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  1. #1
    ICN Member
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    Help for night time urgency!

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    I am newly diagnosed with IC. Usually my symptoms do not bother me during the day. However, when I get into bed at night the urgency keeps me awake. Does anybody have any advice for ways to calm down the urgency feeling? I do not wake up once I do fall asleep and I can usually sleep a full eight hours. My biggest problem is relaxing enough to fall asleep.

  2. #2
    ICN Staff ICNDonna's Avatar
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    Re: Help for night time urgency!

    When I have trouble falling asleep, I usually will read for a while until I'm sleepy and relaxed. Or I have at times even got up and watched TV for a while. It's good that you sleep well once you relax.


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  3. #3
    ICN Member
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    Re: Help for night time urgency!

    The only time I can sleep any is if I take a Neurontin 100mg about an hour before bed. Even with that the urgency gets me up several times a night but it does help me relax enough to fall asleep.

  4. #4
    ICN Member
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    Re: Help for night time urgency!

    A heating pad on my pelvic area at night helped a great deal. So did an antihistamine (Bendadryl or Atarax)

  5. #5
    ICN Founder icnmgrjill's Avatar
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    Re: Help for night time urgency!

    That sense of urgency is usually coming from the alpha afferent nerve in the bladder wall... thus night time symptoms usually suggest that that nerve has been irritated during the day in some way. Diet is the number one culprit. In fact, I had a flare last night after eating some beets that I think had Ascorbic Acid as a preservative. I couldn't fall asleep until about 3am and that was after putting a video on my iPad to just try to bore me to sleep. Still woke up several times afterwards!

    Jill
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  6. #6
    ICN Member jeanniebug's Avatar
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    Re: Help for night time urgency!

    Hi I've had IC for 15 years and have some tricks for when night frequency is at its worst:

    * Use my portable TENS unit. Walgreen's sells these over the counter. One is made by Aleve. There's another that's a Walgreen's brand. From what I can tell they're the same strength as the one I got from my insurance company a few years ago. I place 2 electrodes over my bladder area, and 2 electrodes on my lower back or, sciatic area. I turn mine up pretty high. The nerve stimulation/massage is incredibly soothing.

    *AZO Standard tablets. These are sold over the counter. Be sure to NOT buy the version that has cranberry, just regular AZO Standard. It will turn your urine orange and stain clothes, so panty liners are recommended.

    *Dissolve 1/2 to 1 tsp baking soda in water/drink it up. This helps get the urine in an alkaline state and takes the "burn" off my pain. For me it also helps with bladder/urethra spasms. The only thing with this is, if you have high blood pressure or any medications/conditions that contradict taking sodium, check with your doctor first to be sure baking soda would be safe for you.

    *HEATING PAD!!!! AHHHHH feels soooo good!!!

    *I put on a sleep hypnosis meditation or relaxation meditation on YouTube. YouTube has tons of free meditations to choose from, even ones for pain if you look around using their search engine.

    To be honest if my pain/frequency are really bad, I've done all of the above at the same time. Desperate times = desperate measures, but it sure helps!
    Jeannie
    "She stood in the storm, and when the wind did not blow her way, she adjusted her sails." -Unkown

    IBS/Endometriosis/Prolasped Uterus/CFS, ME/Fibromyalgia/Refractory IC/Celiac Disease/Autonomic Nervous System Dysfunction (Immune System issues) B12, Vit D deficiencies

    Many surgeries over the years, mainly: Total hysterectomy/Gallbladder & Thyroid removed

    Treatments: Tried all except Interstim, Botox injections and bladder removal. I've never been in remission.

    Daily-Prednisone steroid down to 3mg long-term, Demerol 50mg, Diazepam 2mg
    As needed-Home TENS unit, AZO Standard, Marshmallow Root Capsules, D Mannose powder, Prelief. STRICT IC DIET or I'm bed ridden. I'm under the care of a Pain Management Clinic.

    Was on SS Disability for IC 2004-2006. Back to work 10 years. Annnnd-My bod gave out. Back on Disability as of Aug 2016. WE NEED A CURE!!

  7. #7
    ICN Member jeanniebug's Avatar
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    Re: Help for night time urgency!

    Also my doctor gives me 2mg generic Valium (Diazepam) for frequency. It helps my bladder spasms alot, especially at night since it relaxes me. Some IC'ers Diazepam helps, others it does not, but might be worth asking your doctor about.
    Jeannie
    "She stood in the storm, and when the wind did not blow her way, she adjusted her sails." -Unkown

    IBS/Endometriosis/Prolasped Uterus/CFS, ME/Fibromyalgia/Refractory IC/Celiac Disease/Autonomic Nervous System Dysfunction (Immune System issues) B12, Vit D deficiencies

    Many surgeries over the years, mainly: Total hysterectomy/Gallbladder & Thyroid removed

    Treatments: Tried all except Interstim, Botox injections and bladder removal. I've never been in remission.

    Daily-Prednisone steroid down to 3mg long-term, Demerol 50mg, Diazepam 2mg
    As needed-Home TENS unit, AZO Standard, Marshmallow Root Capsules, D Mannose powder, Prelief. STRICT IC DIET or I'm bed ridden. I'm under the care of a Pain Management Clinic.

    Was on SS Disability for IC 2004-2006. Back to work 10 years. Annnnd-My bod gave out. Back on Disability as of Aug 2016. WE NEED A CURE!!

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