/Jill Osborne

About Jill Osborne

My Google Profile+ Jill Heidi Osborne is the president and founder of the Interstitial Cystitis Network, a health education company dedicated to interstitial cystitis, bladder pain syndrome and other pelvic pain disorders. An IC support group leader and national spokesperson for the past 20 years, she has represented the IC community on radio, TV shows, at medical conferences and as a member of the US Army administered CDMRP research program. She has written hundreds of articles on IC and its related condition. She is the publisher & editor of the IC Network website, rated the top patient website in research studies offered by Harvard Medical School (2011) and the University of London (2013). She also edits and writes much of the IC Optimist quarterly magazine. With a Bachelors Degree in Pharmacology and a Masters in Psychology, Jill spends the majority of her time providing WELLNESS COACHING for patients in need and developing new, internet based educational and support tools for IC patients, including the “Living with IC” video series currently on YouTube and the ICN Food List smartphone app! Jill was diagnosed with IC at the age of 32 but first showed symptoms at the age of 12.

Calling All IC & Health Care Activists

Are you concerned that you will lose your health care services? Regardless of our often diverse political affiliations, there is one topic that unites us all - the state of health care in the USA. From rising costs to reduced access, IC patients are at the front line of an increasingly unsympathetic medical system. [...]

By | March 22nd, 2017|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Calling All IC & Health Care Activists

2016 IC Doctor Of The Year – Dr. Robert Evans

We are pleased to announce that Dr. Robert Evans (Wake Forest Baptist Health) has, for a second year in a row, been voted the 2016 IC Doctor of the Year during our annual IC Awareness Month campaign.  Hundreds of patients nominated and voted for doctors who they believe had treated them with kindness, respect and with excellent knowledge [...]

By | March 20th, 2017|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on 2016 IC Doctor Of The Year – Dr. Robert Evans

Aquinox Clinical Trial Seeks Men & Women With IC/BPS in USA, Canada & Europe

Women and men needed to participate in a clinical research study of an oral investigational drug for interstitial cystitis/bladder pain syndrome (IC/BPS). Research Study Title The LEADERSHIP 301 Trial: A 12-Week, Randomized, Multi-center, Double-Blind, Placebo-Controlled, 3-Arm, Parallel-Group, Phase 3 Trial to Evaluate the Efficacy and Safety of 2 Doses of AQX-1125 Targeting the SHIP1 [...]

By | March 16th, 2017|Clinical Trials, Research|Comments Off on Aquinox Clinical Trial Seeks Men & Women With IC/BPS in USA, Canada & Europe

IC & Pain – Have you been denied pain treatment?

A New ICN Survey (March 2017) The pain of interstitial cystitis has been rated equivalent to cancer pain using the McGill pain scale in various research studies. Yet, despite what can be very intense pain, many patients have been struggling to receive pain treatment or denied pain medication. With the 2016 release of the [...]

By | March 9th, 2017|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on IC & Pain – Have you been denied pain treatment?

Is IC an Autoimmune Condition?

Behind the redness, swelling, heat and pain of any infection or injury, a biological war is occurring. Injured cells release chemicals that alert our immune system that something is wrong. One of these chemicals, chemokines, attract and direct white blood cells (i.e. macrophages, lymphocytes) to the injured area where they swarm and kill invading bacteria [...]

By | February 27th, 2017|Interstitial Cystitis Network Blog, Research|Comments Off on Is IC an Autoimmune Condition?

Three Treatments For Hunner’s Lesion Show Promise – LiRIS, Triamcinolone, Cyclosporine

LiRIS Found Safe & Effective In First Formal Hunner’s Lesion Study When the first round of LiRIS studies were conducted several years ago, researchers were stunned to see that some Hunner’s lesions healed after just a two week treatment with this innovative medical device devel- oped at MIT. LiRIS was originally intended as a pain [...]

By | February 27th, 2017|Research|Comments Off on Three Treatments For Hunner’s Lesion Show Promise – LiRIS, Triamcinolone, Cyclosporine

Q&A With Dr. Eliot Lander on Stem Cell Therapy & Pentosan Liposome Therapy

Dr. Eliot Lander On Stem Cell Therapy For IC #1 - As the only researcher in the world studying the use of stem cells in the treatment of interstitial cystitis, you have opened a potential new line of therapy. Is your most recent round of data encouraging?? I strongly believe that adult mesenchymal stem cells will [...]

By | February 27th, 2017|Research|Comments Off on Q&A With Dr. Eliot Lander on Stem Cell Therapy & Pentosan Liposome Therapy

Eight Potential Causes of Bladder Injury

Perhaps the most important question that physicians and patients have asked is “how and why does the bladder wall break down in some patients with IC?” It’s the root question that we all want the answer to. Let’s consider eight possible causes of bladder injury. 1 - Chemical Exposure The first and most logical assumption [...]

By | February 27th, 2017|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Eight Potential Causes of Bladder Injury

IC Optimist Winter 2017 Released

We are happy to announce the release of the IC Optimist Winter 2017 edition. The IC Optimist is the quarterly magazine of the IC Network. Your subscription and/or purchase helps to underwrite our IC Support Services, advocacy efforts, Patient Support Line and IC Awareness Month! We thank you for your support! Our work could not [...]

By | February 24th, 2017|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on IC Optimist Winter 2017 Released

Chemotherapy and IC – Tips To Protect Your Bladder

Chemo Induced Cystitis Can Be Devastating For IC Patients - Joy*, a 73 year old woman, contacted our office in a dire situation. She had been diagnosed with IC last June. Just three months later, she received a second diagnosis of breast cancer (Stage 2B). After a mastectomy she began chemotherapy treatment. Of course, she [...]

By | February 21st, 2017|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Chemotherapy and IC – Tips To Protect Your Bladder