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Pin of the Day – It’s Okay To Tell People You’re Not Okay And That Your IC Is Flaring

Do you hide your IC from family and friends? Do you say “I’m fine” even when you’re not?

It's Okay To Tell People You're Not OkayA man with IC was told by his urologist NOT to tell anyone that he was experiencing severe bladder pain. The attitude was “be a man” and, for a couple of years, this courageous IC patient suffered in silence never showing that he was in pain. But then, one day, he just couldn’t. He desperately needed and DESERVED the support of his family and friends.

I don’t believe that we should hide our IC. I don’t believe that we should minimize it and tell people “we’re fine.” We need to be honest, forthcoming and remember that we deserve the love and care of our families too. What we must remember, though, is that they might not understand it. They might not get it. But, you have the right to say “I need your help. I need your support.”

Your thoughts?

Source: http://www.pinterest.com/pin/330522060126325480/

By |2017-01-31T10:56:52+00:00October 20th, 2014|Awareness, Inspirational Quotes, Interstitial Cystitis Network Blog, Jill's Journal|Comments Off on Pin of the Day – It’s Okay To Tell People You’re Not Okay And That Your IC Is Flaring

About the Author:

My Google Profile+ Jill Heidi Osborne is the president and founder of the Interstitial Cystitis Network, a health education company dedicated to interstitial cystitis, bladder pain syndrome and other pelvic pain disorders. As the editor and lead author of the ICN and the IC Optimist magazine, Jill is proud of the academic recognition that her website has achieved. The University of London rated the ICN as the top IC website for accuracy, credibility, readability and quality. (Int Urogynecol J - April 2013). Harvard Medical School rated both Medscape and the ICN as the top two websites dedicated to IC. (Urology - Sept 11). Jill currently serves on the Congressionally Directed Medical Research Panel (US Army) where she collaborates with researchers to evaluate new IC research studies for possible funding. Jill has conducted and/or collaborates on a variety of IC research studies on new therapeutics, pain care, sexuality, the use of medical marijuana, menopause and the cost of treatments, shining a light on issues that influence patient quality of life. An IC support group leader and national spokesperson for the past 20 years, she has represented the IC community on radio, TV shows, at medical conferences. She has written hundreds of articles on IC and its related conditions. With a Bachelors Degree in Pharmacology and a Masters in Psychology, Jill was named Presidential Management Intern (aka Fellowship) while in graduate school. (She was unable to earn her PhD due to the onset of her IC.) She spends the majority of her time providing WELLNESS COACHING for patients in need and developing new, internet based educational and support tools for IC patients, including the “Living with IC” video series currently on YouTube and the ICN Food List smartphone app! Jill was diagnosed with IC at the age of 32 but first showed symptoms at the age of 12.