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About Jill Osborne

My Google Profile+ Jill Heidi Osborne is the president and founder of the Interstitial Cystitis Network, a health education company dedicated to interstitial cystitis, bladder pain syndrome and other pelvic pain disorders. As the editor and lead author of the ICN and the IC Optimist magazine, Jill is proud of the academic recognition that her website has achieved. The University of London rated the ICN as the top IC website for accuracy, credibility, readability and quality. (Int Urogynecol J - April 2013). Harvard Medical School rated both Medscape and the ICN as the top two websites dedicated to IC. (Urology - Sept 11). For many years, Jill served on the Congressionally Directed Medical Research Panel (US Army) where she collaborated with researchers to evaluate new IC research studies for possible funding. Jill has conducted and/or collaborates on a variety of IC research studies on new therapeutics, pain care, sexuality, the use of medical marijuana, menopause and the cost of treatments, shining a light on issues that influence patient quality of life. An IC support group leader and national spokesperson for the past 20 years, she has represented the IC community on radio, TV shows, at medical conferences. She has written hundreds of articles on IC and its related conditions. Jill has a Bachelors Degree in Pharmacology and a Masters in Psychology, Jill was named Presidential Management Intern (aka Fellowship) while in graduate school. (She was unable to earn her PhD due to the onset of her IC.) She spends the majority of her time providing WELLNESS COACHING for patients in need and developing new, internet based educational and support tools for IC patients, including new live IC Support Group Meetings via Youtube and the “Living with IC” video series. Jill was diagnosed with IC at the age of 32 but first showed symptoms at the age of 12.

Next Generation DNA Urine Testing Can Find Difficult Infections

At the onset of their urinary symptoms, most IC patients assume that they have a bladder infection yet urine cultures are usually negative leaving the patient very confused. "How can I have a normal urine culture when I'm peeing every 10 minutes?" asked one recent patient. She insisted that it had to be a urinary tract [...]

By |2023-12-04T15:34:08-08:00November 15th, 2023|Front Page Feed, Our Blog|Comments Off on Next Generation DNA Urine Testing Can Find Difficult Infections

Can Mold Toxicity Cause IC & Urinary Symptoms? Yes!

(Editor’s Note: This article was originally inspired by an IC patient who called our office in 2020 and shared that her symptoms were apparently caused by hidden black mold in her home. When the mold was eventually eradicated, her symptoms dramatically improved. In October 2023, we had yet another patient call our office who was [...]

By |2023-10-27T14:07:14-07:00October 27th, 2023|Front Page Feed, Our Blog, Toxic Exposures|Comments Off on Can Mold Toxicity Cause IC & Urinary Symptoms? Yes!

The Perfect Halloween Treat – Pumpkin Drop Cookies with Cream Cheese Frosting

It's ten days before Halloween and time to get into the ghosty spirit. These pumpkin drop cookies make for a great snack while decorating pumpkins with your kiddos.  Topped with cream cheese frosting, they are also a perfect accompaniment to your favorite warm fall drink! A steamy cup of Dandy Blend herbal coffee, Pumpkin Spice [...]

By |2023-10-20T17:09:42-07:00October 20th, 2023|Diet & Food, IC Diet Project|Comments Off on The Perfect Halloween Treat – Pumpkin Drop Cookies with Cream Cheese Frosting

Creating an IC Friendly Thanksgiving

If this is your first holiday season with a diagnosis of IC, we've assembled some resources that we hope will help you enjoy the season, including new videos, articles, meal tips and many IC friendly recipes to play with. Surviving a holiday like Thanksgiving is all about pacing yourself, communicating clearly with your family [...]

By |2023-11-24T10:16:24-08:00September 16th, 2023|Diet & Food, Holiday, Our Blog, Self Care, Self-Help Tips for IC, Bladder & Pelvic Pain|Comments Off on Creating an IC Friendly Thanksgiving

IC/BPS Clinical Study: Now enrolling patients with bladder pain associated with IC/BPS

Working toward a life less interrupted for people with IC/BPS. Living with interstitial cystitis and bladder pain syndrome (IC/BPS) can be debilitating, but Ironwood is sponsoring a clinical research study of a new potential treatment that could offer relief. The IC/BPS Clinical Study will evaluate an investigational, foam-based drug designed to inhibit pain receptors [...]

By |2023-11-10T12:49:44-08:00September 12th, 2023|Latest Research, Our Blog|Comments Off on IC/BPS Clinical Study: Now enrolling patients with bladder pain associated with IC/BPS

Kicking Off IC Awareness Month – Official Press Release

IC Awareness Month begins this week and we always start with a press release that YOU can share and send to your local newspaper and media outlets to help us raise awareness for this condition. As we have been anticipating for the past few years, the new AUA Guidelines no longer consider IC a [...]

By |2023-10-26T12:41:13-07:00August 31st, 2023|Awareness|Comments Off on Kicking Off IC Awareness Month – Official Press Release

New Book Released – The Unfettered Urologist by Dr. Martha Boone

Interstitial cystitis patients in New Orleans & Atlanta certainly remember Dr. Martha Boone, who provided exemplary care for many years at Tulane University and in private practice. After her retirement in 2020, she felt that she hadn't quite finished her job as a urologist. Patients and colleagues continued to call her because their needs [...]

By |2023-08-29T18:05:25-07:00August 29th, 2023|Front Page Feed, Our Blog|Comments Off on New Book Released – The Unfettered Urologist by Dr. Martha Boone

Just Released! Our latest IC Optimist Magazine – Information To Help You Thrive & Heal!

We are delighted to announce that the Spring/Summer 2023 IC Optimist has been released and is now available. The IC Optimist is the IC Network’s patient magazine and is read by thousands of patients and providers around the world. Our goal is to give you information that you can use immediately to improve your medical [...]

By |2023-08-11T12:50:14-07:00August 11th, 2023|Front Page Feed, Our Blog|Comments Off on Just Released! Our latest IC Optimist Magazine – Information To Help You Thrive & Heal!

Uncovering the Long-Term Effects of Toxic Exposure on Urinary Health in Veterans

(Editors Note 2: After the publication of this article, we received our first call from a Vietnam veteran with proven agent orange exposure who developed IC shortly after his military service. We are committed to helping our active duty and veterans who are struggling. Please don't hesitate to give Jill a call (800-928-7496) if you [...]

By |2023-08-14T15:19:55-07:00July 13th, 2023|Front Page Feed, Our Blog|Comments Off on Uncovering the Long-Term Effects of Toxic Exposure on Urinary Health in Veterans

Artificial Sugar Linked To Cancer & Stroke

We, in the IC/BPS community, know the dangers of artificial, non-sugar sweeteners. Nutrasweet (aka aspartame) is a well known bladder irritant that can trigger agonizing pain. A growing number of studies have found significant and potentially life threatening dangers, so much so that the World Health Organization’s cancer agency is considering listing aspartame as [...]

By |2023-09-12T13:53:08-07:00July 13th, 2023|Front Page Feed, Our Blog|Comments Off on Artificial Sugar Linked To Cancer & Stroke
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