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Do you take Elmiron®? Take our survey of cost, side effects & effectiveness.

elmironsurvey(January 2015) The only oral medication FDA approved for interstitial cystitis in the USA, Elmiron® (aka pentosan polysulfate), has received mixed results in research studies. But, for the patient community, the dominant issue is the cost as prices have increased steadily in the last few years. We’re interested in hearing from you, the IC patient, about your experience with Elmiron®.

  • Did you experience side effects?
  • Did you have to stop the medication due to side effects or cost?
  • Has your insurance dropped their coverage for Elmiron®?
  • How much are you paying out of pocket for it?

Please take this quick survey today!

Take more survey’s now in the ICN Survey Center

By |2017-01-31T10:40:57+00:00January 16th, 2015|Interstitial Cystitis Network Blog, Research|Comments Off on Do you take Elmiron®? Take our survey of cost, side effects & effectiveness.

About the Author:

My Google Profile+ Jill Heidi Osborne is the president and founder of the Interstitial Cystitis Network, a health education company dedicated to interstitial cystitis, bladder pain syndrome and other pelvic pain disorders. As the editor and lead author of the ICN and the IC Optimist magazine, Jill is proud of the academic recognition that her website has achieved. The University of London rated the ICN as the top IC website for accuracy, credibility, readability and quality. (Int Urogynecol J - April 2013). Harvard Medical School rated both Medscape and the ICN as the top two websites dedicated to IC. (Urology - Sept 11). Jill currently serves on the Congressionally Directed Medical Research Panel (US Army) where she collaborates with researchers to evaluate new IC research studies for possible funding. Jill has conducted and/or collaborates on a variety of IC research studies on new therapeutics, pain care, sexuality, the use of medical marijuana, menopause and the cost of treatments, shining a light on issues that influence patient quality of life. An IC support group leader and national spokesperson for the past 20 years, she has represented the IC community on radio, TV shows, at medical conferences. She has written hundreds of articles on IC and its related conditions. With a Bachelors Degree in Pharmacology and a Masters in Psychology, Jill was named Presidential Management Intern (aka Fellowship) while in graduate school. (She was unable to earn her PhD due to the onset of her IC.) She spends the majority of her time providing WELLNESS COACHING for patients in need and developing new, internet based educational and support tools for IC patients, including the “Living with IC” video series currently on YouTube and the ICN Food List smartphone app! Jill was diagnosed with IC at the age of 32 but first showed symptoms at the age of 12.