Hello! I was diagnosed with IC in August, 2005. I would say it started about April. I thought I had a urinary tract infection for months. I was treated with several antibiotics, then I was sent to a urologist. He performed a cystoscopy with dilation of the bladder and found I had IC. A week [...]
It’s funny because I never thought I would write down my story but maybe it will help me. I am currently 25 and have been dealing with IC for about 6 years. As a child, I had some urinary problems and can remember quite clearly having to be catheterized at around 10. The doctor claimed [...]
My IC started when I was 19 years old and I am now 42. I went to many urologists and doctors complaining of a UTI but I did not have one. They all told me it was in my head. It went into remission for about 8 years and came back full throttle. I had [...]
I started with 3 UTI's in one month during December 1993. During the next 2 years I had increased pelvic pain during my periods but my doctor couldn't find anything causing the pain. Being on birth control pills helped. It made my period only 3-4 days and it was much lighter than when I wasn't [...]
My name is Victoria. I was diagnosed with IC at the age of 32. The pain was incredible and I felt a thousand pins and needles in my bladder. I cried all the time and didn't want to see my children. They were overwhelming to me. It felt like my pain was a big huge [...]
I developed severe abdominal pain following an abdominal hysterectomy. By the time I returned to work six weeks after surgery, I had already had what my gyn diagnosed as two urinary tract infections. He said bladder infection was not unusual following such surgery so I took the medications he ordered. When the “infections” kept recurring [...]
You wanted to share your story on Interstim. Why? I wanted to share my story so that people who are faced with this decision know what to expect. Also to let them know that there is a light at the end of the tunnel. What lead you to trying it? What else have you tried [...]
I could just give up and not care anymore. I could put myself in my own solitary confinement. Now don’t think there aren’t days when I feel that way. I believe everyone who suffers including Jesus has thought that way before. God started our healing by giving us his son to die for our sins. [...]
My IC story begins back in August 1998 when I was 28 years old. I had finally managed to afford to switch to part time work and go to school full time to finish my degree at Ohio State University. I had also recently met the love of my life, my now husband JR. We [...]
Editors Note - Kara's story is an extremely unusual one. IC patients rarely require bladder removal. In Kara's case, the doctors felt that her bladder had been badly damaged in early childhood, which would explain why so many therapies didn't appear to work for her. Upon surgery, it was discovered that her bladder was perforated [...]
