//Survey Seeks Insight & Advice From Women With IC

Survey Seeks Insight & Advice From Women With IC

(The Interstitial Cystitis Network proudly supports graduate students pursuing research in interstitial cystitis and other chronic pelvic pain conditions.)

Female Painful Bladder Syndrome/Interstitial Cystitis Research Participants Wanted

A Graduate Student is wanting to understand women’s experiences with PBS/IC with particular attention to what has helped their symptoms. Participants can opt out of any questions that they might feel uncomfortable answering. This can potentially inform future research in PBS. The information gained through the online survey will be used as part of a scientific study and the results will be published.

The study will focus on the following topic – Painful Bladder Syndrome: Listening to the Voices of Women to Inform a more Woman-Centered Treatment Approach.

To qualify you must be 18-80 years old and have been diagnosed with Painful Bladder Syndrome/Interstitial Cystitis (PBS/IC) by a Gynecologist or Urologist.

(Note that the return of surveys indicate consent to have the data included as part of the research.)

Take The Survey

Click Here To Take The Survey

Contact information

Catherine Trahiotis, trahiotisc1@gmail.com. If you have questions regarding your rights as a research participant you may contact the SCSU Institutional Review Board at (203) 392-5243.

All data will be kept secure and confidential.

By |2017-01-18T12:01:47+00:00February 5th, 2016|Interstitial Cystitis Network Blog|Comments Off on Survey Seeks Insight & Advice From Women With IC

About the Author:

My Google Profile+ Jill Heidi Osborne is the president and founder of the Interstitial Cystitis Network, a health education company dedicated to interstitial cystitis, bladder pain syndrome and other pelvic pain disorders. As the editor and lead author of the ICN and the IC Optimist magazine, Jill is proud of the academic recognition that her website has achieved. The University of London rated the ICN as the top IC website for accuracy, credibility, readability and quality. (Int Urogynecol J - April 2013). Harvard Medical School rated both Medscape and the ICN as the top two websites dedicated to IC. (Urology - Sept 11). Jill currently serves on the Congressionally Directed Medical Research Panel (US Army) where she collaborates with researchers to evaluate new IC research studies for possible funding. Jill has conducted and/or collaborates on a variety of IC research studies on new therapeutics, pain care, sexuality, the use of medical marijuana, menopause and the cost of treatments, shining a light on issues that influence patient quality of life. An IC support group leader and national spokesperson for the past 20 years, she has represented the IC community on radio, TV shows, at medical conferences. She has written hundreds of articles on IC and its related conditions. With a Bachelors Degree in Pharmacology and a Masters in Psychology, Jill was named Presidential Management Intern (aka Fellowship) while in graduate school. (She was unable to earn her PhD due to the onset of her IC.) She spends the majority of her time providing WELLNESS COACHING for patients in need and developing new, internet based educational and support tools for IC patients, including the “Living with IC” video series currently on YouTube and the ICN Food List smartphone app! Jill was diagnosed with IC at the age of 32 but first showed symptoms at the age of 12.