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Research

Bladder Builder One Year Follow Up Data – 60% of active users report less pain and fewer flares.

We wanted to know what patients experienced using BLADDER BUILDER® and developed a survey asking past and current customers their experience. The results were very encouraging. Like every other supplement and/or therapy, it certainly did not work for everyone. Forty one percent stopped the supplement for a variety of reasons including cost, physicians who wanted [...]

By |2020-07-22T15:51:07-07:00July 22nd, 2020|Our Blog, Research|Comments Off on Bladder Builder One Year Follow Up Data – 60% of active users report less pain and fewer flares.

Does COVID-19 Make IC Worse?

A few weeks ago, an IC patient struggling with COVID-19 reached out to the IC Network to ask for help. Her IC had severely flared after she became infected with COVID-19 and wanted insight into this had happened to other patients. We had no idea! To help her and others, we have created a new [...]

By |2020-07-18T15:19:21-07:00July 18th, 2020|Our Blog, Research|Comments Off on Does COVID-19 Make IC Worse?

New Elmiron® Study Finds Progressive Eye Damage AFTER Stopping The Medication

In absolutely devastating news,  the first study demonstrating that retinal damage associated with Elmiron® use can progress after stopping the medication was released by Rachel Shah MD in the Journal of  Investigative Ophthalmology & Visual Science.(1)  It supports evidence presented by Rachel Huckfledt MD earlier this year which found significant progression of eye damage after [...]

By |2020-07-13T20:16:21-07:00July 13th, 2020|Our Blog, Research|Comments Off on New Elmiron® Study Finds Progressive Eye Damage AFTER Stopping The Medication

ELMIRON® Label in USA Now Includes New Warning About Eye Disease

Breaking News! After multiple research studies and peer reviewed publications, an FDA citizens petition and patients sharing their stories, the label for ELMIRON® has now been changed in the USA to include a new warning about eye disease. Here is what the revised label says: WARNINGS Retinal Pigmentary Changes Pigmentary changes in the retina, reported [...]

By |2020-07-16T16:48:16-07:00June 17th, 2020|Our Blog, Research|Comments Off on ELMIRON® Label in USA Now Includes New Warning About Eye Disease

New Research Reveals Viral Infections in Some Interstitial Cystitis Patients

MAPP Research Network Study Clearly Finds Two Polyomaviruses In Urine of IC Patients There is a small, vocal group of patients and clinicians who suggest that IC is the result of a chronic bacterial infection.  This "all or none" theory ignores the thousands of patients who have developed urinary frequency, urgency, pressure and/or pain after [...]

By |2020-06-12T21:11:18-07:00June 12th, 2020|Our Blog, Research|Comments Off on New Research Reveals Viral Infections in Some Interstitial Cystitis Patients

Taking a Look at MAPP Research in 2019

Since being created by the National Institute of Diabetes and Digestive and Kidney Diseases back in 2007, the Multidisciplinary Approach to the Study of Chronic Pelvic Pain (MAPP) Research Network has continued to study IC more closely in order to design better clinical trials with the goal of identifying helpful treatment for different types of [...]

By |2020-02-21T13:31:58-08:00February 20th, 2020|Our Blog, Research|Comments Off on Taking a Look at MAPP Research in 2019

TMD, IC & COPC’s – How A Dental Condition Changed The future of IC and Chronic Pain Research

One of the mysteries of IC are the many related conditions that patients can suffer from. At first glance, IC, pelvic floor dysfunction, irritable bowel syndrome and vulvodynia share a strong commonality, location. All are disorders that occur in the pelvis. You wouldn’t expect to see a dental condition on the list, right? Yet, surprisingly, [...]

By |2020-02-18T22:19:33-08:00February 18th, 2020|Our Blog, Research|Comments Off on TMD, IC & COPC’s – How A Dental Condition Changed The future of IC and Chronic Pain Research

Fibroid Tumors and the Bladder – A Hidden Source of Urinary Symptoms

Many Patients With Fibroids Struggle With Bladder Symptoms Have you struggled with urinary symptoms that aren’t responding to traditional bladder treatments? Do you also struggle with painful cramping and/or intense bleeding? Uterine fibroid tumors (aka leiomyomas) might be a hidden source of your symptoms. A new research study has shown that when fibroid tumors are [...]

By |2020-01-01T21:53:28-08:00January 1st, 2020|Our Blog, Research|Comments Off on Fibroid Tumors and the Bladder – A Hidden Source of Urinary Symptoms

Long-Term Pentosan (Elmiron) Use May Be Linked to Eye Disease

As a health publishing company dedicated to interstitial cystitis, it is our duty to share news which can impact you, the IC patient. Unfortunately, we must share some distressing news. If you have or are currently taking pentosan polysulfate PPS (brand name: Elmiron®) and are experiencing eye issues, researchers at the Emory Eye Center (Emory [...]

By |2020-02-24T13:37:45-08:00December 10th, 2019|Our Blog, Research|Comments Off on Long-Term Pentosan (Elmiron) Use May Be Linked to Eye Disease

Is Interstitial Cystitis The Result of Chronic Infection?

Whether you’re newly diagnosed or a grizzled IC veteran, you’ve probably seen more than just a few disagreements in the IC world. What treatment works? What’s the best diet? Do subtypes work? Flash back 20 years and there was one single question that dominated every IC support group meeting. Is IC caused by infection? Though [...]

By |2019-09-06T16:23:23-07:00September 6th, 2019|Our Blog, Research|Comments Off on Is Interstitial Cystitis The Result of Chronic Infection?