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  1. #1
    ICN Founder icnmgrjill's Avatar
    Join Date
    Mar 2000

    Daily Fact #8 - Many women have had an unnecessary hysterectomy

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    Some patients have had inappropriate hysterectomies only to discover, after the fact, that their pelvic pain was originating from their bladder. IC patient Angela Burch won a $2,000,000 federal medical malpractice settlement in Florida when her ob-gyn needlessly removed her healthy uterus even after the urologist reported that she had interstitial cystitis. This is not unusual. Many physicians, particularly ob-gyns, primary care or emergency room personnel, are poorly trained in the diagnosis and treatment of bladder pain patients. Educating gynecologists and primary care providers is a critical need.

    If you’ve had an inappropriate hysterectomy we would love to hear your story. Why was it suggested? When was it done?? When did you find out that your pain was actually coming from your bladder?? How do you feel about it now?
    Would you like to talk with someone about your IC struggles? The ICN now offers personal coaching sessions that include myself, Julie Beyer RD on the diet and Dr. Heather Howard on Sexuality.

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  2. #2
    ICN Member
    Join Date
    Oct 2017

    Re: Daily Fact #8 - Many women have had an unnecessary hysterectomy

    Maybe this is related to how doctors misunderstand female medical conditions. I read an article on NPR which said only 6% of urologists are female.
    Also, doctors have biases about female patients, which leads to misdiagnosis, mistreatment, and general failure to act to treat IC symptoms and pain. I think you will find these articles helpful. Doctor ignore or dismiss chronic pain in women -even outside the scope of interstitial cystitis and other autoimmune diseases.

    How Doctors Take Women's Pain Less Seriously, by The Atlantic Monthly


    Mistreated: Four out of Five Doctors are Wrong

    Doctors, Stop Gaslighting Women In Pain

    Medical Gaslighting

    ME/CFS: Gaslighting- What to do When Doctors Don't Believe You

    Medical Sexism and Fibromyalgia

    ‘Gaslighting’ – or, why women are just too darned emotional during their heart attacks

    The Gas-Lighting Physician

    Why Doctors Don’t Listen to Endo Patients

    “It’s All in Your Head!” - How A Patients Health Suffers When Medical Professionals Doubt Them.

    Why (Some) Doctors Don’t Take Your Chronic Pain Seriously

    Petition: Stop Power-Hungry Doctors From Bullying, Gaslighting, and Blacklisting Their Patients!

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