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  1. #1
    ICN Member
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    Apr 2015
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    Hydrodistention Done Today

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    Hello everyone!

    I had my first cystoscopy with hydrodistention done today under anesthesia. I was fortunate enough to not need anything to relax me (and I also didn't want anything extra making me feel loopy after). I woke up with some pain and they gave me some pain medication through my IV and a B&O suppository. The pain receded after that. Now that I'm home, I'm having some pain again with a lot of frequency. The pain is tolerable, though. After six hours, I took another B&O and I'm waiting for that to work its magic again.
    When I first woke up after a nap when I got home, I couldn't pee at all. I called the doctor's office and they wanted me to go in for a scan, but shortly after that I was peeing fine so I cancelled the scan.

    My question is how long does blood come out? I've had a small amount of blood after urinating three times, but those were all within an hour and a half of each other. The frequency is normal, too, right? That's one of my main symptoms when I flare up, and since I was told it often gets worse before it gets better and that bladder spasms are normal, I figure that this is too.
    Can anyone ease my mind?
    Last edited by Caroline09; 06-19-2017 at 10:38 AM.

  2. #2
    ICN Member
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    Apr 2015
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    Re: Hydrodistention Done Today

    Update:
    It's now been six days since the hydrodistention. I had blood in my urine from Monday through Friday that steadily lessened. The night of my first full day back to work, I had more blood in my urine. I called the doctor the next day and he said it was normal to have bleeding for several days afterwards, and that the stress of being on my feet all day contributed to the increase in blood that night. He said as long as it wasn't getting worse, it was okay.
    Yesterday was my "okayest" day. Today has been wonderful. I usually go to the bathroom ten to fifteen times a day on a regular day, and I've been going between six and eight times for the past two days. There was a lot of frequency for several days, but it has clearly lessened.
    I'm keeping my fingers crossed that how I'm feeling now will continue for a long time.

  3. #3
    ICN Staff ICNDonna's Avatar
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    Re: Hydrodistention Done Today

    I hope you will experience many months of relief. Thank you for sharing --- learning about your experience can be a help to others considering this option. Did you have it as a treatment, or was it a diagnostic procedure?


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  4. #4
    ICN Member
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    Apr 2015
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    Re: Hydrodistention Done Today

    Thank you, one of the main reasons I posted is because I figured my situation will help someone out with their worries or questions! I had it as both a treatment option and diagnostic. My doctor said that it isn't IC, thankfully, but he's treating me as such. Same diet, same treatment options. As of right now, I think he said my bladder lining is inflamed, I have overactive bladder, and painful bladder syndrome. I was pretty out of it when he told me, so I'm going to clarify when I go back for my follow up.
    I'm hoping that it never turns into IC, but this site has been a wealth of knowledge and help to me for the past few years even though I don't have it.

  5. #5
    ICN Member my2boys99's Avatar
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    Dec 2010
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    Michigan
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    Re: Hydrodistention Done Today

    Hi Caroline, the BO suppository really helped me too. I had a lot of pressure and frequency after my cysto/hydro for a week or so. Each week after got a little better until about week 4 when I felt wonderful! That was over 3 years ago and I haven't needed another one...yet. I have had a few nasty flares, but have managed to overcome them on my own.

    I'm glad you're starting to feel better!
    Jane
    Diagnosed 1/7/14 via cysto/hydro

    Current Treatment:
    10 mg amitriptyline, DH Aloe Vera

    Used During Flares:
    Uribel, extra DH Aloe Vera, Klonopin and Tramadol (as needed)

    Practicing bladder training and stress control (hot baths, pelvic stretching)
    Recently tried PT, do not appear to have PFD

    Things that have not helped in the past:
    Oxybutynin, Vesicare, Pyridium, Myrbetriq, Vagifem

    Also have migraines and IBS

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