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  1. #1
    ICN Member mandykins's Avatar
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    Pregnant and not lucky.

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    I'm re-writing this post, as the previous one was filled with anxiety and clearly didn't get my points across.

    Why I wrote the post: I felt overwhelmed and terrified because the pain from IC will only get worse as pregnancy progresses. Birth will likely also be traumatic, and although I've done research, there is no foolproof way to further avoid damaging my entire bladder/crotch region. I held off an extra few hours on using azo yesterday, and my urethra kept throbbing and crotch burned for an hour after. I will not be able to mentally handle the pregnancy if I'm told to quit AZO by drs. As much as that's up for debate, the only compromise I'll make if asked to is to reduce my usage to once at night (nocturia) rather than twice a day (always get dehydrated overnight even if i drank water, it's a curse).

    AZO was the focus of my post.

    Now the other points I brought up:
    I know nausea is normal. My reason for bringing that up is if someone was to tell me to change my diet. My body has always been picky about food and what it needs to eat to not feel sick. Even before being pregnant I'd get nauseated from hunger if i didn't eat enough of something solid like a slab of meat, or a bunch of bread.

    I did try the IC diet, and it did NOT work for me. The only relief I had after a month and a half of the diet was a mere 2 days of being in almost no pain but I still had a dull ache, and then my period started and just like before, my diet didn't matter and my crotch still burned. A lot of mine is clearly hormone related. It's also not possible to avoid irritants when you have to take them for your baby's health. Very hardcore acidic drinks DO affect me so I stopped drinking them a long time ago, but pregnancy requires vitamin c. I also stopped taking B12 which is also required during pregnancy. I will be in pain REGARDLESS of my diet.

    The only real control I have is over whether or not I can take pain relievers to help or not.
    The AZO was the focus of my post. And the fear the new Dr's I haven't seen yet won't even believe my condition is real or won't take it seriously. I don't like confrontation, and don't want to have to argue with a dr over what I need to do to keep sane. I've even heard bladder problems can lead to spasming/contractions that trigger early birth, and that is definitely not favorable.
    Last edited by mandykins; 10-13-2017 at 08:16 AM. Reason: First post was disorganized and unclear.

  2. #2
    ICN Staff ICNDonna's Avatar
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    Re: Pregnant and not lucky.

    Unfortunately, it's not unusual to experience nausea during early pregnancy --- also not unusual to have strange cravings. Fortunately the nausea usually abates after a few weeks. I do encourage you to stick with the IC diet (see diet information at the link in my signature below). I hope you'll be able to see your doctor soon.

    Warm hugs,
    Donna
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    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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  3. #3
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    Re: Pregnant and not lucky.

    I think AZO is not allowed during pregnancy. For me my pain doc said, not to play with any other meds, I am to continue with Tramadol (before 200 gr, now 50 gr a day). It IS the most safe, funnily.

  4. #4
    ICN Member mandykins's Avatar
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    Re: Pregnant and not lucky.

    Hey Donna.

    I wanted to apologize for being a bit snippy when I updated my post a while ago. I was very stressed out and having anxiety attacks, and was looking for a different answer. I know you're trying to help, and thank you. Unfortunately, I've already been given the diet advice and it doesn't work while my hormones are fluctuating.. Nor can I follow that diet while pregnant, as I have very few things I can eat now, and most of those things are the complete opposite of what the diet entails. I crave bitter/acidic fruits, juice, and pickles. Foods I used to rely on while following the diet - I have an aversion to as most of them are sweet or too bland and even cantaloupe has a moldy aftertaste. I can't do sweets with this pregnancy, at least not right now.

    I'll finally be seeing a dr to test my levels to make sure everything is normal 4 days from now.
    Thanks again for your thoughts.
    Conditions:
    Interstitial Cystitis
    Vaginismus (mention of PFD)
    PCOS
    General Anxiety Disorder

    Treatments/Supplements:
    Fiber Choice Chewables
    Probiotic - Ultimate Flora Women's 25 Billion
    AZO Maximum Pain Relief
    Prenatals One A Day

  5. #5
    ICN Member mandykins's Avatar
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    Re: Pregnant and not lucky.

    Quote Originally Posted by krist656 View Post
    I think AZO is not allowed during pregnancy. For me my pain doc said, not to play with any other meds, I am to continue with Tramadol (before 200 gr, now 50 gr a day). It IS the most safe, funnily.
    Hey Krist,

    Azo Pain Relief/Pyridium is listed as Category B, and generally considered safe during pregnancy. Whether or not a dr will decide to reject the medication seems to be based on opinion.

