2021-07-07T20:50:46-07:00July 7th, 2021|Our Blog, Research|Comments Off on Do you drink diet soda? Research identifies clear connection between aspartame & cancer

Hunner’s lesion patient unexpectedly “cured” with a ligament repair

Here's a term you don't hear very often: Posterior Fornix Syndrome. Sounds odd, right? These pelvic pain patients struggle with many of the symptoms associated with interstitial cystitis, particularly nocturia, urgency, frequency and abnormal emptying. But rather than having a bladder disease, their condition is caused by weakness or tears of ligaments (uuterosacral) that support [...]

By |2021-06-03T16:44:54-07:00June 3rd, 2021|Our Blog, Research|Comments Off on Hunner’s lesion patient unexpectedly “cured” with a ligament repair

Just Released! IC101: It’s Not Just a Bladder Disease

We are delighted to announce our newest book: IC 101: It's Not Just A Bladder Disease. Recognizing that a "one treatment fits all approach" has failed millions, it introduces a new subtyping system that will help both newly diagnosed and veteran interstitial cystitis and bladder pain patients determine the actual cause of their symptoms. Patients who [...]

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