President & Founder - IC Network

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About Jill Osborne

My Google Profile+ Jill Heidi Osborne is the president and founder of the Interstitial Cystitis Network, a health education company dedicated to interstitial cystitis, bladder pain syndrome and other pelvic pain disorders.

As the editor and lead author of the ICN and the IC Optimist magazine, Jill is proud of the academic recognition that her website has achieved. The University of London rated the ICN as the top IC website for accuracy, credibility, readability and quality. (Int Urogynecol J – April 2013). Harvard Medical School rated both Medscape and the ICN as the top two websites dedicated to IC. (Urology – Sept 11). Jill currently serves on the Congressionally Directed Medical Research Panel (US Army) where she collaborates with researchers to evaluate new IC research studies for possible funding. Jill has conducted and/or collaborates on a variety of IC research studies on new therapeutics, pain care, sexuality, the use of medical marijuana, menopause and the cost of treatments, shining a light on issues that influence patient quality of life.

An IC support group leader and national spokesperson for the past 20 years, she has represented the IC community on radio, TV shows, at medical conferences. She has written hundreds of articles on IC and its related conditions.

With a Bachelors Degree in Pharmacology and a Masters in Psychology, Jill was named Presidential Management Intern (aka Fellowship) while in graduate school. (She was unable to earn her PhD due to the onset of her IC.) She spends the majority of her time providing WELLNESS COACHING for patients in need and developing new, internet based educational and support tools for IC patients, including the “Living with IC” video series currently on YouTube and the ICN Food List smartphone app! Jill was diagnosed with IC at the age of 32 but first showed symptoms at the age of 12.

New IC Patient Survey From USC Seeks To Understand The Impact of Diagnostic Delays In Women With IC/BPS.

A New IC Survey From USC Seeks To Understand The Impact of Diagnostic Delays In Women With IC/BPS. Principal Investigator: Katherine Volpe, MD This survey is being conducted by Katherine Volpe, who is a fellow at the University of Southern California. We know that many women with interstitial cystitis or bladder pain syndrome (IC/BPS) experience [...]

By | 2017-11-13T15:48:30+00:00 November 13th, 2017|ICN Announcements, Interstitial Cystitis Network Blog, Survey Center|Comments Off on New IC Patient Survey From USC Seeks To Understand The Impact of Diagnostic Delays In Women With IC/BPS.

ICN Now Open For Business – Santa Rosa Fire Update

After two perilous weeks with deadly fires here in Sonoma County, we are finally back at work with power, phones and internet! Whew! I would like to thank everyone who sent notes and prayers to our staff. Thankfully, none of our employees lost their homes but it was close. The TUBBS fire came within a [...]

By | 2017-10-23T16:10:22+00:00 October 23rd, 2017|Front Page Feed|Comments Off on ICN Now Open For Business – Santa Rosa Fire Update

ICN Evacuated In California Wildfires – Main Office Closed But Shipping & Sales Open

Update: October 18th, 2017 - Still Evacuated Since writing the post below, the conditions here in Santa Rosa worsened dramatically. We were allowed back for approximately 8 hours before a new fire emerged which threatened our house. At 5am the next day, we were awakened to sirens in the neighborhood and police officers shouting over [...]

By | 2017-10-23T14:11:40+00:00 October 12th, 2017|Interstitial Cystitis Network Blog|Comments Off on ICN Evacuated In California Wildfires – Main Office Closed But Shipping & Sales Open

Seeking Nominations For Doctor, Nurse & Physical Therapist of the Year Awards

Do you have a doctor who has treated you with kindness, compassion and respect? Who has helped you try various treatments? Do you have a nurse who goes above and beyond in helping you, especially during IC flares? Do you have a physical therapist who has provided comfort and care for pelvic floor dysfunction? [...]

By | 2017-09-26T16:49:23+00:00 September 26th, 2017|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Seeking Nominations For Doctor, Nurse & Physical Therapist of the Year Awards

The Summer 2017 IC Optimist Is Now Available

The Summer 2017 IC Optimist has now been sent by e-mail and/or US Mail to our current ICN paid members! Your copy should be arrived shortly if it has not already arrived! In this issue: ICN Editorial: “My Uterine Cancer Scare: Hormone Replacement Therapy Carries Risks” Feature Story: Master Class - “The Broad Picture [...]

By | 2017-09-18T15:22:44+00:00 September 7th, 2017|Interstitial Cystitis Network Blog|Comments Off on The Summer 2017 IC Optimist Is Now Available

2017 IC/BPS Awareness Month Kicks Off

Every September, IC/BPS patients and organizations around the world gather together to promote interstitial cystitis, bladder pain syndrome and chronic pelvic pain. This year, our campaign is bold and blunt, telling the story of patients who are refused pain treatment with, in some cases, tragic results. Despite decades of research showing that this medical [...]

By | 2017-10-25T12:00:33+00:00 September 1st, 2017|Awareness, Interstitial Cystitis Network Blog|Comments Off on 2017 IC/BPS Awareness Month Kicks Off

Dr. Chris Payne Presentation on IC/BPS From AUA 2017

Dr. Christopher Payne (Vista Urology, San Jose CA) offers his course on IC/BPS from the 2017 American Urological Association. This fabulous lecture was used to educate hundreds of urologists interested in IC/BPS. Dr. Payne covers the history of IC and  explains why current diagnostic and treatment strategies may be incorrect and out of touch. [...]

By | 2017-08-27T22:18:08+00:00 August 27th, 2017|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Dr. Chris Payne Presentation on IC/BPS From AUA 2017

IC Diet Project – Fresh Blueberries Are In Season! Our Favorite Blueberry Love Recipes!

One of the best parts of summer are the fresh blueberries available. When it comes to low acid and bladder friendly foods, you can't go wrong with recipes that are focused on this luscious yet light and flavorful fruit! Here are some of our favorite blueberry recipes! Blueberry Breakfast Casserole (Julie Beyer RD) Ingredients: [...]

By | 2017-08-16T01:03:41+00:00 August 16th, 2017|Diet & Food, IC Diet Project|Comments Off on IC Diet Project – Fresh Blueberries Are In Season! Our Favorite Blueberry Love Recipes!

New IC/BPS Phenotyping System Proposed – From UPOINT to INPUT

The UPOINT System for the Clinical Phenotyping of Chronic Pelvic Pain by Nickel, Shoskes and Racily was the first proposed subtyping system for chronic pelvic and bladder pain. It asked physicians to look at and beyond the bladder in six different areas, including: what urinary symptoms are present? what’s the condition of the bladder (i.e. Hunner’s lesions)? does [...]

By | 2017-08-16T21:54:00+00:00 August 10th, 2017|Interstitial Cystitis Network Blog, Research|Comments Off on New IC/BPS Phenotyping System Proposed – From UPOINT to INPUT

Pelvic Pain Conferences Brings National Experts To Colorado In September

Bridge For Pelvic Pain Conference In September 2017 The Bridge For Pelvic Pain is welcoming chronic pelvic pain patients and providers to their annual conference. Learn about chronic pelvic, sexual and genital pain, and integrative treatments from presentations by doctors, physical therapists, counselors, wellness experts and patient advocates. When: Saturday Sept 30, 2017 – [...]

By | 2017-08-10T17:20:46+00:00 August 10th, 2017|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Pelvic Pain Conferences Brings National Experts To Colorado In September