/Jill Osborne

About Jill Osborne

My Google Profile+ Jill Heidi Osborne is the president and founder of the Interstitial Cystitis Network, a health education company dedicated to interstitial cystitis, bladder pain syndrome and other pelvic pain disorders. As the editor and lead author of the ICN and the IC Optimist magazine, Jill is proud of the academic recognition that her website has achieved. The University of London rated the ICN as the top IC website for accuracy, credibility, readability and quality. (Int Urogynecol J - April 2013). Harvard Medical School rated both Medscape and the ICN as the top two websites dedicated to IC. (Urology - Sept 11). Jill currently serves on the Congressionally Directed Medical Research Panel (US Army) where she collaborates with researchers to evaluate new IC research studies for possible funding. Jill has conducted and/or collaborates on a variety of IC research studies on new therapeutics, pain care, sexuality, the use of medical marijuana, menopause and the cost of treatments, shining a light on issues that influence patient quality of life. An IC support group leader and national spokesperson for the past 20 years, she has represented the IC community on radio, TV shows, at medical conferences. She has written hundreds of articles on IC and its related conditions. With a Bachelors Degree in Pharmacology and a Masters in Psychology, Jill was named Presidential Management Intern (aka Fellowship) while in graduate school. (She was unable to earn her PhD due to the onset of her IC.) She spends the majority of her time providing WELLNESS COACHING for patients in need and developing new, internet based educational and support tools for IC patients, including the “Living with IC” video series currently on YouTube and the ICN Food List smartphone app! Jill was diagnosed with IC at the age of 32 but first showed symptoms at the age of 12.

New IC Diet Cards Now Available

New in Summer 2018! The ICN Diet card is a handy reminder of those foods to avoid and those foods that are usually bladder friendly. The same size as a business card, you can carry it as a reference guide at the super market! Share with restaurant staff if you are seeking a bladder friendly [...]

By |2018-08-09T14:09:15+00:00August 9th, 2018|Diet & Food, IC Diet Project|Comments Off on New IC Diet Cards Now Available

Summer 2018 IC Optimist Now Available

We are delighted to announce that the Summer 2018 IC Optimist is now available. This expanded issue of our magazine not only covers all of the highlights of the 2018 American Urology Association meeting but also sets the stage for our 2018 IC Awareness Month Campaign. All subscribers can now download their copy from their [...]

By |2018-08-07T21:36:11+00:00August 7th, 2018|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Summer 2018 IC Optimist Now Available

Aquinox Halts All Rosiptor IC/BPS Research But Continues Chronic Prostatitis Study

We were heartbroken to learn that Rosiptor (AQX-1125), once believed to be a promising new therapy for interstitial cystitis and bladder pain syndrome, has failed to demonstrate success in their latest clinical trial, the Phase 3 LEADERSHIP 301 study. In a press conference, David Main, CEO of Aquinox Pharmaceuticals, said “This is a disappointing result for [...]

By |2018-08-02T20:20:27+00:00July 3rd, 2018|Interstitial Cystitis Network Blog, Latest Research, Research|Comments Off on Aquinox Halts All Rosiptor IC/BPS Research But Continues Chronic Prostatitis Study

Bladder Friendly Summer Drinks

With the start of hot weather, it's time to focus on cool, refreshing drinks that won't trigger IC/BPS or chronic prostatitis flares. This means that we have to avoid the typical acidic drinks of summer: lemonade, iced green tea and black teas, iced coffee, frappuccino and, of course, most canned sodas. Yes, that means no [...]

By |2018-06-03T19:14:45+00:00June 3rd, 2018|Diet & Food, IC Diet Project, Interstitial Cystitis Network Blog|Comments Off on Bladder Friendly Summer Drinks

Interstitial Cystitis or Chronic Prostatitis Job Accommodations Under the American’s With Disabilities Act

Are you struggling to maintain your job? Are you being denied restroom access?? Taunted for having to use the restroom? You are certainly not alone but thankfully there is a law that can help! The American's With Disability Act has helped tens of thousands of disabled people maintain their jobs and careers. Under the ADA [...]

By |2018-06-01T21:48:51+00:00June 1st, 2018|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Interstitial Cystitis or Chronic Prostatitis Job Accommodations Under the American’s With Disabilities Act

Hunner’s Lesion Triamcinolone Treatment Shows Effectiveness and Long Term Durability

If you struggle with Hunner's lesions (aka Hunne's ulcers), the odds are that you've tried a variety of bladder treatments with little effect. Why is Elmiron and/or DMSO ineffective for Hunner's lesions? Because they don't treat the lesion directly. The American Urology Association recommends lesion directed therapy: fulguration, laser therapy and/or triamcinolone injection into the [...]

By |2018-05-29T21:49:04+00:00May 29th, 2018|Latest Research, Research|Comments Off on Hunner’s Lesion Triamcinolone Treatment Shows Effectiveness and Long Term Durability

Swimming Safety – You might want to avoid hotel swimming pools & hot tubs

While swimming is one of the best exercises you can do when you have IC and/or pelvic pain, think twice before using a hotel swimming pool or spa. The US Centers for Disease Control released a startling new research study that tracked infections and chemical trauma from swimming pools from 2000 to 2014. There were [...]

By |2018-05-22T23:32:14+00:00May 22nd, 2018|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Swimming Safety – You might want to avoid hotel swimming pools & hot tubs

New IC/BPS Treatments Can’t Be Developed Without Patient Help – You Can Make A Difference in 2018!

Do you know that no new treatments can be approved unless they pass real life testing with IC patients? When studies and clinical trials seek patient participants, they are conducting critical research to determine if a new treatment can help. I, for example, participated in the first study on PTNS, now known as Urgent PC. [...]

By |2018-08-15T21:35:45+00:00May 8th, 2018|Clinical Trials, Research|Comments Off on New IC/BPS Treatments Can’t Be Developed Without Patient Help – You Can Make A Difference in 2018!

Beaumont Study Seeks Women With IC/BPS (Royal Oak, MI)

Have you been diagnosed with IC/BPS? If you are a female between the ages of 18 and 85, with urinary frequency, urgency and pelvic discomfort or pain for at least six months, you may be eligible to participate in a clinical research study. IC/BPS affects 15 to 24 percent of adult women and has a [...]

By |2018-05-07T21:03:52+00:00April 25th, 2018|Clinical Trials, Research|Comments Off on Beaumont Study Seeks Women With IC/BPS (Royal Oak, MI)

EWG Finds Alarming Levels of Pesticides In Pears, Apples and Potatoes

Everyone should eat more fruits and vegetables but when you have IC this can be challenging. Thankfully, the produce aisle is usually our friend. The vast majority of vegetables are IC friendly with the exception of, perhaps, concentrated tomato products. Fruits are certainly more tricky because citrus fruits contain very high levels of acid. We [...]

By |2018-04-20T14:21:17+00:00April 18th, 2018|Diet & Food, Interstitial Cystitis Network Blog|Comments Off on EWG Finds Alarming Levels of Pesticides In Pears, Apples and Potatoes