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How the Interstitial Cystitis Network Can Help

Learn About IC/BPS

Rated the most credible and reliable website on IC in studies by Harvard Medical School and the University of London, the ICN offers the latest information on interstitial cystitis and its related conditions.  Learn about how IC is diagnosed, the six step treatment protocol, how to prevent flares, the IC diet and much more!

Visit Our IC Resource Center

Get Support

The ICN has the oldest and most trusted on-line patient support community where millions of patients have asked questions, made friends and found hope. It’s entirely free. You’ll find discussions on diagnosis, treatments, flare management, pain control, success stories, pregnancy and much more!

Visit Our IC Support Forum!

Find A Specialist

If you’ve struggled to find medical care providers knowledgeable about IC, you are not alone. The ICN Find A Specialist Database lists urologists, urogynecologists, physical therapists and dietitians who work with IC and pelvic pain patients. Search by State, Town or Zip Code.

Search Our Database Now!

Clinical Trials

IC Optimist Magazine

Current Issue – Fall 2016

Research & Clinical Trials

Substantial Revision and Removal Rate for Interstim

Neuromodulation uses a mild electrical impulse on various nerves to help maintain appropriate nerve function in the bladder. Two different forms of neuromodulation are available: post-tibial nerve stimulation (Urgent PC® by Congentix Medical) and sacral [...]

A New Chronic Pelvic Pain Terminology Guide Adds Clarity For IC

Earlier this year, the International Continence Society released new terminology standards to aid in the diagnosis of ALL chronic pelvic pain disorders, including those that affect the bladder(1). This is a powerful document that will [...]

New IC Treatments Currently in the IC Pipeline

New, Promising Treatments - AF 219, LiRIS, AQX-1125, GM-0111, LP-08 Patients constantly ask "Is there anything new?" Yes, Virginia, IC research is alive and well with teams from around the world exploring new treatments. Here's [...]

News & Feature Stories

Fall 2016 IC Optimist Released

The Fall 2016 IC Optimist is now available for your viewing pleasure. Print subscribers should receive their printed copies next week. E-mail subscribers within the next 48 hours!! In this issue: (1) Editorial: Hunner's Lesions [...]

Hunner’s Lesions Should Be Considered A Separate Disease

As we’ve discussed in earlier issues of the IC Optimist, many clinicians and researchers around the world now believe that there are distinct variations and/or subtypes in the IC patient population. While there is considerable [...]

November is Bladder Health Awareness Month

Urology Patients Of All Ages Benefit From New Bladder Health Awareness Campaign Anyone working in the trenches of urology know just how difficult it is to plan a public relations campaign. Almost every press release sent out [...]

3 to 8 Million Women in the USA

Have Symptoms of IC/BPS and Pelvic Pain

It's NOT all in their head

Some women have undergone unnecessary hysterectomy in a desperate attempt to reduce their pain. They may see 5 to 7 doctors before receiving a correct diagnosis.

1 to 4 Million Men in the USA

Struggle with bladder and/or pelvic pain

It's NOT Chronic Prostatitis

Researchers now suspect that the millions of men diagnosed with chronic prostatitis actually suffer from IC/BPS or Pelvic Floor dysfunction

Six Steps of Treatment

Not sure what treatments to try?

An Easy & Effective Protocol

A new six step treatment protocol offers an easy plan starting with self help, diet medication, natural vs. traditional treatments and so forth! Learn more! 

Diet and Nutrition Tips

The Flavors Of Fall – IC Friendly Butternut & Pumpkin Recipes

There’s something about the Fall season that inspires even reluctant cooks to venture into the kitchen to take a stab at making something seasonal. From pumpkin bread to butternut squash soup, the flavors of fall [...]

Should IC patients drink cranberry juice? No!

The Agony of Cranberry - For anyone struggling with urinary symptoms (frequency, urgency, pressure and/or pain), the first suggestion they often hear from well meaning family members and friends is to drink cranberry juice. And, perhaps [...]

IC Friendly Summer Salads – IC Diet Project

It’s summer and you know what that means; it’s time for salads! But, if you are a person with acid sensitivity you are probably asking yourself, “What can I put on my salads?” My answer [...]

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You'll receive the ICN Guide to Managing IC Flares as our gift! Our monthly e-zine features the latest IC news, clinical trials, self-help tips, patient events & much more!
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September is IC Awareness Month

Pain of IC Can Be Severe
IC Awareness Month Daily Fact #17 - Millions of Men Have IC/BPS

Testimonials

Not only do I want to thank you & your team for everything that you do but I wanted to thank you personally. You took the time to talk to me for over an hour. You brightened my day when I was feeling hopeless. It’s such a comfort to know you & the ICN are there for support.
Diane P., July 2014
I suffered with IC and PFD for about 8 years before I found a doctor who believed me and is treating me. Over those 8 years you and the IC Network were my life line and an amazing source of strength and hope and continue to be. Thank you so much for all you did and continue to do.
Cathy, July 2014
I firmly believe that the Interstitial Cystitis Network has educated me more than any doctor or nurse. At times I think I’ve intimidated my doctors by the knowledge I’ve gained from the site. Your site definitely empowers all of us who suffer with this horrible disease.
Savannah, Sept. 2013
I honestly don’t know what I would have done without the ICN and you over 12 years ago when I finally found out what was wrong with me!! I think you are doing Gods work for so many!
Shelby, June 2011
The ICN videos are EXTREMELY helpful, if not LIFE CHANGING. Extremely smart, well researched information. EVERY urologist office should have a big flyer advertising this website. Thank you so much for what you do!!”
YouTube Member
I really wanted to let you know how helpful the ICN website is. Having IC has been rough, but I have learned so much from your site (good tips, info, coping strategies). Way more than I ever learned from my uro! I know my symptoms have improved partly due to things I have learned from your site. Keep up the good work!
John A.
I watched a few of your videos on YouTube – on behalf of a friend who says he has suffered excruciating pain and discomfort for years. We’ve gained from your references. I just wanted to thank you for your such consummately sensible, humane help to so many others…. You are producing guidance that is clear, relevant, down-to-earth, useful and good-hearted.
Bruce H., August 2009
I will never be able to thank you enough for getting me through so many horrible times. I go into remission for years at a time so I guess I’m one of the lucky ones. However, I’ve had a few flares in the past couple of months and I always know who to turn to in the middle of the night.Your site is better than a heating pad.
Ele
I don’t know how I would have made it thus far without all of you wonderful people. Just knowing I am not alone is the best relief I could have ever asked for. If I get scared, am hurting, or just need comfort, I know you are always there.
Phyllis, ICN Support Forum Member
I’m SO excited about the information in your food app. I am encouraged now I can live a normal life and eat again.. Thank you for your website. – September 2015
Jill
I want to thank you for that day you gave me hope ….the day we spoke I had been in constant pain for so long and taking such strong pain meds I was ready to end my life. I don’t know what I would have done if you hadn’t taken the time to guide me through the next step in my journey to find a solution to the suffering…
RH - Nov. 2015
Fabulous, amazingly helpful website, I’m so grateful it exists. Thanks for all the hard work that went into it.
L. T.

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