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Northwestern Study Seeks Men & Women With IC/BPS or CP/CPPS

MAPP Research Network Study Seeks People with IC/BPS or CP/CPPS –

Do you or someone you know suffer from Interstitial Cystitis/Bladder Pain Syndrome (IC/BPS) or Chronic Prostatitis/Chronic Pelvic Pain Syndrome (CPPS)? Northwestern University’s Feinberg School of Medicine is looking for men and women who have IC/BPS and men who have CPPS to participate in a research study.

Do you qualify:

You may qualify for this study if you are 18 or older AND experience ANY of the following:

  • Have felt pain, pressure, or discomfort in lower stomach area (abdomen) or pelvic area
  • Have been told by a doctor or other healthcare professional(s) you have IC/BPS or CPPS

What will you do if you participate?

This study is part of the Multidisciplinary Approach to the Study of Chronic Pelvic Pain (MAPP) Research Network, funded by the National Institutes of Health, and takes a whole-body approach to understanding the causes of chronic pelvic pain.

As part of this study, we will observe different aspects of your health over time. We will ask you questions and gather information about your health for research purposes. This study does not involve any treatment for your condition.

If you qualify to participate, you will be asked to do the following:

  • Come for 5 in-person clinic visits, over three years, at Northwestern Memorial Hospital in Chicago
  • Have 1 physical and 2 pelvic exams
  • Complete questionnaires
  • Provide blood and urine samples
  • Collect saliva samples at home
  • Have a head MRI  scan

You will be compensated for your participation, and you will also receive all study-related procedures at no cost.  During this study, you will remain under the care of your usual physicians.

Interested or have questions? Contact Northwestern Today!

Call 1-855-NU STUDY (or 1-312-503-6227) or email nustudy@northwestern.edu
You can also click http://bit.ly/PelvicPainStudy to answer a few questions to see if you qualify.
IRB# STU00200928 | Department of Urology

 

By | 2017-01-18T12:01:36+00:00 April 27th, 2016|Clinical Trials, Interstitial Cystitis Network Blog, Research|Comments Off on Northwestern Study Seeks Men & Women With IC/BPS or CP/CPPS

About the Author:

My Google Profile+ Jill Heidi Osborne is the president and founder of the Interstitial Cystitis Network, a health education company dedicated to interstitial cystitis, bladder pain syndrome and other pelvic pain disorders. As the editor and lead author of the ICN and the IC Optimist magazine, Jill is proud of the academic recognition that her website has achieved. The University of London rated the ICN as the top IC website for accuracy, credibility, readability and quality. (Int Urogynecol J - April 2013). Harvard Medical School rated both Medscape and the ICN as the top two websites dedicated to IC. (Urology - Sept 11). Jill currently serves on the Congressionally Directed Medical Research Panel (US Army) where she collaborates with researchers to evaluate new IC research studies for possible funding. Jill has conducted and/or collaborates on a variety of IC research studies on new therapeutics, pain care, sexuality, the use of medical marijuana, menopause and the cost of treatments, shining a light on issues that influence patient quality of life. An IC support group leader and national spokesperson for the past 20 years, she has represented the IC community on radio, TV shows, at medical conferences. She has written hundreds of articles on IC and its related conditions. With a Bachelors Degree in Pharmacology and a Masters in Psychology, Jill was named Presidential Management Intern (aka Fellowship) while in graduate school. (She was unable to earn her PhD due to the onset of her IC.) She spends the majority of her time providing WELLNESS COACHING for patients in need and developing new, internet based educational and support tools for IC patients, including the “Living with IC” video series currently on YouTube and the ICN Food List smartphone app! Jill was diagnosed with IC at the age of 32 but first showed symptoms at the age of 12.