    How effective is the Tramadol? My pain is exclusively in my urethra, and it varies from intense burning to stinging.
    Using something addictive like Tramadol (internet says it is) scares me. Not only would the side effects make me completely worthless until they passed (If they did) I've always had troubles with constipation. This problem with dehydration/constipation is much worse since getting pregnant as many days I even have an aversion to water and have to rely on juice. I'm also way too sensitive to smells and off put by veggies.

    Something I am concerned about: for 5.5 weeks of the pregnancy I took fiber gummies I didn't realize had an added ingredient that wasn't safe in it. 200 mcg of chromium... WAY too high a dosage while pregnant. And that isn't responsible for my terrible appetite because with it completely out of my system I feel exactly the same with nausea/general disinterest in food. Also, before getting pregnant I had mad cravings for sugar, something I haven't been able to touch since getting pregnant without getting really sick.

    EDIT: I looked up Tramadol safety, and it's listed as Category C, supposedly more dangerous than AZO.
    And I just found this quote "Can taking tramadol in pregnancy cause miscarriage? A single small study of around 150 women using tramadol to treat pain in early pregnancy showed that they were about four times more likely to have a miscarriage than pregnant women not using tramadol."
    I'm already at higher risk for miscarriage just through having PCOS. This is scary.
    Last edited by mandykins; 11-02-2017 at 12:22 AM.
    Conditions:
    Interstitial Cystitis
    Vaginismus (mention of PFD)
    PCOS
    General Anxiety Disorder

    Treatments/Supplements:
    Fiber Choice Chewables
    Probiotic - Ultimate Flora Women's 25 Billion
    AZO Maximum Pain Relief
    Prenatals One A Day

  6. #6
    ICN Staff ICNDonna's Avatar
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    Re: Pregnant and not lucky.

    I'm glad you will be seeing your doctor. How far along are you?

    I hope your doctor will give you some good advice for pain control. If there are pain medications that are safe for both you and your wee one, please try not to worry about addiction if you just take them as needed and not full time. If you need them full time, when no longer needed your doctor/s will help you wean away from them. I absolutely understand what you are going through --- I had one pregnancy that was horrible --- there were so many things that just smelling could make me vomit, sometimes right in the street, once at a bus stop (I had to wait for the next bus). As the pregnancy progresses, you may feel better --- and soon you will be able to hold your little one in your arms.

    Warm hugs,
    Donna
    Have you checked the ICN Shop?
    http://www.icnsales.com for US & Canada
    http://www.icnshop.com for all others

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/




    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [IMG]

    Anyone who says something is foolproof hasn't met a determined fool

  7. #7
    ICN Member
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    Re: Pregnant and not lucky.

    As Tramadol has been only thing helping me until now, I can trust my pain doc (anesthesian) from hospital that it is more safe as Lyrica, Gabametin, Elmiron and so on, while it is addictive (I never felt it though), but is not supposed to make birth defects on babies. I use it every day, not occasionally. Otherwise awful burning, bladder cramps, frequency, pain. I am really unlucky with bladder cramps, have them for years, cramps running until toes. I find that to be more dangerous to baby!
    Never worried about miscarriage though, while my gyno said from first ultrasound that I have a big hematome and it is very likely I have miscarriage anyway. I never wanted to have child because of IC and that you can give IC to your child, so I was more relieved, honestly. Only my husband wants a child badly.. But during a time hematome disappeared and in few days it is 3 months now, so... dont believe anything happens any more, likely.
    Child was not planned, I have endometriose which was just partly removed by surgeon in March and I am almost 40, so just 1 time I said to my husband in 7 years, ok, we do it without condom.. 1 time was enough, even though my friend with endometriose have not got pregnant in 4-5 years.. And while it happened like that, I guess I just gave up!
    I feel sich from sweet things as well all the time.. and used to like sweet a lot. But I do not keep diet, never tried, being on Tramadol was enough to even drink coffee sometimes. Not any more now, though my blood pressure really needs it now, and doc suggested it.. But being on 50 gr only evenings is not the same as 2 times 100 mg a day, so I need to be more careful, also joghurt is out of list now. Mostly I eat but everything. And of course I go on with Uropol instillations. If you do not do it already, you should order Uracyst from Canada, it is very soothing and safe during pregnancy as it only stays in bladder to heal the bladder lining.
    Side effects from Tramadol I never had, only when I took more than 100 mg in the evenings when pain was bad (period and ovulation, never food related, only hormons!!!!) then I felt sich next day and even needed to throw up (before pregnancy). With 50 mg, very bad days 100 mg now I feel no side effects (and also never feeling of being high, just good feeling not having burning, pain, bladder cramps...)

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