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  1. #1
    ICN Member
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    Dec 2015
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    95

    Low Dose Naltrexone

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    Anyone have experience with this medication?
    Diagnosed Dec 2015 via cystoscopy

    Current treatments - Elmiron 100 mg. 3x daily (this is hard to manage on an empty stomach, but I'm trying), Amitryptiline 25mg, IC Diet

    Other medications - Imitrex (as needed for migraines), Levothyroxine (Hashimoto's)

  2. #2
    ICN Member Aaarrrggghhh's Avatar
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    Apr 2015
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    Australia, south australia,adelaide
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    926

    Re: Low Dose Naltrexone

    Sorry no not had any experience with that one. Just wanted to respond so you know we are out here :-)
    UTI 3/2015
    IC ,PFD
    prescribed meds: Endep 60mg, Elmiron 400mg, BC. Enablex 7.5mg.

    Supplements: Chitomur peptide, colostrum, Echinacea, liver detox swisse, calcium citrate, glucosamine, Psyllium Husk.

    Daily diet: Breakkie- oats with chia seeds and no fat milk. Post workout-turkey breast with mixed veggies. Lunch-raw green soup with rye roll and handful of peanuts/almonds. Dinner- changes but meat and veg. Dessert-banana and sugar free custard (homemade) or banana and apple bake with almonds cinnamon and honey with a dollop of coconut cream.


    Tried: tramadol, cystoprotek, multi right, diazepam, vesicare, Ditropan, mirabegron, Flomax, lyrica, progesterone.

  3. #3
    ICN Member mela414's Avatar
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    Nov 2004
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    New Jersey
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    1,513

    Re: Low Dose Naltrexone

    I just started this 2 days ago and am not handling it that well. I took it 2 nights ago at bedtime and woke with headache and nausea. Felt a better as the day went on.

  4. #4
    ICN Member mela414's Avatar
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    Nov 2004
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    New Jersey
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    Re: Low Dose Naltrexone

    Got cut off ....took it again last night and woke 2 hours later with frequency and pain...then again 2 hours later. By 5 am headache so took 2 Tylenol but the nausea was pretty bad. It's now 8 am and having toast but feel pretty awful. Not sure if I will continue. It also gave me a lot of stressful dreams that caused me to have racing heart. .

    I read online that if dreams and nausea were a problem it should be tried in the morning. I'll Have to take a break before I consider attempting again. I started in the lowest dose of 1 mg but I understand you can start with less than that and they can make it in a liquid. Right now I had it compounded in a gelatin capsule. I'll have to call the pharmacist to find out what exactly was used.

  5. #5
    ICN Staff ICNDonna's Avatar
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    Oregon
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    Re: Low Dose Naltrexone

    Quote Originally Posted by mela414 View Post
    Got cut off ....took it again last night and woke 2 hours later with frequency and pain...then again 2 hours later. By 5 am headache so took 2 Tylenol but the nausea was pretty bad. It's now 8 am and having toast but feel pretty awful. Not sure if I will continue. It also gave me a lot of stressful dreams that caused me to have racing heart. .

    I read online that if dreams and nausea were a problem it should be tried in the morning. I'll Have to take a break before I consider attempting again. I started in the lowest dose of 1 mg but I understand you can start with less than that and they can make it in a liquid. Right now I had it compounded in a gelatin capsule. I'll have to call the pharmacist to find out what exactly was used.
    Please do check with your doctor before you continue. It sounds like some pretty unpleasant side effects.

    Donna
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    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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  6. #6
    ICN Member
    Join Date
    Jun 2017
    Posts
    46

    Re: Low Dose Naltrexone

    Hi I was going to give this a try also as my alternative therapist has used it with success on a cancer patient. Here is what some people have to say about it.

    https://www.ldnresearchtrust.org/vid...itial-cystitis

    Apparently you feel worse before you get better.

    I hope your side effects are short lived.

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