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About Jill Osborne

My Google Profile+ Jill Heidi Osborne is the president and founder of the Interstitial Cystitis Network, a health education company dedicated to interstitial cystitis, bladder pain syndrome and other pelvic pain disorders. As the editor and lead author of the ICN and the IC Optimist magazine, Jill is proud of the academic recognition that her website has achieved. The University of London rated the ICN as the top IC website for accuracy, credibility, readability and quality. (Int Urogynecol J - April 2013). Harvard Medical School rated both Medscape and the ICN as the top two websites dedicated to IC. (Urology - Sept 11). For many years, Jill served on the Congressionally Directed Medical Research Panel (US Army) where she collaborated with researchers to evaluate new IC research studies for possible funding. Jill has conducted and/or collaborates on a variety of IC research studies on new therapeutics, pain care, sexuality, the use of medical marijuana, menopause and the cost of treatments, shining a light on issues that influence patient quality of life. An IC support group leader and national spokesperson for the past 20 years, she has represented the IC community on radio, TV shows, at medical conferences. She has written hundreds of articles on IC and its related conditions. Jill has a Bachelors Degree in Pharmacology and a Masters in Psychology, Jill was named Presidential Management Intern (aka Fellowship) while in graduate school. (She was unable to earn her PhD due to the onset of her IC.) She spends the majority of her time providing WELLNESS COACHING for patients in need and developing new, internet based educational and support tools for IC patients, including new live IC Support Group Meetings via Youtube and the “Living with IC” video series. Jill was diagnosed with IC at the age of 32 but first showed symptoms at the age of 12.

Meet A Neuroscientist Studying Pelvic Pain – Dr. Jason Kutch (USC)

New Transcranial Stimulation Study in Southern California Seeks IC/BPS Patients With the now universal acceptance that many IC/BPS patients struggle with widespread pain (myself included), the central nervous system has become a new therapeutic target. Understanding how the brain and nerves influence pelvic pain and muscle health is the focus of Dr. Jason Kutch's [...]

By |2023-03-02T13:18:09-08:00February 6th, 2023|Latest Research, Our Blog|Comments Off on Meet A Neuroscientist Studying Pelvic Pain – Dr. Jason Kutch (USC)

Nine IC/BPS Phenotypes & Their Recipes For Treatment

For more than 30 years, newly diagnosed patients with IC/BPS were given bladder medications with little, if any, success. Why? Researchers and clinicians believed, at that time, that IC was an incurable bladder disease. Today, that perception has changed dramatically. Our updated 2022 AUA Guidelines for IC/BPS very clearly state that no active "disease" [...]

By |2023-03-02T13:17:17-08:00January 27th, 2023|Latest Research, Our Blog, Research|Comments Off on Nine IC/BPS Phenotypes & Their Recipes For Treatment

Did you know that chemotherapy can cause severe bladder irritation or bleeding?

For the IC/BPS patient, chemo induced cystitis is a real concern. Joy*, a 73 year old woman, contacted our office in a dire situation. Three months after her diagnosis of IC/BPS, she received a second diagnosis of breast cancer (Stage 2B), underwent a mastectomy and began chemotherapy treatment. Of course, she was very concerned [...]

By |2023-02-03T14:31:41-08:00January 17th, 2023|Front Page Feed, Our Blog|Comments Off on Did you know that chemotherapy can cause severe bladder irritation or bleeding?

Study Finds Women With IC/BPS Feel Dismissed By Their Doctors

This Shouldn't Be Happening! Despite millions of dollars invested in research that has proven that IC/BPS is a legitimate pelvic pain condition, women continue to feel disregarded and ignored by their physicians. In fact, a new study from Vanderbilt University and the NIH found that while men with IC/BPS often felt supported by their [...]

By |2023-01-12T15:08:20-08:00November 21st, 2022|Latest Research, Our Blog, Research|Comments Off on Study Finds Women With IC/BPS Feel Dismissed By Their Doctors

November is TMJ Awareness Month – TMJ has a strong association with IC/BPS

If you struggle with your pain in your jaw muscles, neck and/or shoulders you may have Temporomandibular (TMJ) Disorder. Your jaw muscles may be stiff, have limited movement, or worse, your jaw locks.  Ear pain, pressure, fullness, tinnitus can also occur  as well as dizziness and vision problems. TMJ flares are common and treatment [...]

By |2022-11-21T22:07:02-08:00November 15th, 2022|Front Page Feed, Our Blog|Comments Off on November is TMJ Awareness Month – TMJ has a strong association with IC/BPS

Fall 22 IC Optimist Released

We are delighted to announce that the Fall 2022 IC Optimist has been released and is now available. The IC Optimist is the IC Network’s patient magazine and is read by thousands of patients and providers around the world. Our goal is to give you information that you can use immediately to improve your medical [...]

By |2022-11-15T13:44:12-08:00November 14th, 2022|Front Page Feed, Our Blog|Comments Off on Fall 22 IC Optimist Released

Low Acid White Bean Chili is a great bladder friendly cold weather meal!

Chili was my families go to recipe when school began. Hot, rich and satisfying, everyone loved chili especially when accompanied by homemade cornbread, biscuits or hot sourdough bread. Unfortunately, now that my parents are quite elderly (94 & 100) they can’t tolerate the acid. Like many IC'ers, they’ll be up several times a night [...]

By |2023-03-02T13:53:13-08:00October 7th, 2022|IC Diet Project, Our Blog|Comments Off on Low Acid White Bean Chili is a great bladder friendly cold weather meal!

Did your urinary symptoms begin in your 40’s, 50’s or 60’s? After a hysterectomy?

https://www.youtube.com/watch?v=GTFSCkTIM8w Here at the ICN offices, we receive phone calls daily from women diagnosed with IC later in life who feel lost and alone. For many of you, your symptoms began suddenly with urinary frequency, urgency and pain, especially as your bladder filled with urine. And, suddenly, you couldn't sleep through the night. [...]

By |2022-07-26T00:17:20-07:00July 12th, 2022|Front Page Feed, Our Blog|Comments Off on Did your urinary symptoms begin in your 40’s, 50’s or 60’s? After a hysterectomy?

Hyperbaric Oxygen Therapy – A Treatment Used for Decompression Sickness May Also Help Hunner’s Lesions

Researchers in San Diego are conducting the second formal study in the United States to determine if hyperbaric oxygen therapy (HOT) is helpful in the treatment of interstitial cystitis. Several studies completed in Europe have shown promise in this new and unusual treatment approach. Hyperbaric oxygen therapy (aka decompression therapy) is most well known [...]

By |2023-01-23T22:40:40-08:00July 7th, 2022|Research|Comments Off on Hyperbaric Oxygen Therapy – A Treatment Used for Decompression Sickness May Also Help Hunner’s Lesions

Spring / Summer IC Optimist New Available

Our special Spring / Summer 2022 double issue of the IC Optimist is now available. The IC Optimist is the IC Network's patient magazine and is read by thousands of patients and providers around the world. Our goal is to give you information that you can use immediately to improve your medical care and [...]

By |2022-11-14T21:07:56-08:00June 25th, 2022|Front Page Feed, Our Blog|Comments Off on Spring / Summer IC Optimist New Available
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