/, Interstitial Cystitis Network Blog/New ICN Video – Subtypes For IC Offer Hope and Clarity For Struggling Patients

New ICN Video – Subtypes For IC Offer Hope and Clarity For Struggling Patients

Five Proposed Subtypes Help Patients Prioritize Treatments & Self-Care

Did you know that there is tremendous variation in the IC patient population? Some patients have profoundly damaged bladders while others have normal bladders yet both struggle with symptoms of frequency, urgency and pain. Up to this point, both would be diagnosed with IC in in the USA but clearly they are not the same condition. Some patients have a lot of related conditions such as IBS, vulvodynia, prostatodynia while others have none. A large percentage of patients also have pelvic floor muscle dysfunction.

IC is no longer considered a “bladder disease.” We now consider it a “pelvic pain syndrome” because of the symptoms that often occur beyond the bladder. To help understand those variations, researchers have spent the last few years trying to develop clear subtypes of IC. Dr. Dan Shoskes and Dr. Curtis Nickel proposed the UPOINT system which asks physicians to assess not only bladder symptoms and condition but also the muscles, the presence of related conditions, UTI, etc. The MAPP Research Network suggests that atleast two subtypes are present: Hunner’s lesions & non-Hunner’s lesion patients. I believe that Dr. Christopher Payne’s five proposed subtypes released last year represent the complex and often unique patient population best. His system can help patients look at their symptoms with a new, fresh perspective and, perhaps, may explain why some therapies have not worked.

In this video, I explain his five subtypes and why I think they represent the future of IC diagnosis and care! After watching it, I hope you’ll be able to figure out your subtype! What do you think? Did he nail it??

Download The Article

The New Paradigm for IC/BPS – Five Subtypes

ICN Living With IC Video Series

The ICN “Living With IC” Video series has been viewed more than 500,000 times by patients and family members. From basic tips on diet to the last IC research, our goal is to provide clear information in a hopeful and encouraging manner. We want patients to remember that they are not alone. There is always hope!

If you have any topics that you would like to see covered, please send us an email! We’d love to hear your ideas, thoughts and feedback on these videos!

Watch more videos here! 

By |2017-01-31T08:31:18+00:00May 26th, 2016|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on New ICN Video – Subtypes For IC Offer Hope and Clarity For Struggling Patients

About the Author:

My Google Profile+ Jill Heidi Osborne is the president and founder of the Interstitial Cystitis Network, a health education company dedicated to interstitial cystitis, bladder pain syndrome and other pelvic pain disorders. As the editor and lead author of the ICN and the IC Optimist magazine, Jill is proud of the academic recognition that her website has achieved. The University of London rated the ICN as the top IC website for accuracy, credibility, readability and quality. (Int Urogynecol J - April 2013). Harvard Medical School rated both Medscape and the ICN as the top two websites dedicated to IC. (Urology - Sept 11). Jill currently serves on the Congressionally Directed Medical Research Panel (US Army) where she collaborates with researchers to evaluate new IC research studies for possible funding. Jill has conducted and/or collaborates on a variety of IC research studies on new therapeutics, pain care, sexuality, the use of medical marijuana, menopause and the cost of treatments, shining a light on issues that influence patient quality of life. An IC support group leader and national spokesperson for the past 20 years, she has represented the IC community on radio, TV shows, at medical conferences. She has written hundreds of articles on IC and its related conditions. With a Bachelors Degree in Pharmacology and a Masters in Psychology, Jill was named Presidential Management Intern (aka Fellowship) while in graduate school. (She was unable to earn her PhD due to the onset of her IC.) She spends the majority of her time providing WELLNESS COACHING for patients in need and developing new, internet based educational and support tools for IC patients, including the “Living with IC” video series currently on YouTube and the ICN Food List smartphone app! Jill was diagnosed with IC at the age of 32 but first showed symptoms at the age of 12.