//Spring 2016 IC Optimist Released

Spring 2016 IC Optimist Released

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In the Spring 2016 IC Optimist:

(1) Editorial: Does “Big Pharma” control the IC movement?

Jill Osborne tackles the misperception that big pharma controls the IC movement. In fact, they walked away from IC more than a decade ago. Learn about the history and two promising new companies that may be investing in the future of IC outreach and care. Simply put, we can’t do it alone. We need their help.

(2) Pelvic Floor Therapy – Does it work?

Author Stacey Shannon asks an important question “Why are some urologists not acknowledging the role of pelvic floor dysfunction?” Despite ample evidence that PFD is present in most IC patients and that pelvic floor physical therapy is the single most effective treatment studied to date, patients are often left high and dry by some urologists who refuse to test the pelvic floor muscles and/or provide a referral for treatment. She shares several patient stories and insight from physical therapists.

(3) Insights from the MAPP Research Network

If you’ve wondered what the state of IC research is today look no further than the MAPP Research Network. Funded by the US National Institutes of Health in 2008, this research effort includes scientists around the country (and world) in a quest to solve the mysteries of IC and chronic prostatitis. We include a very thorough update of their research findings to date.

(4) Could IC Flares Be Caused by Candida

One fascinating MAPP study released this year was the discovery of fungi/candida in the urine of patients struggling with IC flares. Could this be the missing link for many patients who simply can’t figure out why certain flares occur? We think so.

(5) Remarkable Patients With IC

We launch a new series for the IC community, profiles of patients who have done remarkable things despite having pelvic pain. In our inaugural feature, we introduce you to Janice Schmidt, an award winning winemaker who has struggled with IC for years. In fact, it runs in her family.

(6) Is Vaping Safe For Interstitial Cystitis

We know that tobacco smoke is a well known trigger for IC flares as well as bladder cancer. Is vaping any safer? We discuss the pros and cons in this new self-help tip.

(7) Five Ways To Not Fall Victim to Chronic Pelvic Pain

Activist and writer Tali Keteri shares five tips to help you lift your spirit and regain some of those activities that you miss because of IC. She knows what she’s talking about. She’s a master at living life to the fullest!

(8) Clinical Trial Announcements

The LiNKA studies for Hunner’s lesions and bladder pain have added several new research centers across the country!

(9) Fresh Tastes by Bev

Bev Laumann shares two fabulous recipes inspired by the clean, crisp foods of England – Baked Salmon & Pear Scones

(10) Beware the Non-Organic Strawberry

The Environmental Working Group released the 2016 list of the Dirty Dozen fruits and veggies. Topping the list for pesticide contamination was strawberries! We share the shocking research here. Who knew that the strawberry industry was using so many potentially carcinogenic chemicals on their crops.

Pages: 32

Publisher: Interstitial Cystitis Network

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About The IC Optimist

The IC Optimist is the quarterly patient and provider magazine for members of the Interstitial Cystitis Network. Each quarterly issue contains practical, helpful and informative articles written by IC experts that will give you hope. From the latest research to interviews with the best clinicians in the world, we believe that you’ll find practical tips in every article that will help you better understand and/or manage your interstitial cystitis. Each issue also include s superb feature stories, self-help strategies, consumer awareness notices, IC diet articles and, whenever possible, patient stories. Best of all, your purchase of an ICN Subscription or individual issue (e-book or print) helps to make possible our free IC support services.

By | 2017-01-18T12:01:35+00:00 June 2nd, 2016|Interstitial Cystitis Network Blog|Comments Off on Spring 2016 IC Optimist Released

About the Author:

My Google Profile+ Jill Heidi Osborne is the president and founder of the Interstitial Cystitis Network, a health education company dedicated to interstitial cystitis, bladder pain syndrome and other pelvic pain disorders. As the editor and lead author of the ICN and the IC Optimist magazine, Jill is proud of the academic recognition that her website has achieved. The University of London rated the ICN as the top IC website for accuracy, credibility, readability and quality. (Int Urogynecol J - April 2013). Harvard Medical School rated both Medscape and the ICN as the top two websites dedicated to IC. (Urology - Sept 11). Jill currently serves on the Congressionally Directed Medical Research Panel (US Army) where she collaborates with researchers to evaluate new IC research studies for possible funding. Jill has conducted and/or collaborates on a variety of IC research studies on new therapeutics, pain care, sexuality, the use of medical marijuana, menopause and the cost of treatments, shining a light on issues that influence patient quality of life. An IC support group leader and national spokesperson for the past 20 years, she has represented the IC community on radio, TV shows, at medical conferences. She has written hundreds of articles on IC and its related conditions. With a Bachelors Degree in Pharmacology and a Masters in Psychology, Jill was named Presidential Management Intern (aka Fellowship) while in graduate school. (She was unable to earn her PhD due to the onset of her IC.) She spends the majority of her time providing WELLNESS COACHING for patients in need and developing new, internet based educational and support tools for IC patients, including the “Living with IC” video series currently on YouTube and the ICN Food List smartphone app! Jill was diagnosed with IC at the age of 32 but first showed symptoms at the age of 12.