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Thread: how to afford

  1. #1
    ICN Member
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    Oct 2016
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    how to afford

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    How do you afford Elmiron and other drugs? My father says he won't pay for elmiron or anymore drugs, I just have to live with it. I do live with it, I've been trying to sleep about 13 hours withh eat pad on and off a day or more. I don't have much money at all. I wish I was never born ... anyway, how do you afford all of this? I have no career, never worked, nothing.
    Last edited by ICNDonna; 03-25-2017 at 07:14 AM.

  2. #2
    ICN Member green_the_fish's Avatar
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    Re: how to afford

    That sounds like a really difficult situation. Assuming you're in the U.S., are you eligible for Medicaid (https://www.healthcare.gov/medicaid-chip)? That's what I used to pay for Elmiron before I discovered menstrual cessation as a treatment. For the past 12 years, menstrual cessation has been the only treatment I need to manage my IC, and even Planned Parenthood can manage it for me, which is cheap. I know menstrual cessation doesn't work for everyone, though. I hope you find a treatment that works for you soon so that you don't have to feel this way.

    Chronic conditions: IC, bipolar disorder, Lown-Ganong-Levine syndrome, Raynaud's disease, bile reflux, scoliosis
    Current IC treatments: menstrual suppression, avoiding trigger beverages
    Treatments for other conditions: Neurontin, Zyprexa, Marinol (as needed)

  3. #3
    ICN Member
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    Texas
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    944

    Re: how to afford

    I go through Imprimis pharmacy and that's the only way I can afford the "generic" Elmiron (PPS-DR). Google them. It is much cheaper and I've been using them for almost a year.

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  4. #4
    ICN Member
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    Mar 2017
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    Re: how to afford

    Don’t lose hope….disappointment only worsens the situation. You can apply in the state funded programs or seek help from local NGO’s. Hope you find the right treatment soon....

  5. #5
    ICN Staff ICNDonna's Avatar
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    Oregon
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    41,963

    Re: how to afford

    You could talk with your doctor to ask for help with elmiron --- the drug company has a program to help those who can't afford it. And please stick with the IC diet --- that can be a huge, huge help.

    Sending gentle hugs,
    Donna
    Have you checked the ICN Shop?
    http://www.icnsales.com for US & Canada
    http://www.icnshop.com for all others

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/




    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [IMG]

    Anyone who says something is foolproof hasn't met a determined fool

  6. #6
    ICN Member
    Join Date
    Oct 2017
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    3

    Re: how to afford

    I have insurance and the Elmiron coupon system, it was still over $100 for a month's supply

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