The Doctors TV Show Covers IC

The Doctors TV Show discusses interstitial cystitis 10-14-2013We were so happy to see The Doctors TV show cover IC earlier this week. IC patient Elizabeth Bingheimer was fearless in sharing her life with interstitial cystitis on live TV. Like many patients, Elizabeth shared that at one point she thought that she had cancer. She said “this pain is so severe, it has to be cancer.” Yet, when given a diagnosis of IC, she said that she almost felt worse. Why? As featured expert Dr. Berman explained, “With cancer, you can get treated…. IC can affect her for the rest of her life.”

Dr. Berman explained that IC is an inflammatory condition of the bladder. She did a nice visual demonstration about a cracked bladder wall and how urine can leak deeper into the bladder where it can cause irritation, inflammation and severe pain. Dr. Berman discussed how food can make symptoms worse. She very briefly mentioned using some oral medications and supplements.

In an odd twist for a TV show, Dr. Berman also emphasized the use of hydrodistention as an “interim solution for pain.” If you look at the AUA Guidelines for the Diagnosis and Treatment of IC, hydrodistention is in Step 3 because of its more invasive nature. The AUA strongly suggests that patients try oral medications and bladder instillations before resorting to this more aggressive therapy.

Dr. Berman also suggested that “hydrodistention redistributes the nerve fibers in the bladder” which doesn’t really make sense. What hydrodistention does do is temporarily break the nerve fibers in the bladder wall which, for the next several weeks or months give a sense of relief. However, the nerves do indeed grow back again. It’s also important to note that the AUA strongly suggests that hydrodistention be “low pressure, short duration” rather than the old school “high pressure, long duration” treatments to minimize trauma and the potential of rupture of the bladder wall.

Elizabeth represented the IC community beautifully!

Watch the episode here –

By |2017-01-31T13:40:08+00:00October 18th, 2013|ICN Announcements, Interstitial Cystitis Network Blog, Must Reads, News, Patient Stories|Comments Off on The Doctors TV Show Covers IC

About the Author:

My Google Profile+ Jill Heidi Osborne is the president and founder of the Interstitial Cystitis Network, a health education company dedicated to interstitial cystitis, bladder pain syndrome and other pelvic pain disorders. As the editor and lead author of the ICN and the IC Optimist magazine, Jill is proud of the academic recognition that her website has achieved. The University of London rated the ICN as the top IC website for accuracy, credibility, readability and quality. (Int Urogynecol J - April 2013). Harvard Medical School rated both Medscape and the ICN as the top two websites dedicated to IC. (Urology - Sept 11). Jill currently serves on the Congressionally Directed Medical Research Panel (US Army) where she collaborates with researchers to evaluate new IC research studies for possible funding. Jill has conducted and/or collaborates on a variety of IC research studies on new therapeutics, pain care, sexuality, the use of medical marijuana, menopause and the cost of treatments, shining a light on issues that influence patient quality of life. An IC support group leader and national spokesperson for the past 20 years, she has represented the IC community on radio, TV shows, at medical conferences. She has written hundreds of articles on IC and its related conditions. With a Bachelors Degree in Pharmacology and a Masters in Psychology, Jill was named Presidential Management Intern (aka Fellowship) while in graduate school. (She was unable to earn her PhD due to the onset of her IC.) She spends the majority of her time providing WELLNESS COACHING for patients in need and developing new, internet based educational and support tools for IC patients, including the “Living with IC” video series currently on YouTube and the ICN Food List smartphone app! Jill was diagnosed with IC at the age of 32 but first showed symptoms at the age of 12.