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Kicking Off IC Awareness Month 2015! How You Can Be Involved!

The most exciting time of the year for the IC community, IC Awareness Month, begins today, September 1st, as patients around the world unite to educate others about IC. We invite you to participate! Here’s how you can help!

1. NOMINATE YOUR DOCTOR or PHYSICAL THERAPIST

Do you have a doctor or physical therapist who treats you wonderfully? This year, we want to encourage and acknowledge clinical care providers who provide excellent care for IC and pelvic pain patients. This includes urologists, OB-GYNs, physical therapists, nutritionists, pain specialists and so forth. These are the medical care providers who:

  • listen to their patients
  • who take the time to answer questions
  • who explain treatment choices carefully and thoughtfully
  • who treat patients and family members with dignity and respect
  • who give their patients hope and encouragement

It’s about time that we publicly recognize those few doctors who really do treat IC patients with compassion and kindness! Each nominated clinician will receive a lovely certificate. We will select one doctor to receive “Doctor of the Year” award and one physical therapist to receive “Physical Therapist of the Year” award. These will be based on the most nominations received! Learn more or make your nomination here!

2. SHARE OUR DAILY FACT

Help us educate others about IC and pelvic pain. We hope that you’ll share it through your social networking channels, especially Facebook, Twitter, Pinterest, Instagram & Linked in! . Our facts have been updated for 2015!

Start today by sharing the first daily fact!
See all daily facts here!

3. PUT POSTERS IN DOCTORS OFFICES

One of the ways that we raise awareness about IC is through our IC Awareness Month Poster Campaign. When they are displayed in doctors offices, it reminds clinicians that IC is real and patients that they are not alone. The problem, of course, is that we don’t have a big pharmaceutical company paying to print up posters and mail them to doctors. It’ll only take a minute to print it out and then drop it in the mail or hand deliver it to your doctors offices. IC Optimist subscribers can also cut off the back cover of their Summer issue and use that as a poster.

Most locations are respectful of and encourage health awareness campaigns. Ask them first if they will post it and, if not, save it for another location that will. Once it’s up, please take a picture of it up on the wall and send it to us, or tweet (@icnjill or #icawarenessmonth) or Facebook it!

  • Doctors offices, Health Clinics, Hospitals
  • Public Libraries
  • Community Bulletin Boards
  • School Nursing Offices
  • Neighborhood Coffee Shops & Gyms

Print out and share a official poster

4. ASK YOUR LOCAL NEWSPAPERS

Ask your local newspaper to do a story on IC and IC Awareness Month. We’ve prepared a simple, two page press release (featuring Dr. Ken Peters) you can send to them, ideally with a paragraph about your own personal story. Newspapers love to discuss how lives have been changed, for better or for worse. You can use your own name or ask them to use a pseudonym. Download the official press release and media fact sheet here!

5. POSTER CONTEST NOW OPEN – WINNERS WILL RECEIVE A KINDLE FIRE!

Bring out your inner artist and create a poster for IC Awareness Month sharing your own interpretation of life with IC. Have you children make their own poster with your choice of medium: digital, watercolor, crayon, markers! Your choice! All posters will be added to our website and the winner will receive a Kindle Fire Pad! Learn more and see poster samples here!

6. MEME CONTEST NOW OPEN – WINNERS WILL RECEIVE A KINDLE FIRE!

Funny, irreverent, witty, bold and often ridiculous, meme’s make a statement. A funny or shocking meme can be shared thousands of times across the internet where they could inspire patients to actually google IC. Last year, Tali Keteri created a fabulous meme contest that broke records and we’re doing it again this year.

Memes are easy to make! Just go to: http://www.someecards.com, pick your image and play! Use #icawarenessmonth and share your meme on Facebook, Twitter, Pinterest and anywhere else you frequent. Also e-mail it to memes@icawareness.org.

