/Patient Stories

Award Winning Winemaker Janice Schmidt – A Remarkable Patient With IC

Remarkable Patients With IC - Janice Schmidt, Winemaker at Estate 1856 Winery (Editors Note - How could it be possible that a winemaker could also have interstitial cystitis? But then, how could an IC patient be a lead performer on Broadway or serve as an F18 Squadron commander? How about the secret service officer who served in [...]

By |2017-01-31T08:41:33+00:00February 25th, 2016|Front Page Feed, Interstitial Cystitis Network Blog, Patient Stories|Comments Off on Award Winning Winemaker Janice Schmidt – A Remarkable Patient With IC

Making Peace with Yourself – Rolling Out The Mat with IC/BPS

by Hope Engel I have had interstitial cystitis (1C) since April 2010. Pelvic floor dysfunction (PFD) and most likely pudendal neuralgia followed it's evil partner in pain not long after. Like all of my fellow IC warriors, I would like nothing more than for both to miraculously take a hike from my body forever so [...]

By |2017-01-31T09:59:22+00:00September 24th, 2015|Interstitial Cystitis Network Blog, Patient Stories|Comments Off on Making Peace with Yourself – Rolling Out The Mat with IC/BPS

Barbara Flanigan & Her Thirty Year Journey To Discover The Cause of IC

How You Can Help Barbara Flanigan and Her Search For the Cause of IC (Editors Note – I’ve wanted to share Barbara Flanigan’s story and theory about IC for many years. Barbara was the founder the first Interstitial Cystitis Association here in California in 1983. She has always had one key goal in her volunteer work, [...]

By |2017-01-18T12:03:00+00:00June 30th, 2015|Awareness, Interstitial Cystitis IC/BPS, Interstitial Cystitis Network Blog, Patient Stories, Research, Women's Health|Comments Off on Barbara Flanigan & Her Thirty Year Journey To Discover The Cause of IC

Men With IC/BPS Speak Out – Tom’s Story With Interstitial Cystitis

(Editors Note - The plight of men with interstitial cystitis has never been fully told due to the misperception that IC/BPS is a woman's condition. In our Spring 2013 IC Optimist, we published a dozen stories from men struggling with IC. A professional chef, Tom's story shares how difficult it can be for men to [...]

Bladder Rape by Silver Nitrate

How One Patient Was Forced To Have A Treatment Without Her Consent (Author: Jill H. Osborne MA, President, IC Network) There is no excuse for what happened to a female IC patient THIS YEAR. Her primary care provider suspected that she had interstitial cystitis and referred her to a urologist in her community. She made [...]

By |2017-01-31T13:11:43+00:00April 7th, 2014|Awareness, Consumer Alerts, Editorial, Interstitial Cystitis Network Blog, Jill's Journal, Must Reads, News, Patient Stories|Comments Off on Bladder Rape by Silver Nitrate

New IC Optimist Magazine Released!

Our latest IC Optimist patient magazine is being sent to our subscribers this week and individual copies are available for sale! In this issue: (1) Editorial: Sam's Philosophy of Life - We're proud to begin this issue with an editorial featuring the remarkable Sam Bern's, who lived life with great joy despite facing a terminal [...]

By |2017-01-31T13:15:41+00:00March 3rd, 2014|Interstitial Cystitis Network Blog, Must Reads, Pain Care, Patient Stories, Pelvic Floor Dysfunction, Research, Treatments|Comments Off on New IC Optimist Magazine Released!

The Doctors TV Show Covers IC

We were so happy to see The Doctors TV show cover IC earlier this week. IC patient Elizabeth Bingheimer was fearless in sharing her life with interstitial cystitis on live TV. Like many patients, Elizabeth shared that at one point she thought that she had cancer. She said "this pain is so severe, it has [...]

By |2017-01-31T13:40:08+00:00October 18th, 2013|ICN Announcements, Interstitial Cystitis Network Blog, Must Reads, News, Patient Stories|Comments Off on The Doctors TV Show Covers IC

“Positive Outcomes After My Three Year Struggle with IC” By Jo

I am 40 years old and was diagnosed with Interstitial Cystitis and Fibromyalgia over three years ago. Previous to that, I recall chronic UTIs from about the age of 18 but for the last few years, my life has been like a roller coaster ride, not knowing how severe the pain and symptoms of urgency [...]

By |2017-01-18T12:08:33+00:00December 12th, 2012|Patient Stories|Comments Off on “Positive Outcomes After My Three Year Struggle with IC” By Jo

“Where There’s A Will, There’s A Way!” By Rhonda

I was born on Oct 15 1974. My twin sister died at birth. Before I was able to leave the hospital, I had bladder surgery. On my first birthday, I had surgery again. In the third grade, same old story, bladder surgery again. I was also having many infections but the surgeon, Dr. Hammond, did [...]

By |2017-01-18T12:08:34+00:00December 12th, 2012|Patient Stories|Comments Off on “Where There’s A Will, There’s A Way!” By Rhonda

“A Classic IC Story” By Connie

One morning in late September 2003, I woke up and noticed some burning when I urinated. It was just like how I remembered a bladder infection felt. I had only two in my life, one around 1975 and 1985. With those bladder infections I had frequency, I could only pee a little at a time [...]

By |2017-01-18T12:08:34+00:00December 12th, 2012|Patient Stories|Comments Off on “A Classic IC Story” By Connie