Spring 2014 IC Optimist Now Available

The IC Optimist is the quarterly magazine of the Interstitial Cystitis Network. From feature stories to self-help tips, diet tips to powerful editorials, the IC Optimist is our flagship publication delivered to patients and providers around the world.

In this issue:

spring14cover-300(1) Editorial: Bladder Rape by Silver Nitrate – We begin this issue with an outrageous act, a patient who was given a treatment without her consent or knowledge, during her very first appointment with a urologist. It’s incredible that, in 2014, some clinics are still using therapies so outdated that they are rarely discussed, much less mentioned in the AUA IC Treatment Guidelines. Malpractice? We think so.

(2) Feature Story: Children with IC – Few Pediatric Urologists Diagnose or Treat IC – We share the challenges that children with bladder symptoms face when the majority of urologists simply don’t believe that IC can occur in children. Stacey Shannon offers a glimpse of those struggles along with heartfelt, encouraging words to parents as they seek better care for their children.

(3) Feature Story: Understanding PGAD – Dr Robert Echenberg MD offers insight into one of the related conditions of IC, known as PGAD or Persistent Genital Arousal Disorder. I call this one of the “dirty secrets” of IC because so many patients are afraid to talk about it when, in fact, they should. As Dr. Echenberg shares, PGAD is treatable though many doctors still don’t believe that it’s real.

(4) Tips for Working With Your Pelvic Pain Care Provider – Nurse practitioner Jennifer Yonaitis Fariello shares tips on how to work effectively with your medical care providers. She stands firm in saying that if the relationship between the doctor and patient is rocky, it’s important to move on.

(5) The Latest IC Research – Urine alkalization improves pain and sleep quality, UPOINT works well, IC Flare study, Botox, Hunner’s Lesion and Viagra for IC symptoms?

(6) New ICN Surveys – Please help further the IC research movement by participating in two key ICN surveys – The Cost of Interstim and Gastritis, Gastroparesis and IC.

(7) New Pelvic Pain Clinics Open – Three new clinics have opened in the USA in PA, LA and NYC.

(8) Dr. Drew’s Disrespect for IC and Endometriosis – On his national radio show, Dr. Drew Pinsky Dr. Drew Pinsky suggested that IC and endometriosis were “garbage bag disorders” with patients “somatically preoccupied” with pain. As you can well imagine, the outrage was instantaneous with thousands of patients taking to social networking to demand an apology. Interestingly, he’s only apologized to the endometriosis community.

(9) Managing MPP: My Search for Answers About Myofascial Pain – IC’er Maria Carbone shares her story and how she found great relief for her pelvic pain using three key yoga position.

(10) To Bacon or Not To Bacon – In our latest Simply Delicious IC Diet Project column, we share the pros and cons of using bacon, both cured and uncured. You might be surprised to learn that it’s usually very bladder friendly.

(11) What’s New in the ICN Shop – Our 2014 Supplement Review shares the latest information on the popular supplements often suggested for patients struggling with bladder health.

Length: 32 pages
Publisher: Interstitial Cystitis Network

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By |2017-01-31T12:53:04+00:00May 30th, 2014|Editorial, ICN Announcements, ICN Shop & Mail Order Center, Interstitial Cystitis Network Blog, Must Reads, News, Self-Help Tips for IC, Bladder & Pelvic Pain|Comments Off on Spring 2014 IC Optimist Now Available

About the Author:

My Google Profile+ Jill Heidi Osborne is the president and founder of the Interstitial Cystitis Network, a health education company dedicated to interstitial cystitis, bladder pain syndrome and other pelvic pain disorders. As the editor and lead author of the ICN and the IC Optimist magazine, Jill is proud of the academic recognition that her website has achieved. The University of London rated the ICN as the top IC website for accuracy, credibility, readability and quality. (Int Urogynecol J - April 2013). Harvard Medical School rated both Medscape and the ICN as the top two websites dedicated to IC. (Urology - Sept 11). Jill currently serves on the Congressionally Directed Medical Research Panel (US Army) where she collaborates with researchers to evaluate new IC research studies for possible funding. Jill has conducted and/or collaborates on a variety of IC research studies on new therapeutics, pain care, sexuality, the use of medical marijuana, menopause and the cost of treatments, shining a light on issues that influence patient quality of life. An IC support group leader and national spokesperson for the past 20 years, she has represented the IC community on radio, TV shows, at medical conferences. She has written hundreds of articles on IC and its related conditions. With a Bachelors Degree in Pharmacology and a Masters in Psychology, Jill was named Presidential Management Intern (aka Fellowship) while in graduate school. (She was unable to earn her PhD due to the onset of her IC.) She spends the majority of her time providing WELLNESS COACHING for patients in need and developing new, internet based educational and support tools for IC patients, including the “Living with IC” video series currently on YouTube and the ICN Food List smartphone app! Jill was diagnosed with IC at the age of 32 but first showed symptoms at the age of 12.