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New IC/BPS Phenotyping System Proposed – From UPOINT to INPUT

The UPOINT System for the Clinical Phenotyping of Chronic Pelvic Pain by Nickel, Shoskes and Racily was the first proposed subtyping system for chronic pelvic and bladder pain. It asked physicians to look at and beyond the bladder in six different areas, including: what urinary symptoms are present? what’s the condition of the bladder (i.e. Hunner’s lesions)? does [...]

By | 2017-08-16T21:54:00+00:00 August 10th, 2017|Interstitial Cystitis Network Blog, Research|Comments Off on New IC/BPS Phenotyping System Proposed – From UPOINT to INPUT

Patients Report Opiate Pain Medication Their Most Effective Treatment of IC/BPS

Do Patients Perceptions Of Treatment Success or Failure Match Clinical Trial Results? They don’t. When the American Urological Association created their Guidelines for the Diagnosis and Treatment for IC/BPS in 2011 they ranked their treatment options based primarily on clinical trial results.  Researchers in Canada and the USA sought to determine if these treatment [...]

By | 2017-08-10T23:12:03+00:00 August 10th, 2017|Pain Care, Research|Comments Off on Patients Report Opiate Pain Medication Their Most Effective Treatment of IC/BPS

MAPP Research Network Study Finds That Fungus In Urine Might Be Linked To Urgency and Pain

One of the most promising lines of research in urology today is the study of the biome, the diverse population of bacteria and fungi that live harmoniously in the human body. In previous MAPP Research Network studies, IC patients were found to have high levels of candida/fungi in their urine during flares.(1) Another found [...]

By | 2017-08-10T17:10:12+00:00 August 10th, 2017|Interstitial Cystitis Network Blog, Research|Comments Off on MAPP Research Network Study Finds That Fungus In Urine Might Be Linked To Urgency and Pain

Real Men Get Real Pelvic Pain Presentation at AUA 2017

Dr. Jeannette Potts Fights Chronic Prostatitis Misdiagnosis and Label - If you've been told that your pelvic pain is the result of chronic prostatitis, you are not alone. If you've spent hundreds if not thousands of dollars on various "prostate centric" antibiotics and other prescriptions, you're in the company of millions of men who, it turns [...]

By | 2017-05-11T15:50:08+00:00 May 10th, 2017|Interstitial Cystitis Network Blog, Research|Comments Off on Real Men Get Real Pelvic Pain Presentation at AUA 2017

The Economic Toll of Elmiron

67% of Patients Struggle to Pay For the Only Oral Drug Approved for IC/BPS by the US FDA When the patent expired on Elmiron® in January 2010, the IC patient community expected the rapid release of a more affordable generic medication. Swati Spentose, a company located in India, has produced a generic pentosan polysulfate (Brand [...]

By | 2017-03-31T13:13:59+00:00 March 31st, 2017|Interstitial Cystitis Network Blog, Research|Comments Off on The Economic Toll of Elmiron

Global IC/BPS Clinical Trial Seeks Men & Women With IC/BPS (USA, Canada, Europe)

Women and men needed to participate in a clinical research study of an oral investigational drug for interstitial cystitis/bladder pain syndrome (IC/BPS). It is estimated that approximately 4% (25 million) of the adult population in the US and in Europe* may experience Interstitial Cystitis/Bladder Pain Syndrome (IC/BPS) symptoms.(1-3) If you or someone close to [...]

By | 2017-08-15T13:23:14+00:00 March 16th, 2017|Clinical Trials, Research|Comments Off on Global IC/BPS Clinical Trial Seeks Men & Women With IC/BPS (USA, Canada, Europe)

IC & Pain – Have you been denied pain treatment?

A New ICN Survey (March 2017) The pain of interstitial cystitis has been rated equivalent to cancer pain using the McGill pain scale in various research studies. Yet, despite what can be very intense pain, many patients have been struggling to receive pain treatment or denied pain medication. With the 2016 release of the [...]

By | 2017-03-31T12:17:11+00:00 March 9th, 2017|Interstitial Cystitis Network Blog, Research|Comments Off on IC & Pain – Have you been denied pain treatment?

Is IC an Autoimmune Condition?

Behind the redness, swelling, heat and pain of any infection or injury, a biological war is occurring. Injured cells release chemicals that alert our immune system that something is wrong. One of these chemicals, chemokines, attract and direct white blood cells (i.e. macrophages, lymphocytes) to the injured area where they swarm and kill invading bacteria [...]

By | 2017-02-27T21:33:48+00:00 February 27th, 2017|Interstitial Cystitis Network Blog, Research|Comments Off on Is IC an Autoimmune Condition?

Three Treatments For Hunner’s Lesion Show Promise – LiRIS, Triamcinolone, Cyclosporine

LiRIS Found Safe & Effective In First Formal Hunner’s Lesion Study When the first round of LiRIS studies were conducted several years ago, researchers were stunned to see that some Hunner’s lesions healed after just a two week treatment with this innovative medical device devel- oped at MIT. LiRIS was originally intended as a pain [...]

By | 2017-02-28T16:44:14+00:00 February 27th, 2017|Research|Comments Off on Three Treatments For Hunner’s Lesion Show Promise – LiRIS, Triamcinolone, Cyclosporine

Q&A With Dr. Eliot Lander on Stem Cell Therapy & Pentosan Liposome Therapy

Dr. Eliot Lander On Stem Cell Therapy For IC #1 - As the only researcher in the world studying the use of stem cells in the treatment of interstitial cystitis, you have opened a potential new line of therapy. Is your most recent round of data encouraging?? I strongly believe that adult mesenchymal stem cells will [...]

By | 2017-02-27T21:07:36+00:00 February 27th, 2017|Research|Comments Off on Q&A With Dr. Eliot Lander on Stem Cell Therapy & Pentosan Liposome Therapy