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AUA 2013 – Interstitial Cystitis, Bladder, Pelvic Pain Highlights

summeroptimist2013-200Ever wonder how your urologist stays up to date on the latest treatments? The motivated ones visit the annual American Urological Association conference, a gathering of more than 20,000 domestic and international urologists and residents. This years conference (AUA 2013) was held in May in San Diego (CA), a lovely setting for often serious discussions about the diagnosis and treatment of urological conditions such as: prostate & bladder cancer, traumatic injuries, resistant infection, kidney disorders, sexual dysfunction and, yes, interstitial cystitis / bladder pain syndrome. It’s the highlight of year for the IC community because it brings together leaders in research, clinical care and patient support from around the world.

In addition to the tried and true course on IC taught by Phil Hanno MD and David Burks MD, there were two fabulous courses that discussed IC within the context of chronic pelvic pain that were, in my opinion, almost revolutionary. AUA has always been a bastion for evidence based research and, in years past, discussions rarely tread “outside of the box,” i.e. the bladder. But with growing consensus that IC/BPS is a chronic and complex pelvic pain syndrome, the AUA is now acknowledging the critical role that pelvic floor muscles play. Noted physical therapist Rhonda Kotarinos PT was given the opportunity to train urologists on the nuance of pelvic floor evaluation.

The second trend was an acknowledgement that many patients simply cannot afford therapy. Lecturers such as Robert Evans MD gave strong recommendations for OTC products that can have similar effects. The supplements Prelief, CystoProtek, CystaQ and Desert Harvest Aloe were recommended multiple times, along with the OTC cream Traumeel. This was a remarkable and refreshing change of direction that gives both doctors and patients more options to explore.

Read our full, comprehensive report in the Summer 2013 of the IC Optimist Magazine!

By |2017-01-31T13:39:41+00:00October 21st, 2013|Conference Reports, Interstitial Cystitis Network Blog, Research|Comments Off on AUA 2013 – Interstitial Cystitis, Bladder, Pelvic Pain Highlights

About the Author:

My Google Profile+ Jill Heidi Osborne is the president and founder of the Interstitial Cystitis Network, a health education company dedicated to interstitial cystitis, bladder pain syndrome and other pelvic pain disorders. As the editor and lead author of the ICN and the IC Optimist magazine, Jill is proud of the academic recognition that her website has achieved. The University of London rated the ICN as the top IC website for accuracy, credibility, readability and quality. (Int Urogynecol J - April 2013). Harvard Medical School rated both Medscape and the ICN as the top two websites dedicated to IC. (Urology - Sept 11). Jill currently serves on the Congressionally Directed Medical Research Panel (US Army) where she collaborates with researchers to evaluate new IC research studies for possible funding. Jill has conducted and/or collaborates on a variety of IC research studies on new therapeutics, pain care, sexuality, the use of medical marijuana, menopause and the cost of treatments, shining a light on issues that influence patient quality of life. An IC support group leader and national spokesperson for the past 20 years, she has represented the IC community on radio, TV shows, at medical conferences. She has written hundreds of articles on IC and its related conditions. With a Bachelors Degree in Pharmacology and a Masters in Psychology, Jill was named Presidential Management Intern (aka Fellowship) while in graduate school. (She was unable to earn her PhD due to the onset of her IC.) She spends the majority of her time providing WELLNESS COACHING for patients in need and developing new, internet based educational and support tools for IC patients, including the “Living with IC” video series currently on YouTube and the ICN Food List smartphone app! Jill was diagnosed with IC at the age of 32 but first showed symptoms at the age of 12.