Home/Jill Osborne

About Jill Osborne

My Google Profile+ Jill Heidi Osborne is the president and founder of the Interstitial Cystitis Network, a health education company dedicated to interstitial cystitis, bladder pain syndrome and other pelvic pain disorders. An IC support group leader and national spokesperson for the past 20 years, she has represented the IC community on radio, TV shows, at medical conferences and as a member of the US Army administered CDMRP research program. She has written hundreds of articles on IC and its related condition. She is the publisher & editor of the IC Network website, rated the top patient website in research studies offered by Harvard Medical School (2011) and the University of London (2013). She also edits and writes much of the IC Optimist quarterly magazine. With a Bachelors Degree in Pharmacology and a Masters in Psychology, Jill spends the majority of her time providing WELLNESS COACHING for patients in need and developing new, internet based educational and support tools for IC patients, including the “Living with IC” video series currently on YouTube and the ICN Food List smartphone app! Jill was diagnosed with IC at the age of 32 but first showed symptoms at the age of 12.

I was fine until I wasn’t – Jill’s Journal – Hysterectomy & Possible Uterine Cancer

ICN Education & Support Phone Line Will Be Closed While Jill Recovers From Surgery Next week I’ll be recovering from an urgent hysterectomy and waiting anxiously for my uterine biopsy results. This saga began last fall when I started spotting. Of course, I hadn’t had a period in about two years so contacted my doctor [...]

Real Men Get Real Pelvic Pain Presentation at AUA 2017

Dr. Jeannette Potts Fights Chronic Prostatitis Misdiagnosis and Label - If you've been told that your pelvic pain is the result of chronic prostatitis, you are not alone. If you've spent hundreds if not thousands of dollars on various "prostate centric" antibiotics and other prescriptions, you're in the company of millions of men who, it turns [...]

By | 2017-05-11T15:50:08+00:00 May 10th, 2017|Interstitial Cystitis Network Blog, Research|Comments Off on Real Men Get Real Pelvic Pain Presentation at AUA 2017

Medical Organizations Swiftly Reject TrumpCare Passage

The sudden and swift passage of TrumpCare yesterday as created turmoil in patient groups around the USA. By leaving in an option in the bill that would allow states to apply for a waiver to raise the price of premiums for patients struggling with pre-existing conditions, disabled and elderly patients are deeply concerned that [...]

By | 2017-05-05T18:16:17+00:00 May 5th, 2017|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Medical Organizations Swiftly Reject TrumpCare Passage

IC Diet Project – Mexican Food Can Be Very Bladder Friendly

While everyone’s familiar with tacos and enchiladas, there’s really much more to Mexican cuisine than the blazing hot, spicy fast food we see advertised every day. Many traditional Mexican foods, though not familiar fare in the U.S., are flavorful but not heavily laden with hot spices. Quite a few tasty items are in fact, mild [...]

By | 2017-04-10T13:17:25+00:00 April 10th, 2017|Diet & Food, IC Diet Project|Comments Off on IC Diet Project – Mexican Food Can Be Very Bladder Friendly

The Economic Toll of Elmiron

67% of Patients Struggle to Pay For the Only Oral Drug Approved for IC/BPS by the US FDA When the patent expired on Elmiron® in January 2010, the IC patient community expected the rapid release of a more affordable generic medication. Swati Spentose, a company located in India, has produced a generic pentosan polysulfate (Brand [...]

By | 2017-03-31T13:13:59+00:00 March 31st, 2017|Interstitial Cystitis Network Blog, Research|Comments Off on The Economic Toll of Elmiron

2016 PT of the Year – Sarah Conley PT, DPT & WCS

We are very pleased to announce that Sarah Conley PT, DPT & WCS (Conway Regional Health System) has been awarded the 2016 Physical Therapist of the Year. Votes were collected throughout Fall 2016 as part of the international IC Awareness Month campaign. We asked  patients to nominate both physical therapists and doctors who treated them with compassion, [...]

By | 2017-04-03T14:20:33+00:00 March 30th, 2017|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on 2016 PT of the Year – Sarah Conley PT, DPT & WCS

Calling All IC & Health Care Activists

Are you concerned that you will lose your health care services? Regardless of our often diverse political affiliations, there is one topic that unites us all - the state of health care in the USA. From rising costs to reduced access, IC patients are at the front line of an increasingly unsympathetic medical system. [...]

By | 2017-03-31T11:46:27+00:00 March 22nd, 2017|Interstitial Cystitis Network Blog|Comments Off on Calling All IC & Health Care Activists

2016 IC Doctor Of The Year – Dr. Robert Evans

We are pleased to announce that Dr. Robert Evans (Wake Forest Baptist Health) has, for a second year in a row, been voted the 2016 IC Doctor of the Year during our annual IC Awareness Month campaign.  Hundreds of patients nominated and voted for doctors who they believe had treated them with kindness, respect and with excellent knowledge [...]

By | 2017-03-31T11:25:36+00:00 March 20th, 2017|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on 2016 IC Doctor Of The Year – Dr. Robert Evans

Aquinox Clinical Trial Seeks Men & Women With IC/BPS in USA, Canada & Europe

Women and men needed to participate in a clinical research study of an oral investigational drug for interstitial cystitis/bladder pain syndrome (IC/BPS). Research Study Title The LEADERSHIP 301 Trial: A 12-Week, Randomized, Multi-center, Double-Blind, Placebo-Controlled, 3-Arm, Parallel-Group, Phase 3 Trial to Evaluate the Efficacy and Safety of 2 Doses of AQX-1125 Targeting the SHIP1 [...]

By | 2017-03-16T15:20:02+00:00 March 16th, 2017|Clinical Trials, Research|Comments Off on Aquinox Clinical Trial Seeks Men & Women With IC/BPS in USA, Canada & Europe

IC & Pain – Have you been denied pain treatment?

A New ICN Survey (March 2017) The pain of interstitial cystitis has been rated equivalent to cancer pain using the McGill pain scale in various research studies. Yet, despite what can be very intense pain, many patients have been struggling to receive pain treatment or denied pain medication. With the 2016 release of the [...]

By | 2017-03-31T12:17:11+00:00 March 9th, 2017|Interstitial Cystitis Network Blog, Research|Comments Off on IC & Pain – Have you been denied pain treatment?