/Jill Osborne

About Jill Osborne

My Google Profile+ Jill Heidi Osborne is the president and founder of the Interstitial Cystitis Network, a health education company dedicated to interstitial cystitis, bladder pain syndrome and other pelvic pain disorders. As the editor and lead author of the ICN and the IC Optimist magazine, Jill is proud of the academic recognition that her website has achieved. The University of London rated the ICN as the top IC website for accuracy, credibility, readability and quality. (Int Urogynecol J - April 2013). Harvard Medical School rated both Medscape and the ICN as the top two websites dedicated to IC. (Urology - Sept 11). Jill currently serves on the Congressionally Directed Medical Research Panel (US Army) where she collaborates with researchers to evaluate new IC research studies for possible funding. Jill has conducted and/or collaborates on a variety of IC research studies on new therapeutics, pain care, sexuality, the use of medical marijuana, menopause and the cost of treatments, shining a light on issues that influence patient quality of life. An IC support group leader and national spokesperson for the past 20 years, she has represented the IC community on radio, TV shows, at medical conferences. She has written hundreds of articles on IC and its related conditions. With a Bachelors Degree in Pharmacology and a Masters in Psychology, Jill was named Presidential Management Intern (aka Fellowship) while in graduate school. (She was unable to earn her PhD due to the onset of her IC.) She spends the majority of her time providing WELLNESS COACHING for patients in need and developing new, internet based educational and support tools for IC patients, including the “Living with IC” video series currently on YouTube and the ICN Food List smartphone app! Jill was diagnosed with IC at the age of 32 but first showed symptoms at the age of 12.

Should We Travel During IC Flares? Staying Home During The Holidays May Be Important

Here’s one of the most frustrating questions that IC patients often struggle with. “Should or shouldn’t we go to Grandma’s House for a holiday celebration if IC is flaring?” In my first year of IC, my family really didn’t understand what I was struggling with nor the intensity of my pain and discomfort. I freely [...]

By | 2017-12-21T15:39:14+00:00 December 21st, 2017|Front Page Feed|Comments Off on Should We Travel During IC Flares? Staying Home During The Holidays May Be Important

ICN Founder Jill Osborne Serves on CDMRP Research Panel on Antibiotic Resistant Infections

The Peer Reviewed Medical Research Program (PRMRP) research advocate Jill Heidi Osborne MA recently participated in the evaluation of research applications submitted to the PRMRP sponsored by the US Department of Defense. Ms. Osborne has served as a consumer reviewer for the past six years. As a consumer reviewer, she was a full voting member [...]

By | 2018-01-02T15:20:04+00:00 December 21st, 2017|ICN Announcements, Industry News, Interstitial Cystitis Network Blog, Research|Comments Off on ICN Founder Jill Osborne Serves on CDMRP Research Panel on Antibiotic Resistant Infections

How To Stop A Diet Induced Flare – An Essential Holiday Survival Tip

You couldn’t resist. You had been so good. You avoided the cranberry sauce. Said no to the wine. You ate really well until dessert arrived. Grandma's irresistable chocolate cake started calling your name and wouldn't let go. Wanting to show her that you appreciated her cake (right?), you indulged and enjoyed every bite. Hours later [...]

By | 2017-11-23T15:30:13+00:00 November 23rd, 2017|Diet & Food, IC Diet Project, Interstitial Cystitis Network Blog|Comments Off on How To Stop A Diet Induced Flare – An Essential Holiday Survival Tip

When Bladder Treatments Don’t Work For IC/BPS: It’s Time For A New Approach

Clinging To Old Treatments For IC/BPS Could Hold You Back If you had been diagnosed with IC/BPS forty years ago, odds are you would have been prescribed antibiotics, given urethral dilations and/or referred to a psychiatrist under the mistaken assumption that IC was all in your heads. Twenty years ago, that same patient might have [...]

By | 2017-11-22T23:58:26+00:00 November 22nd, 2017|Flares, Front Page Feed, Jill's Journal, Pain Care, Pelvic Floor Dysfunction, Pelvic Pain, Women's Health|Comments Off on When Bladder Treatments Don’t Work For IC/BPS: It’s Time For A New Approach

New IC Patient Survey From USC Seeks To Understand The Impact of Diagnostic Delays In Women With IC/BPS.

A New IC Survey From USC Seeks To Understand The Impact of Diagnostic Delays In Women With IC/BPS. Principal Investigator: Katherine Volpe, MD This survey is being conducted by Katherine Volpe, who is a fellow at the University of Southern California. We know that many women with interstitial cystitis or bladder pain syndrome (IC/BPS) experience [...]

By | 2017-11-13T15:48:30+00:00 November 13th, 2017|ICN Announcements, Interstitial Cystitis Network Blog, Survey Center|Comments Off on New IC Patient Survey From USC Seeks To Understand The Impact of Diagnostic Delays In Women With IC/BPS.

ICN Now Open For Business – Santa Rosa Fire Update

After two perilous weeks with deadly fires here in Sonoma County, we are finally back at work with power, phones and internet! Whew! I would like to thank everyone who sent notes and prayers to our staff. Thankfully, none of our employees lost their homes but it was close. The TUBBS fire came within a [...]

By | 2018-01-02T15:20:59+00:00 October 23rd, 2017|Front Page Feed, ICN Announcements|Comments Off on ICN Now Open For Business – Santa Rosa Fire Update

ICN Evacuated In California Wildfires – Main Office Closed But Shipping & Sales Open

Update: October 18th, 2017 - Still Evacuated Since writing the post below, the conditions here in Santa Rosa worsened dramatically. We were allowed back for approximately 8 hours before a new fire emerged which threatened our house. At 5am the next day, we were awakened to sirens in the neighborhood and police officers shouting over [...]

By | 2017-10-23T14:11:40+00:00 October 12th, 2017|Interstitial Cystitis Network Blog|Comments Off on ICN Evacuated In California Wildfires – Main Office Closed But Shipping & Sales Open

Seeking Nominations For Doctor, Nurse & Physical Therapist of the Year Awards

Do you have a doctor who has treated you with kindness, compassion and respect? Who has helped you try various treatments? Do you have a nurse who goes above and beyond in helping you, especially during IC flares? Do you have a physical therapist who has provided comfort and care for pelvic floor dysfunction? [...]

By | 2017-09-26T16:49:23+00:00 September 26th, 2017|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Seeking Nominations For Doctor, Nurse & Physical Therapist of the Year Awards

The Summer 2017 IC Optimist Is Now Available

The Summer 2017 IC Optimist has now been sent by e-mail and/or US Mail to our current ICN paid members! Your copy should be arrived shortly if it has not already arrived! In this issue: ICN Editorial: “My Uterine Cancer Scare: Hormone Replacement Therapy Carries Risks” Feature Story: Master Class - “The Broad Picture [...]

By | 2017-09-18T15:22:44+00:00 September 7th, 2017|Interstitial Cystitis Network Blog|Comments Off on The Summer 2017 IC Optimist Is Now Available

2017 IC/BPS Awareness Month Kicks Off

Every September, IC/BPS patients and organizations around the world gather together to promote interstitial cystitis, bladder pain syndrome and chronic pelvic pain. This year, our campaign is bold and blunt, telling the story of patients who are refused pain treatment with, in some cases, tragic results. Despite decades of research showing that this medical [...]

By | 2018-01-02T15:21:25+00:00 September 1st, 2017|Awareness, ICN Announcements, Interstitial Cystitis Network Blog|Comments Off on 2017 IC/BPS Awareness Month Kicks Off