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Awareness

Kicking Off IC Awareness Month – Official Press Release

IC Awareness Month begins this week and we always start with a press release that YOU can share and send to your local newspaper and media outlets to help us raise awareness for this condition. As we have been anticipating for the past few years, the new AUA Guidelines no longer consider IC a [...]

By |2023-10-26T12:41:13-07:00August 31st, 2023|Awareness|Comments Off on Kicking Off IC Awareness Month – Official Press Release

COVID Associated Cystitis Is Real – IC Awareness Month Official Press Release

FOR IMMEDIATE RELEASE September 1, 2021 (Santa Rosa, CA) Since the onset of the pandemic, some COVID-19 patients have developed severe “de novo” (new) genitourinary symptoms, including urinary frequency greater than 13 voids per day, as well as the need to urinate 5 or more times  per night to relieve discomfort in their bladder.(1,2)  Cytokine [...]

By |2021-08-31T23:10:03-07:00August 31st, 2021|Awareness, Our Blog, Research|Comments Off on COVID Associated Cystitis Is Real – IC Awareness Month Official Press Release

September is IC Awareness Month!! We Need Your Help

(From Jill Osborne MA) September is the most important month for the IC movement. This is the time that we gather together, share our stories, educate our communities, seek out patients who are suffering in silence and work, as a group, to raise awareness about IC/BPS. Each and every day, IC patients struggle to find [...]

By |2019-09-05T14:05:23-07:00September 2nd, 2019|Awareness, Front Page Feed, Our Blog|Comments Off on September is IC Awareness Month!! We Need Your Help

The History of IC Subtypes (Phenotypes)

Earlier this summer, there were some patients on Facebook who suggested that IC subtypes were not real. Here is the history of the four subtyping systems proposed for IC/BPS to date. This is a REAL thing that is now helping patients find their unique presentation of IC/BPS so that they can focus on the correct [...]

By |2018-08-20T13:53:01-07:00August 18th, 2018|Awareness, Our Blog, Research|Comments Off on The History of IC Subtypes (Phenotypes)

Self-Help Tip – Turning Self Doubt Into Self Confidence

Though my IC (i.e. bladder pain) officially began when I was 32, I spent much of my 20's struggling with many of the conditions we now know are related to IC. I had vulvodynia in high school and college that felt like a painful yeast infection. Despite many trips to the doctor, they rarely found [...]

By |2018-08-10T21:47:59-07:00August 10th, 2018|Awareness, Front Page Feed, Jill's Journal, Self Care, Self-Help Tips for IC, Bladder & Pelvic Pain|Comments Off on Self-Help Tip – Turning Self Doubt Into Self Confidence

2017 IC/BPS Awareness Month Kicks Off

Every September, IC/BPS patients and organizations around the world gather together to promote interstitial cystitis, bladder pain syndrome and chronic pelvic pain. This year, our campaign is bold and blunt, telling the story of patients who are refused pain treatment with, in some cases, tragic results. Despite decades of research showing that this medical [...]

By |2018-01-02T15:21:25-08:00September 1st, 2017|Awareness, ICN Announcements, Our Blog|Comments Off on 2017 IC/BPS Awareness Month Kicks Off

CUA IC/BPS Guidelines Finally Adopted – Canadian Patients Get Much Needed Guidance

CUA IC/BPS Guidelines Adopted Why have so many interstitial cystitis patients in Canada come to the USA for care? Despite the glowing reviews about universal health care, there is a sad IC truth behind the scenes north of the border. There is no national IC organization to advocate on their behalf. Only a handful of physicians in [...]

By |2017-01-20T16:34:08-08:00December 7th, 2016|Awareness, Diagnosis, ICN Announcements, Industry News, News, Our Blog, Research, Treatments|Comments Off on CUA IC/BPS Guidelines Finally Adopted – Canadian Patients Get Much Needed Guidance

September is IC Awareness Month – 2015 Press Release Hits The Wires

Physical Therapy May Resolve Symptoms of Interstitial Cystitis and Chronic Prostatitis Released: 1-Sep-2015 2:05 PM EDT Newswise — (Santa Rosa, CA) For the millions of men and women struggling with recurring bladder and/or prostate pain, finding relief for their symptoms can be difficult. Many have taken antibiotics for years under the mistaken impression that they [...]

By |2017-01-31T10:00:11-08:00September 4th, 2015|Awareness, Our Blog, Pelvic Floor Dysfunction, Pelvic Pain|Comments Off on September is IC Awareness Month – 2015 Press Release Hits The Wires

Kicking Off IC Awareness Month 2015! How You Can Be Involved!

The most exciting time of the year for the IC community, IC Awareness Month, begins today, September 1st, as patients around the world unite to educate others about IC. We invite you to participate! Here's how you can help! 1. NOMINATE YOUR DOCTOR or PHYSICAL THERAPIST Do you have a doctor or physical therapist who treats [...]

By |2017-01-31T10:03:43-08:00September 1st, 2015|Awareness, Our Blog|Comments Off on Kicking Off IC Awareness Month 2015! How You Can Be Involved!

Atara Schimmel’s Stunning Angel Project Raises Awareness For Pelvic Pain

If a picture speaks a thousand words, then the art of Atara Schimmel speaks volumes about pelvic pain and pudendal neuralgia. She's just won the ADA poster contest sponsored by the city of Boston for her entry "We Will Be Heard," one of her Project Angel series which is dedicated to raising awareness for pelvic [...]

By |2017-01-31T10:10:42-08:00July 22nd, 2015|Awareness, Jill's Journal, Our Blog, Pelvic Pain, Self Care|Comments Off on Atara Schimmel’s Stunning Angel Project Raises Awareness For Pelvic Pain
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