(January 2015) The only oral medication FDA approved for interstitial cystitis in the USA, Elmiron® (aka pentosan polysulfate), has received mixed results in research studies. But, for the patient community, the dominant issue is the cost as prices have increased steadily in the last few years. We’re interested in hearing from you, the IC patient, about your experience with Elmiron®.
- Did you experience side effects?
- Did you have to stop the medication due to side effects or cost?
- Has your insurance dropped their coverage for Elmiron®?
- How much are you paying out of pocket for it?