If you have room, make sure that your meme says: icawareness.org

7. PSA’s On LOCAL RADIO & TV STATIONS

Radio and TV stations love to do public service announcements! We’ve got four scripts that can be used for a simple, easy PSA to share info on IC. Sample public service announcements

8. PENNIES FOR IC RESEARCH CAMPAIGN

The “official” IC Awareness online fundraising campaign is “Pennies For IC Research” run by IC patient Lisa Herman. She is asking members and friends of the IC community to place an empty jar somewhere in your home where it will be easily accessible. Place any spare change from your purse, wallet, etc. into the jar. Encourage your family members to also drop their spare change into the jar! Take your change to your bank, coin counting machine, etc. and see how much you (and your family) were able to raise for IC Awareness. All donations are sent directly to two IC research centers: Beaumont Hospital (Royal Oak, MI) and Boston Children’s Hospital C. Learn more about it and/or make a donation here!

Pennies for IC Research Campaign

9. DONATE AN IC BOOK TO YOUR LOCAL LIBRARY

If you tried to get information on IC and visited your local library, you probably found ZILCH! Yes, that’s right, most public libraries do not carry books on IC unless a patient or a support group donates one or two. So, think about making a gift of a book to a local library! Click here for some book ideas!

10. GET POLITICALLY ACTIVE

Political action is a necessity when the vast majority of research dollars come from national governments, like the US National Institutes of Health. We MUST advocate for additional research funding throughout the year. During IC Awareness Month, you can also request proclamations from local, state, provincial and national government representatives. By asking for a proclamation to be issued in honor of IC Awareness Month, you’re educating your public representative about IC and asking for their support. Patients have requested and received dozens of proclamations over the past few years and we’ve made it really easy. Simply download our sample proclamation and send it to the politician of your choice. Learn more here!

11. START A SUPPORT GROUP OR SUPPORT ONE NEAR YOU!

Donate to a local support group that is serving IC patients – They can use stamps, cash or even book donations for low income patients. If there’s no group near you, please start one. Learn how in the ICN Support Group Resource Center.

12. EDUCATE OTHERS WITH OUR NEW IC FACT SHEETS

The ICN has developed a new series of fact sheets for 2014. Share them with your family, friends and medical care providers here! Free downloads here!

IC Fact Sheet ICN Flare Fact Sheet

IC AWARENESS BLING!

Wear your pride with our official IC Awareness Month pins, silicon bracelets and, in next week, IC Awareness Month Car Magnets. Available in the ICN Shop!

IC Awareness Pins

Awareness Pins

IC Awareness Bracelets

Awareness Bracelets

IC Awareness Car Magents

Car Magnets

By | 2017-01-31T10:03:43+00:00 September 1st, 2015|Awareness, Interstitial Cystitis Network Blog|Comments Off on Kicking Off IC Awareness Month 2015! How You Can Be Involved!

About the Author:

My Google Profile+ Jill Heidi Osborne is the president and founder of the Interstitial Cystitis Network, a health education company dedicated to interstitial cystitis, bladder pain syndrome and other pelvic pain disorders. As the editor and lead author of the ICN and the IC Optimist magazine, Jill is proud of the academic recognition that her website has achieved. The University of London rated the ICN as the top IC website for accuracy, credibility, readability and quality. (Int Urogynecol J - April 2013). Harvard Medical School rated both Medscape and the ICN as the top two websites dedicated to IC. (Urology - Sept 11). Jill currently serves on the Congressionally Directed Medical Research Panel (US Army) where she collaborates with researchers to evaluate new IC research studies for possible funding. Jill has conducted and/or collaborates on a variety of IC research studies on new therapeutics, pain care, sexuality, the use of medical marijuana, menopause and the cost of treatments, shining a light on issues that influence patient quality of life. An IC support group leader and national spokesperson for the past 20 years, she has represented the IC community on radio, TV shows, at medical conferences. She has written hundreds of articles on IC and its related conditions. With a Bachelors Degree in Pharmacology and a Masters in Psychology, Jill was named Presidential Management Intern (aka Fellowship) while in graduate school. (She was unable to earn her PhD due to the onset of her IC.) She spends the majority of her time providing WELLNESS COACHING for patients in need and developing new, internet based educational and support tools for IC patients, including the “Living with IC” video series currently on YouTube and the ICN Food List smartphone app! Jill was diagnosed with IC at the age of 32 but first showed symptoms at the age of 12.