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  1. #1
    ICN Member
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    Worried..wedding and vacation

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    I was told yesterday I have IC and have been having symptoms for about 6 weeks. I am supposed to be getting married and going to Jamaica for 2 weeks in June. I am worried I wonít be better and will have nothing to eat there with my ic diet. I only have until 13th to cancel everything to get refund. Do I cancel? Will I feel better by then? Right now I am miserable in pain.

  2. #2
    ICN Staff ICNDonna's Avatar
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    Re: Worried..wedding and vacation

    Quote Originally Posted by Keblh4 View Post
    I was told yesterday I have IC and have been having symptoms for about 6 weeks. I am supposed to be getting married and going to Jamaica for 2 weeks in June. I am worried I won’t be better and will have nothing to eat there with my ic diet. I only have until 13th to cancel everything to get refund. Do I cancel? Will I feel better by then? Right now I am miserable in pain.
    Have any treatments been ordered for you? Any medications? I haven't been to Jamaica, but I managed diet very well in Hawaii. In Hawaii most restaurants serve a "catch of the day" fish, which I loved. And even if I'd had to live on crackers and cheese the atmosphere there would have made me happy. You have four months between now and June --- here's what I suggest: Get really serious about diet --- follow the IC diet 100% --- and keep a diary, listing everything that goes in your mouth, activities, urinary frequency, pain levels.

    If the worst happened, usually a doctor's verification will extend cancellation dates. If you're really worried, you might want to check that out.

    Sending best wishes for a wonderful wedding, honeymoon, and a long happy marriage,
    Donna
    Have you checked the ICN Shop?
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    Sub-types https://www.ic-network.com/five-pote...markably-well/

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    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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    Anyone who says something is foolproof hasn't met a determined fool

  3. #3
    ICN Member
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    Feb 2018
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    Re: Worried..wedding and vacation

    Thank you Donna. I am following ic diet but am struggling since I am a picky eater and the cheese is making me constipated which isnít helping my pain! I got started on Amitryptiline yesterday. I am also on Vesicare and have pyridum but donít notice those helping. Next appt is 22nd with an ic specialist out of town and March 8 with a local urologist that will hopefully be better than the last one.

  4. #4
    ICN Staff ICNDonna's Avatar
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    Re: Worried..wedding and vacation

    Quote Originally Posted by Keblh4 View Post
    Thank you Donna. I am following ic diet but am struggling since I am a picky eater and the cheese is making me constipated which isn’t helping my pain! I got started on Amitryptiline yesterday. I am also on Vesicare and have pyridum but don’t notice those helping. Next appt is 22nd with an ic specialist out of town and March 8 with a local urologist that will hopefully be better than the last one.
    When you see the "new" doctors, be sure to keep in mind that diagnosing can take time and some ruling out of other possible problems --- so it can be important to consider how easy he/she is to talk with, and whether he/she sounds like someone who will work with you to help you feel better. It took me several months working with one doctor to reach a diagnosis --- and he treated my IC for over thirty years until he retired (I definitely miss him!).

    If you're having constipation problems, you might want to consider a stool softener for a while.


    Donna
    Have you checked the ICN Shop?
    http://www.icnsales.com for US & Canada
    http://www.icnshop.com for all others

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/




    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [IMG]

    Anyone who says something is foolproof hasn't met a determined fool

  5. #5
    ICN Member
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    Oct 2013
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    4

    Re: Worried..wedding and vacation

    I'm so sorry you are having this pain and new diagnosis during what should be a happy time. I agree with Donna, not to worry about what you will eat --your honeymoon sounds lovely and you might find choices easier than our highly processed modern diet. For me, two things really made a difference for me. First, the diagnosis. It's hard to hear but after I realized why I had been experiencing this pain, it took away some of the stress which for me is a major component in my IC flairs. Next, the diet I found here was really helpful to me so that I could focus on what I could eat. I know it feels like there is nothing right now (I felt that way too), but after I realized that the stress over diet was continuing my flare, I eased up on myself and just ate the things on the safe list without worrying about when I would ever be able to eat "normally". That led to the end of my flare, and besides Vesicare, I have been able to keep flares to a minimum almost by diet alone (I am also careful to eat comfort foods when stressed or taking long car rides which could start a flare) . I remember reading great posts here, but still feeling I would never be able to figure out my diet, but I was expecting to do it too fast. After years of having no idea about my IC, I feel I had built up a lot of bad eating habits for IC --such as constantly drinking cranberry juice thinking it was good when actually it was hurting me. I remembered that I had actually told a former doctor that I thought the cranberry juice was making it worse, even though I thought that was crazy. So realizing that I wasn't crazy and that I needed to give my body a break from all the acid (oh my gosh, I love vinegar and tomatoes), spice, and soy that I had been eating constantly. Eventually, I was able to add back in a lot of things that don't bother me...but they did seem to all bother me back then because of the flare. And once I had kind of cleared out a daily diet of flare-causing things, I noticed what really bothers me that I need to stay away from. For me, that's things like vinegar--I will feel a little pain after having a strong vinaigrette--so I can choose that it's not worth it. But a little citrus is tolerable as long as I'm not drinking a huge glass of lemonade.

    So in other words, it's normal to feel like there is nothing you can eat right now. First focus on easing your pain, and being kind to yourself. Stress relief, which I know is hard, is key. You are on the right track. And soon you will feel your ability to choose a good diet is a valuable tool in feeling good.

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