/Jill Osborne

About Jill Osborne

My Google Profile+ Jill Heidi Osborne is the president and founder of the Interstitial Cystitis Network, a health education company dedicated to interstitial cystitis, bladder pain syndrome and other pelvic pain disorders. An IC support group leader and national spokesperson for the past 20 years, she has represented the IC community on radio, TV shows, at medical conferences and as a member of the US Army administered CDMRP research program. She has written hundreds of articles on IC and its related condition. She is the publisher & editor of the IC Network website, rated the top patient website in research studies offered by Harvard Medical School (2011) and the University of London (2013). She also edits and writes much of the IC Optimist quarterly magazine. With a Bachelors Degree in Pharmacology and a Masters in Psychology, Jill spends the majority of her time providing WELLNESS COACHING for patients in need and developing new, internet based educational and support tools for IC patients, including the “Living with IC” video series currently on YouTube and the ICN Food List smartphone app! Jill was diagnosed with IC at the age of 32 but first showed symptoms at the age of 12.

Best IC Research, News, Blogs & Videos From 2016

From the finding that IC patients in flares often have candida in their urine, to the discovery that our gut biome is deficient in important bacteria, here are some of our favorite stories from 2016. #1 - Best Research of 2016 Some IC Flares Are Caused by Candida It's impossible to estimate the number of times [...]

By | January 7th, 2017|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Best IC Research, News, Blogs & Videos From 2016

White Chocolate Dreams

With the holidays quickly approaching, many often express frustration that they can’t enjoy some of their traditional “chocolate” treats. The main culprit is the caffeine found in milk and dark chocolates which has a neurostimulatory effect. That simple mug of hot milk chocolate could cause increased urinary frequency, urgency, migraine and rapid, irregular heartbeat. IBS [...]

By | December 12th, 2016|Diet & Food, IC Diet Project, Interstitial Cystitis Network Blog|Comments Off on White Chocolate Dreams

The Interstitial Cystitis Solution The Best Book on IC in 20 years!

Written by Nicole and Jesse Cozean, the Interstitial Cystitis Solution is the best book written about interstitial cystitis in twenty years. If you are newly diagnosed with IC/BPS, it will give you a road map on how to approach your treatment and self care. If you’re a grizzled IC veteran, it provides the latest information [...]

By | December 9th, 2016|Front Page Feed, ICN Shop & Mail Order Center|Comments Off on The Interstitial Cystitis Solution The Best Book on IC in 20 years!

CUA IC/BPS Guidelines Finally Adopted – Canadian Patients Get Much Needed Guidance

CUA IC/BPS Guidelines Adopted Why have so many interstitial cystitis patients in Canada come to the USA for care? Despite the glowing reviews about universal health care, there is a sad IC truth behind the scenes north of the border. There is no national IC organization to advocate on their behalf. Only a handful of physicians in [...]

By | December 7th, 2016|Awareness, Diagnosis, ICN Announcements, Industry News, Interstitial Cystitis Network Blog, News, Research, Treatments|Comments Off on CUA IC/BPS Guidelines Finally Adopted – Canadian Patients Get Much Needed Guidance

Fall 2016 IC Optimist Released

The Fall 2016 IC Optimist is now available for your viewing pleasure. Print subscribers should receive their printed copies next week. E-mail subscribers within the next 48 hours!! In this issue: (1) Editorial: Hunner's Lesions Should Be Considered A Separate Disease Our editorial suggests that Hunner’s lesions should be considered a separate and unique disease, [...]

By | November 26th, 2016|Interstitial Cystitis Network Blog|Comments Off on Fall 2016 IC Optimist Released

Hunner’s Lesions Should Be Considered A Separate Disease

As we’ve discussed in earlier issues of the IC Optimist, many clinicians and researchers around the world now believe that there are distinct variations and/or subtypes in the IC patient population. While there is considerable debate of proposed subtyping systems, most agree that the roughly 10% of patients who struggle with Hunner’s lesions have a [...]

By | November 9th, 2016|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Hunner’s Lesions Should Be Considered A Separate Disease

November is Bladder Health Awareness Month

Urology Patients Of All Ages Benefit From New Bladder Health Awareness Campaign Anyone working in the trenches of urology know just how difficult it is to plan a public relations campaign. Almost every press release sent out that asks a newspaper to do a story on interstitial cystitis, incontinence or bladder cancer ends up in a trash [...]

By | November 4th, 2016|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on November is Bladder Health Awareness Month

Substantial Revision and Removal Rate for Interstim

Neuromodulation uses a mild electrical impulse on various nerves to help maintain appropriate nerve function in the bladder. Two different forms of neuromodulation are available: post-tibial nerve stimulation (Urgent PC® by Congentix Medical) and sacral or pudendal nerve stimulation (Interstim® by Medtronic). Both procedures are FDA and Medicare approved for urinary frequency, urgency, incontinence and overactive [...]

By | October 23rd, 2016|Interstitial Cystitis Network Blog, Latest Research, Research|Comments Off on Substantial Revision and Removal Rate for Interstim

Dr. Robert Evans Shares His Treatment Approach For Children and Teens with IC/BPS

A Proposed Four Step IC/BPS Treatment Protocol For The Youngest Patients - When Jill van Royen sought medical care for her young daughter with IC, she found little help among the physicians in Northern California. Out of desperation, she and her daughter flew across the country to see Dr. Robert Evans at Wake Forest University. It was [...]

By | October 23rd, 2016|Children & Teens, Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Dr. Robert Evans Shares His Treatment Approach For Children and Teens with IC/BPS

A New Chronic Pelvic Pain Terminology Guide Adds Clarity For IC

Earlier this year, the International Continence Society released new terminology standards to aid in the diagnosis of ALL chronic pelvic pain disorders, including those that affect the bladder(1). This is a powerful document that will help physicians and patients identify and classify potential sources of their pelvic pain. Consider the plight of a young patient with [...]

By | October 19th, 2016|Conference Reports, Interstitial Cystitis Network Blog, Latest Research, Research|Comments Off on A New Chronic Pelvic Pain Terminology Guide Adds Clarity For IC