https://www.youtube.com/watch?v=GTFSCkTIM8w Here at the ICN offices, we receive phone calls daily from women diagnosed with IC later in life who feel lost and alone. For many of you, your symptoms began suddenly with urinary frequency, urgency and pain, especially as your bladder filled with urine. And, suddenly, you couldn't sleep through the night. [...]
Researchers in San Diego are conducting the second formal study in the United States to determine if hyperbaric oxygen therapy (HOT) is helpful in the treatment of interstitial cystitis. Several studies completed in Europe have shown promise in this new and unusual treatment approach. Hyperbaric oxygen therapy (aka decompression therapy) is most well known [...]
Our special Spring / Summer 2022 double issue of the IC Optimist is now available. The IC Optimist is the IC Network's patient magazine and is read by thousands of patients and providers around the world. Our goal is to give you information that you can use immediately to improve your medical care and [...]
In May 2022, the American Urological Association released the long awaited update of their guidelines for the diagnosis and treatment of IC/BPS. The guidelines provide an evidence based “best practice” approach for urologists and patients as they seek to treat IC/BPS symptoms. Developed originally in 2011 and revised in 2014, the 2022 guidelines provide new, [...]
(From The Editor: A case study is not a double blind placebo controlled study that establishes that a therapy is beneficial and safe. It is a report from a medical team that describes a unique patient case. Case studies help to build data for new treatments or to share new concerns. A few years ago, [...]
In times of stress, we must take steps to not only reduce the collective anxiety of our family and friends, but also boost our immune function, a not always easy proposition when you’re at home with limited groceries and supplies. It’s easy to turn to your favorite salty or sweet snacks but that quick carb [...]
You may have heard the term “small fiber polyneuropathy” in the past few years in some of the newer, cutting edge discussions of chronic pelvic pain, central sensitization and chronic overlapping pain conditions. Research studies are now showing that a significant number of pelvic pain patients have observable neuropathies in some of the smallest nerves [...]
It is with delight that we introduce urologist Dr. Elise De, who has spent the majority of her career working with pelvic pain patients. She spent the past five years developing the pelvic health program at Massachusetts General Hospital where she co-edited the fabulous new book, Facing Pelvic Pain. In March 2022, she joined the [...]
Delicious with IC is a beautifully designed cookbook, with 75 well tested recipes and plenty of tips for patients who struggle with interstitial cystitis. You'll find recipes for appetizers/salads, fish, chicken, meats, vegetables, desserts, cookies and cakes, as well as a complete list of the recommended foods. What makes this book a treasure are the [...]
Candida & Bladder Pain, Tailbone Injuries, Scoliosis Pelvic Pain, Relationship Tips, The Latest Research, Hot Bladder Friendly Drinks & More The Winter issue of the IC Optimist, the magazine of the IC Network, is now available. It is currently available for download for all of our members and will be mailed shortly to those who [...]
