A New IC Survey From USC Seeks To Understand The Impact of Diagnostic Delays In Women With IC/BPS.
Principal Investigator: Katherine Volpe, MD
This survey is being conducted by Katherine Volpe, who is a fellow at the University of Southern California.
We know that many women with interstitial cystitis or bladder pain syndrome (IC/BPS) experience a delay in getting a diagnosis. We hope to learn about patient experience after receiving a diagnosis of IC/BPS.
If you agree to participate, you will complete a brief survey. You will be asked about your demographics, your treatment and your symptoms and will take about 15 minutes to complete.
There may be risks including discomfort or feeling upset associated with completing the survey. There is/are no direct benefit/s to participation; however, the knowledge obtained from this study may provide justification for earlier identification of patients with IC/BPS.
Participation is voluntary. You can refuse to complete the survey or skip any questions, without any consequence to you. No names or personal identifying information will be collected in the survey. The surveys collected during this project will be destroyed as soon as the data is analyzed. You will not be paid for completing the survey.