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Child With IC Needs Help – Doctors and Treatments

zine0115-childI write to you with a request for help on behalf of a ten year old with IC who is struggling to find a physician. Her mother is seeking the names of urologists or pediatricians who are knowledgeable and experienced in treating young children with IC. She is also seeking stories, advice and ideas from other parents. Of course, I’ve offered many suggestions too but there’s no substitute for the wisdom of a parent who has gone through this before and, of course, an experienced doctor.

How you can help:

#1 – Could you please share the names (and city) of any urologists that you’ve worked with who are willing to work with children with IC??

#2 – Can you please share what bladder therapies AND pain care tips you have used for your child with IC?

#3 – Please share your child’s story with IC so that we can let other parents and children know that they are not alone.

Email your response to: childrenwithic@ic-network.org

I will be forwarding comments and suggestions to the parent of this ten year old AND I will compile them together for an article on our website to help other parents.

It is ironic that, in 2015, there is still no pediatric urologist in the USA who specializes in IC in children but I hope I’m wrong. If you’ve got some names, please share them!

Thank you for your help!

Jill Heidi Osborne MA
President & Founder
IC Network

By |2017-01-31T10:41:54+00:00January 14th, 2015|Children & Teens, Interstitial Cystitis Network Blog|Comments Off on Child With IC Needs Help – Doctors and Treatments

About the Author:

My Google Profile+ Jill Heidi Osborne is the president and founder of the Interstitial Cystitis Network, a health education company dedicated to interstitial cystitis, bladder pain syndrome and other pelvic pain disorders. As the editor and lead author of the ICN and the IC Optimist magazine, Jill is proud of the academic recognition that her website has achieved. The University of London rated the ICN as the top IC website for accuracy, credibility, readability and quality. (Int Urogynecol J - April 2013). Harvard Medical School rated both Medscape and the ICN as the top two websites dedicated to IC. (Urology - Sept 11). Jill currently serves on the Congressionally Directed Medical Research Panel (US Army) where she collaborates with researchers to evaluate new IC research studies for possible funding. Jill has conducted and/or collaborates on a variety of IC research studies on new therapeutics, pain care, sexuality, the use of medical marijuana, menopause and the cost of treatments, shining a light on issues that influence patient quality of life. An IC support group leader and national spokesperson for the past 20 years, she has represented the IC community on radio, TV shows, at medical conferences. She has written hundreds of articles on IC and its related conditions. With a Bachelors Degree in Pharmacology and a Masters in Psychology, Jill was named Presidential Management Intern (aka Fellowship) while in graduate school. (She was unable to earn her PhD due to the onset of her IC.) She spends the majority of her time providing WELLNESS COACHING for patients in need and developing new, internet based educational and support tools for IC patients, including the “Living with IC” video series currently on YouTube and the ICN Food List smartphone app! Jill was diagnosed with IC at the age of 32 but first showed symptoms at the age of 12.