Given the high number of interstitial cystitis patients who suffer from vulvodynia (and/or prostatodynia in men), we think it’s important to share related research studies and clinical trials that you might be able to participate in! Vulvodynia is one of the most frustrating conditions that I, for one, had to manage at a comparatively young age. I was diagnosed with vulvodynia in high school and my obstetrician blamed it on the fact that I had red hair. He said “You have the most sensitive skin I’ve ever seen.” Yeah, right! Well, now we know that the connection between IC, IBS and vulvodynia is actually the result of neurosensitivity and a phenomena called neural cross talk.
It’s important to note that one of the great values of participating in studies such as this is that it gives patients the opportunity to meet with and receive care from some of the best clinicians in the country, a wonderful opportunity for those who lack health insurance and/or who can’t afford to pay for treatment. Studies such as this provide free care often for an extended period of time. – Jill Osborne, MA – ICN President & Founder