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New Study Finds 25% of Long-Term Elmiron Users Showed Eye Damage

New study shows about a quarter of patients with significant exposure to the drug show signs of retinal damage (Editors Note: The American Academy of Ophthalmology shared the latest study showing that Elmiron, a medication commonly prescribed for IC, is clearly linked with retinal damage in a significant number of patients. Researchers at Kaiser Permanente [...]

By |2019-10-16T13:35:45-07:00October 16th, 2019|Research|Comments Off on New Study Finds 25% of Long-Term Elmiron Users Showed Eye Damage

Is Interstitial Cystitis The Result of Chronic Infection?

Whether you’re newly diagnosed or a grizzled IC veteran, you’ve probably seen more than just a few disagreements in the IC world. What treatment works? What’s the best diet? Do subtypes work? Flash back 20 years and there was one single question that dominated every IC support group meeting. Is IC caused by infection? Though [...]

By |2019-09-06T16:23:23-07:00September 6th, 2019|Our Blog, Research|Comments Off on Is Interstitial Cystitis The Result of Chronic Infection?

Why You Should Consider Mirabegron Instead of Ditropan or Detrol – Anticholinergic Medications Often Prescribed To IC patients Linked to Dementia

For interstitial cystitis and overactive bladder patients struggling with intense urinary frequency and urgency, physicians often prescribe anticholinergic medications such as Amitryptiline (Elavil), imipramine (Tofranil) or Nortryptiline (Pamelor), Oxybutynin (Ditropan, Oytrol) or Tolteradine (Detrol). Unfortunately, their use has now been linked to cognitive decline and dementia in some patients who use it daily for long [...]

By |2019-08-22T23:13:27-07:00August 22nd, 2019|Latest Research, Our Blog, Research|Comments Off on Why You Should Consider Mirabegron Instead of Ditropan or Detrol – Anticholinergic Medications Often Prescribed To IC patients Linked to Dementia

New IC Study in Wisconsin Seeks Participants

Researchers at the Medical College of Wisconsin would like to recruit women who have been diagnosed with IC/BPS and/or MPP to participate in this study looking at the role of the Autonomic Nervous System in Chronic Pelvic Pain. We would like to understand whether the brain circuits that control your body might also be able [...]

By |2019-07-17T15:59:21-07:00July 17th, 2019|Clinical Trials, Research|Comments Off on New IC Study in Wisconsin Seeks Participants

Long-Term Pentosan (Elmiron) Use May Be Linked to Eye Disease

As a health publishing company dedicated to interstitial cystitis, it is our duty to share news which can impact you, the IC patient. Unfortunately, we must share some distressing news. If you have or are currently taking pentosan polysulfate PPS (brand name: Elmiron®) and are experiencing eye issues, researchers at the Emory Eye Center (Emory [...]

By |2019-05-01T12:40:23-07:00April 30th, 2019|Our Blog, Research|Comments Off on Long-Term Pentosan (Elmiron) Use May Be Linked to Eye Disease

LiRIS device for Interstitial Cystitis & Hunner’s Lesions DEPRIORITIZED by Allergan

It is with a heavy heart that we announce that Allergan has apparently abandoned work with LiRIS, the first treatment in history to heal the worst form of IC, Hunner's lesions, in some patients. Dr. Daniel Radecki, Executive Director of Clinical Development at Allergan, shared the news that "The LiRIS program has been deprioritized" in [...]

By |2019-02-21T13:02:38-07:00February 21st, 2019|Our Blog, Research|Comments Off on LiRIS device for Interstitial Cystitis & Hunner’s Lesions DEPRIORITIZED by Allergan

Do Childhood Bladder Symptoms Predict IC as an Adult?

While many studies have been done around IC and its often companion condition, IBS, very few studies have been done looking at how childhood bladder symptoms predict or affect patients in adulthood. But, that is slowly changing. In August 2017, researchers from the Department of Urology at Queen's University in Kingston, Ontario, Canada, and the [...]

By |2019-04-06T13:34:54-07:00February 12th, 2019|Our Blog, Research|Comments Off on Do Childhood Bladder Symptoms Predict IC as an Adult?

A Popular Allergy Medicine May Help IC Symptoms

Do you struggle with increased IC flares and bladder symptoms during allergy season? Antihistamines are listed as Step Two treatment options in the AUA guidelines for IC/BPS. Why?  Because the bladder wall contains the same kind of mast cells that also generate typical allergy symptoms.  Hydroxyzine HCL (Atarax) and hydroxyzine pamoate (Vistaril) have helped many [...]

By |2019-01-30T21:24:03-07:00October 26th, 2018|Our Blog, Research, Treatments|Comments Off on A Popular Allergy Medicine May Help IC Symptoms

The History of IC Subtypes (Phenotypes)

Earlier this summer, there were some patients on Facebook who suggested that IC subtypes were not real. Here is the history of the four subtyping systems proposed for IC/BPS to date. This is a REAL thing that is now helping patients find their unique presentation of IC/BPS so that they can focus on the correct [...]

By |2018-08-20T13:53:01-07:00August 18th, 2018|Awareness, Our Blog, Research|Comments Off on The History of IC Subtypes (Phenotypes)

New Urine Test Shows High Confidence in Correctly Diagnosing IC

Researchers around the world have pursued the holy grail of diagnostic testing for IC/BPS - a simple, non-invasive urine test. Researchers at Beaumont Hospital, the nations leading IC research center, have developed a urine test which corrects classified all Hunner's lesion patients. Simply astonishing! In the IP4IC study, researchers measured urinary cytokine levels in 146 [...]

By |2018-08-27T15:23:52-07:00August 17th, 2018|Research|Comments Off on New Urine Test Shows High Confidence in Correctly Diagnosing IC