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About Jill Osborne

My Google Profile+ Jill Heidi Osborne is the president and founder of the Interstitial Cystitis Network, a health education company dedicated to interstitial cystitis, bladder pain syndrome and other pelvic pain disorders. As the editor and lead author of the ICN and the IC Optimist magazine, Jill is proud of the academic recognition that her website has achieved. The University of London rated the ICN as the top IC website for accuracy, credibility, readability and quality. (Int Urogynecol J - April 2013). Harvard Medical School rated both Medscape and the ICN as the top two websites dedicated to IC. (Urology - Sept 11). For many years, Jill served on the Congressionally Directed Medical Research Panel (US Army) where she collaborated with researchers to evaluate new IC research studies for possible funding. Jill has conducted and/or collaborates on a variety of IC research studies on new therapeutics, pain care, sexuality, the use of medical marijuana, menopause and the cost of treatments, shining a light on issues that influence patient quality of life. An IC support group leader and national spokesperson for the past 20 years, she has represented the IC community on radio, TV shows, at medical conferences. She has written hundreds of articles on IC and its related conditions. Jill has a Bachelors Degree in Pharmacology and a Masters in Psychology, Jill was named Presidential Management Intern (aka Fellowship) while in graduate school. (She was unable to earn her PhD due to the onset of her IC.) She spends the majority of her time providing WELLNESS COACHING for patients in need and developing new, internet based educational and support tools for IC patients, including new live IC Support Group Meetings via Youtube and the “Living with IC” video series. Jill was diagnosed with IC at the age of 32 but first showed symptoms at the age of 12.

Long-Term Pentosan (Elmiron) Use May Be Linked to Eye Disease

As a health publishing company dedicated to interstitial cystitis, it is our duty to share news which can impact you, the IC patient. Unfortunately, we must share some distressing news. If you have or are currently taking pentosan polysulfate PPS (brand name: Elmiron®) and are experiencing eye issues, researchers at the Emory Eye Center (Emory [...]

By |2019-12-10T22:25:09-08:00December 10th, 2019|Our Blog, Research|Comments Off on Long-Term Pentosan (Elmiron) Use May Be Linked to Eye Disease

The Fall IC 2019 Optimist Patient Magazine Released

Our Fall IC Optimist was delayed this Fall due to a record six power outages for fire prevention here in Northern California. We apologize for the delay but without consistent power, internet, phones and mandatory evacuations we were very limited in what we can do. This issue is dedicated to the many "confusable conditions" that [...]

By |2019-11-22T21:40:43-08:00November 22nd, 2019|Front Page Feed, Our Blog|Comments Off on The Fall IC 2019 Optimist Patient Magazine Released

New Study Finds 25% of Long-Term Elmiron Users Showed Eye Damage

New study shows about a quarter of patients with significant exposure to the drug show signs of retinal damage (Editors Note: The American Academy of Ophthalmology shared the latest study showing that Elmiron, a medication commonly prescribed for IC, is clearly linked with retinal damage in a significant number of patients. Researchers at Kaiser Permanente [...]

By |2019-12-10T21:52:09-08:00October 16th, 2019|Our Blog|Comments Off on New Study Finds 25% of Long-Term Elmiron Users Showed Eye Damage

Is Interstitial Cystitis The Result of Chronic Infection?

Whether you’re newly diagnosed or a grizzled IC veteran, you’ve probably seen more than just a few disagreements in the IC world. What treatment works? What’s the best diet? Do subtypes work? Flash back 20 years and there was one single question that dominated every IC support group meeting. Is IC caused by infection? Though [...]

By |2019-09-06T16:23:23-07:00September 6th, 2019|Our Blog, Research|Comments Off on Is Interstitial Cystitis The Result of Chronic Infection?

September is IC Awareness Month!! We Need Your Help

(From Jill Osborne MA) September is the most important month for the IC movement. This is the time that we gather together, share our stories, educate our communities, seek out patients who are suffering in silence and work, as a group, to raise awareness about IC/BPS. Each and every day, IC patients struggle to find [...]

By |2019-09-05T14:05:23-07:00September 2nd, 2019|Awareness, Front Page Feed, Our Blog|Comments Off on September is IC Awareness Month!! We Need Your Help

Why You Should Consider Mirabegron Instead of Ditropan or Detrol

For interstitial cystitis and overactive bladder patients struggling with intense urinary frequency and urgency, physicians often prescribe anticholinergic medications such as Amitryptiline (Elavil), imipramine (Tofranil) or Nortryptiline (Pamelor), Oxybutynin (Ditropan, Oytrol) or Tolteradine (Detrol). Unfortunately, their use has now been linked to cognitive decline and dementia in some patients who use it daily for long [...]

By |2019-12-10T21:54:25-08:00August 22nd, 2019|Latest Research, Our Blog, Research|Comments Off on Why You Should Consider Mirabegron Instead of Ditropan or Detrol

The Most Popular OTC Supplements of 2019

There are several supplements that IC patients have turned to in light of the new research that has linked Elmiron to eye disease, as well as the traditional antidepressants (Elavil, etc.) and bladder antimuscarinics (Detrol, Ditropan) to dementia and cognitive decline.  Here is our supplement review as of Summer 2019. FOR BLADDER, GUT & BODY [...]

By |2019-08-15T23:43:08-07:00August 13th, 2019|Front Page Feed, ICN Shop & Mail Order Center, Our Blog|Comments Off on The Most Popular OTC Supplements of 2019

Colonoscopy Tips For IC Patients – IC flares rarely happen!

It's a reality we all eventually face, the dreaded colonoscopy. This vital test is recommended after the age of 50 and can help detect early cancers in the GI tract. Despite its potential life saving effect, many patients go out of their way to avoid the test for a variety of reasons. For some, it's [...]

By |2019-07-23T14:21:33-07:00July 23rd, 2019|Front Page Feed, Our Blog, Self-Help Tips for IC, Bladder & Pelvic Pain|Comments Off on Colonoscopy Tips For IC Patients – IC flares rarely happen!

New IC Study in Wisconsin Seeks Participants

Researchers at the Medical College of Wisconsin would like to recruit women who have been diagnosed with IC/BPS and/or MPP to participate in this study looking at the role of the Autonomic Nervous System in Chronic Pelvic Pain. We would like to understand whether the brain circuits that control your body might also be able [...]

By |2019-07-17T15:59:21-07:00July 17th, 2019|Clinical Trials, Research|Comments Off on New IC Study in Wisconsin Seeks Participants

Special double issue of the IC Optimist is now available – Keeping you strong, informed and empowered about IC/BPS

The Late Spring/Early Summer 2019 Issue of the IC Optimist is jam packed with the latest information, news, research results and summer tips for patients living with interstitial cystitis and pelvic pain. In this issue, we explore the role of infection in some IC patients. We happily announce the 2018 medical care providers of the year. [...]

By |2019-08-22T23:11:05-07:00July 11th, 2019|Front Page Feed, Our Blog|Comments Off on Special double issue of the IC Optimist is now available – Keeping you strong, informed and empowered about IC/BPS