IC Awareness Month Kicks Off

We Refuse To Suffer In Silence - Seeking Compassionate & Humane Pain Care

Every September, IC/BPS patients and organizations around the world gather together to promote interstitial cystitis, bladder pain syndrome and chronic pelvic pain. This year, our campaign is bold and blunt, telling the story of patients who are refused pain treatment with, in some cases, tragic results. Despite decades of research showing that this medical condition is real and treatable, countless patients have been told that their pain was not real and/or “all in their heads.” Some with pain levels as severe as cancer and/or bladders so profoundly damaged that they are bleeding are sent home with no pain care other than an OTC product. This trend has become far more real with the passage of the CDC Guidelines for Chronic Pelvic Pain which has resulted in thousands of chronic pain patients forcibly removed from a treatment that they were not abusing, not misusing and showed no signs of addiction. We join with other groups in asking that the CDC Opiate Guidelines For Chronic Pain be re-written to provide better care of patients who use opiate medication responsibly and effectively.

Learn more and find pain management ideas on our campaign website - http://www.icawareness.org


Watch Our Video


Watch The Video On YouTube Here!


12 Ways You Can Participate

1. Share Your Pain Story

We are collecting stories of patients who have been denied pain care or removed from their pain care so that we can demonstrate just how IC patients are being effected. We will NOT use your names. Please tell us how the CDC Guidelines have impacted you. Share YOUR IC story here!

2. Seeking Nominations for 2017 Dr & Physical Therapist of the Year Awards

Every year, we honor those physicians and physical therapists who treat IC patients with compassion, respect and knowledge. We also use this information to update our physician database so that we can share the best medical care providers with patients looking for care! Please nominate your favorite doctor & physical therapists for our annual award!

3. Share our Daily Facts on Your Social Networking Streams

We've assembled a fabulous collection of daily facts on IC that will help educate others about our condition. Please share these across your social networking channels! View The Daily IC Facts

4. Please Add IC Awareness Banners To Your Social Networking Channels!

Help us spread the word about IC! We have a variety of images that you can share! Add IC Awareness Month To Your Facebook, Twitter, Pinterest, Instagram, etc.


5. Print Out A Poster & Share It With Your Doctors

One of our long-term projects is to get a poster about IC in as many doctors offices as we can... the challenge is that it's a giant project. We definitely need your help. You can print out a poster and share it at your doctors office, clinics, community bulletin boards & more! Download IC Awareness Posters Here!


6. Share Our IC Fact Sheets

A lot has changed with IC in the past five years and the odds are that your doctor hasn't taken a class in years. Does he or she know about the new subtyping systems? You can download our beautiful full color fact sheets! Please share them with family members, friends, doctors and anyone who has an interest in your medical condition. Download the IC Fact Sheets


7. Get An Article on IC In Your Local or Regional Newspaper!

There are thousands of patients who are suffering in silence, right now, throughout the world. They don't have a name for their medical condition. They think that pain and urinary symptoms are normal as you get older. Some have sustained muscle injuries which can be healed with pelvic floor physical therapy. Please help us reach those patients in need by sending out press release to your local paper and blogs! We couldn't have made it more easy. You can just print it out and send it but it's better if you also tell them a little about your IC and pain too! They want to tell the stories of local patients! View Our Press Release To Your Local Paper 

8. Participate In our Poster Contest!

This is our favorite patient contest each year and the winners are used in future IC Awarenes Month campaigns. Even better, the prizes are awesome with winners receiving a Kindle or iPAD, as well as some cash prizes. We welcome all types of art... pencil, crayon, oils, watercolor from you, your children or even your pets! Remember, art is wonderfully therapeutic so if you have an hour to spare, please have some fun and play! How does IC influence your life? How are you feeling? Are you a fighter? Just go for it! Participate in Our Poster Contest


9. Participate in our Meme Contest

Meme's are a great way to spread the word about IC and get a little frustration out at the same time. They can be funny, angry, snarky, poignant. Each one tells a quick story about life with IC! Memes are the best way to share IC across your social networking channels and they are incredibly easy to make. Winners will receive a Kindle, iPAD or cash prizes. Learn How To Make A Meme!


10. Twitter Contest - #myicpain

We’re using Twitter to share the story of IC and of our struggles to obtain pain care. When something happens, good or bad, funny or infuriating, we hope you’ll tweet it using the hashtag #myicpain or #lifewithic. We’ll be searching Twitter for the right hashtags to determine the winner! Same prizes as above!


Why’d I drink that coffee? My bladder is on fire! #myicpain

Can Elmiron get anymore expensive? Wait. Don’t jinx it. #myicpain

Another doctor who doesn’t believe that IC is painful. #myicpain

(Just have fun with it but also share the real story of ife with IC)

11. Donate an IC Book To Your Local Library

It's very important that we get CURRENT and UP TO DATE information about IC in our local libraries. We hope that you will consider buying a book on IC and donating it! This year we're recommending The Interstitial Cystitis Solution, the best book on IC on the market today. It's the first book to clearly discuss the connectionw with the bladder and pelvic floor muscles. Learn more here!

12. Make A Donation

This year, we encourage donations to two research centers - Beaumont Hospital & the Chronic Pain Research Alliance! Learn more!



IC Awareness Items

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