/Awareness

The History of IC Subtypes (Phenotypes)

Earlier this summer, there were some patients on Facebook who suggested that IC subtypes were not real. Here is the history of the four subtyping systems proposed for IC/BPS to date. This is a REAL thing that is now helping patients find their unique presentation of IC/BPS so that they can focus on the correct [...]

By |2018-08-20T13:53:01+00:00August 18th, 2018|Awareness, Interstitial Cystitis Network Blog, Research|Comments Off on The History of IC Subtypes (Phenotypes)

Self-Help Tip – Turning Self Doubt Into Self Confidence

Though my IC (i.e. bladder pain) officially began when I was 32, I spent much of my 20's struggling with many of the conditions we now know are related to IC. I had vulvodynia in high school and college that felt like a painful yeast infection. Despite many trips to the doctor, they rarely found [...]

By |2018-08-10T21:47:59+00:00August 10th, 2018|Awareness, Front Page Feed, Jill's Journal, Self Care, Self-Help Tips for IC, Bladder & Pelvic Pain|Comments Off on Self-Help Tip – Turning Self Doubt Into Self Confidence

2017 IC/BPS Awareness Month Kicks Off

Every September, IC/BPS patients and organizations around the world gather together to promote interstitial cystitis, bladder pain syndrome and chronic pelvic pain. This year, our campaign is bold and blunt, telling the story of patients who are refused pain treatment with, in some cases, tragic results. Despite decades of research showing that this medical [...]

By |2018-01-02T15:21:25+00:00September 1st, 2017|Awareness, ICN Announcements, Interstitial Cystitis Network Blog|Comments Off on 2017 IC/BPS Awareness Month Kicks Off

CUA IC/BPS Guidelines Finally Adopted – Canadian Patients Get Much Needed Guidance

CUA IC/BPS Guidelines Adopted Why have so many interstitial cystitis patients in Canada come to the USA for care? Despite the glowing reviews about universal health care, there is a sad IC truth behind the scenes north of the border. There is no national IC organization to advocate on their behalf. Only a handful of physicians in [...]

By |2017-01-20T16:34:08+00:00December 7th, 2016|Awareness, Diagnosis, ICN Announcements, Industry News, Interstitial Cystitis Network Blog, News, Research, Treatments|Comments Off on CUA IC/BPS Guidelines Finally Adopted – Canadian Patients Get Much Needed Guidance

September is IC Awareness Month – 2015 Press Release Hits The Wires

Physical Therapy May Resolve Symptoms of Interstitial Cystitis and Chronic Prostatitis Released: 1-Sep-2015 2:05 PM EDT Newswise — (Santa Rosa, CA) For the millions of men and women struggling with recurring bladder and/or prostate pain, finding relief for their symptoms can be difficult. Many have taken antibiotics for years under the mistaken impression that they [...]

By |2017-01-31T10:00:11+00:00September 4th, 2015|Awareness, Interstitial Cystitis Network Blog, Pelvic Floor Dysfunction, Pelvic Pain|Comments Off on September is IC Awareness Month – 2015 Press Release Hits The Wires

Kicking Off IC Awareness Month 2015! How You Can Be Involved!

The most exciting time of the year for the IC community, IC Awareness Month, begins today, September 1st, as patients around the world unite to educate others about IC. We invite you to participate! Here's how you can help! 1. NOMINATE YOUR DOCTOR or PHYSICAL THERAPIST Do you have a doctor or physical therapist who treats [...]

By |2017-01-31T10:03:43+00:00September 1st, 2015|Awareness, Interstitial Cystitis Network Blog|Comments Off on Kicking Off IC Awareness Month 2015! How You Can Be Involved!

Atara Schimmel’s Stunning Angel Project Raises Awareness For Pelvic Pain

If a picture speaks a thousand words, then the art of Atara Schimmel speaks volumes about pelvic pain and pudendal neuralgia. She's just won the ADA poster contest sponsored by the city of Boston for her entry "We Will Be Heard," one of her Project Angel series which is dedicated to raising awareness for pelvic [...]

By |2017-01-31T10:10:42+00:00July 22nd, 2015|Awareness, Interstitial Cystitis Network Blog, Jill's Journal, Pelvic Pain, Self Care|Comments Off on Atara Schimmel’s Stunning Angel Project Raises Awareness For Pelvic Pain

Barbara Flanigan & Her Thirty Year Journey To Discover The Cause of IC

How You Can Help Barbara Flanigan and Her Search For the Cause of IC (Editors Note – I’ve wanted to share Barbara Flanigan’s story and theory about IC for many years. Barbara was the founder the first Interstitial Cystitis Association here in California in 1983. She has always had one key goal in her volunteer work, [...]

By |2017-01-18T12:03:00+00:00June 30th, 2015|Awareness, Interstitial Cystitis IC/BPS, Interstitial Cystitis Network Blog, Patient Stories, Research, Women's Health|Comments Off on Barbara Flanigan & Her Thirty Year Journey To Discover The Cause of IC

Men’s Health Month – Men With IC Deserve Our Support

One of the most powerful phone conversations I've had with an IC patient occurred about twelve years ago. The phone rang, I answered "IC Network. This is Jill. Can I help you?" All I heard on the other end was deep, heartbreaking sobs from someone so overcome with emotion that they were unable to speak. When the tears finally [...]

By |2017-01-18T12:03:08+00:00June 19th, 2015|Awareness, Interstitial Cystitis Network Blog|Comments Off on Men’s Health Month – Men With IC Deserve Our Support

The Best IC & Pelvic Pain Moments of 2014 – The Best Blog, Rant, Research, Book & Patient Projects

By Jill H. Osborne MA From Dr. Drew’s astonishing rant about IC and endometriosis last Spring to a patient fundraising project which raised over $4000 for IC research this Fall, we share the highlights and “best of” moments in 2014! Do you agree? Most Promising Treatment of 2014 - LiRIS I continue to believe that [...]

By |2017-01-31T10:43:13+00:00December 31st, 2014|Awareness, ICN Announcements, Interstitial Cystitis Network Blog, Jill's Journal, News|Comments Off on The Best IC & Pelvic Pain Moments of 2014 – The Best Blog, Rant, Research, Book & Patient Projects