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  1. #1
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    First Instillation...

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    Is it typical to have a lot of bleeding after an instillation even if it was only lidocaine and elmiron in the solution?

    I'm ordering the regular instillation but on my last visit I did a rescue one just to get some idea what the regular therapy would be like. I was fine on the way home in fact I was able to avoid voiding for like three hours which is pretty good for me. But I realized when it felt a little uncomfortable I should void and then the effects of having had a catheter came into play so that was uncomfortable. I just don't know if the bleeding was only from the catheter irritating my urethra or if my bladder was bleeding for several hours afterwards?

    Also the new compounding for instillation is lidocaine and Hyaluronic acid. Does anyone have any experience with what happened to me above or with the new instillation medication?

  2. #2
    Support Volunteer L. Thomas's Avatar
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    Re: First Instillation...

    I haven't read that anyone has had a lot of bleeding. I have had a show of blood a couple of times in the time I have been doing instillations (more than 10 yrs) but never a flow of blood. I would consider that unusual and would make sure I called the MD.

    There are a number of post about instillations with Hyaluronic acid on the forum. My instillations are lidocaine and heparin.
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  3. #3
    ICN Staff ICNDonna's Avatar
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    Re: First Instillation...

    I suggest you telephone your doctor's office, especially if there is still blood in your urine. For one thing, an infection can build rapidly in the bladder and can cause the urine to look almost like pure blood --- which can be very scary.

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  4. #4
    ICN Member
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    Re: First Instillation...

    The blood went away the same day and did not return and I have not felt especially worse. I was able to see the whole of The Shape of Water without leaving for a break which is something I did for a while but stopped being able to do. However I've also had to go in the middle of a tv show. I had severe Hunner lesions when I had my Cystoscopy 2 years ago, and my doctor explained recently they may never fully heal and I believe that has a lot to do with the blood. It's why she and I both believe bladder distention would be more harmful to me than helpful. We were going to use the instillations that included heparin but the compounding pharmacy she contacted to order it said they no longer use that formulation and it's now replaced by Hyaluronic acid. Also I've had two completely unexplained incidents of my urine being full of blood with no infection or any sign of a bladder stone. They were a year apart but I've had a hard time getting back to a better more stable place since those happened. I am going to still try the instillation of the Lidocaine and Hyaluronic Acid. If that also causes a lot of blood and pain for later that day I will decide from there whether it was worth it. I wonder if using the Elmiron and it being a minor blood thinner had something to do with it as well. Thank you for pointing out that there are other posts about the Hyaluronic Acid instillations. I had assumed it was very new since this was the first time my doctor seemed to be made aware of it.

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