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IC & Pain – Have you been denied pain treatment?

A New ICN Survey

(March 2017) The pain of interstitial cystitis has been rated equivalent to cancer pain using the McGill pain scale in various research studies. Yet, despite what can be very intense pain, many patients have been struggling to receive pain treatment or denied pain medication. With the 2016 release of the CDC Guidelines on the use of opiate medications, IC patients who have used pain medication successfully and moderately are now finding their medical care providers reluctant to renew prescriptions.

In the past six months, we’ve had dozens of patients call our office seeking help. In several cases, their doctors had retired or relocated and they were unable to find a physician to take over their pain care. Others have reported urologists who had become too afraid to prescribe pain medication over the fear of a DEA investigation. Tragically, some have used moderate levels of opiates only to have their next prescription denied, forcing them into severe withdrawals. With drug rehabilitation services costing well over $10,000, these patients are forced to undergo withdrawals at home without medical supervision.

In this new ICN survey, we ask some important questions. Have you used pain medication successfully? Have you been suddenly denied your pain medication? Were you able to find another care provider to help you? How have you been treated? Have you found any OTC pain medications helpful? Have you tried medical marijuana?

Please help us gather this important data and TAKE THE PAIN SURVEY. No personal identifying information will be captured. We just ask for your age and country at the end of the survey.

ICN Survey Center

You can take more ICN Survey’s here!

By |2017-03-31T12:17:11+00:00March 9th, 2017|Interstitial Cystitis Network Blog, Research|Comments Off on IC & Pain – Have you been denied pain treatment?

About the Author:

My Google Profile+ Jill Heidi Osborne is the president and founder of the Interstitial Cystitis Network, a health education company dedicated to interstitial cystitis, bladder pain syndrome and other pelvic pain disorders. As the editor and lead author of the ICN and the IC Optimist magazine, Jill is proud of the academic recognition that her website has achieved. The University of London rated the ICN as the top IC website for accuracy, credibility, readability and quality. (Int Urogynecol J - April 2013). Harvard Medical School rated both Medscape and the ICN as the top two websites dedicated to IC. (Urology - Sept 11). Jill currently serves on the Congressionally Directed Medical Research Panel (US Army) where she collaborates with researchers to evaluate new IC research studies for possible funding. Jill has conducted and/or collaborates on a variety of IC research studies on new therapeutics, pain care, sexuality, the use of medical marijuana, menopause and the cost of treatments, shining a light on issues that influence patient quality of life. An IC support group leader and national spokesperson for the past 20 years, she has represented the IC community on radio, TV shows, at medical conferences. She has written hundreds of articles on IC and its related conditions. With a Bachelors Degree in Pharmacology and a Masters in Psychology, Jill was named Presidential Management Intern (aka Fellowship) while in graduate school. (She was unable to earn her PhD due to the onset of her IC.) She spends the majority of her time providing WELLNESS COACHING for patients in need and developing new, internet based educational and support tools for IC patients, including the “Living with IC” video series currently on YouTube and the ICN Food List smartphone app! Jill was diagnosed with IC at the age of 32 but first showed symptoms at the age of 12.