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Review the latest research and industry news for interstitial cystitis and bladder pain syndrome, as well as the related conditions of pelvic floor dysfunction, chronic pelvic pain syndrome, vulvodynia, chronic prostatitis, irritable bowel syndrome and functional somatic syndrome. The Interstitial Cystitis Network is the largest patient support group in the world. Founded in 1995, we provide health education materials, an e-newsletter read by more than 25,000 patients and providers and our magazine, the IC Optimist.

ICN Founder Jill Osborne Serves on CDMRP Research Panel on Antibiotic Resistant Infections

The Peer Reviewed Medical Research Program (PRMRP) research advocate Jill Heidi Osborne MA recently participated in the evaluation of research applications submitted to the PRMRP sponsored by the US Department of Defense. Ms. Osborne has served as a consumer reviewer for the past six years. As a consumer reviewer, she was a full voting member [...]

By |2018-01-02T15:20:04+00:00December 21st, 2017|ICN Announcements, Industry News, Interstitial Cystitis Network Blog, Research|Comments Off on ICN Founder Jill Osborne Serves on CDMRP Research Panel on Antibiotic Resistant Infections

New IC Patient Survey From USC Seeks To Understand The Impact of Diagnostic Delays In Women With IC/BPS.

A New IC Survey From USC Seeks To Understand The Impact of Diagnostic Delays In Women With IC/BPS. Principal Investigator: Katherine Volpe, MD This survey is being conducted by Katherine Volpe, who is a fellow at the University of Southern California. We know that many women with interstitial cystitis or bladder pain syndrome (IC/BPS) experience [...]

By |2017-11-13T15:48:30+00:00November 13th, 2017|ICN Announcements, Interstitial Cystitis Network Blog, Survey Center|Comments Off on New IC Patient Survey From USC Seeks To Understand The Impact of Diagnostic Delays In Women With IC/BPS.

ICN Now Open For Business – Santa Rosa Fire Update

After two perilous weeks with deadly fires here in Sonoma County, we are finally back at work with power, phones and internet! Whew! I would like to thank everyone who sent notes and prayers to our staff. Thankfully, none of our employees lost their homes but it was close. The TUBBS fire came within a [...]

By |2018-01-02T15:20:59+00:00October 23rd, 2017|Front Page Feed, ICN Announcements|Comments Off on ICN Now Open For Business – Santa Rosa Fire Update

2017 IC/BPS Awareness Month Kicks Off

Every September, IC/BPS patients and organizations around the world gather together to promote interstitial cystitis, bladder pain syndrome and chronic pelvic pain. This year, our campaign is bold and blunt, telling the story of patients who are refused pain treatment with, in some cases, tragic results. Despite decades of research showing that this medical [...]

By |2018-01-02T15:21:25+00:00September 1st, 2017|Awareness, ICN Announcements, Interstitial Cystitis Network Blog|Comments Off on 2017 IC/BPS Awareness Month Kicks Off

CUA IC/BPS Guidelines Finally Adopted – Canadian Patients Get Much Needed Guidance

CUA IC/BPS Guidelines Adopted Why have so many interstitial cystitis patients in Canada come to the USA for care? Despite the glowing reviews about universal health care, there is a sad IC truth behind the scenes north of the border. There is no national IC organization to advocate on their behalf. Only a handful of physicians in [...]

By |2017-01-20T16:34:08+00:00December 7th, 2016|Awareness, Diagnosis, ICN Announcements, Industry News, Interstitial Cystitis Network Blog, News, Research, Treatments|Comments Off on CUA IC/BPS Guidelines Finally Adopted – Canadian Patients Get Much Needed Guidance

Popular Urology Drug, Hyoscyamine, Recalled

Hyoscyamine sulfate, a popular drug use for urology patients struggling with incontinence, has been recalled by Virtus Pharmaceuticals. This recall is the result of irregular medication levels in the medication which can give patients either too much (super potent) or too little (sub potent) medication. Taking a product that is superpotent could result in hot/dry [...]

By |2017-01-18T12:01:19+00:00September 20th, 2016|Consumer Alerts, Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Popular Urology Drug, Hyoscyamine, Recalled

ICN E-Newsletter – April 2016

April 2016 ICN E-Newsletter Interesting Blogs/Feature Stories   How Does Interstitial Cystitis Begin One of the most recognizable figures in research and clinical care, Dr. Lowell Parsons has treated 9000 IC patients in his 35 year career at UC San Diego. A legend in the IC movement, he developed the only oral medication approved for [...]

By |2017-01-31T08:36:02+00:00April 18th, 2016|ICN Newsletters, Interstitial Cystitis Network Blog, News|Comments Off on ICN E-Newsletter – April 2016

ICN Newsletter – January 2016

The Latest News From The IC Network - January 2016 Sponsored by: Imprimis Pharma - Beaumont Urology - CystaQ - Desert Harvest Aloe - MultiRight Low Acid Multivitamin - PainShieldMD 1. The 2015 Providers Of The Year! Doctor of the Year - Dr. Robert Evans - Wake Forest University During the 2015 IC Awareness Month campaign, [...]

By |2017-01-31T08:48:17+00:00January 27th, 2016|ICN Newsletters, Interstitial Cystitis Network Blog|Comments Off on ICN Newsletter – January 2016

Three Physical Therapists of the Year Honored! Karin I. Westlin-Boyer PT, Jennifer Rutkowski MPT, Rhonda Fiorillo MPT

The 2015 Physical Therapists of the Year ARE During the 2015 IC Awareness Month campaign, we asked patients to nominate compassionate, knowledgeable care providers for our first annual “Doctor” and “PT” of the year awards. We received dozens of excellent nominations for physical therapists and wish we could have honored every single one of them. Our committee [...]

By |2017-01-31T08:50:42+00:00January 24th, 2016|ICN Announcements, Interstitial Cystitis Network Blog|Comments Off on Three Physical Therapists of the Year Honored! Karin I. Westlin-Boyer PT, Jennifer Rutkowski MPT, Rhonda Fiorillo MPT

The 2015 Doctor Of The Year For IC Is……. Dr. Robert Evans

During the 2015 IC Awareness Month campaign, we asked patients to nominate compassionate, knowledgeable care providers for our first annual “Doctor” and “PT” of the year awards. Out of the hundreds of doctors nominated, I’m happy to announce that Dr. Robert Evans earned the honor of 2015  Doctor Of The Year! The comments shared about his treatment exemplify the dignity [...]

By |2017-01-31T08:57:19+00:00January 8th, 2016|ICN Announcements, Interstitial Cystitis Network Blog, News|Comments Off on The 2015 Doctor Of The Year For IC Is……. Dr. Robert Evans