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Summer 2016

3 to 8 Million Women in the USA

Have Symptoms of IC/BPS and Pelvic Pain

It's NOT all in their head

Some women have undergone unnecessary hysterectomy in a desperate attempt to reduce their pain. They may see 5 to 7 doctors before receiving a correct diagnosis.

1 to 4 Million Men in the USA

Struggle with bladder and/or pelvic pain

It's NOT Chronic Prostatitis

Researchers now suspect that the millions of men diagnosed with chronic prostatitis actually suffer from IC/BPS or Pelvic Floor dysfunction

Six Steps of Treatment

Not sure what treatments to try?

An Easy & Effective Protocol

A new six step treatment protocol offers an easy plan starting with self help, diet medication, natural vs. traditional treatments and so forth! Learn more! 

How the Interstitial Cystitis Network Can Help

Learn About IC/BPS

Rated the most credible and reliable website on IC in studies by Harvard Medical School and the University of London, the ICN offers the latest information on interstitial cystitis and its related conditions.  Learn about how IC is diagnosed, the six step treatment protocol, how to prevent flares, the IC diet and much more!

Visit Our IC Resource Center

Get Support

The ICN has the oldest and most trusted on-line patient support community where millions of patients have asked questions, made friends and found hope. It’s entirely free. You’ll find discussions on diagnosis, treatments, flare management, pain control, success stories, pregnancy and much more!

Visit Our IC Support Forum!

Find A Specialist

If you’ve struggled to find medical care providers knowledgeable about IC, you are not alone. The ICN Find A Specialist Database lists urologists, urogynecologists, physical therapists and dietitians who work with IC and pelvic pain patients. Search by State, Town or Zip Code.

Search Our Database Now!

IC Optimist Magazine

The Latest Research

IC Patient Develops Aortic Aneurysm After Using Cipro

New FDA Warning About Fluoroquinolone Antibiotics - When IC patient Naomi* was prescribed Cipro for a bladder infection several years ago, she had no idea that it would lead to a life threatening aortic aneurysm. [...]

The DIPP Mystery – Why are IC patients deficient in some good bacteria?

Researchers have discovered that IC patients have significantly different levels and types of bacteria in our digestive tract (bowel) rather than our urinary tract (kidney, bladder). These distinct deficiencies (known as DIPP) hint that the lack of [...]

Dr. Jeannette Potts – Pelvic Pain In Men is Not Prostatitis

"Real Men Get Real Pelvic Pain" Course Provided To Urologists At AUA 2016 - If you've been told that your pelvic pain is the result of chronic prostatitis, you are not alone. If you've spent hundreds [...]

The Latest News

New ICN Video – 2016 IC Treatment Options

Do You Know The Six Steps of Treatment For IC/BPS? This new "Living With IC" video was inspired by an IC patient who phoned our office last week. Diagnosed in 2004, she had been remission [...]

You Don’t Have To Pay To Be An IC Angel

IC Angel Program Honors Legacy Of Diane Manhatten Lopresti For the past couple of months, we've noticed that the Interstitial Cystitis Association has launched a new donor program called the "ICA Angel Society." We are [...]

Remarkable Patients With IC – Louisa Joy Wise, Musician

Introducing Louisa Joy Wise - Musician, Artist, Mother The healing power of music is undeniable. Whether you love rock, rap, folk or classical, music often makes us feel very VERY good. Louisa Joy Wise's music inspires happiness! Take [...]

Diet and Nutrition Tips

IC Friendly Summer Salads – IC Diet Project

It’s summer and you know what that means; it’s time for salads! But, if you are a person with acid sensitivity you are probably asking yourself, “What can I put on my salads?” My answer [...]

IC & Bladder Friendly Sweet Tea

Are you a sweet tea addict? Whether you live in the southeast or the northwest, iced sweet teas are a staple for the hot, sometimes sweltering, days of summer. But, when you've got interstitial cystitis, [...]

What’s the Worst Drink For IC/BPS Ever?

IC & IBS Patients Share Many Diet Restrictions Heather Van Vorous, author of First Year IBS, has written some fabulous articles for her website www.helpforibs.com. In one of her "Ask Heather" columns, she answered the [...]

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You'll receive the ICN Guide to Managing IC Flares as our gift! Our monthly e-zine features the latest IC news, clinical trials, self-help tips, patient events & much more!
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September is IC Awareness Month

Pain of IC Can Be Severe
IC Awareness Month Daily Fact #17 - Millions of Men Have IC/BPS

Testimonials

Not only do I want to thank you & your team for everything that you do but I wanted to thank you personally. You took the time to talk to me for over an hour. You brightened my day when I was feeling hopeless. It’s such a comfort to know you & the ICN are there for support.
Diane P., July 2014
I suffered with IC and PFD for about 8 years before I found a doctor who believed me and is treating me. Over those 8 years you and the IC Network were my life line and an amazing source of strength and hope and continue to be. Thank you so much for all you did and continue to do.
Cathy, July 2014
I firmly believe that the Interstitial Cystitis Network has educated me more than any doctor or nurse. At times I think I’ve intimidated my doctors by the knowledge I’ve gained from the site. Your site definitely empowers all of us who suffer with this horrible disease.
Savannah, Sept. 2013
I honestly don’t know what I would have done without the ICN and you over 12 years ago when I finally found out what was wrong with me!! I think you are doing Gods work for so many!
Shelby, June 2011
The ICN videos are EXTREMELY helpful, if not LIFE CHANGING. Extremely smart, well researched information. EVERY urologist office should have a big flyer advertising this website. Thank you so much for what you do!!”
YouTube Member
I really wanted to let you know how helpful the ICN website is. Having IC has been rough, but I have learned so much from your site (good tips, info, coping strategies). Way more than I ever learned from my uro! I know my symptoms have improved partly due to things I have learned from your site. Keep up the good work!
John A.
I watched a few of your videos on YouTube – on behalf of a friend who says he has suffered excruciating pain and discomfort for years. We’ve gained from your references. I just wanted to thank you for your such consummately sensible, humane help to so many others…. You are producing guidance that is clear, relevant, down-to-earth, useful and good-hearted.
Bruce H., August 2009
I will never be able to thank you enough for getting me through so many horrible times. I go into remission for years at a time so I guess I’m one of the lucky ones. However, I’ve had a few flares in the past couple of months and I always know who to turn to in the middle of the night.Your site is better than a heating pad.
Ele
I don’t know how I would have made it thus far without all of you wonderful people. Just knowing I am not alone is the best relief I could have ever asked for. If I get scared, am hurting, or just need comfort, I know you are always there.
Phyllis, ICN Support Forum Member
I’m SO excited about the information in your food app. I am encouraged now I can live a normal life and eat again.. Thank you for your website. – September 2015
Jill
I want to thank you for that day you gave me hope ….the day we spoke I had been in constant pain for so long and taking such strong pain meds I was ready to end my life. I don’t know what I would have done if you hadn’t taken the time to guide me through the next step in my journey to find a solution to the suffering…
RH - Nov. 2015

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