/Jill Osborne

About Jill Osborne

My Google Profile+ Jill Heidi Osborne is the president and founder of the Interstitial Cystitis Network, a health education company dedicated to interstitial cystitis, bladder pain syndrome and other pelvic pain disorders. As the editor and lead author of the ICN and the IC Optimist magazine, Jill is proud of the academic recognition that her website has achieved. The University of London rated the ICN as the top IC website for accuracy, credibility, readability and quality. (Int Urogynecol J - April 2013). Harvard Medical School rated both Medscape and the ICN as the top two websites dedicated to IC. (Urology - Sept 11). Jill currently serves on the Congressionally Directed Medical Research Panel (US Army) where she collaborates with researchers to evaluate new IC research studies for possible funding. Jill has conducted and/or collaborates on a variety of IC research studies on new therapeutics, pain care, sexuality, the use of medical marijuana, menopause and the cost of treatments, shining a light on issues that influence patient quality of life. An IC support group leader and national spokesperson for the past 20 years, she has represented the IC community on radio, TV shows, at medical conferences. She has written hundreds of articles on IC and its related conditions. With a Bachelors Degree in Pharmacology and a Masters in Psychology, Jill was named Presidential Management Intern (aka Fellowship) while in graduate school. (She was unable to earn her PhD due to the onset of her IC.) She spends the majority of her time providing WELLNESS COACHING for patients in need and developing new, internet based educational and support tools for IC patients, including the “Living with IC” video series currently on YouTube and the ICN Food List smartphone app! Jill was diagnosed with IC at the age of 32 but first showed symptoms at the age of 12.

Interstitial Cystitis or Chronic Prostatitis Job Accommodations Under the American’s With Disabilities Act

Are you struggling to maintain your job? Are you being denied restroom access?? Taunted for having to use the restroom? You are certainly not alone but thankfully there is a law that can help! The American's With Disability Act has helped tens of thousands of disabled people maintain their jobs and careers. Under the ADA [...]

By |2018-06-01T21:48:51+00:00June 1st, 2018|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Interstitial Cystitis or Chronic Prostatitis Job Accommodations Under the American’s With Disabilities Act

Hunner’s Lesion Triamcinolone Treatment Shows Effectiveness and Long Term Durability

If you struggle with Hunner's lesions (aka Hunne's ulcers), the odds are that you've tried a variety of bladder treatments with little effect. Why is Elmiron and/or DMSO ineffective for Hunner's lesions? Because they don't treat the lesion directly. The American Urology Association recommends lesion directed therapy: fulguration, laser therapy and/or triamcinolone injection into the [...]

By |2018-05-29T21:49:04+00:00May 29th, 2018|Latest Research, Research|Comments Off on Hunner’s Lesion Triamcinolone Treatment Shows Effectiveness and Long Term Durability

Swimming Safety – You might want to avoid hotel swimming pools & hot tubs

While swimming is one of the best exercises you can do when you have IC and/or pelvic pain, think twice before using a hotel swimming pool or spa. The US Centers for Disease Control released a startling new research study that tracked infections and chemical trauma from swimming pools from 2000 to 2014. There were [...]

By |2018-05-22T23:32:14+00:00May 22nd, 2018|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Swimming Safety – You might want to avoid hotel swimming pools & hot tubs

New IC/BPS Treatments Can’t Be Developed Without Patient Help – You Can Make A Difference in 2018!

Do you know that no new treatments can be approved unless they pass real life testing with IC patients? When studies and clinical trials seek patient participants, they are conducting critical research to determine if a new treatment can help. I, for example, participated in the first study on PTNS, now known as Urgent PC. [...]

By |2018-08-15T21:35:45+00:00May 8th, 2018|Clinical Trials, Research|Comments Off on New IC/BPS Treatments Can’t Be Developed Without Patient Help – You Can Make A Difference in 2018!

Beaumont Study Seeks Women With IC/BPS (Royal Oak, MI)

Have you been diagnosed with IC/BPS? If you are a female between the ages of 18 and 85, with urinary frequency, urgency and pelvic discomfort or pain for at least six months, you may be eligible to participate in a clinical research study. IC/BPS affects 15 to 24 percent of adult women and has a [...]

By |2018-05-07T21:03:52+00:00April 25th, 2018|Clinical Trials, Research|Comments Off on Beaumont Study Seeks Women With IC/BPS (Royal Oak, MI)

EWG Finds Alarming Levels of Pesticides In Pears, Apples and Potatoes

Everyone should eat more fruits and vegetables but when you have IC this can be challenging. Thankfully, the produce aisle is usually our friend. The vast majority of vegetables are IC friendly with the exception of, perhaps, concentrated tomato products. Fruits are certainly more tricky because citrus fruits contain very high levels of acid. We [...]

By |2018-04-20T14:21:17+00:00April 18th, 2018|Diet & Food, Interstitial Cystitis Network Blog|Comments Off on EWG Finds Alarming Levels of Pesticides In Pears, Apples and Potatoes

The 2017 IC/BPS Physical Therapist of the Year is Nicole Cozean PT, DPT, WCS, CSCS

When Nicole Cozean released her book "The Interstitial Cystitis Solution" in 2016, we knew that she was dedicated to the treatment of not only IC but also pelvic pain. She is one of the few Board-Certified pelvic physical therapists in the country and opened her Orange County CA clinic, PelvicSanity, to "restore sanity for patients [...]

By |2018-04-25T13:50:19+00:00April 9th, 2018|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on The 2017 IC/BPS Physical Therapist of the Year is Nicole Cozean PT, DPT, WCS, CSCS

The Votes Are In! The 2017 IC/BPS Doctor Of The Year is Dr. Robert Evans MD (Wake Forest University)

Every year during the September IC Awareness Month Campaign, we ask IC patients to nominate clinicians (doctors, physical therapists, nurses) who have treated them with compassion, respect and effective treatments. Nominations are often incredibly heartfelt with patients sharing personal stories of clinicians (and their staff)  who listen to their struggles, who patiently explain treatment options [...]

By |2018-04-25T13:50:39+00:00April 6th, 2018|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on The Votes Are In! The 2017 IC/BPS Doctor Of The Year is Dr. Robert Evans MD (Wake Forest University)

Winter Spring 2018 IC Optimist – Expanded Edition

The Winter/Spring 2018 IC Optimist, the magazine for our ICN members, is a special expanded issue which covers a very delicate topic: intimacy, sexuality and interstitial cystitis. Also in this issue: (1) Editorial: Why The IC Network Left Facebook - If you’ve been paying attention to the news, you’re probably aware that Facebook has come under increasing [...]

By |2018-04-04T22:35:14+00:00March 28th, 2018|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Winter Spring 2018 IC Optimist – Expanded Edition

Why The IC Network Walked Away From Facebook

A few weeks ago I followed my heart and deactivated the IC Network Facebook page. It's still there just hidden until I feel that Facebook has become a safe, supportive environment again. The straw that broke the camels back was when I made a blog about the sexual harassment that some IC patients have experienced [...]

By |2018-03-02T13:49:16+00:00February 16th, 2018|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Why The IC Network Walked Away From Facebook