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3 to 8 Million Women in the USA

Have Symptoms of IC/BPS and Pelvic Pain

It's NOT all in their head

Some women have undergone unnecessary hysterectomy in a desperate attempt to reduce their pain. They may see 5 to 7 doctors before receiving a correct diagnosis.

1 to 4 Million Men in the USA

Struggle with bladder and/or pelvic pain

It's NOT Chronic Prostatitis

Researchers now suspect that the millions of men diagnosed with chronic prostatitis actually suffer from IC/BPS or Pelvic Floor dysfunction

Five Potential Subtypes

Develop a Customized Ttreatment Plan

What's Your Subtype?

Hunner’s lesions, Bladder Wall, Pelvic Floor, Pudendal Neuralgia and Functional Somatic Syndrome. Each are treated differently!

How the Interstitial Cystitis Network Can Help

Learn About IC/BPS

Rated the most credible and reliable website on IC in studies by Harvard Medical School and the University of London, the ICN offers the latest information on interstitial cystitis and its related conditions.  Learn about how IC is diagnosed, the six step treatment protocol, how to prevent flares, the IC diet and much more!

Visit Our IC Resource Center

Get Support

The ICN has the oldest and most trusted on-line patient support community where millions of patients have asked questions, made friends and found hope. It’s entirely free. You’ll find discussions on diagnosis, treatments, flare management, pain control, success stories, pregnancy and much more!

Visit Our IC Support Forum!

Find A Specialist

If you’ve struggled to find medical care providers knowledgeable about IC, you are not alone. The ICN Find A Specialist Database lists urologists, urogynecologists, physical therapists and dietitians who work with IC and pelvic pain patients. Search by State, Town or Zip Code.

Search Our Database Now!

IC Optimist Magazine

The Latest Research

Northwestern Study Seeks Men & Women With IC/BPS or CP/CPPS

MAPP Research Network Study Seeks People with IC/BPS or CP/CPPS Do you or someone you know suffer from Interstitial Cystitis/Bladder Pain Syndrome (IC/BPS) or Chronic Prostatitis/Chronic Pelvic Pain Syndrome (CPPS)? Northwestern University’s Feinberg School of [...]

New LiNKA Study Launched In North America Seeks Bladder Pain Patients

Do you or someone you know suffer from IC/BPS? If so, you are familiar with the pain that can make it difficult to enjoy life. Allergan, Inc. ( is enrolling participants for a research study [...]

New LiNKA Study Launched In North America Seeks Patients With Hunner’s Lesions

Do you or someone you know suffer from IC with Hunner’s Lesions? If so, you are familiar with the pain that can make it difficult to enjoy life. Allergan, Inc. ( is enrolling participants for [...]

The Latest News

Remarkable Patients With Pelvic Pain – Atara Schimmel

Introducing Atara Schimmel - Artist, Advocate, Pelvic Pain Patient (The purpose of the "Remarkable Patients" series is to highlight patients who have done remarkable things in spite of, or perhaps because of, their bladder and/or [...]

Beware The Non-Organic Strawberry

Study Finds Strawberry Contains The Highest Pesticide Levels If your family loves to eat fresh strawberries, you might be stunned to discover that they were found to contain the highest level of pesticide residues of all [...]

How Does Interstitial Cystitis Begin

Dr. Lowell Parson's Explores Early Signs and Symptoms of IC One of the most recognizable figures in research and clinical care, Dr. Lowell Parsons has treated 9000 IC patients in his 35 year career at UC [...]

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You'll receive the ICN Guide to Managing IC Flares as our gift! Our monthly e-zine features the latest IC news, clinical trials, self-help tips, patient events & much more!
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ICN Shop & Mail Order Center

As a health education company dedicated to IC and pelvic pain, we offer a clearinghouse of information and resources that will help you learn more about your condition and, more importantly, find relief. In our shop you’ll find:


Over The Counter Neutraceuticals provide a vital resource for those unable to afford or tolerate traditional medications. Here are the common supplements suggested for bladder health:

Pain of IC Can Be Severe


Not only do I want to thank you & your team for everything that you do but I wanted to thank you personally. You took the time to talk to me for over an hour. You brightened my day when I was feeling hopeless. It’s such a comfort to know you & the ICN are there for support.
Diane P., July 2014
I suffered with IC and PFD for about 8 years before I found a doctor who believed me and is treating me. Over those 8 years you and the IC Network were my life line and an amazing source of strength and hope and continue to be. Thank you so much for all you did and continue to do.
Cathy, July 2014
I firmly believe that the Interstitial Cystitis Network has educated me more than any doctor or nurse. At times I think I’ve intimidated my doctors by the knowledge I’ve gained from the site. Your site definitely empowers all of us who suffer with this horrible disease.
Savannah, Sept. 2013
I honestly don’t know what I would have done without the ICN and you over 12 years ago when I finally found out what was wrong with me!! I think you are doing Gods work for so many!
Shelby, June 2011
The ICN videos are EXTREMELY helpful, if not LIFE CHANGING. Extremely smart, well researched information. EVERY urologist office should have a big flyer advertising this website. Thank you so much for what you do!!”
YouTube Member
I really wanted to let you know how helpful the ICN website is. Having IC has been rough, but I have learned so much from your site (good tips, info, coping strategies). Way more than I ever learned from my uro! I know my symptoms have improved partly due to things I have learned from your site. Keep up the good work!
John A.
I watched a few of your videos on YouTube – on behalf of a friend who says he has suffered excruciating pain and discomfort for years. We’ve gained from your references. I just wanted to thank you for your such consummately sensible, humane help to so many others…. You are producing guidance that is clear, relevant, down-to-earth, useful and good-hearted.
Bruce H., August 2009
I will never be able to thank you enough for getting me through so many horrible times. I go into remission for years at a time so I guess I’m one of the lucky ones. However, I’ve had a few flares in the past couple of months and I always know who to turn to in the middle of the night.Your site is better than a heating pad.
I don’t know how I would have made it thus far without all of you wonderful people. Just knowing I am not alone is the best relief I could have ever asked for. If I get scared, am hurting, or just need comfort, I know you are always there.
Phyllis, ICN Support Forum Member
I’m SO excited about the information in your food app. I am encouraged now I can live a normal life and eat again.. Thank you for your website. – September 2015
I want to thank you for that day you gave me hope ….the day we spoke I had been in constant pain for so long and taking such strong pain meds I was ready to end my life. I don’t know what I would have done if you hadn’t taken the time to guide me through the next step in my journey to find a solution to the suffering…
RH - Nov. 2015

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