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About Jill Osborne

My Google Profile+ Jill Heidi Osborne is the president and founder of the Interstitial Cystitis Network, a health education company dedicated to interstitial cystitis, bladder pain syndrome and other pelvic pain disorders. As the editor and lead author of the ICN and the IC Optimist magazine, Jill is proud of the academic recognition that her website has achieved. The University of London rated the ICN as the top IC website for accuracy, credibility, readability and quality. (Int Urogynecol J - April 2013). Harvard Medical School rated both Medscape and the ICN as the top two websites dedicated to IC. (Urology - Sept 11). For many years, Jill served on the Congressionally Directed Medical Research Panel (US Army) where she collaborated with researchers to evaluate new IC research studies for possible funding. Jill has conducted and/or collaborates on a variety of IC research studies on new therapeutics, pain care, sexuality, the use of medical marijuana, menopause and the cost of treatments, shining a light on issues that influence patient quality of life. An IC support group leader and national spokesperson for the past 20 years, she has represented the IC community on radio, TV shows, at medical conferences. She has written hundreds of articles on IC and its related conditions. Jill has a Bachelors Degree in Pharmacology and a Masters in Psychology, Jill was named Presidential Management Intern (aka Fellowship) while in graduate school. (She was unable to earn her PhD due to the onset of her IC.) She spends the majority of her time providing WELLNESS COACHING for patients in need and developing new, internet based educational and support tools for IC patients, including new live IC Support Group Meetings via Youtube and the “Living with IC” video series. Jill was diagnosed with IC at the age of 32 but first showed symptoms at the age of 12.

ELMIRON® Label in USA Now Includes New Warning About Eye Disease

Breaking News! After multiple research studies and peer reviewed publications, an FDA citizens petition and patients sharing their stories, the label for ELMIRON® has now been changed in the USA to include a new warning about eye disease. Here is what the revised label says: WARNINGS Retinal Pigmentary Changes Pigmentary changes in the retina, reported [...]

By |2020-06-17T20:57:51-07:00June 17th, 2020|Our Blog, Research|Comments Off on ELMIRON® Label in USA Now Includes New Warning About Eye Disease

Q&A With Stacy Hauer JD on Elmiron Eye Disease Lawsuits

This Spring, four federal lawsuits were filed on behalf of IC patients who are struggling with pigmentary maculopathy, a new retinal disease associated with the long-term use of Elmiron. Each case alleges that Janssen Pharmaceuticals, part of the Johnson & Johnson umbrella of companies, failed to provide adequate warnings to patients and the medical community [...]

By |2020-06-13T15:18:23-07:00June 13th, 2020|Front Page Feed, Our Blog|Comments Off on Q&A With Stacy Hauer JD on Elmiron Eye Disease Lawsuits

New Research Reveals Viral Infections in Some Interstitial Cystitis Patients

MAPP Research Network Study Clearly Finds Two Polyomaviruses In Urine of IC Patients There is a small, vocal group of patients and clinicians who suggest that IC is the result of a chronic bacterial infection.  This "all or none" theory ignores the thousands of patients who have developed urinary frequency, urgency, pressure and/or pain after [...]

By |2020-06-12T21:11:18-07:00June 12th, 2020|Our Blog, Research|Comments Off on New Research Reveals Viral Infections in Some Interstitial Cystitis Patients

Black Lives Matter – Black Dreams Matter – Black Health Matters

As I write this, the funeral for George Floyd is happening in Minneapolis.  His murder is the touchstone and rallying cry for thousands (if not millions) to defeat systemic racism around the world. I didn't choose to be white just like George Floyd didn't choose to be black. Every single day, black men and women face [...]

By |2020-06-04T14:18:38-07:00June 4th, 2020|Front Page Feed, Our Blog|Comments Off on Black Lives Matter – Black Dreams Matter – Black Health Matters

New IC Optimist Released – Our Spring 2020 Patient Magazine

We are delighted to announce that the Spring 2020 issue of the IC Optimist has now been released. ICN Members can download their electronic copies from their member page in the ICN Shop now! (You must log in to view your member page. If you've forgotten your password, simply click on the password reset link [...]

By |2020-06-05T16:15:52-07:00May 30th, 2020|Front Page Feed, Our Blog|Comments Off on New IC Optimist Released – Our Spring 2020 Patient Magazine

Free Guided Imagery Audio For IC, Prostatitis and Pelvic Pain Patients

We are delighted to announce that Beaumont Urology, the top IC research center in the USA, has made available their Guided Imagery series for FREE to all patients in need. Studies have shown that their programs improve your ability to relax muscles, reduce pain and urinary symptoms. Every patient struggling with interstitial cystitis, prostatitis and/or [...]

By |2020-04-28T13:24:53-07:00April 28th, 2020|Front Page Feed, Our Blog|Comments Off on Free Guided Imagery Audio For IC, Prostatitis and Pelvic Pain Patients

First Lawsuit Filed Over Elmiron Eye Damage – Pelczar v. Teva Branded Pharmaceuticals R&D et al

Download our printable fact sheet to share with your doctors and family members. On March 26, 2020, Johnson & Becker PLLC  filed the first lawsuit against Teva Pharmaceuticals and Johnson & Johnson on behalf of an IC patient who was diagnosed with permanent retinal injury and vision loss due to Elmiron toxicity. In [...]

By |2020-06-17T20:35:01-07:00April 10th, 2020|Front Page Feed, Our Blog|Comments Off on First Lawsuit Filed Over Elmiron Eye Damage – Pelczar v. Teva Branded Pharmaceuticals R&D et al

New IC Optimist Released – Winter 2020

We are delighted to announce that the Winter 2020 issue of the IC Optimist has now been released. ICN Members can download their electronic copies from their member page in the ICN Shop now! (You must log in to view your member page. If you've forgotten your password, simply click on the password reset link [...]

By |2020-03-17T13:34:08-07:00March 12th, 2020|Front Page Feed, Our Blog|Comments Off on New IC Optimist Released – Winter 2020

Book Review: Breaking Through Chronic Pelvic Pain: A Holistic Approach for Relief

Breaking Through Chronic Pelvic Pain: A Holistic Approach to Relief is the most important book published on IC and pelvic pain in 50 years. Dr. Jerome Weiss, a urologist, pelvic pain and myofascial specialist who practiced in Northern California, devoted his career to unraveling the many potential causes for chronic bladder and pelvic pain. Dr. [...]

By |2020-02-19T21:23:38-08:00February 19th, 2020|Front Page Feed, Jill's Journal, Our Blog|Comments Off on Book Review: Breaking Through Chronic Pelvic Pain: A Holistic Approach for Relief

TMD, IC & COPC’s – How A Dental Condition Changed The future of IC and Chronic Pain Research

One of the mysteries of IC are the many related conditions that patients can suffer from. At first glance, IC, pelvic floor dysfunction, irritable bowel syndrome and vulvodynia share a strong commonality, location. All are disorders that occur in the pelvis. You wouldn’t expect to see a dental condition on the list, right? Yet, surprisingly, [...]

By |2020-02-18T22:19:33-08:00February 18th, 2020|Our Blog, Research|Comments Off on TMD, IC & COPC’s – How A Dental Condition Changed The future of IC and Chronic Pain Research