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About Jill Osborne

My Google Profile+ Jill Heidi Osborne is the president and founder of the Interstitial Cystitis Network, a health education company dedicated to interstitial cystitis, bladder pain syndrome and other pelvic pain disorders. As the editor and lead author of the ICN and the IC Optimist magazine, Jill is proud of the academic recognition that her website has achieved. The University of London rated the ICN as the top IC website for accuracy, credibility, readability and quality. (Int Urogynecol J - April 2013). Harvard Medical School rated both Medscape and the ICN as the top two websites dedicated to IC. (Urology - Sept 11). For many years, Jill served on the Congressionally Directed Medical Research Panel (US Army) where she collaborated with researchers to evaluate new IC research studies for possible funding. Jill has conducted and/or collaborates on a variety of IC research studies on new therapeutics, pain care, sexuality, the use of medical marijuana, menopause and the cost of treatments, shining a light on issues that influence patient quality of life. An IC support group leader and national spokesperson for the past 20 years, she has represented the IC community on radio, TV shows, at medical conferences. She has written hundreds of articles on IC and its related conditions. Jill has a Bachelors Degree in Pharmacology and a Masters in Psychology, Jill was named Presidential Management Intern (aka Fellowship) while in graduate school. (She was unable to earn her PhD due to the onset of her IC.) She spends the majority of her time providing WELLNESS COACHING for patients in need and developing new, internet based educational and support tools for IC patients, including new live IC Support Group Meetings via Youtube and the “Living with IC” video series. Jill was diagnosed with IC at the age of 32 but first showed symptoms at the age of 12.

New IC Optimist Released – Winter 2020

We are delighted to announce that the Winter 2020 issue of the IC Optimist has now been released. ICN Members can download their electronic copies from their member page in the ICN Shop now! (You must log in to view your member page. If you've forgotten your password, simply click on the password reset link [...]

By |2020-03-17T13:34:08-07:00March 12th, 2020|Front Page Feed, Our Blog|Comments Off on New IC Optimist Released – Winter 2020

Book Review: Breaking Through Chronic Pelvic Pain: A Holistic Approach for Relief

Breaking Through Chronic Pelvic Pain: A Holistic Approach to Relief is the most important book published on IC and pelvic pain in 50 years. Dr. Jerome Weiss, a urologist, pelvic pain and myofascial specialist who practiced in Northern California, devoted his career to unraveling the many potential causes for chronic bladder and pelvic pain. Dr. [...]

By |2020-02-19T21:23:38-08:00February 19th, 2020|Front Page Feed, Jill's Journal, Our Blog|Comments Off on Book Review: Breaking Through Chronic Pelvic Pain: A Holistic Approach for Relief

TMD, IC & COPC’s – How A Dental Condition Changed The future of IC and Chronic Pain Research

One of the mysteries of IC are the many related conditions that patients can suffer from. At first glance, IC, pelvic floor dysfunction, irritable bowel syndrome and vulvodynia share a strong commonality, location. All are disorders that occur in the pelvis. You wouldn’t expect to see a dental condition on the list, right? Yet, surprisingly, [...]

By |2020-02-18T22:19:33-08:00February 18th, 2020|Our Blog, Research|Comments Off on TMD, IC & COPC’s – How A Dental Condition Changed The future of IC and Chronic Pain Research

Six Reasons Why You Should NOT Self Medicate with Antibiotics When You Have an IC Flare

When the symptoms of interstitial cystitis and prostatitis virtually mimic that of a bladder infection, it's only natural for patients and doctors to contemplate treating the urinary symptoms with an antibiotic. Go ahead! Admit it! You've probably raided your medicine cabinet in the middle of the night to take an antibiotic that you've saved. You [...]

By |2020-02-19T14:28:59-08:00February 18th, 2020|Front Page Feed, Our Blog, Self-Help Tips for IC, Bladder & Pelvic Pain|Comments Off on Six Reasons Why You Should NOT Self Medicate with Antibiotics When You Have an IC Flare

Fatigue Fighting Foods

Are you struggling with fatigue?? In need of energy to make it through the day? If you’re like many, you may have relied caffeine and fast carbs for a quick energy boost. The problem? They’ll give you a quick burst of energy but two hours later leave you feeling tired, brain fogged and craving yet [...]

By |2020-01-16T21:33:09-08:00January 16th, 2020|Front Page Feed, Our Blog|Comments Off on Fatigue Fighting Foods

The Highs & Lows of 2019 For The IC Community – What have we lost, learned and gained?

Every year, we take stock of our journey. What have we gained? What have we lost? What are the critical lessons that we've learned from the past year that have helped us to grow. The goal, of course, is to walk into the New Year stronger, more empowered and more active. Here is a short [...]

By |2020-01-16T17:04:53-08:00January 16th, 2020|Front Page Feed, Our Blog|Comments Off on The Highs & Lows of 2019 For The IC Community – What have we lost, learned and gained?

Fibroid Tumors and the Bladder – A Hidden Source of Urinary Symptoms

Many Patients With Fibroids Struggle With Bladder Symptoms Have you struggled with urinary symptoms that aren’t responding to traditional bladder treatments? Do you also struggle with painful cramping and/or intense bleeding? Uterine fibroid tumors (aka leiomyomas) might be a hidden source of your symptoms. A new research study has shown that when fibroid tumors are [...]

By |2020-01-01T21:53:28-08:00January 1st, 2020|Our Blog, Research|Comments Off on Fibroid Tumors and the Bladder – A Hidden Source of Urinary Symptoms

Long-Term Pentosan (Elmiron) Use May Be Linked to Eye Disease

As a health publishing company dedicated to interstitial cystitis, it is our duty to share news which can impact you, the IC patient. Unfortunately, we must share some distressing news. If you have or are currently taking pentosan polysulfate PPS (brand name: Elmiron®) and are experiencing eye issues, researchers at the Emory Eye Center (Emory [...]

By |2020-02-24T13:37:45-08:00December 10th, 2019|Our Blog, Research|Comments Off on Long-Term Pentosan (Elmiron) Use May Be Linked to Eye Disease

The Fall IC 2019 Optimist Patient Magazine Released

Our Fall IC Optimist was delayed this Fall due to a record six power outages for fire prevention here in Northern California. We apologize for the delay but without consistent power, internet, phones and mandatory evacuations we were very limited in what we can do. This issue is dedicated to the many "confusable conditions" that [...]

By |2019-11-22T21:40:43-08:00November 22nd, 2019|Front Page Feed, Our Blog|Comments Off on The Fall IC 2019 Optimist Patient Magazine Released

New Study Finds 24% of Long-Term Elmiron Users Showed Eye Damage

New study shows about a quarter of patients with significant exposure to the drug show signs of retinal damage (Editors Note: The American Academy of Ophthalmology shared the latest study showing that Elmiron, a medication commonly prescribed for IC, is clearly linked with retinal damage in a significant number of patients. Researchers at Kaiser Permanente [...]

By |2019-12-12T15:11:08-08:00October 16th, 2019|Our Blog|Comments Off on New Study Finds 24% of Long-Term Elmiron Users Showed Eye Damage