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Patient Stories

“A Message of Hope” By Kim

Hi, my name is Kim and I was diagnosed with IC in August of 2001, at the age of 33. My life with IC started in March of 2001. In February of that year, my second son was born via emergency cesarean section at 35 weeks gestational age. I was extremely stressed out after his [...]

By |2017-01-31T14:11:54-08:00December 11th, 2012|Patient Stories|2 Comments

“Be Strong and Courageous” By Pam

My story seems somewhat different from most I have heard. Until July 2002, I had only had 3 bladder infections in my life and I was 33 years old. I have a history of endometriosis and had a hysterectomy in April of 1999. In June 2002 I had surgery to have my ovaries removed due [...]

By |2017-01-18T12:08:42-08:00December 11th, 2012|Patient Stories|Comments Off on “Be Strong and Courageous” By Pam

“Living My Life for Me, Not for IC!” By Jessica

My IC began earlier in childhood, with the frequency and urgency. I was diagnosed with my first UTI in September of 1999. That’s when my world began to spiral downward. In the following months of my first UTI, I developed extremely large ovarian cysts that is thought to be caused by endometriosis. For a 17 [...]

By |2017-01-18T12:08:46-08:00December 11th, 2012|Patient Stories|Comments Off on “Living My Life for Me, Not for IC!” By Jessica

“No flare Ups for Over 18 Months!” By Tami

I was first diagnosed with IC when I was 32. I am 38 now and haven't had a flare up in over 18 months.   That first year was a really rough.  My gall bladder had to be removed because it was functioning at only 4%. Then my thyroid decided it didn't want to work either [...]

By |2012-12-11T19:28:28-08:00December 11th, 2012|Patient Stories|Comments Off on “No flare Ups for Over 18 Months!” By Tami

“It’s Not All In My Head!” By Sharon

Finally, I have someone I can share my story with. You will never know how excited I was to read about others who have had this problem and are living and dealing with it every day. In January 2002, I awoke one morning feeling miserable. I had just spent the entire night jumping up and [...]

By |2017-01-18T12:08:47-08:00December 11th, 2012|Patient Stories|Comments Off on “It’s Not All In My Head!” By Sharon

“It Just Feels Good to Get It Out” By Tina

I think that I can remember symptoms as far back as 1997. I had a C- section in 1995 and then another in 1996. I had a tubal ligation during the second C- section. After my second child was born, I went to the urologist because I was having a lot of frequency and pain. [...]

By |2017-01-18T12:08:49-08:00December 11th, 2012|Patient Stories|Comments Off on “It Just Feels Good to Get It Out” By Tina

“Now I Can Get On To Being A Wife and Mother” By Cindy

As far back as I can remember, I've had problems with extreme urgency and sometimes even incontinence.  It is so frustating and embarassing I can't tell you. In December 2003 I had a hysterectomy and a bladder repair for pelvic relaxation. That is, the ligaments and muscles that supported my pelvic organs were stretched out [...]

By |2017-01-18T12:08:53-08:00December 11th, 2012|Patient Stories|Comments Off on “Now I Can Get On To Being A Wife and Mother” By Cindy

“Don’t Give Up … I’m Not!” By Eva

I was diagnosed with IC about 4 years ago. Looking back I feel like I actually had it way before then. I was fortunate enough that after my hystorectomy, my gynocologist figured out what was going on with me. I was constantly having UTI symptoms. Anyway he sent me to a urologist that was awful. [...]

By |2012-12-11T19:26:04-08:00December 11th, 2012|Patient Stories|Comments Off on “Don’t Give Up … I’m Not!” By Eva

“Yes, Boys Can Get IC Too!” By Bud

I While in graduate school, in 1992, I was incorrectly diagnosed as having a non-specific prostate infection and put on Bactrim 3x daily for one year by the chief of Urology at KUMC. Of course, to my dismay, I received no relief after continuous antibiotic therapy. But that was just the beginning of my frustrating [...]

By |2017-01-18T12:08:55-08:00December 11th, 2012|Patient Stories|1 Comment

“What Happens When No One Believes You?” By Nicole

Hello my name is Nicole. I was just Diagnosed With IC. Struggling with a mysterious illness now for two years I have been to doctor after doctor, feeling that something was terribly wrong I could not get diagnosed. I began to feel that no one believed I really had a problem, and was just looking [...]

By |2017-01-18T12:08:59-08:00December 11th, 2012|Patient Stories|Comments Off on “What Happens When No One Believes You?” By Nicole
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