Interstitial Cystitis Network Home PageJill Osborne2016-10-07T14:57:48+00:00
How the Interstitial Cystitis Network Can Help
Learn About IC/BPS
Rated the most credible and reliable website on IC in studies by Harvard Medical School and the University of London, the ICN offers the latest information on interstitial cystitis and its related conditions. Learn about how IC is diagnosed, the six step treatment protocol, how to prevent flares, the IC diet and much more!
The ICN has the oldest and most trusted on-line patient support community where millions of patients have asked questions, made friends and found hope. It’s entirely free. You’ll find discussions on diagnosis, treatments, flare management, pain control, success stories, pregnancy and much more!
If you’ve struggled to find medical care providers knowledgeable about IC, you are not alone. The ICN Find A Specialist Database lists urologists, urogynecologists, physical therapists and dietitians who work with IC and pelvic pain patients. Search by State, Town or Zip Code.
Earlier this year, the International Continence Society released new terminology standards to aid in the diagnosis of ALL chronic pelvic pain disorders, including those that affect the bladder(1). This is a powerful document that will [...]
New, Promising Treatments - AF 219, LiRIS, AQX-1125, GM-0111, LP-08 Patients constantly ask "Is there anything new?" Yes, Virginia, IC research is alive and well with teams from around the world exploring new treatments. Here's [...]
(Editors Note - You may be asking why we're posting a study about uterine fibroids on our website. Many women with IC have a history of not only fibroids but also ovarian cysts and endometriosis. [...]
Patients with IC/BPS (interstitial cystitis/bladder pain syndrome) are found all over the world. The majority of these patients suffers from symptoms like high urinary frequency and urgency, pain and pressure in the lower abdominal, urethral, [...]
Hyoscyamine sulfate, a popular drug use for urology patients struggling with incontinence, has been recalled by Virtus Pharmaceuticals. This recall is the result of irregular medication levels in the medication which can give patients either [...]
Hep-Lido-A Price Drops Dramatically It's not every day that you get a message from a company announcing that a price for a vital IC therapy has gone down but, believe it or not, it happened! Hep-Lido-A, [...]
There’s something about the Fall season that inspires even reluctant cooks to venture into the kitchen to take a stab at making something seasonal. From pumpkin bread to butternut squash soup, the flavors of fall [...]
The Agony of Cranberry - For anyone who has struggled with urinary symptoms (frequency, urgency, pressure and/or pain), the first suggestion they often hear from well meaning family members and friends is to drink cranberry [...]
Not only do I want to thank you & your team for everything that you do but I wanted to thank you personally. You took the time to talk to me for over an hour. You brightened my day when I was feeling hopeless. It’s such a comfort to know you & the ICN are there for support.
Diane P., July 2014
I suffered with IC and PFD for about 8 years before I found a doctor who believed me and is treating me. Over those 8 years you and the IC Network were my life line and an amazing source of strength and hope and continue to be. Thank you so much for all you did and continue to do.
Cathy, July 2014
I firmly believe that the Interstitial Cystitis Network has educated me more than any doctor or nurse. At times I think I’ve intimidated my doctors by the knowledge I’ve gained from the site. Your site definitely empowers all of us who suffer with this horrible disease.
Savannah, Sept. 2013
I honestly don’t know what I would have done without the ICN and you over 12 years ago when I finally found out what was wrong with me!! I think you are doing Gods work for so many!
Shelby, June 2011
The ICN videos are EXTREMELY helpful, if not LIFE CHANGING. Extremely smart, well researched information. EVERY urologist office should have a big flyer advertising this website. Thank you so much for what you do!!”
I really wanted to let you know how helpful the ICN website is. Having IC has been rough, but I have learned so much from your site (good tips, info, coping strategies). Way more than I ever learned from my uro! I know my symptoms have improved partly due to things I have learned from your site. Keep up the good work!
I watched a few of your videos on YouTube – on behalf of a friend who says he has suffered excruciating pain and discomfort for years. We’ve gained from your references. I just wanted to thank you for your such consummately sensible, humane help to so many others…. You are producing guidance that is clear, relevant, down-to-earth, useful and good-hearted.
Bruce H., August 2009
I will never be able to thank you enough for getting me through so many horrible times. I go into remission for years at a time so I guess I’m one of the lucky ones. However, I’ve had a few flares in the past couple of months and I always know who to turn to in the middle of the night.Your site is better than a heating pad.
I don’t know how I would have made it thus far without all of you wonderful people. Just knowing I am not alone is the best relief I could have ever asked for. If I get scared, am hurting, or just need comfort, I know you are always there.
Phyllis, ICN Support Forum Member
I’m SO excited about the information in your food app. I am encouraged now I can live a normal life and eat again.. Thank you for your website. – September 2015
I want to thank you for that day you gave me hope ….the day we spoke I had been in constant pain for so long and taking such strong pain meds I was ready to end my life. I don’t know what I would have done if you hadn’t taken the time to guide me through the next step in my journey to find a solution to the suffering…
RH - Nov. 2015
Fabulous, amazingly helpful website, I’m so grateful it exists. Thanks for all the hard work that went into it.