Summer 2016 IC Optimist Released -  Interstitial Cystitis Network 

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Summer 2016 IC Optimist Released

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In the Summer 2016 IC Optimist:

The summer issue of our flagship magazine, the IC Optimist, is now being delivered to our subscribers around the world. In this issue:

(1) Editorial: Eight Potential Causes of Bladder Injury

If you’ve wondered what could have triggered your IC symptoms, editor Jill Osborne offers a new editorial covering eight potential ways that the bladder can be irritated. The newest, number 8, could blow your mind!

(2) The Latest Research – Why Are IC patients Deficient in Some Good Bacteria?

The MAPP Network’s discovery that IC patients have dramatically different bacteria levels not in their bladder but in their bowel casts a new potential villain in the IC story, the overuse of antibiotics, perhaps during childhood. While this may or may not explain the actual cause of IC, it could explain some of the related conditions!

(3) Feature Story – Are You Struggling With Loneliness?

Stacey Shannon covers the very delicate topic of loneliness. Many patients have shared that they’ve lost friends after their diagnosis and finding new ones can certainly been challenging when you’re struggling with bladder symptoms. Throw in the righteous anger of missing out on important occasions or feeling left out, loneliness is something that most of us have struggled with. We hope that this article acknowledges your struggles yet also gives you a gentle nudge to try again. You have so much to give to your family, friends and community. Don’t let IC stop you

(4) Remarkable Patients With IC – Louisa Joy Wise

Our newest remarkable patient with IC is Louisa Joy Wise, a world class australian folk musician. Louisa plays many instruments and has been a featured performer at music festicals around the world. If you love fiddle or celtic music, she’s a new artist for you to follow!

(5) Meet The IC Expert: Dr. Eliot Lander

Dr. Lander gives us an update not only on his research with stem cell therapy for IC but also on his novel use of liposomes to deliver Elmiron to the bladder wall. He’s a true innovator!

(6) Inside AUA 2016

The annual American Urological Association conference always dedicates a portion of their program to IC and pelvic pain. We summarize the new research studies presented, including several that explore autoimmune dysfunction.

(7) Real Men Get Real Pelvic Pain

Dr. Jeannette Potts and colleagues again advocated for better diagnostic and treatment procedures for men struggling with urinary tract symptoms. The goal is to stop prostatocentric thinking and to teach urologists how to access for pelvic floor dysfunction and injury.

(8) Consumer Alert – IC Patient Develops Aortic Aneurysm After Taking Cipro

If you’ve taken or are currently taking fluoroquinolone antibiotics (i.e. Cipro, etc.), the FDA no longer encourages their use for simple UTI’s due to serious potential side effects including tendon rupture, central nervous system dysfunction and several other conditions. One patient shares one of the worst known complications, the development of an aortic aneurysm.

(9) When Furniture Makes You Sick

In our self-help tip of the month, we focus on the dangers of toxic chemicals when introduced into the home, particularly fire retardants. If you’re buying a new couch, chair or even infant chair seat, read this article first.

(10) The Latest Clinical Trials

Clinical trials offer patients the opportunity to try cutting edge therapies usually at no cost and in some of the best urology clinics in the country. We highlight two key studies currently seeking patients.

(11) IC Diet Project: Savor The Flavors of Summer

Registered dietitian Julie Beyer offers several summer recipes that are, of course, IC friendly and filled with fresh, seasonal flavors including: Grilled Chicken Kebobs, Roasted Corn With Herb Butter, Low Acid Confetti Tomato Salsa, Pear and Honey Coleslaw, Creamy Macaroni & Broccoli Salad and Summer Milksahe Ideas!

(12) Self-Help Tip: Summer Exercise Ideas

If you haven’t gotten out and enjoyed these glorious days of summer, here are some IC friendly ideas!

(13) 2016 IC Awareness Month Kit

Once again, IC Awareness Month begins in a few short weeks and we’ve included several ways that you can be involved. Remember, every patient voice is powerful. If you’re not being treated well in your community or by your doctors, this is a great way for you to fight back!

Pages: 36

Publisher: Interstitial Cystitis Network

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About The IC Optimist

The IC Optimist is the quarterly patient and provider magazine for members of the Interstitial Cystitis Network. Each quarterly issue contains practical, helpful and informative articles written by IC experts that will give you hope. From the latest research to interviews with the best clinicians in the world, we believe that you’ll find practical tips in every article that will help you better understand and/or manage your interstitial cystitis. Each issue also include s superb feature stories, self-help strategies, consumer awareness notices, IC diet articles and, whenever possible, patient stories. Best of all, your purchase of an ICN Subscription or individual issue (e-book or print) helps to make possible our free IC support services.

By | 2017-01-18T12:01:26+00:00 August 9th, 2016|Front Page Feed, Interstitial Cystitis Network Blog|Comments Off on Summer 2016 IC Optimist Released

About the Author:

My Google Profile+ Jill Heidi Osborne is the president and founder of the Interstitial Cystitis Network, a health education company dedicated to interstitial cystitis, bladder pain syndrome and other pelvic pain disorders.

As the editor and lead author of the ICN and the IC Optimist magazine, Jill is proud of the academic recognition that her website has achieved. The University of London rated the ICN as the top IC website for accuracy, credibility, readability and quality. (Int Urogynecol J – April 2013). Harvard Medical School rated both Medscape and the ICN as the top two websites dedicated to IC. (Urology – Sept 11). Jill currently serves on the Congressionally Directed Medical Research Panel (US Army) where she collaborates with researchers to evaluate new IC research studies for possible funding. Jill has conducted and/or collaborates on a variety of IC research studies on new therapeutics, pain care, sexuality, the use of medical marijuana, menopause and the cost of treatments, shining a light on issues that influence patient quality of life.

An IC support group leader and national spokesperson for the past 20 years, she has represented the IC community on radio, TV shows, at medical conferences. She has written hundreds of articles on IC and its related conditions.

With a Bachelors Degree in Pharmacology and a Masters in Psychology, Jill was named Presidential Management Intern (aka Fellowship) while in graduate school. (She was unable to earn her PhD due to the onset of her IC.) She spends the majority of her time providing WELLNESS COACHING for patients in need and developing new, internet based educational and support tools for IC patients, including the “Living with IC” video series currently on YouTube and the ICN Food List smartphone app! Jill was diagnosed with IC at the age of 32 but first showed symptoms at the age of 12.