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About Jill Osborne

My Google Profile+ Jill Heidi Osborne is the president and founder of the Interstitial Cystitis Network, a health education company dedicated to interstitial cystitis, bladder pain syndrome and other pelvic pain disorders. As the editor and lead author of the ICN and the IC Optimist magazine, Jill is proud of the academic recognition that her website has achieved. The University of London rated the ICN as the top IC website for accuracy, credibility, readability and quality. (Int Urogynecol J - April 2013). Harvard Medical School rated both Medscape and the ICN as the top two websites dedicated to IC. (Urology - Sept 11). For many years, Jill served on the Congressionally Directed Medical Research Panel (US Army) where she collaborated with researchers to evaluate new IC research studies for possible funding. Jill has conducted and/or collaborates on a variety of IC research studies on new therapeutics, pain care, sexuality, the use of medical marijuana, menopause and the cost of treatments, shining a light on issues that influence patient quality of life. An IC support group leader and national spokesperson for the past 20 years, she has represented the IC community on radio, TV shows, at medical conferences. She has written hundreds of articles on IC and its related conditions. Jill has a Bachelors Degree in Pharmacology and a Masters in Psychology, Jill was named Presidential Management Intern (aka Fellowship) while in graduate school. (She was unable to earn her PhD due to the onset of her IC.) She spends the majority of her time providing WELLNESS COACHING for patients in need and developing new, internet based educational and support tools for IC patients, including new live IC Support Group Meetings via Youtube and the “Living with IC” video series. Jill was diagnosed with IC at the age of 32 but first showed symptoms at the age of 12.

Fall 2021 IC Optimist Now Available – COVID cystitis, vulvodynia, bladder regeneration

The FALL issue of the IC Optimist, the magazine of the IC Network, is now available. It is currently available for download for all of our members and will be mailed shortly to those who requested printed copies! Members can now download them from their membership pages in the ICN Shop. Print issues will be [...]

By |2021-12-10T14:02:38-08:00November 23rd, 2021|Front Page Feed, Our Blog|Comments Off on Fall 2021 IC Optimist Now Available – COVID cystitis, vulvodynia, bladder regeneration

Potential Hunner’s Lesion Treatment LiRIS Failed Phase II Studies

We finally have explanation as to why the LiRIS drug delivery device was “deprioritized.” In September, the data for the final studies was released and showed that it was not successful in reducing IC symptoms, pain and, ideally, the quantity of lesions. LiRIS History LiRIS was a medical device developed by Taris Biomedical (now Johnson [...]

By |2021-11-01T17:36:09-07:00November 1st, 2021|Our Blog, Research|Comments Off on Potential Hunner’s Lesion Treatment LiRIS Failed Phase II Studies

Remembering Cindy Sinclair, Founder of PURE HOPE

Support group leaders are often hidden heroes in the IC movement. Through their own struggles and suffering, these rare and special souls understand the importance of being there for those who share their journey. They understand that a simple conversation, an encouraging word and/or helping hand can change another life for the better. Cindy Sinclair [...]

By |2021-10-26T15:34:34-07:00October 26th, 2021|Front Page Feed, Our Blog|Comments Off on Remembering Cindy Sinclair, Founder of PURE HOPE

Lidocaine Recall Could Affect Some Bladder (Rescue) Instillations

The FDA announced today that Teligent Pharma has issued world wide recall of lidocaine topical solution 4% because they found, at 18 months, that it was far stronger than originally intended. There is a chance that this solution has been, or is currently being, used in bladder instillations. This "super potent" lidocaine would result in a [...]

By |2021-10-13T13:57:43-07:00October 13th, 2021|Our Blog|Comments Off on Lidocaine Recall Could Affect Some Bladder (Rescue) Instillations

Bladder Regeneration Study Seeks Participants. A Very Rare Opportunity

Dr. Robert Evans of Wake Forest University contacted the ICN this weekend to ask if we could let people know about a groundbreaking new study that seeks to grow new bladder tissue using cutting edge bioengineering techniques. Yes, that means that they are growing new bladder tissue from a patients own cells. This is a [...]

By |2021-10-11T00:21:26-07:00October 11th, 2021|Our Blog, Research|Comments Off on Bladder Regeneration Study Seeks Participants. A Very Rare Opportunity

Introducing BladderTracker® – A New FREE app to track your IC symptoms and bladder health!

  BladderTracker™ is a new application designed for patients struggling with interstitial cystitis, overactive bladder and other urinary disorders. Far more than a voiding diary, this free application developed by the Interstitial Cystitis Network and Natural Approach Nutrition allows patients to track their symptoms, pain levels, sleep quality, diet, hydration, exercise level and even intimacy. [...]

By |2021-09-17T15:47:14-07:00September 15th, 2021|Front Page Feed, Our Blog|Comments Off on Introducing BladderTracker® – A New FREE app to track your IC symptoms and bladder health!