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  1. #1
    ICN Member
    Join Date
    Jan 2018
    Posts
    1

    Newly diagnosed with Interstem

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    Today I have been in so much pain. Interstem not working. Diet is frustrating. Do you all have a meal plan? I'm so tired and frustrated and is restless.
    Last edited by Pinksuccess2; 01-04-2018 at 03:43 PM. Reason: Spelling

  2. #2
    ICN Member
    Join Date
    Jan 2017
    Posts
    39

    Re: Newly diagnosed with Interstem

    Try baking soda in water, bout tsp in little water, taste horrible but may help, also azo.
    Symptoms since 2011
    Diagnosed Jan 2016 with hydro, no hunners, worked for a couple months, had a second last July. Don't work too long for me.
    Tried, Detrol, Ditropan, Vesicare, Uribel, My-something. Too many to remember.

    Elavil 25 mg morning
    Elmiron 200mg morning and night
    25 mg Hydroxyzine bedtime


    Baking soda and Oxytrol sometimes helps.
    vaginal valium if needed, doesn't seem to do much for me..

    Just keeping the faith!!

  3. #3
    ICN Member
    Join Date
    Jan 2017
    Posts
    39

    Re: Newly diagnosed with Interstem

    Might also want to try prelief, these are all ovtc things that help me when needed but I stay on scripts.
    Symptoms since 2011
    Diagnosed Jan 2016 with hydro, no hunners, worked for a couple months, had a second last July. Don't work too long for me.
    Tried, Detrol, Ditropan, Vesicare, Uribel, My-something. Too many to remember.

    Elavil 25 mg morning
    Elmiron 200mg morning and night
    25 mg Hydroxyzine bedtime


    Baking soda and Oxytrol sometimes helps.
    vaginal valium if needed, doesn't seem to do much for me..

    Just keeping the faith!!

  4. #4
    ICN Staff ICNDonna's Avatar
    Join Date
    Mar 2000
    Location
    Oregon
    Posts
    41,963

    Re: Newly diagnosed with Interstem

    Prelief with the first bite of food.

    Donna
    Have you checked the ICN Shop?
    http://www.icnsales.com for US & Canada
    http://www.icnshop.com for all others

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/




    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [IMG]

    Anyone who says something is foolproof hasn't met a determined fool

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