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Real Men Get Real Pelvic Pain Presentation at AUA 2017

Dr. Jeannette Potts Fights Chronic Prostatitis Misdiagnosis and Label - If you've been told that your pelvic pain is the result of chronic prostatitis, you are not alone. If you've spent hundreds if not thousands of dollars on various "prostate centric" antibiotics and other prescriptions, you're in the company of millions of men who, it turns [...]

By | 2017-05-11T15:50:08+00:00 May 10th, 2017|Interstitial Cystitis Network Blog, Research|Comments Off on Real Men Get Real Pelvic Pain Presentation at AUA 2017

The Economic Toll of Elmiron

67% of Patients Struggle to Pay For the Only Oral Drug Approved for IC/BPS by the US FDA When the patent expired on Elmiron® in January 2010, the IC patient community expected the rapid release of a more affordable generic medication. Swati Spentose, a company located in India, has produced a generic pentosan polysulfate (Brand [...]

By | 2017-03-31T13:13:59+00:00 March 31st, 2017|Interstitial Cystitis Network Blog, Research|Comments Off on The Economic Toll of Elmiron

Aquinox Clinical Trial Seeks Men & Women With IC/BPS in USA, Canada & Europe

Women and men needed to participate in a clinical research study of an oral investigational drug for interstitial cystitis/bladder pain syndrome (IC/BPS). Research Study Title The LEADERSHIP 301 Trial: A 12-Week, Randomized, Multi-center, Double-Blind, Placebo-Controlled, 3-Arm, Parallel-Group, Phase 3 Trial to Evaluate the Efficacy and Safety of 2 Doses of AQX-1125 Targeting the SHIP1 [...]

By | 2017-03-16T15:20:02+00:00 March 16th, 2017|Clinical Trials, Research|Comments Off on Aquinox Clinical Trial Seeks Men & Women With IC/BPS in USA, Canada & Europe

IC & Pain – Have you been denied pain treatment?

A New ICN Survey (March 2017) The pain of interstitial cystitis has been rated equivalent to cancer pain using the McGill pain scale in various research studies. Yet, despite what can be very intense pain, many patients have been struggling to receive pain treatment or denied pain medication. With the 2016 release of the [...]

By | 2017-03-31T12:17:11+00:00 March 9th, 2017|Interstitial Cystitis Network Blog, Research|Comments Off on IC & Pain – Have you been denied pain treatment?

Is IC an Autoimmune Condition?

Behind the redness, swelling, heat and pain of any infection or injury, a biological war is occurring. Injured cells release chemicals that alert our immune system that something is wrong. One of these chemicals, chemokines, attract and direct white blood cells (i.e. macrophages, lymphocytes) to the injured area where they swarm and kill invading bacteria [...]

By | 2017-02-27T21:33:48+00:00 February 27th, 2017|Interstitial Cystitis Network Blog, Research|Comments Off on Is IC an Autoimmune Condition?

Three Treatments For Hunner’s Lesion Show Promise – LiRIS, Triamcinolone, Cyclosporine

LiRIS Found Safe & Effective In First Formal Hunner’s Lesion Study When the first round of LiRIS studies were conducted several years ago, researchers were stunned to see that some Hunner’s lesions healed after just a two week treatment with this innovative medical device devel- oped at MIT. LiRIS was originally intended as a pain [...]

By | 2017-02-28T16:44:14+00:00 February 27th, 2017|Research|Comments Off on Three Treatments For Hunner’s Lesion Show Promise – LiRIS, Triamcinolone, Cyclosporine

Q&A With Dr. Eliot Lander on Stem Cell Therapy & Pentosan Liposome Therapy

Dr. Eliot Lander On Stem Cell Therapy For IC #1 - As the only researcher in the world studying the use of stem cells in the treatment of interstitial cystitis, you have opened a potential new line of therapy. Is your most recent round of data encouraging?? I strongly believe that adult mesenchymal stem cells will [...]

By | 2017-02-27T21:07:36+00:00 February 27th, 2017|Research|Comments Off on Q&A With Dr. Eliot Lander on Stem Cell Therapy & Pentosan Liposome Therapy

Overactive Bladder Clinical Trial Seeks Men and Women Over 65

A Study to Evaluate the Efficacy, Safety, and Tolerability of Mirabegron in Older Adults With Overactive Bladder (OAB) The purpose of this study is to assess the efficacy, safety and tolerability of mirabegron versus placebo in the treatment of older adult subjects with OAB. Men and women are welcome to participate. You must be over the age of [...]

By | 2017-01-24T12:25:16+00:00 January 24th, 2017|Clinical Trials|Comments Off on Overactive Bladder Clinical Trial Seeks Men and Women Over 65

CUA IC/BPS Guidelines Finally Adopted – Canadian Patients Get Much Needed Guidance

CUA IC/BPS Guidelines Adopted Why have so many interstitial cystitis patients in Canada come to the USA for care? Despite the glowing reviews about universal health care, there is a sad IC truth behind the scenes north of the border. There is no national IC organization to advocate on their behalf. Only a handful of physicians in [...]

By | 2017-01-20T16:34:08+00:00 December 7th, 2016|Awareness, Diagnosis, ICN Announcements, Industry News, Interstitial Cystitis Network Blog, News, Research, Treatments|Comments Off on CUA IC/BPS Guidelines Finally Adopted – Canadian Patients Get Much Needed Guidance

Substantial Revision and Removal Rate for Interstim

Neuromodulation uses a mild electrical impulse on various nerves to help maintain appropriate nerve function in the bladder. Two different forms of neuromodulation are available: post-tibial nerve stimulation (Urgent PC® by Congentix Medical) and sacral or pudendal nerve stimulation (Interstim® by Medtronic). Both procedures are FDA and Medicare approved for urinary frequency, urgency, incontinence and overactive [...]

By | 2017-01-18T12:01:13+00:00 October 23rd, 2016|Interstitial Cystitis Network Blog, Latest Research, Research|Comments Off on Substantial Revision and Removal Rate for Interstim